-
1
-
-
0030734027
-
Human subjects protection and parental permission in adolescent health research
-
Santelli J. Human subjects protection and parental permission in adolescent health research. J Adolesc Health 1997; 21: 384-7.
-
(1997)
J Adolesc Health
, vol.21
, pp. 384-387
-
-
Santelli, J.1
-
2
-
-
0031829204
-
Research with children
-
Glantz LH. Research with children. Am J Law Med 1998; 24: 213-44.
-
(1998)
Am J Law Med
, vol.24
, pp. 213-244
-
-
Glantz, L.H.1
-
3
-
-
0034021319
-
Guidelines for the ethical conduct of medical research involving children
-
Royal College of Paediatrics and Child Health. Guidelines for the ethical conduct of medical research involving children. Arch Dis Child 2000; 82: 177-82.
-
(2000)
Arch Dis Child
, vol.82
, pp. 177-182
-
-
-
6
-
-
0036205915
-
What can the social sciences contribute to the study of ethics? Theoretical, empirical and substantive considerations
-
Haimes E. What can the social sciences contribute to the study of ethics? Theoretical, empirical and substantive considerations. Bioethics 2002; 16: 89-113.
-
(2002)
Bioethics
, vol.16
, pp. 89-113
-
-
Haimes, E.1
-
8
-
-
1542267806
-
Why won't they listen to us? On giving power and voice to children participating in research
-
Glover S. Why won't they listen to us? On giving power and voice to children participating in research. Childhood 2004; 11: 81-93.
-
(2004)
Childhood
, vol.11
, pp. 81-93
-
-
Glover, S.1
-
9
-
-
0038256937
-
Children as researchers: The effects of participation rights on research methodology
-
Christensen P, James A, eds. London: Falmer
-
Alderson P. Children as researchers: the effects of participation rights on research methodology. In: Christensen P, James A, eds. Research into children: perspectives and practices. London: Falmer, 2000: 241-57.
-
(2000)
Research into Children: Perspectives and Practices
, pp. 241-257
-
-
Alderson, P.1
-
10
-
-
0038509270
-
Working with ethical symmetry in social research with children
-
Christensen P, Prout A. Working with ethical symmetry in social research with children. Childhood 2002; 9: 477-97.
-
(2002)
Childhood
, vol.9
, pp. 477-497
-
-
Christensen, P.1
Prout, A.2
-
12
-
-
0031904405
-
Ethical aspects of respiratory research in infancy and early childhood
-
Beardsmore CS. Ethical aspects of respiratory research in infancy and early childhood. Pediatr Pulmonol 1998; 26: 64-8.
-
(1998)
Pediatr Pulmonol
, vol.26
, pp. 64-68
-
-
Beardsmore, C.S.1
-
13
-
-
85011181173
-
The ethics of social research with children: An overview
-
Morrow V, Richards M. The ethics of social research with children: an overview. Children Soc 1996; 10: 90-105.
-
(1996)
Children Soc
, vol.10
, pp. 90-105
-
-
Morrow, V.1
Richards, M.2
-
15
-
-
2342555103
-
What did you think about that? Researching children's perceptions of participation in a longitudinal genetic epidemiology study
-
Goodenough T, Williamson E, Kent E, Ashcroft R. What did you think about that? Researching children's perceptions of participation in a longitudinal genetic epidemiology study. Children Soc 2003; 17: 113-25.
-
(2003)
Children Soc
, vol.17
, pp. 113-125
-
-
Goodenough, T.1
Williamson, E.2
Kent, E.3
Ashcroft, R.4
-
16
-
-
10944237312
-
-
British Psychological Society. Ethical principles for conducting research with human participants. Available at: http://www.bps.org.uk/the-society/ ethics-rules-charter-code-of-conduct/code-of-conduct/ethical-principles-for- conducting-research-with-human-participants.cfm (accessed August 2006).
-
Ethical Principles for Conducting Research with Human Participants
-
-
-
21
-
-
0003203365
-
Can't talk, won't talk? Methodological issues in researching children
-
Harden J, Scott S, Backett-Milburn K, Jackson S. Can't talk, won't talk? Methodological issues in researching children. Social Res Online 2000; 5.
-
(2000)
Social Res Online
, vol.5
-
-
Harden, J.1
Scott, S.2
Backett-Milburn, K.3
Jackson, S.4
-
24
-
-
0004129850
-
-
Buckingham: Open University Press
-
Brannen J, Dodd K, Oakley A, Storey P. Young people, health and family life. Buckingham: Open University Press, 1994.
-
(1994)
Young People, Health and Family Life
-
-
Brannen, J.1
Dodd, K.2
Oakley, A.3
Storey, P.4
-
26
-
-
84928459860
-
Impression management in kindergarten classrooms: An analysis of children's face to face work in peer interactions
-
Hatch J. Impression management in kindergarten classrooms: an analysis of children's face to face work in peer interactions. Anthropol Educ Q 1987; 18: 100-15.
