Coping with genetic disorder: A sociological understanding of parent-caregivers' experiences

Illness Crisis and Loss

Volumn 13, Issue 4, 2005, Pages 315-331

  Roy, Tanuka ^a   Chatterjee, Suhita Chopra ^a  

^a INDIAN INSTITUTE OF TECHNOLOGY   (India)

Author keywords

Caregiving experiences; Hope; Intervention strategies; Meanings

Indexed keywords

EID: 31144443902     PISSN: 10541373     EISSN: 15526968     Source Type: Journal    
DOI: 10.1177/105413730501300403     Document Type: Article

References (19)

1. Bauman, Z. (1992). Mortality, immortality and other life Strategies. London: Polity Press.
2. Berger, P. L., & Luckmann, T. (1966). The social construction of reality. New York: Doubleday.
3. Chatterjee, S. (2001). A study on adaptation and coping strategies of the parents of Thalassaemic patients. Master Degree Dissertation. Dept. of Social Work. Shantiniketan: Visva-Bharati.
4. Choudhry, V. P. (2000). Thalassaemia: Care and control in the New Millennium. Mumbai: Novartis India Ltd.
5. Indian Council of Medical Research (ICMR). (1993). Collaborative study on Thalassaemia: An ICMR task force study. Delhi.
6. Kovacs, P. J., & Fauri, D. P. (2003). Formal and informal caregiving at the end of life. In C. D. Bryant (Ed.), Handbook of death and dying (Vol. 1). London: Sage Publications.
7. Kleinman, A. (1978). Concepts and a model for the comparison of medical systems as cultural systems. Cited in Kuper, A., & Kuper, J. (2004). The social science encyclopedia (3rd ed.; Vol. 2). London: Routledge.
8. Leaman, O. (1999). Key concepts in Eastern philosophy (p. 158). London: Routledge.
9. Leslie, C. M. (1977). Pluralism and integration in the Indian and Chinese medical systems. In D. Landy (Ed.), Culture, disease, and healing: Studies in medical anthropology (pp. 511-517). New York: Macmillan.
10. Lohne, V. (2001). Hope in spinal cord-injured patients: A literature review related to nursing study. Journal of Neuroscience Nursing, 33(6), 317-326.
11. Nadeau, J. W. (1998). Families making sense of death. London: Sage Publication.
12. Ohaeri, J. U. (2003). The burden of caregiving in families with a mental illness: A review of 2002. Current Opinion in Psychiatry, 16, 457-465.
13. Rice, P. L. (1966a). In quality we trust! : The role of qualitative data in health care. Medical Principles and Practice, 5, 51-57.
14. Rice, P. L. (1966b). My soul has gone: Appropriate methods for a delicate situation. In J. Daly (Ed.), Ethical intersections: Health research, methods and researcher responsibility. Sydney; Allen and Unwin.
15. Samta, S. (1989). A study on Thalassaemic patients in greater Mumbai. Master Degree Dissertation. Mumbai: TISS.
16. Thalassaemia Foundation Hospital. (2002), Kolkata Report.
17. The Telegraph. (2004, June 9). Blood poisons thirty children (p. 1). Kolkata.
18. Turner, B. S. (2000). The history of the changing concepts of health an illness: Outline of a general model of illness categories. In G. L. Albrecht, R. Fitzpatrick, & S. C. Scrimshaw (Eds.), Handbook of social sciences in health and medicine. London: Sage Publication.
19. Van Wijngaarden, B., Schene, A. H., & Koeter, M. W. J. (2004). Family caregiving in depression: Impact on caregivers daily life, distress, and help seeking, Journal of Affective Disorder, 81(3), 211-222.