Story-based scales: Development and validation of questionnaires to measure subjective health status and cultural adherence in British Bangladeshis with diabetes

Psychology, Health and Medicine

Volumn 11, Issue 4, 2006, Pages 432-448

  Greenhalgh, Trisha ^a   Chowdhury, Mu'min ^a   Wood, Gary W ^b  

^a ROYAL FREE AND UNIVERSITY COLLEGE MEDICAL SCHOOL   (United Kingdom)

^b UNIVERSITY OF BIRMINGHAM   (United Kingdom)

Author keywords

Cross cultural; Cultural adherence; Cultural assimilation; Health related quality of life; Minority ethnic groups; Questionnaires; Translation

Indexed keywords

ADULT; ANXIETY; ARTICLE; CRONBACH ALPHA COEFFICIENT; CULTURAL FACTOR; DEPRESSION; FEMALE; HEALTH STATUS; HUMAN; INTERVIEW; MAJOR CLINICAL STUDY; MALE; NON INSULIN DEPENDENT DIABETES MELLITUS; PHYSICAL ACTIVITY; PRIORITY JOURNAL; PSYCHOLOGIC ASSESSMENT; PSYCHOLOGICAL RATING SCALE; PSYCHOLOGICAL WELL BEING; QUESTIONNAIRE; RANDOMIZATION; RELIABILITY; SAMPLE SIZE; SOCIAL STATUS; VALIDATION PROCESS; VIGNETTE;

ACCULTURATION; ADULT; BANGLADESH; CROSS-CULTURAL COMPARISON; CULTURE; DIABETES MELLITUS; ETHNIC GROUPS; FEMALE; HEALTH STATUS; HUMANS; MALE; MIDDLE AGED; NARRATION; QUALITY OF LIFE; QUESTIONNAIRES;

EID: 33749329468     PISSN: 13548506     EISSN: None     Source Type: Journal    
DOI: 10.1080/13548500500429379     Document Type: Article

References (38)

