Percutaneous endoscopic gastrostomies: The burden of treatment from a patient perspective

Journal of Advanced Nursing

Volumn 56, Issue 3, 2006, Pages 270-281

  Jordan, Sue ^a   Philpin, Sue ^a   Warring, Joanne ^a   Cheung, Wai Yee ^b   Williams, John ^b  

^a SWANSEA UNIVERSITY   (United Kingdom)

^b SWANSEA UNIVERSITY   (United Kingdom)

Author keywords

Community care; Empirical research report; Interviews; Nursing; Nutrition; Percutaneous endoscopic gastrostomy; Short Form 12

Indexed keywords

ADULT; AGED; ARTICLE; DIGESTIVE TRACT INTUBATION; ENTERIC FEEDING; FEMALE; GASTROINTESTINAL ENDOSCOPY; GASTROSTOMY; HUMAN; MALE; MIDDLE AGED; PATIENT SATISFACTION; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; QUALITY OF LIFE; UNITED KINGDOM;

ADULT; AGED; AGED, 80 AND OVER; ENDOSCOPY, GASTROINTESTINAL; ENTERAL NUTRITION; FEMALE; GASTROSTOMY; HUMANS; INTUBATION, GASTROINTESTINAL; MALE; MIDDLE AGED; PATIENT SATISFACTION; QUALITATIVE RESEARCH; QUALITY OF LIFE; WALES;

EID: 33750064254     PISSN: 03092402     EISSN: 13652648     Source Type: Journal    
DOI: 10.1111/j.1365-2648.2006.04006.x     Document Type: Article

References (77)