-
(1987)
Anthropol Educ Q
, vol.18
, pp. 100-115
-
-
Hatch, J.1
-
27
-
-
0002050062
-
Transitions in early childhood: The promise of comparative, longitudinal ethnography
-
Colby A, Jessor R, Shweder R, eds. Chicago: University of Chicago
-
Corsaro W. Transitions in early childhood: the promise of comparative, longitudinal ethnography. In: Colby A, Jessor R, Shweder R, eds. Ethnography and human development: context and meaning in social inquiry. Chicago: University of Chicago, 1996: 419-57.
-
(1996)
Ethnography and Human Development: Context and Meaning in Social Inquiry
, pp. 419-457
-
-
Corsaro, W.1
-
29
-
-
0010169490
-
Unbroken voices: Children, young people and qualitative methods
-
Butler I, Shaw I, eds. Aldershot: Avebury
-
Shaw I. Unbroken voices: children, young people and qualitative methods. In: Butler I, Shaw I, eds. A case of neglect? Children's experiences and the sociology of childhood. Aldershot: Avebury, 1996: 19-36.
-
(1996)
A Case of Neglect? Children's Experiences and the Sociology of Childhood
, pp. 19-36
-
-
Shaw, I.1
-
30
-
-
0002067919
-
Methodological aspects of collecting data from children: Lessons from three research projects
-
Mauthner M. Methodological aspects of collecting data from children: lessons from three research projects. Children Soc 1997; 11: 16-28.
-
(1997)
Children Soc
, vol.11
, pp. 16-28
-
-
Mauthner, M.1
-
33
-
-
0344983454
-
Fatigue in adolescents with and following a cancer diagnosis: Developing and evidence base for practice
-
Edwards J, Gibson F, Richardson A, Sepion BRE. Fatigue in adolescents with and following a cancer diagnosis: developing and evidence base for practice. Eur J Cancer 2003; 39: 2671-80.
-
(2003)
Eur J Cancer
, vol.39
, pp. 2671-2680
-
-
Edwards, J.1
Gibson, F.2
Richardson, A.3
Sepion, B.R.E.4
-
34
-
-
0031984571
-
Effects of pediatric chronic physical disorders on child and family adjustment
-
Wallander JL, Varni JW. Effects of pediatric chronic physical disorders on child and family adjustment. J Child Psychol Psychiatry 1998; 39: 29-46.
-
(1998)
J Child Psychol Psychiatry
, vol.39
, pp. 29-46
-
-
Wallander, J.L.1
Varni, J.W.2
-
35
-
-
0031850555
-
Practitioner review: Long-term consequences of childhood cancer
-
Eiser C. Practitioner review: long-term consequences of childhood cancer. J Child Psychol Psychiatry 1998; 39: 621-33.
-
(1998)
J Child Psychol Psychiatry
, vol.39
, pp. 621-633
-
-
Eiser, C.1
-
36
-
-
0033050223
-
Social, emotional and behavioural functioning of children with cancer
-
Noll RBM, Garstein MA, Vannatta K, Corell J, Bukowski WM, Davies, WH. Social, emotional and behavioural functioning of children with cancer. Pediatrics 1999; 103: 71-8.
-
(1999)
Pediatrics
, vol.103
, pp. 71-78
-
-
Noll, R.B.M.1
Garstein, M.A.2
Vannatta, K.3
Corell, J.4
Bukowski, W.M.5
Davies, W.H.6
-
37
-
-
0030836823
-
A review of psychosocial interventions for children with chronic health conditions
-
Bauman LJ, Drotar D, Leventhal JM, Perrin EC, Pless IB. A review of psychosocial interventions for children with chronic health conditions. Pediatrics 1997; 100: 244-51.
-
(1997)
Pediatrics
, vol.100
, pp. 244-251
-
-
Bauman, L.J.1
Drotar, D.2
Leventhal, J.M.3
Perrin, E.C.4
Pless, I.B.5
-
38
-
-
0035514651
-
Health-related worries, self-image and life outlooks of long-term survivors of childhood cancer
-
Zebrack BJ, Chesler MA. Health-related worries, self-image and life outlooks of long-term survivors of childhood cancer. Health Soc Work 2001; 26: 245-56.
-
(2001)
Health Soc Work
, vol.26
, pp. 245-256
-
-
Zebrack, B.J.1
Chesler, M.A.2
-
39
-
-
0036299859
-
Psychological outcomes in long-term survivors of childhood leukaemia, Hodgkin's disease, and non-Hodgkin's lymphoma: A report from the childhood cancer survivor study
-
Zebrack B, Zelter L, Whitton J, et al. Psychological outcomes in long-term survivors of childhood leukaemia, Hodgkin's disease, and non-Hodgkin's lymphoma: a report from the childhood cancer survivor study. Pediatrics 2002; 110: 42-52.
