Researching sensitive issues and ethnicity: Lessons from sexual health

Ethnicity and Health

Volumn 8, Issue 1, 2003, Pages 15-27

  Elam, Gillian ^a   Fenton, Kevin A ^a,b  

^a PUBLIC HEALTH ENGLAND   (United Kingdom)

^b ROYAL FREE AND UNIVERSITY COLLEGE MEDICAL SCHOOL   (United Kingdom)

Author keywords

Culture; Qualitative; Quantitative; Race; Research methods; Sensitivity

Indexed keywords

ACADEMIC RESEARCH; ETHNICITY; METHODOLOGY; SEXUAL BEHAVIOR;

BEHAVIOR; COMMUNITY CARE; CONFIDENTIALITY; ETHNOLOGY; INTERVIEW; MEDICAL ETHICS; MEDICAL RESEARCH; POPULATION; QUALITATIVE ANALYSIS; REVIEW; SEXUALITY;

EID: 0041519189     PISSN: 13557858     EISSN: None     Source Type: Journal    
DOI: 10.1080/13557850303557     Document Type: Review

References (49)

1. Bhopal R. (1997) Is research into ethnicity and health racist, unsound, or important science? British Medical Journal, 314, 1751.
2. Bhopal R. and Donaldson L. (1998) White, European, Western, Caucasian, or what? Inappropriate labelling in research on race, ethnicity, and health. American Journal of Public Health, 88, 1303-7.
3. Bitel M. and Kafeero S. (2000) The Evaluation of Community Participation in the MAYISHA Study. London: Partners in Evaluation.
4. Black N. (1994) Why we need qualitative research. Journal of Epidemiological Community Health, 48, 425-26.
5. Bloch A. (1999) Carrying out a survey of refugees: some methodological considerations and guidelines. Journal of Refugee Studies, 12(4), 367-83.
6. Bowling A. (2000) Research Methods in Health. Milton Keynes: Open University Press.
7. Bulmer M. (1986) A controversial census topic: race and ethnicity in the British census. Journal of Official Statistics, 2, 4.
8. Catania J.A., Gibson D.R., Marin B., Coates T.J. and Greenblatt R.M. (1990) Response bias in assessing sexual behaviours relevant to HIV transmission. Evaluation and Program Planning, 13, 19-29.
9. Chinouya M., Davidson O. and Fenton K. (2001) Sexual Attitudes and Lifestyles of Migrant Africans in Inner London. London: The Mayisha Study.
10. Chinouya M., Fenton K. and Davidson O. (1999) The MAYISHA Study: Taking Care of our Lifestyles: Social Mapping Report. Horsham: AVERT.
11. Copas A., Johnson A.M. and Wadsworth J. (1997) Assessing participation bias in a sexual behaviour survey: implications for measuring HIV risk. AIDS, 11, 783-90.
12. Del A., Erwin J., Fenton K. and Gray K. (2001) AIDS & Mobility: Looking to the Future. Migration and HIV/A1DS in Europe - Recent Developments and Needs for Future Action. Woerden: Netherlands Institute for Health Promotion and Disease Prevention. http://www.aidsmobility.org/future.html
13. Dunne M.P., Martin N.G., Bailey J.M., Heath A.C., Bucholz K.K., Madden P.A.F. et al. (1997) Participation bias in a sexuality survey: psychological and behavioural characteristics of responders and non-responders. International Journal of Epidemiology, 26, 844-54.
14. Edwards R. (1993) 'An education in interviewing - placing the researcher and the researched', in Lee R.M. and Renzetti C.M. (eds.) Researching Sensitive Topics. Thousand Oaks, CA: Sage. 181-96.
15. Elam G. (1999) Don't you understand me: matching interviewers and interviewees. Paper presented at the International Qualitative Health Research Conference, University of Newcastle, Australia.
16. Elam G. (2003a) Perspectives on the THT HIV Prejudice and Discrimination Campaign. London: Terrence Higgins Trust and Barnet Primary Care Trust.
17. Elam G. (2003b) Stopping Stigma with Awaredressers. London: Terrence Higgins Trust and Barnet Primary Care Trust.
18. Elam G. and Chinouya M. (2000) African Communities Living in the UK. London: Department of Health.
19. Elam G., Fenton K., Nazroo J., Johnson A. and Ritchie J. (1999) Exploring ethnicity and sexual health. London: National Centre for Social Research.
20. Elam G., McMunn A. and Nazroo J. (2001a) Feasibility Study for Health Surveys among Black Africans Living in England: Stage Three - The Health Experiences of People of African Origin Living in London. London: Department of Health.
21. Elam G., McMunn A. and Nazroo J. (2001b) Feasibility Study for Health Surveys among Black African People Living in England, Final Report - Implications for the Health Survey for England 2003. London: Department of Health.
22. Fenton K.A. (2001) Strategies for improving sexual health in ethnic minorities. Current Opinion in Infectious Diseases, 14(1), 63-69.
