The PedsQL™ in pediatric cancer pain: A prospective longitudinal analysis of pain and emotional distress

Journal of Developmental and Behavioral Pediatrics

Volumn 25, Issue 4, 2004, Pages 239-246

  Varni, James W ^a   Burwinkle, Tasha M ^b   Katz, Ernest R ^c  

^a TEXAS A AND M UNIVERSITY   (United States)

^b UNIVERSITY OF WASHINGTON   (United States)

^c UNIVERSITY OF SOUTHERN CALIFORNIA   (United States)

Author keywords

Cancer; Children; Emotional distress; Health related quality of life; Pain; Pediatrics; PedsQL

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CANCER PAIN; CHILD; CHILDHOOD CANCER; EMOTIONAL STRESS; FEMALE; FUNCTIONAL ASSESSMENT; HUMAN; LONGITUDINAL STUDY; MAJOR CLINICAL STUDY; MALE; MULTIPLE REGRESSION; NONBIOLOGICAL MODEL; PAIN ASSESSMENT; PARENT; PREDICTION; PRIORITY JOURNAL; PROSPECTIVE STUDY; QUALITY OF LIFE; RATING SCALE; SELF REPORT; TREATMENT PLANNING; CANCER CENTER; CROSS-SECTIONAL STUDY; FAMILY; MENTAL STRESS; MULTIVARIATE ANALYSIS; NEOPLASM; PAIN; PSYCHOLOGICAL ASPECT; REGRESSION ANALYSIS;

ADOLESCENT; CHILD; CROSS-SECTIONAL STUDIES; FAMILY; FEMALE; HUMANS; LONGITUDINAL STUDIES; MALE; MULTIVARIATE ANALYSIS; NEOPLASMS; ONCOLOGY SERVICE, HOSPITAL; PAIN; PARENTS; PROSPECTIVE STUDIES; QUALITY OF LIFE; REGRESSION ANALYSIS; STRESS, PSYCHOLOGICAL;

EID: 4444297544     PISSN: 0196206X     EISSN: None     Source Type: Journal    
DOI: 10.1097/00004703-200408000-00003     Document Type: Article

References (39)