1. Adamson J. (2005) Combined qualitative and quantitative designs. In Handbook of Health Research Methods (Bowling A. & Ebrahim S., eds), OUP, Maidenhead, pp. 230-245.
2. Bannerman E., Pendlebury J., Philips F. & Ghosh S. (2000) A cross sectional and longitudinal study of health related quality of life after percutaneous gastrostomy. European Journal of Gastroenterology and Hepatology 12, 1101-1109.
3. Baredes S., Behin D. & Deitch E. (2004) Percutaneous endoscopic gastrostomy tube feeding in patients with head and neck cancer. Ear Nose and Throat Journal 83(6), 417-419.
4. Baruch G. (1981) Moral tales: parents' stories of encounters with the health professions. Sociology of Health & Illness 3(3), 275-295.
5. Bath P.M., Bath F.J. & Smithard D.G. (2000) Interventions for dysphagia in acute stroke. Cochrane Database Systematic Review 2000(2), CD 000323.
6. Becker H. & Geer B. (1982) Participant observation: the analysis of qualitative field data. In Field Research: A Sourcebook and Field Manual (Burgess R., ed.), Routledge, London, pp. 239-250.
7. Berelson B. (1952) Content Analysis in Communication Research. The Free Press, Glencoe, Illinois.
8. Borgaonkar M. & Irvine E. (2000) Quality of Life measurement in gastrointestinal and liver disorders. Gut 47, 444-454.
9. Bowling A. (2001) Measuring Disease, 2nd edn. OUP, Milton Keynes.
10. Bowling A., Bond M., Jenkinson C. & Lamping D. (1999) Short Form 36 Health Survey questionnaire: which normative data should be used? Comparisons between the norms provided by the Omnibus Survey in Britain, the Health Survey for England and the Oxford Healthy Life Survey. Journal of Public Health Medicine 21(3), 255-270.
11. British Artificial Nutrition Survey (BANS) (2005) Annual BANS Report: Trends in Artificial Nutrition Support in the UK 2000-3. British Association for Parenteral and Enteral Nutrition (BAPEN), Redditch, Worcestershire.
12. Bryman A. (1988) Quantity and Quality in Social Research. Routledge, London.
13. Burgess R.G. (1993) In the Field: An Introduction to Field Research. Allen and Unwin, London.
14. Callahan C., Hagg K., Weinberger M., Tierney W., Buchanan N., Stump T. & Nisi R. (2000) Outcomes of percutaneous endoscopic gastrostomy among older adults in a community setting. Journal of the American Geriatric Society 48, 1048-1054.
15. Coffey A. & Atkinson P. (1996) Making Sense of Qualitative Data. Sage, Thousand Oaks, CA.
16. Cramer J. & Spilker B. (1998) Quality of Life and Pharmacoeconomics. Lippincott, Philadelphia, PA.
17. Denzin N. (1970) The Research Act in Sociology. Aldine, Chicago, IL.
18. Dimenas E. (1993) Methodological aspects of evaluation of quality of life in upper gastrointestinal diseases. Scandinavian Journal of Gastroenterology 28(Suppl.199), 18-21.
19. Ditchburn L. & Chapman W. (2005) Joint primary-secondary care design of PEG care pathways. Nursing Times 101(18), 34-36.
20. Donovan J. & Saunders C. (2005) Key issues in the analysis of qualitative data in health services research. In Handbook of Health Research Methods (Bowling A. & Ebrahim S., eds), OUP, Maidenhead, pp. 515-532.
21. Dorman P., Waddell F., Slattery J., Dennis M. & Sandercock P. (1997) Are proxy assessments of health status after stroke with the EuroQol questionnaire feasible, accurate and unbiased? Stroke 28, 1883-1887.
22. Elia M., Stratton R.J., Holden C., Meadows N., Micklewright A., Russell C., Scott D., Thomas A., Schaffer J., Wheatley C. & Woods S. (2001) Home artificial nutritional support: the value of the British Artificial Nutrition Survey. Clinical Nutrition 20(Suppl. 1), 61-66.
23. Eypasch E., Williams J.I., Wood-Dauphinee S., Ure B., Schmulling C., Neugebauer E. & Troidl H. (1995) Gastrointestinal quality of life index: development, validation and application of a new instrument. British Journal of Surgery 82, 216-222.
24. FOOD trial collaboration (2005) Effect of timing and method of enteral tube feeding for dysphagic stroke patients (FOOD): a multicentre randomised controlled trial. Lancet 365, 764-772.
25. Ford-Gilboe M., Campbell J. & Berman H. (1995) Stories and numbers: co-existence without compromise. Advances in Nursing Science 18(1), 14-26.