-
(2002)
Pediatrics
, vol.110
, pp. 42-52
-
-
Zebrack, B.1
Zelter, L.2
Whitton, J.3
-
40
-
-
0037271078
-
Tumour banks: Well-guarded treasures in the interest of patients
-
Oosterhuis J, Coeburgh J, Van Veen E. Tumour banks: well-guarded treasures in the interest of patients. Nat Rev Cancer 2003; 3: 73-7.
-
(2003)
Nat Rev Cancer
, vol.3
, pp. 73-77
-
-
Oosterhuis, J.1
Coeburgh, J.2
Van Veen, E.3
-
42
-
-
23844513771
-
Effect of media portrayals of removal of children's tissue on UK tumour bank
-
Seale C, Kirk D, Tobin M, et al. Effect of media portrayals of removal of children's tissue on UK tumour bank. BMJ 2005; 331: 401-3.
-
(2005)
BMJ
, vol.331
, pp. 401-403
-
-
Seale, C.1
Kirk, D.2
Tobin, M.3
-
44
-
-
3342958649
-
-
London: Human Genetics Commission
-
Human Genetics Commission. Inside information. London: Human Genetics Commission, 2002.
-
(2002)
Inside Information
-
-
-
46
-
-
84909082887
-
Person, property and gift: Exploring languages of tissue donation to biomedical research
-
Tutton R, Corrigan O, eds. London: Routledge
-
Tutton R. Person, property and gift: exploring languages of tissue donation to biomedical research. In: Tutton R, Corrigan O, eds. Donating and exploiting DNA. London: Routledge, 2004: 19-38.
-
(2004)
Donating and Exploiting DNA
, pp. 19-38
-
-
Tutton, R.1
-
47
-
-
84993811931
-
The alienation of body tissue and the biopolitics of immortalized cell lines
-
Lock M. The alienation of body tissue and the biopolitics of immortalized cell lines. Body Society 2001; 7: 63-92.
-
(2001)
Body Society
, vol.7
, pp. 63-92
-
-
Lock, M.1
-
48
-
-
2442491194
-
Gift relationships in genetics research
-
Tutton R. Gift relationships in genetics research. Sci Culture 2002; 11: 523-42.
-
(2002)
Sci Culture
, vol.11
, pp. 523-542
-
-
Tutton, R.1
-
49
-
-
0033872015
-
Regulating human body parts and products
-
Fox M, McHale J. Regulating human body parts and products. Health Care Analysis 2000; 8: 83-6.
-
(2000)
Health Care Analysis
, vol.8
, pp. 83-86
-
-
Fox, M.1
McHale, J.2
-
52
-
-
84993790689
-
Biomedicine, tissue transfer and intercorporeality
-
Waldby C. Biomedicine, tissue transfer and intercorporeality. Feminist Theory 2002; 3: 239-54.
-
(2002)
Feminist Theory
, vol.3
, pp. 239-254
-
-
Waldby, C.1
-
53
-
-
84862097051
-
-
London: Office of National Statistics
-
Office of National Statistics. Childhood cancer. London: Office of National Statistics, 2004.
-
(2004)
Childhood Cancer
-
-
-
54
-
-
0037019766
-
Cancer registries: Should informed consent be required?
-
Illman J. Cancer registries: should informed consent be required? J Natl Cancer Inst 2002; 94: 1269-70.
-
(2002)
J Natl Cancer Inst
, vol.94
, pp. 1269-1270
-
-
Illman, J.1
-
55
-
-
0035130185
-
Attitudes and impressions of participants in a study of the causes of childhood cancer
-
Jenkinson C, Muir K, Hawtin P, Chilvers C. Attitudes and impressions of participants in a study of the causes of childhood cancer. Br J Cancer 2001; 84: 413-16.
-
(2001)
Br J Cancer
, vol.84
, pp. 413-416
-
-
Jenkinson, C.1
Muir, K.2
Hawtin, P.3
Chilvers, C.4
-
56
-
-
0037020973
-
Does research into sensitive areas do harm? Experiences of research participation after a child's diagnosis with Ewing's sarcoma
-
Scott D, Valery P, Boyle F, Bain C. Does research into sensitive areas do harm? Experiences of research participation after a child's diagnosis with Ewing's sarcoma. Med J Aust 2002; 177: 507-10.
