Experience of the moment of death at home

Mortality

Volumn 11, Issue 4, 2006, Pages 352-367

  Donnelly, S M ^a   Michael, N ^a   Donnelly, C ^a  

^a Milford Care Centre   (Ireland)

Author keywords

Lay carer; Medical training; Moment of death at home; Qualitative enquiry

Indexed keywords

EID: 33750297704     PISSN: 13576275     EISSN: 14699885     Source Type: Journal    
DOI: 10.1080/13576270600945410     Document Type: Article

References (44)

1. Addington-Hall, J. and McPherson, C. (2001) After-death interviews with surrogates/bereaved family members: Some issues of validity Journal of Pain and Symptom Management, 22, pp. 784-791.
2. Ahmedzai, S. and Morton, A. and Reid, J. and Stevenson, R. (1988) Quality of death from lung cancer: Patients' reports and relatives' retrospective opinions. In Psychosocial Oncology. (pp. 187-192). Oxford: Pergamon Press.
3. Aries, P. (1974) Western attitudes towards death: From the middle ages to the present. Baltimore: Johns Hopkins University Press.
4. Bradley, A. (1990) Human memory: Theory and practice. London: Lawrence Erlbaum Associates.
5. Byock, I. (1997) Dying well: The prospect for growth at the end of life. New York: Riverhead Books.
6. Callahan, D. (1993) The troubled dream of life. Living with mortality. New York: Simon and Schuster.
7. Clark, D. (1997) What is qualitative research and what can it contribute to palliative care Palliative Medicine, 11, pp. 159-166.
8. Clark, D. (2002) Between hope and acceptance: The medicalization of dying British Medical Journal, 324, pp. 905-907.
9. Denzin, N. and Lincon, Y. (1994) Handbook of qualitative research. London: Sage.
10. Donnelly, S. (1999a) Folklore associated with dying in the west of Ireland Palliative Medicine, 13, pp. 57-62.
11. Donnelly, S. (1999b) Folklore associated with dying in the west of Scotland Journal of Palliative Care, 15, pp. 64-69.
12. Ewing, G. and Rogers, M. and Barclay, S. and McCabe, J. and Martin, A. and Todd, C. (2004) Recruiting patients into a primary care based study of palliative care: Why is it so difficult? Palliative Medicine, 18, pp. 452-459.
13. Glaser, B. and Strauss, A. (1968) Time for dying. Chicago: Aldine.
14. Gomes, B. and Higginson, I. (2006) Factors influencing death at home in terminally ill patients with cancer: Systematic review British Medical Journal, 332, pp. 515-521.
15. Gott, M. and Seymour, J. and Bellamy, G. and Clark, D. and Ahmedzai, S. (2004) Older people's view about home as a place of care at the end of life Palliative Medicine, 18, pp. 460-467.
16. Green, J. (1998) Commentary: Grounded theory and the constant comparative method British Medical Journal, 316, pp. 1064-1065.
17. Heidegger, M. (1962) Being and time (J. Macquarrie & E. Robinson, Trans.). New York: Harper and Row.
18. Higginson, I. and Priest, P. and McCarthy, M. (1994) Are bereaved family members a valid proxy for a patient's assessment of dying? Social Science and Medicine, 38, pp. 553-557.
19. Hinton, J. (1996) How reliable are relatives' retrospective reports of terminal illness? Patients and relatives accounts compared Social Science and Medicine, 43, pp. 1229-1236.
20. Illich, I. (1976) Limits to medicine: Medical nemesis: The expropriation of health. London: Marion Boyars.
21. Irish Hospice Foundation. (2004) A nationwide survey of public attitudes and experiences regarding death and dying. An Irish Hospice Foundation initiative supported by the Health Services National Partnership Forum. Nov. 2004. Prepared by Weafer and Associates Research with TNS MRBI
22. Jordhoy, M. and Kaasa, S. and Fayers, P. and Underland, G. and Ahlner-Elmavist, M. (1999) Challenges in palliative care research; recruitment, attrition and compliance; experience from a randomized controlled trial Palliative Medicine, 13, pp. 299-310.
23. Kastenbaum, R. (1999) The moment of death: Is hospice making a difference? The Hospice Journal, 14, pp. 253-270.
24. Kastenbaum, R. and Normand, C. (1990) Deathbed scenes as imagined by the young and experienced by the old Death Studies, 14, pp. 201-217.
25. Kellehear, A. (1984) Are we a death denying society? A sociological review Social Science and Medicine, 18, pp. 713-723.
26. Kellehear, A. (1989) Ethics and social research in doing fieldwork: Eight personal accounts of social research. Geelong Victoria: Deakin University Printing.
27. Lysaght, P. (1986) The Banshee. Dublin: The O'Brien Press.
28. Lysaght, P. (1995) Visible death: Attitudes to the dying in Ireland Marvels Tales, 9, pp. 26-27.
29. Lysaght, P. (1997) Caoineadh Os Cionn Coirp: The lament for the dead in Ireland Folklore, 108, pp. 51-68.
30. Mays, N. and Pope, C. (1995) Rigour and qualitative research British Medical Journal, 311, pp. 109-112.
31. Plant, H. (1996) Research interviewing Palliative Medicine, 10, pp. 339-341.
32. Post, S. (1993) Inquiries in bioethics. Washington DC: Georgetown University Press.
33. Proot, I. and Abu-Saad, H. and Ter Meulen, R. and Goldsteen, M. and Spreeuwenberg, C. and Widdershoven, G. (2004) The needs of terminally ill patients at home: Directing one's life, health and things related to beloved others Palliative Medicine, 18, pp. 53-61.
34. Rinck, G. and Van Den Bos, G. and Kleijnen, J. and De Haes, H. and Schade, E. and Veenhof, C. (1997) Methodology issues in effectiveness research on palliative cancer care: A systematic review Journal of Clinical Oncology, 1, pp. 1697-1707.
35. Ross, C. and Cornbleet, M. (2003) Attitudes of patients and staff to research in a specialist palliative care unit Palliative Medicine, 17, pp. 491-497.
36. Seale, C. (1995) Heroic dying Sociology, 29, pp. 597-613.
37. Singer, Y. and Bachner, Y. and Shvartzman, P. and Carmel, S. (2005) Home death-the caregiver's experiences Journal of Pain and Symptom Management, 30, pp. 70-74.
38. Steinhauser, K. and Clipp, E. and McNeilly, M. and Christakis, N. and McIntyre, M. and Tulsky, I. (2000) In search of a good death: Observations of patients, families and providers Annals of Internal Medicine, 132, pp. 825-832.
39. Strauss, A. and Corbin, J. (1998) Basics of qualitative research. Techniques and procedures for developing grounded theory. Thousand Oaks CA: Sage.
40. Stroebe, M. and Stroebe, W. and Schut, H. (2003) Bereavement research: Methodological issues and ethical concerns Palliative Medicine, 17, pp. 235-240.
41. Toscani, F. and Di Giulio, P. and Brunelli, C. and Miccinesi, G. and Laquintana, D. (2005) How people die in hospital general wards: A descriptive study Journal of Pain and Symptom Management, 30, pp. 33-40.
42. Tyers, P. (1992) Malairt Beatha. Dun Chaoin: Inne Teo.
43. Van Gennep, A. (1961) The rites of passage. Chicago: University of Chicago Press.
44. Visser, G. and Kinkenberg, M. and Broese van Groenou, M. and Willems, D. and Knipscheer, C. and Deeg, D. (2004) The end of life: Informal care for dying older people and its relationship to place of death Palliative Medicine, 18, pp. 468-477.