1. Fayers PM, Machin D. Quality of life: Assessment, Analysis, and Interpretation. New York: Wiley; 2000.
2. Spilker B. Quality of Life and Pharmacoeconomics in Clinical Trials. Philadelphia: Lippincott-Raven; 1996.
3. Varni JW, Seid M, Kurtin PS. Pediatric health-related quality of life measurement technology: a guide for health care decision makers. J Clin Outcomes Manage. 1999;6:33-40.
4. Smith KW, Avis NE, Assmann SF. Distinguishing between quality of life and health status in quality of life research: a meta-analysis. Qual Life Res. 1999;8:447-459.
5. Mulhern RK, Ochs J, Armstrong D, et al. Assessment of quality of life among pediatric patients with cancer. Psychol Assess. 1989;1: 130-138.
6. Bradlyn AS, Ritchey AK, Harris CV, et al. Quality of life research in pediatric oncology: research methods and barriers. Cancer. 1996;78: 1333-1339.
7. Varni JW, Blount RL, Waldron SA, et al. Management of pain and distress. In: Roberts MC, ed. Handbook of Pediatric Psychology, 2nd ed. New York, NY: Guilford; 1995:105-123.
8. Varni JW, Blount RL, Quiggins DJL. Oncologic disorders. In: Ammerman RT, Campo JV, eds. Handbook of Pediatric Psychology and Psychiatry. Vol. II: Disease, Injury, and Illness. Boston: Allyn and Bacon; 1998:313-346.
9. Miser AW, Dothage JA, Wesley RA, Miser JS. The prevalence of pain in a pediatric and young adult cancer population. Pain. 1987; 29:73-83.
10. Elliott SC, Miser AW, Dose AM, et al. Epidemiologic features of pain in pediatric cancer patients: a cooperative community-based study. Clin J Pain. 1991;7:263-268.
11. McGrath PJ, Hsu E, Cappelli M, Luke B, Goodman JT, Dunn-Geier J. Pain from pediatric cancer: a survey of an outpatient oncology clinic. J Psychosoc Oncol. 1990;8:109-124.
12. Varni JW, Rapoff M, Waldron SA, Gragg RA, Bernstein BH, Lindsley CB. Chronic pain and emotional distress in children and adolescents. J Dev Behav Pediatr 1996; 17:154-161.
13. Varni JW. An empirical model for the biobehavioral investigation of pediatric pain. Invited plenary address presented at: Annual Meeting of the American Pain Society, 1989, Phoenix.
14. Varni JW, Rapoff MA, Waldron SA, Gragg RA, Bernstein BH, Lindsley CB. Effects of perceived stress on pediatric chronic pain. J Behav Med. 1996;19:515-528.
15. Varni JW, Waldron SA, Gragg RA, et al. Development of the Waldron/ Varni Pediatric Pain Coping Inventory. Pain. 1996;67:141-150.
16. Varni JW, Seid M, Rode CA. The PedsQL™: Measurement model for the Pediatric Quality of Life Inventory. Med Care. 1999;37:126-139.
17. Varni JW, Katz ER, Seid M, Quiggins DJL, Friedman-Bender A, Castro CM. The Pediatric Cancer Quality of Life Inventory (PCQL): I. Instrument development, descriptive statistics, and cross-informant variance. J Behav Med. 1998;21:179-204.
18. Varni JW, Katz ER, Seid M, Quiggins DJL, Friedman-Bender A. The Pediatric Cancer Quality of Life Inventory-32 (PCQL-32): I. Reliability and validity. Cancer 1998;82:1184-1196.
19. Varni JW, Rode CA, Seid M, Katz ER, Friedman-Bender A, Quiggins DJL. The Pediatric Cancer Quality of Life Inventory-32 (PCQL-32): II. Feasibility and range of measurement. J Behav Med. 1999;22:397-406.
20. World Health Organization. Constitution of the World Health Organization Basic Document. Geneva, Switzerland: World Health Organization; 1948.
21. Varni JW, Burwinkle TM, Katz ER, Meeske K, Dickinson P. The PedsLQ™ in pediatric cancer: reliability and validity of the Pediatric Quality of Life Inventory™ Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module. Cancer 2002; 94:2090-2106.
22. Thompson KL, Varni JW. A developmental cognitive-biobehavioral approach to pediatric pain assessment. Pain. 1986;25:282-296.
23. Gaffney A, Dunne EA. Developmental aspects of children's definitions of pain. Pain. 1986;26:105-117.
24. Harbeck C, Peterson L. Elephants dancing in my head: a developmental approach to children's concepts of specific pains. Child Dev. 1992;63:138-149.
25. McGrath PJ, Craig K. Developmental and psychological factors in children's pain. Pediatr Clin North Am. 1989;36:823-836.
26. Varni JW, Katz ER, Colegrove R, Dolgin M. Adjustment of children with newly diagnosed cancer: cross-informant variance. J Psychosoc Oncol. 1995;13:23-38.
27. Hollingshead AB. Four-Factor Index of Social Status. New Haven, CT: Yale University; 1975.
28. Kovacs M. The Children's Depression Inventory: CDI Manual. North Tonawanda, NY: Multi-Health Systems; 1992.
29. Spielberger CD. State-Trait Anxiety Inventory for Children. New York, NY: Consulting Psychologists Press; 1973.
30. Achenbach TM. Manual for the Child Behavior Checklist 4-18 and 1991 Profile. Burlington, VT: University of Vermont, Department of Psychiatry; 1991.
31. Varni JW, Thompson KL, Hanson V. The Varni/Thompson Pediatric Pain Questionnaire: I. Chronic musculoskeletal pain in juvenile rheumatoid arthritis. Pain. 1987;28:27-38.
32. Cohen J. Statistical Power Analysis for the Behavioral Sciences, 2nd ed. Hillsdale, NJ: Erlbaum; 1988.
33. Bleyer WA. The impact of childhood cancer on the United States and the world. CA Cancer J Clin. 1990;40:355-367.
34. Cohen J, Cohen P. Applied Multiple Regression/Correlation Analysis for the Behavioral Sciences, 2nd ed. Hillsdale, NJ: Erlbaum; 1983.
35. SPSS. SPSS 8.O for Windows. Chicago, IL: SPSS, Inc.; 1998.
36. Robison LL. General principles of the epidemiology of childhood cancer. In: Pizzo PA, Poplack DG, eds. Principles and Practice of Pediatric Oncology. Philadelphia, PA: Lippincott-Raven; 1997.
37. Varni JW, Setoguchi Y. Screening for behavioral and emotional problems in children and adolescents with congenital or acquired limb deficiencies. Am J Dis Child. 1992;146:103-107.
38. Janicke DM, Finney JW, Riley AW. Children's health care use: a prospective investigation of factors related to care-seeking. Med Care. 2001;39:990-1001.
39. Varni JW, Seid M, Knight TS, Uzark K, Szer IS. The PedsQL™ 4.0 Generic Core Scales: sensitivity, responsiveness, and impact on clinical decision-making. J Behav Med. 2002;25:175-193.