-
(2002)
Med J Aust
, vol.177
, pp. 507-510
-
-
Scott, D.1
Valery, P.2
Boyle, F.3
Bain, C.4
-
57
-
-
0030870109
-
The US Pediatric Cancer Clinical Trials Programmes: The international implications and the way forward
-
Bleyer W. The US Pediatric Cancer Clinical Trials Programmes: the international implications and the way forward. Eur J Cancer 1997; 33: 1439-47.
-
(1997)
Eur J Cancer
, vol.33
, pp. 1439-1447
-
-
Bleyer, W.1
-
58
-
-
0037929453
-
Recruiting children into cancer trials, role of the United Kingdom Children's Cancer Study Group (UKCCSG)
-
Ablett S, Pinkerton C. Recruiting children into cancer trials, role of the United Kingdom Children's Cancer Study Group (UKCCSG). Br J Cancer 2003; 88: 1661-5.
-
(2003)
Br J Cancer
, vol.88
, pp. 1661-1665
-
-
Ablett, S.1
Pinkerton, C.2
-
59
-
-
0141888779
-
Issues surrounding the participation of adolescents with cancer in clinical trials in the UK
-
McTiernan A. Issues surrounding the participation of adolescents with cancer in clinical trials in the UK. Eur J Cancer Care 2003; 12: 233-9.
-
(2003)
Eur J Cancer Care
, vol.12
, pp. 233-239
-
-
McTiernan, A.1
-
60
-
-
0034885488
-
The adolescent with cancer
-
Barr R. The adolescent with cancer. Eur J Cancer 2001; 37: 1523-7.
-
(2001)
Eur J Cancer
, vol.37
, pp. 1523-1527
-
-
Barr, R.1
-
61
-
-
0034631451
-
Relation between agendas of the research community and the research consumer
-
Tallon D, Chard J, Dieppe P. Relation between agendas of the research community and the research consumer. Lancet 2000; 355: 2037-40.
-
(2000)
Lancet
, vol.355
, pp. 2037-2040
-
-
Tallon, D.1
Chard, J.2
Dieppe, P.3
-
62
-
-
0037167309
-
Thrombolysis for acute ischaemic stroke: Consumer involvement in design of new randomised controlled trial
-
Koops L, Lindley RI. Thrombolysis for acute ischaemic stroke: consumer involvement in design of new randomised controlled trial. BMJ 2002; 325: 415.
-
(2002)
BMJ
, vol.325
, pp. 415
-
-
Koops, L.1
Lindley, R.I.2
-
63
-
-
0034457588
-
Diagnosis, disclosure, and informed consent: Learning from parents of children with cancer
-
Levi RB, Marsick R, Drotar D, Kodish E. Diagnosis, disclosure, and informed consent: learning from parents of children with cancer. J Pediatr Haematol Oncol 2000; 22: 3-12.
-
(2000)
J Pediatr Haematol Oncol
, vol.22
, pp. 3-12
-
-
Levi, R.B.1
Marsick, R.2
Drotar, D.3
Kodish, E.4
-
64
-
-
0032879579
-
Parents' perceptions of randomization in pediatric clinical trials
-
Wiley F, Ruccione K, Moore I, et al. Parents' perceptions of randomization in pediatric clinical trials. Cancer Pract 1999; 7: 248-56.
-
(1999)
Cancer Pract
, vol.7
, pp. 248-256
-
-
Wiley, F.1
Ruccione, K.2
Moore, I.3
-
65
-
-
9144271021
-
Communication of randomization in childhood cancer trials
-
Kodish E, Eder M, Noll R, et al. Communication of randomization in childhood cancer trials. JAMA 2004; 291: 470-5.
-
(2004)
JAMA
, vol.291
, pp. 470-475
-
-
Kodish, E.1
Eder, M.2
Noll, R.3
-
66
-
-
0037530503
-
Groups potentially at risk for making poorly informed decisions about entry into clinical trials for childhood cancer
-
Simon C, Zyzanski SJ, Eder M, Raiz P, Kodish ED, Siminoff LA. Groups potentially at risk for making poorly informed decisions about entry into clinical trials for childhood cancer. J Clin Oncol 2003; 21: 2173-8.
-
(2003)
J Clin Oncol
, vol.21
, pp. 2173-2178
-
-
Simon, C.1
Zyzanski, S.J.2
Eder, M.3
Raiz, P.4
Kodish, E.D.5
Siminoff, L.A.6
-
67
-
-
0141992777
-
Clinical trials in pediatric cancer: Parental perspectives on informed consent
-
Kupst M, Patenaude A, Walco G, Sterling C. Clinical trials in pediatric cancer: parental perspectives on informed consent. J Pediatr Hematol Oncol 2003; 25: 787-90.
-
(2003)
J Pediatr Hematol Oncol
, vol.25
, pp. 787-790
-
-
Kupst, M.1
Patenaude, A.2
Walco, G.3
Sterling, C.4
|