Capacity issues related to the health care proxy

Mental Retardation

Volumn 44, Issue 4, 2006, Pages 272-282

  Lyden, Martin ^a  

^a Center for Disability Services   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

CUSTODY; HEALTH SERVICE; HUMAN; LEGAL ASPECT; MENTAL CAPACITY; MENTAL DEFICIENCY; PSYCHOLOGICAL ASPECT; REVIEW; UNITED STATES;

HEALTH SERVICES; HUMANS; LEGAL GUARDIANS; MENTAL COMPETENCY; MENTAL RETARDATION; NEW YORK; PROXY; UNITED STATES;

EID: 33746895512     PISSN: 00476765     EISSN: 00476765     Source Type: Journal    
DOI: 10.1352/0047-6765(2006)44[272:CIRTTH]2.0.CO;2     Document Type: Review

References (40)

1. American Psychological Association. (2002). Ethical principles of psychologists and code of conduct. American Psychologist, 57, 1060-1073.
2. Appelbaum, P. S., & Roth, L. H. (1982). Competency to consent to research: A psychiatric overview. Archives of General Psychiatry, 39, 951-958.
3. Birren, J. E., Sloane, B., & Cohen, G. D. (Eds.). (1992). Handbook of mental health and aging (2nd ed.). New York: Academic Press.
4. Burling, S. (2002, November 4). Penn hospital to limit its care in futile cases. Philadelphia Inquirer, p. 3.
5. Carney, M. T., Neugroschl, J., Morrison, R. S., Marin, D., & Siu, A. L. (2001). The development and piloting of a capacity assessment tool. Journal of Clinical Ethics, 12, 17-23.
6. Casasanto, M., Simian, M., & Roman, J. (n.d.). A model code of ethics for guardians. Retrieved March 9, 2003, from the National Guardianship Association website: http://www.guardianship.org/whatis/index.htm
7. Cea, C. D., & Fisher, C. B. (2003). Health care decision-making by adults with mental retardation. Mental Retardation, 41, 78-87.
8. Center on Human Policy. (n.d.). A statement of common principles on life-sustaining care and treatment of people with disabilities. Retrieved February 2, 2006, from http://thechp.syr.edu/endorse/
9. Chantel R, 6 Misc 3d 693, 791 N.Y.S. 2nd 324, N.Y. Slip Op. 24533 (2004).
10. Conroy, 98 NJ 321; 486 A. 2d 1209 (1985).
11. Cruzan v. Missouri Department of Health, 497 U.S. 261 (1990).
12. Dinerstein, R., Herr, S., & O'Sullivan, J. (Eds.). (1999). A guide to consent. Washington, DC: American Association on Mental Retardation.
13. Doyle, C. (2002, June). Guardianship. Workshop presented at the Albany Law School Institute of Legal Studies Disability Law Day Conference, Albany, New York.
14. English, D. (2001, May/June). The uniform health care decisions act and its progress in the states. Probate and Property, 19, 19.
15. Howe, E. G. (2001). How to determine competency. Journal of Clinical Ethics, 12, 3-16.
16. Kalachnik, J. E. (1999). Informed consent. In J. E. Kalachnik (Ed.), Handbook of psychopharmacologic medication monitoring (pp. 128-135). Columbia, SC: Kalachnik Consulting.
17. Kalachnik, J. E., Leventhal, B. L., James, D. H., Sovner, R., Kastner, T. A., Walsh, K., et al. (1998). Guidelines for the use of medicine to treat psychiatric disorder. In S. Reiss & M. G. Aman (Eds.), Medicine to treat psychiatric disorder and developmental disabilities: The international consensus handbook (pp. 45-72). Columbus: Ohio State University, Nisonger Center.
18. Krynski, M., Tymchuk, A., & Ouslander, J. (1994). How informed can consent be? New lights on comprehension among elderly people making decisions about enteral tube feeding. Gerontologist, 34, 36-43.
19. LaRue, A., & Markee, T. (1995). Clinical assessment research with older adults. Psychological Assessment, 7, 376-386.
20. Last Passages Project Resources. (2005, November 2). End-of-life care for people with developmental disabilities: Philosophy and recommendations. Journal of Religion, Disability & Health, 9, 91-95.
21. Lyden, M., & Peters, M. (2004). Assessing capacity for informed consent: A rationale and protocol. Mental Health Aspects of Developmental Disabilities, 7, 97-106.
22. Mazzeo, K. (2002). The right to die versus the right to live - Who decides? The long and wandering road to a legislative solution. Albany Law Review, 263, 1-19.
23. McKinney's Session Laws of New York State, Laws of 1990 (1990). Chapter 516. St. Paul, MN: West Publishing.
24. Moye, J., Karel, M., Azar, A., & Gurrera, J. (2004). Capacity to consent to treatment: Empirical comparison of three instruments in older adults with and without dementia. The Gerontologist, 2, 166-175.
25. New York State Codes, Rules and Regulations, Mental Hygiene Regulations. (1995, January 1). XIV, § 633. 20 Title XIV. Albany: New York State.
26. New York State Department of Health. Valid health care proxy form. Available from http://www.health.state.ny.us/nysdoh/hospital/healthcareproxy/ intro.htm
27. New York State Mental Hygiene Law, Article 81 (1992) recodification (81.22 [a][8]).
28. New York State Surrogate's Court Procedure Act, Article 17-A. (February 2004). [SCPA] 1750-b [2][a]).
29. O' Connor, 72 NY 2d 517 (1988).
30. Office of Mental Retardation and Developmental Disabilities. (February 2004). Health care choices: who can decide? Albany: Author. Available from www.omr.state.ny.us
31. Orel, N. (1998). Ethical considerations in assessing the competency of older adults: A provision of informed consent. Journal of Mental Health Counseling, 20, 189-202.
32. President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. (1982). Making health care decisions (Vol. 1). Washington, DC: U.S. Government Printing Office.
33. Proctor, A. W. (1995). Ethical issues in research with dementia patients: A neuroscience perspective. International Journal of Geriatric Psychiatry, 10, 653-654.
34. Rivers v. Katz, 495 N.E.2d 337, 504 N.Y.S. 2d 74, 67 N.Y.2d 485 (1986).
35. Stavis, P. (1991, November/December). Sexual activity and the law of consent. Quality Care Newsletter, Albany: New York State Commission on Quality of Care for the Mentally Disabled.
36. Storandt, M. (1994). General principles of assessment of older adults. In M. Storandt & G. R. VandenBos (Eds.), Neuropsychological assessment of dementia and depression in older adults: A clinician's guide (pp. 7-32). Washington, DC: American Psychological Association.
37. Stratton, J., Bailly, R., Meyer, J., Baun, H., Faulkner. L., Silberman, A., & Sanchez, B. (1999, October). A practical guide to making decisions for persons with developmental and age-related disabilities: The challenges of sexuality, housing and health care. Manual presented at the Albany Law School Institute of Legal Studies Continuing Education Conference. Albany, New York.
38. Sundram, C., & Stavis, P. (1994). Sexuality and intellectual disabilities. Mental Retardation, 32, 255-264.
39. United States Census Bureau. (2000). Statistical abstract of the United States. Washington, DC: U.S. Government Printing Office.
40. Zarit, S. H., & Knight, B. G. (Eds.). (1996). A guide to psychotherapy and aging: Effective clinical interventions in a life-stage context. Washington, DC: American Psychological Association.