Retention in a breast cancer risk information trial: Motivations of a population-based sample of women

Health Education and Behavior

Volumn 33, Issue 5, 2006, Pages 591-603

  Ariail, Kiley ^a   Watts, Carolyn ^b   Bowen, Deborah J ^c  

^a OREGON DEPARTMENT OF HUMAN SERVICES   (United States)

^b UNIVERSITY OF WASHINGTON   (United States)

^c Fred Hutchinson Cancer Research Center   (United States)

Author keywords

Participation in clinical trials; Recruitment

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; BREAST TUMOR; CLINICAL TRIAL; CONSUMER; CONTROLLED CLINICAL TRIAL; FEMALE; HUMAN; MIDDLE AGED; MOTIVATION; PSYCHOLOGICAL ASPECT; RANDOMIZED CONTROLLED TRIAL; RANDOMIZED CONTROLLED TRIAL (TOPIC); RISK ASSESSMENT; UNITED STATES;

ADOLESCENT; ADULT; AGED; BREAST NEOPLASMS; CONSUMER PARTICIPATION; FEMALE; HUMANS; MIDDLE AGED; MOTIVATION; RANDOMIZED CONTROLLED TRIALS; RANDOMIZED CONTROLLED TRIALS AS TOPIC; RISK ASSESSMENT; WASHINGTON;

EID: 33748178468     PISSN: 10901981     EISSN: 15526127     Source Type: Journal    
DOI: 10.1177/1090198106288493     Document Type: Article

References (22)

1. American Association for Public Opinion Research. (1999). Standard definitions: Final dispositions of case codes and outcome rates for RDD Telephone surveys and in-person household surveys. Ann Arbor, MI: Author.
2. Bevan, E. G., Chee, L. C., McGhee, S. M., & McInnes, G. T. (1993). Patients' attitudes to participation in clinical trials. British Journal of Clinical Pharmacology, 35, 204-207.
3. Bowen, D., McTiernan, A., Burke, W., Powers, D. Pruski, J., Durfy, S., et al. (1999). Participation in breast cancer risk counseling among women with a family history. Cancer Epidemiology, Biomarkers & Prevention, 8, 581-585.
4. Bowen, D. J., Cartmel, B., Barnett, M., Goodman, G., & Omenn, G. S. (1999). Predictors of participant retention in two chemoprevention feasibility trials. Annals of Behavioral Medicine, 21, 210-215.
5. Bowen, D. J., Thornquist, M., Anderson, K., Barnett, M., Powell, C., Goodman, G., et al. (2003). Stopping the active intervention: CARET. Controlled Clinical Trials, 24, 39-50.
6. Burke, W., Culver, J. O., Bowen, D., Lowry, D., Durfy, S., McTiernan, A., et al. (2000). Genetic counseling for women with an intermediate family history of breast cancer. American Journal of Medical Genetics, 90, 361-368.
7. Cassileth, B. R., Lusk, E. J., Miller, D. S., & Hurwitz, S. (1982). Attitudes toward clinical trials among patients and the public. Journal of the American Medical Association, 248, 968-970.
8. Durfy, S. J., Bowen, D. J., McTiernan, A., Sporleder, J., & Burke, W. (1999). Attitudes and interest in genetic testing for breast and ovarian cancer susceptibility in diverse groups of women in Western Washington. Cancer Epidemiology, Biomarkers & Prevention, 8, 369-375.
9. Edwards, S. J., Lilford, R. J., & Hewison, J. (1998). The ethics of randomised controlled trials from the perspectives of patients, the public, and healthcare professionals. British Medical Journal, 317, 1209-1212.
10. Emanuel, E. J., & Patterson, W. B. (1998). Ethics of randomized clinical trials. Journal of Clinical Oncology, 16, 365-366.
11. Gail, M. H., Brinton, L. A., Byar, D. P., Corle, D. K., Green, S. B., Schairer, C., et al. (1989). Projecting individualized probabilities of developing breast cancer for white females who are being examined annually. Journal of the National Cancer Institute, 81, 1879-1886.
12. Hannon, M., Bowen, D., Mannikko, A., & Dann, R. 2002. Measuring perceptions of breast cancer risk. Manuscript submitted for publication.
13. Helmes, A. W., Bowen, D. J., Bowden, R., & Bengel, J. (2000). Predictors of participation in genetic research in a primary care physician network. Cancer Epidemiology, Biomarkers & Prevention, 9, 1377-1379.
14. Henzlova, M. J., Blackburn, G. H., Bradley, E. J., & Rogers, W. J. (1994). Patient perception of a long-term clinical trial: Experience using a close-out questionnaire in the Studies of Left Ventricular Dysfunction (SOLVD) Trial. SOLVD Close-out Working Group. Controlled Clinical Trials, 15, 284-293.
15. Lerman, C., Trock, B., Rimer, B., Jepson, C., Brody, D., & Boyce, A. (1991). Psychological side effects of breast cancer screening. Health Psychology, 10, 259-267.
16. Newburg, S. M., Holland, A. E., & Pearce, L. A. (1992). Motivation of subjects to participate in a research trial. Applied Nursing Research, 5, 89-93.
17. Rimer, B. K. (1996). Participating in a women's breast cancer risk counseling trial: Who participates? Who declines? Cancer, 77, 2348-2355.
18. Ross, M. W., Jeffords, K., & Gold, J. (1994). Reasons for entry into and understanding of HIV/AIDS clinical trials: A preliminary study. AIDS Care, 6, 77-82.
19. Slevin, M., Mossman, J., Bowling, A., Leonard, R., Steward, W., Harper, P., et al. (1995). Volunteers or victims: Patients' views of randomised cancer clinical trials. British Journal of Cancer, 71, 1270-1274.
20. Souder, J. E. (1992). The consumer approach to recruitment of elder subjects. Nursing Research, 41, 314-316.
21. Sutherland, H. J., Carlin, K., Harper, W., Martin, L. J., Greenberg, C. V., Till, J. E., et al. (1993). A study of diet and breast cancer prevention in Canada: Why healthy women participate in controlled trials. Cancer Causes and Control, 4, 521-528.
22. Verheggen, F. W., Nieman, F., & Jonkers, R. (1998). Determinants of patient participation in clinical studies requiring informed consent: Why patients enter a clinical trial. Patient Education and Counseling, 35, 111-125.