1. Ahmad, W. I. U. (1996). The trouble with culture. In D. Kelleher & S. Hillier (Eds.), Researching cultural differences in health (pp. 190-219). London: Routledge.
2. Anderson, H. H., & Anderson, G. L. (1951). An introduction to projective techniques and other devices for understanding human behaviour. Englewood Cliffs: Prentice Hall.
3. Bech, P., Gudex, C., & Johansen, K. S. (1996). The WHO (Ten) Well-Being Index: Validation in diabetes. Psychotherapy & Psychosomatics, 65, 183-190.
4. Bernheim, J. L. (1999). How to get serious answers to the serious question: "How have you been?": Subjective quality of life (QOL) as an individual experiential emergent construct. Bioethics, 13, 272-287.
5. Blaxter, M. (1994). Black and minority ethnic groups in England: Health and lifestyles. London: Health Education Authority.
6. Bowden, A., & Fox-Rushby, J. A. (2003). A systematic and critical review of the process of translation and adaptation of generic health-related quality of life measures in Africa, Asia, Eastern Europe, the Middle East, South America. [Review]. Social Science & Medicine, 57, 1289-1306.
7. Boynton, P. M., Wood, G. W., & Greenhalgh, T. (2004). A hands on guide to questionnaire research part three: Reaching beyond the white middle classes. British Medical Journal, 328, 1433-1436.
8. Bradley, C., & Speight, J. (2002). Patient perceptions of diabetes and diabetes therapy: Assessing quality of life. Diabetes/Metabolism Research Reviews, 18 Suppl 3, S64-S69.
9. Bruner, J. (1990). Acts of meaning. Cambridge: Harvard University Press.
10. Charon, R. (2001). Narrative medicine: Form, function, and ethics. Annals of Internal Medicine, 134, 83-87.
11. Chowdhury, A. M., Helman, C., & Greenhalgh, T. (2000). Food beliefs and practices in British Bangladeshis with diabetes: An ethnographic analysis. Medical Anthropology, 7, 209-226.
12. Donovan, J. (1986). We don't buy sickness-it just comes. Aldershot: Gower Press.
13. Eisemann, M., Richter, J., Bauer, B., Bonelli, R. M., & Porzsolt, F. (1999). Physicians' decision-making in incompetent elderly patients: A comparative study between Austria, Germany (East, West), and Sweden. International Psychogeriatrics, 11, 313-324.
14. Garratt, A., Schmidt, L., Mackintosh, A., & Fitzpatrick, R. (2002). Quality of life measurement: Bibliographic study of patient assessed health outcome measures. British Medical Journal, 324, 1417.
15. Green, J., & Thorogood, N. (2004). Qualitative methods for health research. London: Sage.
16. Greenhalgh, T., Collard, A., & Begum, N. (2005). Sharing stories: Complex intervention for diabetes education in minority ethnic groups who do not speak English. British Medical Journal, 330, 628-631.
17. Greenhalgh, T., Griffiths, T., Thomas, K., Wheeler, J., & Raleigh, V. (2001). Reducing inequalities in diabetes. Report of the Expert Reference Group for the National Service Framework for Diabetes. London: Department of Health.
18. Greenhalgh, T., Helman, C., & Chowdhury, A. M. (1998). Health beliefs and folk models of diabetes in British Bangladeshis: A qualitative study. British Medical Journal, 316, 978-983.
19. Greenhalgh, T., & Hurwitz, B. (1999). Narrative based medicine: Why study narrative? British Medical Journal, 318, 48-50.
20. Hendrickson, S. G. (2003). Beyond translation ... cultural fit. Western Journal of Nursing Research, 25, 593-608.
21. Herdman, M., Fox-Rushby, J. A., & Badia, X. (1997). 'Equivalence' and the translation and adaptation of healthrelated quality of life questionnaires. Quality of Life Research, 9, 316-322.
22. Herskovits, M. J. (1950). The hypothetical situation: A technique of field research. Southwest Journal of Anthropology, 6, 32-40.
23. Joppke, C., Morawska, E., & Layton-Henry, Z. (2003). Towards assimilation and citizenship: Immigrants in the liberal nation-states. London: Palgrave.
24. Kaiser, H. (1974). An index of factorial simplicity. Psychometrika, 39, 31-36.
25. Kind, P., Dolan, P., Gudex, C., & Williams, A. (1998). Variations in population health status: Results from a United Kingdom national questionnaire survey. British Medical Journal, 316, 736-741.
26. Lambert, H., & Sevak, L. (1996). Is 'cultural difference' a useful concept. In D. Kelleher & S. Hillier (Eds.), Researching cultural differences in health. London: Routledge.
27. Love, M. B., & Thurman, Q. (1991). Normative beliefs about factors that affect health and longevity. Health Education Quarterly, 18, 183-194.
28. Muller, J. (1999). Narrative approaches to qualitative research in primary care. In B. F. Crabtree & W. L. Miller (Eds.), Doing qualitative research (2nd ed., pp. 221-238). London: Sage.
29. Parker, G., Mahendran, R., Yeo, S. G., Loh, M. I., & Jorm, A. F. (1999). Diagnosis and treatment of mental disorders: A survey of Singapore mental health professionals. Social Psychiatry and Psychiatric Epidemiology, 34, 555-563.
30. Paterson, C., & Britten, N. (2000). In pursuit of patient-centred outcomes: A qualitative evaluation of the 'Measure Yourself Medical Outcome Profile'. Journal of Health Services Research & Policy, 5, 27-36.
31. Richardson, B., Kitchen, G., & Livingston, G. (2003). Developing the KAMA instrument (knowledge and management of abuse). Age & Ageing, 32, 286-291.
32. Salant, T., & Lauderdale, D. S. (2003). Measuring culture: A critical review of acculturation and health in Asian immigrant populations. Social Science & Medicine, 57, 71-90.
33. Salomon, J. A., Tandon, A., & Murray, C. J. (2004). Comparability of self rated health: Cross sectional multicountry survey using anchoring vignettes. British Medical Journal, 328, 258.
34. Schutzwohl, M., Jarosz-Nowak, J., Briscoe, J., Szajowski, K., Kallert, T., & Eden Study Group. (2003). Inter-rater reliability of the Brief Psychiatric Rating Scale and the Groningen Social Disabilities Schedule in a European multi-site randomized controlled trial on the effectiveness of acute psychiatric day hospitals. International Journal of Methods in Psychiatric Research, 12, 197-207.
35. Scientific Advisory Committee of the Medical Outcomes Trust. (2002). Assessing health status and quality-of-life instruments: Attributes and review criteria. Quality of Life Research, 11, 193-205.
36. Tabachnick, B. G., & Fidell, L. S. (1996). Using multivariate statistics (3rd ed.). New York: Harper & Row.
37. Wade, D. T. (2003). Outcome measures for clinical rehabilitation trials: Impairment, function, quality of life, or value? American Journal of Physical Medicine & Rehabilitation, 82, S26-S31.
38. Winter, R. (1986). Fictional-critical writing: An approach to case study research by practitioners. Cambridge Journal of Education, 3, 175-182.