26. Foss C. & Ellefsen B. (2002) The value of combining qualitative and quantitative approaches in nursing research by means of method triangulation. Journal of Advanced Nursing 40(2), 242-248.
27. Friedman L., Furberg C. & DeMets D. (1998) Fundamentals of Clinical Trials, 3rd edn. Springer, New York.
28. Gauderer M. (2002) Percutaneous endoscopic gastrostomy and the evolution of contemporary long-term enteral access. Clinical Nutrition 21(2), 103-110.
29. Heaney A. & Tham T.C.K. (2001) Percutaneous endoscopic gastrostomies. British Journal of General Practice 51, 128-129.
30. Higginbottom G.M. (2004) Sampling issues in qualitative research. Nurse Researcher 12(1), 7-19.
31. Hill-Bailey P. (1997) Finding your way around qualitative methods in nursing research. Journal of Advanced Nursing 25, 18-22.
32. Howard P. & Bowen N. (2001) The Challenges of innovation in the organisation of home enteral tube feeding. Journal of Human Nutrition and Dietetics 14, 3-11.
33. Howell M. (2002) Do nurses know enough about percutaneous endoscopic gastrostomy? Nursing Times 98(17), 40-42.
34. Hull M., Rawlings J., Murray F., Field J., McIntyre A., Mahida Y., Hawkey C. & Allison S. (1993) Audit of outcomes of long-term enteral nutrition by percutaneous endoscopic gastrostomy. Lancet 341, 869-872.
35. Hurst N.P., Ruta D.A. & Kind P. (1998) Comparison of the MOS short form-12 (SF12) health status questionnaire with the SF36 in patients with rheumatoid arthritis. British Journal of Rheumatology 37, 862-869.
36. Iizuka M. & Reding M. (2005) Use of percutaneous endoscopic gastrostomy feeding tubes and functional recovery in stroke rehabilitation: a case-matched controlled study. Archives of Physical Medicine and Rehabilitation 86(5), 1049-1052.
37. Jenkinson C. & McGee H. (1997) Patient assessed outcomes. In Assessment and Evaluation of Health and Medical Care (Jenkinson C., ed.), OUP, Buckingham, pp. 64-84.
38. Jenkinson C., Peto V. & Coulter A. (1994) Measuring change over time. Quality of Life Research 3(5), 317-321.
39. Jenkinson C., Stewart-Brown S., Peterson S. & Paice C. (1999) Assessment of the SF36 version 2 in the United Kingdom. Journal of Epidemiology and Community Health 53, 46-50.
40. Jordan S. (2000) Educational input and patient outcomes: exploring the gap. Journal of Advanced Nursing 31, 461-471.
41. Jordan S. (2002) Managing adverse drug reactions: an orphan task. Developing nurse-administered evaluation checklists. Journal of Advanced Nursing 38, 437-448.
42. Jordan S., Snow D., Hayes C. & Williams A. (2003a) Introducing a nutrition screening tool: an exploratory study in a district general hospital. Journal of Advanced Nursing 44, 12-23.
43. Jordan S., Griffiths H. & Griffith R. (2003b) Continuing professional development: administration of medicines. Part 2 Pharmacology. Nursing Standard 18 (3), 45-55.
44. Klose J., Heldwein W., Rafferzeder M., Sernetz F., Gross M. & Loesdchke K. (2003) Nutritional status and quality of life in patients with percutaneous endoscopic gastrostomy in practice. Digestive Diseases and Sciences 48 (10), 2057-2063.
45. Koulentaki M., Reynolds N., Steinke D., Tait J., Baxter J., Vaidya K., Jayesakera A. & Pennington C. (2002) Eight years' experience of gastrostomy tube management. Endoscopy 43, 941-945.
46. Lazenbatt A. (2002) The Evaluation Handbook for Health Professionals. Routledge, London.
47. Liddle K. (1995) Making sense of percutaneous endoscopic gastrostomy. Nursing Times 91(18), 32-33.
48. Lyne P. & Prowse M. (1999) Methodological issues in the development and use of instruments to assess patient nutritional status or the level of risk of nutritional compromise. Journal of Advanced Nursing 30, 835-842.
49. Lyons R., Wareham K., Lucas M., Price D., Williams J. & Hutchings H. (1999) SF-36 scores by method of administration. Journal of Public Health Medicine 21(1), 41-45.
50. Malone M. (2002) Longitudinal assessment of outcome, heath status, and changes in lifestyle associated with long term home parenteral and enteral nutrition. Journal of Parenteral and Enteral Nutrition 26(3), 164-168.
51. Mateo M. (1996) Nursing Management of enteral tube feeds. Heart & Lung 25(4), 318-323.
