Preimplantation genetic diagnosis: Development and regulation

Medicine and Law

Volumn 25, Issue 2, 2006, Pages 365-378

  Thomas, C ^a  

^a Ministry for the Environment New Zealand   (New Zealand)

Author keywords

Biotechnology; Child; Consent; Ethics committee; Genetics; Public participation; Regulation; Reproductive technology; Saviour sibling

Indexed keywords

ARTICLE; BIOPSY TECHNIQUE; BONE MARROW TRANSPLANTATION; CHROMOSOME ABERRATION; COMPETENCE; CORD BLOOD STEM CELL TRANSPLANTATION; COURT; DISABILITY; DISEASE ASSOCIATION; DONOR; EMBRYO; FAMILY LIFE; FERTILIZATION IN VITRO; GENDER; GENE MUTATION; GENETIC SCREENING; GESTATION PERIOD; HEALTH CARE ORGANIZATION; HEALTH CARE POLICY; HERITABILITY; HLA MATCHING; HUMAN; INFERTILITY THERAPY; MATURATION; MEDICAL DECISION MAKING; MEDICAL ETHICS; MEDICOLEGAL ASPECT; NEW ZEALAND; NIDATION; ORGAN TRANSPLANTATION; PARENT; PATIENT AUTONOMY; PRACTICE GUIDELINE; PREGNANCY TERMINATION; PRENATAL DIAGNOSIS; RECIPIENT; RECURRENT DISEASE; SEX LINKAGE; SIBLING; UNITED KINGDOM;

EID: 33747020508     PISSN: 07231393     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (36)

1. American Society for Reproductive Medicine, 'A Practice Committee Report: Preimplantation Genetic Diagnosis' (2001) available at www.asrm.oeg/Media/Practice/preimplantation.pdf.
2. Ethics Committee of the American Society for Reproductive Medicine, 'Sex Selection and Preimplantation Genetic Diagnosis' (1999) 72 Fertility and Sterility 595.
3. J A Robertson 'Extending Preimplantation Genetic Diagnosis: The Ethical Debate' (2003) 18 Human Reproduction 465
4. Y Verlinsky et al 'Preimplantation Diagnosis for Early-Onset Alzheimer Disease Caused by V717L Mutation' (2002) JAMA 287.
5. R Shenfield et al 'Taskforce 5: Preimplantation Genetic Diagnosis' (2003) 18 Human Reproduction 649.
6. Yuri Verlinsky et al 'Preimplantation HLA Testing' (2004) 291 JAMA 2079.
7. Susan M Wolf, Jeffrey P Kahn and John E Wagner 'Using preimplantation genetic diagnosis to create a stem cell donor: issues, guidelines & limits' (2003) 31 Journal of Law, Medicine & Ethics 327.
8. Ibid.
9. Quintavalle v Human Fertilisation and Embryology Authority [2003] EWCA Civ 667 (16 May 2003) para. 144.
10. Sally Sheldon and Stephen Wilkinson "Hashmi and Whittaker: An Unjustifiable and Misguided Distinction?" (2004) 12 Medical Law Review 137.
11. Ibid 160.
12. Ibid.
13. Genetics and Public Policy Center Preimplantation Genetic Diagnosis (2004) available at httn://www.dnapolicy.org/downloads/pdfs/policy_pgd.pdf. PGD does not appear to cause an increase in the risk of genetic malformation in the resulting child.
14. Jeffrey R Botkin 'Ethical issues and Practical Problems in Preimplantation Genetic Diagnosis' (1998) 26 Journal of Law Medicine and Ethics 17, 19.
15. I Ponjaert-Kristoffersen, and others 'International Collaborative Study of Intracytoplasmic Sperm Injection- Conceived, In Vitro Fertilization-Conceived, and Naturally Conceived 5-Year-Old Child Outcomes: Cognitive and Motor Assessments' (2005) 115 Pediatrics 283.
16. R J Boyle and J Savulescu 'Ethics of Using Preimplantation Genetic Diagnosis to Select a Stem Cell Donor for an Existing Person' (2001) 323 British Medical Journal 1240, 1242: ("psychological harm.... even if it did occur, [is] unlikely to be so severe that it would be better for that particular child never to have existed").
17. Quintavalle v Human Fertilisation and Embryology Authority [2005] UKHL 28 (28 April 2005) para 17.
18. S E Mumford 'Bone marrow donation- the law in context' (1998) Child and Family Law Quarterly 135, 144.
19. Cordelia Thomas 'Pre-Implantation Testing and the Protection of the "Saviour Sibling"' (2004) 9 Deakin Law Review 119.
20. Human Fertilisation and Embryology Authority and Human Genetics Commission Outcome of the Public Consultation on Preimplantation Genetic Diagnosis (2001) available at www.hfea.gov.uk (last accessed 14 May 2005).
21. C Dyer 'Watchdog Approves Embryo Selection to Heal 3 Year Old Child' (2002) 324 British Medical Journal, 503.
22. The Whitaker family who had a child suffering from Diamond-Blackfan anaemia, subsequently travelled to the United States for the treatment and delivered a healthy baby, who was HLA matched to the ill child. R Dobson '"Savior Sibling" is Born after Embryo Selection in the United States' (2003) 326 BMJ 1416.
23. 'Secret thumbs-up to invasive harvesting from UK designer babies' (7 March 2005) Times London.
24. Quintavalle v Human Fertilisation and Embryology Authority [2005] UKHL 28 (28 April 2005).
25. Science and Technology Committee Press Notice. New inquiry-human reproductive technologies and the law. (session 2002-2003, No 45) (24 October 2003) available at www.parliament.uk (last accessed 10 September 2005).
26. Ibid.
27. National Ethics Committee on Assisted Human Reproduction Guidelines on Preimplantation Genetic Diagnosis (Ministry of Health, Wellington, 2005).
28. Human Reproduction and the Law available at www.parliament.uk (last accessed 10 September 2005). paras 91-107 and recommendations 21-24.
29. K W Chan et al 'Use of Minors as Bone Marrow Donors: Current Attitude and Management: A Survey of 56 Pediatric Transplant Centers' (1996) 128 Journal of Pediatrics 644.
30. See R Dressier 'Feeding the Hunger Artists: Legal issues in Treating Anorexia Nervosa' [1984] Wisconsin Law Review 297, 328-339.
31. Human Assisted Reproductive Technology Act 2004, s 36.
32. Human Assisted Reproductive Technology Act 2004, s 28.
33. Human Assisted Reproductive Technology Act 2004, s 29.
34. Human Assisted Reproductive Technology Act 2004, s 22.
35. Human Assisted Reproductive Technology Act 2004, s 22(1)(c).
36. Charles Weijer 'The Quest for Legitimacy: Comment on Cox MacPherson's "To Strengthen Consensus, Consult the Stakeholders"' (2004) 18 Bioethics 293, 299.