Condition-related knowledge among children with spina bifida: Longitudinal changes and predictors

Journal of Pediatric Psychology

Volumn 31, Issue 8, 2006, Pages 828-839

  Greenley, Rachel Neff ^a   Coakley, Rachael Millstein ^b   Holmbeck, Grayson N ^c   Jandasek, Barbara ^c   Wills, Karen ^d  

^a CASE WESTERN RESERVE UNIVERSITY   (United States)

^b BOSTON CHILDREN S HOSPITAL   (United States)

^c LOYOLA UNIVERSITY CHICAGO   (United States)

^d Children's Hospitals   (United States)

Author keywords

Adolescence; Chronic illness; Condition knowledge; Spina bifida; Understanding of condition

Indexed keywords

ACCURACY; ADULT; ARTICLE; ATTITUDE TO HEALTH; ATTITUDE TO ILLNESS; CHILD; COGNITION; DISEASE SEVERITY; EDUCATION PROGRAM; FEMALE; FUNCTIONAL ASSESSMENT; HUMAN; HYDROCEPHALUS; KNOWLEDGE MANAGEMENT; MALE; MEDICAL INFORMATION; PATIENT EDUCATION; PREDICTION; QUESTIONNAIRE; SPINA BIFIDA;

ADOLESCENT; ATTITUDE TO HEALTH; AWARENESS; CHILD; COGNITION; FEMALE; FOLLOW-UP STUDIES; HUMANS; MALE; QUESTIONNAIRES; SPINAL DYSRAPHISM; TIME FACTORS;

EID: 33748187646     PISSN: 01468693     EISSN: 1465735X     Source Type: Journal    
DOI: 10.1093/jpepsy/jsj097     Document Type: Article

References (23)

1. Bartholomew, L. K., Parcel, G. S., Seilheimer, D. K., Czyzewski, D., Spinelli, S. H., & Congdon, B. (1991). Development of a health education program to promote the self-management of cystic fibrosis. Health Education Quarterly, 18, 429-443.
2. Berry, S. L., Hayford, J. R., Ross, C. K., Pachman, L. M., & Lavigne, J. V. (1993). Conceptions of illness by children with juvenile rheumatoid arthritis: a cognitive developmental approach. Journal of Pediatric Psychology, 18, 83-97.
3. Brewster, A. B. (1982). Chronically ill hospitalized children's concepts of their illness. Pediatrics, 69, 355-362.
4. Celando, M., Geller, R. J., Phillips, K. M., & Ziman, R. (1998). Treatment adherence among low-income children with asthma. Journal of Pediatric Psychology, 23, 345-349.
5. Charney, E. (1992). Neural tube defects: spina bifida and myelomeningocele. In M. Batshaw, & Y. Perret (Eds.), Children with disabilities: A medical primer (3rd ed., pp. 471-488). Baltimore, MD: Brookes.
6. Cromer, B. A., Enrile, B., McCoy, K., Gerhardstein, M. J., Fitzpatrick, M., & Judis, J. (1990). Knowledge, attitudes and behavior related to sexuality in adolescents with chronic disability. Developmental Medicine and Child Neurology, 32, 602-610.
7. Drotar, D., & Ievers, C. (1994). Age differences in parent and child responsibilities for management of cystic fibrosis and insulin-dependent diabetes mellitus. Journal of Developmental and Behavioral Pediatrics, 15, 265-272.
8. Dunn, L. M., & Dunn, L. M. (1991). Peabody picture vocabulary test-revised (PPVT-R). Circle Pines, MN: American Guidance Service.
9. Edwinson, M., Arnbjornsson, E., & Ekman, R. (1988). Psychologic preparation program for children undergoing acute appendectomy. Pediatrics, 82, 30-36.
10. Erickson, D. (1992). Knowledge of disability in adolescents with spina bifida. Canadian Journal of Rehabilitation, 5, 171-175.
11. Erickson, D., & Erickson, L. (1992). Knowledge of sexuality in adolescents with spina bifida. Canadian Journal of Human Sexuality, 1, 195-199.
12. Feldman, W. S., & Varni, J. W. (1985). Conceptualizations of health and illness by children with spina bifida. Children's Health Care, 13, 102-108.
13. Holmbeck, G. N., Coakley, R. M., Hommeyer, J. S., Shapera, W. E., & Westhoven, V. C. (2002). Observed and perceived dyadic and systemic functioning in families of preadolescents with spina bifida. Journal of Pediatric Psychology, 27, 177-189.
14. Holmbeck, G. N., Johnson, S. Z., Wills, K. E., McKernon, W., Rose, B., Erklin, S. et al. (2002). Observed and perceived parental overprotection in relation to psychosocial adjustment in preadolescents with a physical disability: The mediational role of behavioral autonomy. Journal of Consulting and Clinical Psychology, 70, 96-110.
15. Holmbeck, G. N., & Weshoven, V. C. (2001). Family functioning and psychosocial adjustment in adolescents with myelomeningocele. In J. F. Sarwark, & J. P. Lubicky (Eds.), Caring for the child with spina bifida (pp. 579-599). Rosemont, IL: American Academy of Orthopaedic Surgeons.
16. Holmbeck, G. N., Westhoven, V. C., Phillips, W. S., Bowers, R., Gruse, C., Nikolopoulos, T. et al. (2003). A multimethod, multi-informant, multidimensional perspective on psychological adjustment in preadolescents with spina bifida. Journal of Consulting and Clinical Psychology, 71, 782-796.
17. Ievers, C. E., Brown, R. T., Drotar, D., Caplan, D., Pishevar, B. S., & Lambert, R. G. (1999). Knowledge of physician prescriptions and adherence to treatment among children with cystic fibrosis and their mothers. Journal of Developmental and Behavioral Pediatrics, 20, 335-343.
18. Ievers-Landis, C. E., & Drotar, D. (2000). Parental and child knowledge of the treatment regimen for childhood chronic illness: Related factors and adherence to treatment. In D. Drotar (Ed.), Promoting adherence to medical treatment in chronic childhood illness: Concepts, methods, and interventions (pp. 259-282). Mahwah, NJ: Lawrence Erlbaum Associates.
19. Johnson, S. B. (1984). Knowledge, attitudes, and behavior: Correlates of health in childhood diabetes. Clinical Psychology Review, 4, 503-524.
20. La Greca, A. M., Follansbee, D., & Skyler, J. S. (1990). Developmental and behavioral aspects of diabetes management in youngsters. Children's Health Care, 19, 132-139.
21. Lorenz, R. A., Christensen, N. K., & Pichert, J. W. (1985). Diet-related knowledge, skill, and adherence among children with insulin-dependent diabetes mellitus. Pediatrics, 75, 872-876.
22. Perrin, E. C., & Gerrity, P. S. (1981). There's a demon in your belly: Children's understanding of illness. Pediatrics, 67, 841-849.
23. Wills, K. E., Burk, K. L., & Hayes, E. (1993). Wheelchair ballerinas: Children's concepts of spina bifida. Unpublished manuscript.