52. Meyer J. (2001) Action research. In Studying the Organisation and Delivery of Health Services (Fulop N., Allen P., Clarke A. & Black N., eds), Routledge, London, pp. 172-189.
53. Moyer C. & Fendrick A.M. (1998) Measuring health-related quality of life in patients with upper gastrointestinal disease. Digestive disease 16, 315-324.
54. Murphy E., Dingwall R., Gratbatch D., Parker S. & Watson P. (1998) Qualitative research methods in health technology assessment, a review of the literature. Health Technology Assessment 2, 16.
55. National Assembly for Wales (NafW) (2005) Welsh Health Survey 2003/4. National Assembly for Wales, Cardiff.
56. Nicholson F., Korman M. & Richardson M. (2000) Percutaneous endoscopic gastrostomy: a review of indications, complications and outcomes. Journal of Gastroenterology and Hepatology 15, 21-25.
57. Noble L. (1999) Nutritional support for elderly people in the community. British Journal of Community Nursing 4 (2), 70-79.
58. Pearce C. & Duncan H. (2002) Enteral feeding. Nasogastric, nasojejunal, percutaneous endoscopic gastrostomy, or jejunostomy: its indications and limitations. Postgraduate Medical Journal 78, 198-204.
59. Philpin S., Jordan S. & Warring J. (2005) Giving people a voice: reflections on conducting interviews with participants experiencing communication impairment. Journal of Advanced Nursing 50(3), 299-306.
60. Polit D.F. & Beck C. (2004) Nursing Research Principles and Methods, 7th edn. Lippincott, Philadelphia, PA.
61. Reising D. & Scott R. (2005) Enteral tube flushing. American Journal of Nursing 105(3), 58-63.
62. Rickman J. (1998) Percutaneous endoscopic gastrostomy: psychological effects. British Journal of Nursing 7(12), 723-730.
63. Roche V. (2003) Percutaneous endoscopic gastrostomy. Clinical care of PEG tubes in older adults. Geriatrics 58(11), 22-29.
64. Schwandt T.A. (1994) Constructivist, interpretivist approaches to human inquiry. In Handbook of Qualitative Research (Denzil N.C. & Lincoln Y.S., eds), Sage Publications, London, pp. 118-137.
65. Silverman D. (2001) Interpreting Qualitative Data. Sage, London.
66. Sparkes A. (2005) Narrative analysis: exploring the whats and hows of personal stories. In Qualitative Research in Health Care (Holloway I., ed.), OUP, Maidenhead, pp. 191-209.
67. Spencer L., Ritchie J., Lewis J. & Dillon L. (2003) Quality in Qualitative Evaluation. Government Chief Social Researcher's Office. Cabinet Office, London.
68. Talbot J. & Stephens M.D.B. (2004) Clinical Trials: collection of safety data and establishing the adverse drug reaction profile. In Stephens' Detection of New Advers Drug Reactions (Talbot J. & Walker P., eds), Wiley, Chichester, pp. 167-242.
69. Tuckett A.G. (2004) Qualitative research sampling: the very real complexities. Nurse Researcher 12(1), 47-61.
70. VerHoef M. & van Rosendaal G. (2001) Patient outcomes related to percutaneous endoscopic gastrostomy placement. Journal of clinical gastroenterology 32(1), 49-53.
71. Ware J., Snow K., Kosinski M. & Gandek B. (1993) The SF36 Health Survey Manual and Interpretation Guide. Health Institute, New England Medical Centre, Boston, MA.
72. Ware J.E., Kosinsku M. & Keller S.D. (1998) How to Score the SF-12? Physical and Mental Health Summary Scales, 3rd edn. Quality Metric Incorporated, Lincoln, RI.
73. Wijdicks E. & McMahon M. (1999) Percutaneous endoscopic gastrostomy after acute stroke: complications and outcome. Cerebrovascular diseases 9, 109-111.
74. Williams J.G., Bayer A.J., Cheung W.Y., Ford D.V., Gaze S.A., Jackson S., Russell I.T. & Youren A.M. (2002) Quantifying the Effects of Caring on Carers' Quality of Life. Report to the Wales Office of Research and Development.
75. Wilson D. (1993) The experience of long term gastrostomy: a phenomenological case study. Journal of Clinical Nursing 2, 235-242.
76. Wood S. (1998) The use of enteral and parenteral feeding. Professional Nurse 14(1), 44-46.
77. Ziebland S. & Wright L. (1997) Qualitative research methods. In Assessment and Evaluation of Health and Medical Care (Jenkinson C., ed.), Open University Press, Buckingham, pp. 102-128.