23. Fenton K.A., Chinouya M., Davidson O. and Copas A. (2001a) HIV transmission risk among sub-Saharan Africans in London travelling to their countries of origin. AIDS, 15, 1442-45.
24. Fenton K., Chinouya M., Davidson O. and Copas A. (2002) HIV Testing and high-risk sexual behaviour among London's migrant African communities: a participatory research study. Sexually Transmitted Infections, 78, 241-45.
25. Fenton K.A., Johnson A.M., McManus S. and Erens B. (2001b) Measuring sexual behaviour: methodological challenges in survey research. Sexually Transmitted Infections, 77(2), 84-92.
26. Fenton K., Johnson A.M. and Nicoll A. (1997) Race, ethnicity and sexual health. Can sexual health programmes be directed without stereotyping? British Medical Journal, 314, 1703-4.
27. Hedges A (1996) Confidentiality: The Public View. DSS Research Report No. 56. London: The Stationery Office.
28. Ingham R., Vanwesenbeeck I. and Kirkland D. (1999) Interviewing on sensitive topics, in Memon A. and Bull R. (eds.) Handbook of the Psychology of Interviewing. Chichester: Wiley. 145-64.
29. James N.J., Bignell C.J. and Gillies P.A. (1991) The reliability of self reported sexual behaviour. AIDS, 5, 333-36.
30. Johnson A.M., Mercer C.H., Erens B., Copas A.J., McManus S., Wellings K. et al. (2001) Sexual behaviour in Britain at the millennium: partnerships, practices and HIV risk behaviours. Lancet, 358, 1835-42.
31. Lee R.M. (1993) Doing Research on Sensitive Topics. London: Sage.
32. Lee R.M. and Renzetti C.M. (eds.) (1993) Researching Sensitive Topics. Thousand Oaks, CA: Sage.
33. McKenzie K.J. and Crowcroft N.S. (1994) Race, ethnicity, culture, and science. British Medical Journal, 309, 286-87.
34. National Aboriginal Health Strategy. (1989) National workshop on Ethics of Research in Aboriginal Health, ACT, Australia, in Ryan L. (1997) 'Researching minority ethnic communities: a note on ethics', in Egan O. (ed.) Minority Ethnic Groups in Higher Education in Ireland - Proceedings of a Conference Held in St. Patrick's College, Matnooth, 27 September 1996. Cork: Higher Education Equality Unit. www.ucc.ie/ucc/units/equality/pubs/minority/ryan.htm
35. Ndfor-Tah C., Hickson F., Weatherburn P., Ama Amamoo N., Majekodunmi Y., Reid D., Robinson F., Sanyu-Sseruma W. and Zulu A. (2000) Capital Assets: A Community Research Intervention by the African Forum in Redbridge and Waltham Forest (London). London: Sigma Research.
36. Power R. (2002) The application of qualitative research methods to the study of sexually transmitted infections. Sexually Transmitted Infections, 78, 87-89.
37. Rai D. (1995) In the Margins: Current Perspectives in Qualitative Social Research with Asian Communities. Hull: University of Humberside.
38. Ritchie J. and Lewis J. (eds.) (2003) Qualitative Research Practice. London: Sage.
39. Ross M.W. (1998) Race and ethnicity in STD analyses. Sexually Transmitted Infections, 74, 2-3.
40. Ryan L. (1997) 'Researching minority ethnic communities: a note on ethics', in Egan O. (ed.) Minority Ethnic Groups in Higher Education in Ireland - Proceedings of a Conference Held in St. Patrick's College, Matnooth, 27 September 1996. Cork: Higher Education Equality Unit. www.ucc.ie/ucc/units/equality/pubs/minority/ryan.htm
41. Saunders S.A. and Reinisch J.M. (1998) Would you say you 'had sex' if...? Journal of the American Medical Association, 281, 275-77.
42. Senior P.A. and Bhopal R. (1994) Ethnicity as a variable in epidemiological research. British Medical Journal, 309, 327-30.
43. Sieber J. (1992) Planning Ethically Responsible Research: A Guide for Students and Internal Review Boards. Thousand Oaks, CA: Sage.
44. Social Research Association (SRA). (2002) SRA Ethical Guidelines 2002. London: SRA. www.the-sra. org.uk
45. Spencer L., Faulkner A. and Keegan J. (1988) Talking about Sex. London: Social and Community Planning Research.
46. Wadsworth J., Johnson A.M., Wellings K. and Field J. (1996) What's in a mean? - an examination of the inconsistency between men and women reporting sexual partnerships. Journal of the Royal Statistical Society, 159, 111-23.
47. Wallman S. (1996) Ethnicity, work and localism: narratives of difference in London and Kampala. Ethnic Racial Studies.
48. Wellings K., Field J., Johnson A.M. and Wadsworth J. (1994) Sexual Behaviour in Britain. London: Penguin.
49. Wyatt G.E. (1991) Examining ethnicity versus race in AIDS related sex research. Social Science & Medicine, 33, 37-45.