Assessing capacity for informed consent: A rationale and protocol

Mental Health Aspects of Developmental Disabilities

Volumn 7, Issue 3, 2004, Pages 97-106

  Lyden, Martin ^a   Peters, Michelle ^b  

^a Center for Disability Services   (United States)

^b STATE UNIVERSITY OF NEW YORK   (United States)

Author keywords

Assessment; Capacity; Consent; Developmental disability; Electroconvulsive therapy; Informed; Intellectual disability; Mental retardation; Pharmacotherapy; Psychiatric disorder

Indexed keywords

COMPETENCE; DEVELOPMENTAL DISORDER; ELECTROCONVULSIVE THERAPY; HUMAN; INDIVIDUALIZATION; INFORMED CONSENT; INTELLECTUAL IMPAIRMENT; LAW; MENTAL CAPACITY; MENTAL HEALTH SERVICE; REVIEW;

EID: 4644328939     PISSN: 10573291     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Review

References (39)

1. American Psychiatric Association Committee on Electroconvulsive Therapy. The Practice of Electroconvulsive Therapy: Recommendations for Treatment, Training, and Privileging (2nd Ed.). Washington, DC: American Psychiatric Association, 2001.
2. American Psychological Association. Ethical Principles of psychologists and code of conduct. Am Psychol 1992;47:1597-1611.
3. Appelbaum PS, Grisso T. The MacArthur Treatment Competence Study. I: Mental illness and competence to consent to treatment. Law Hum Behav 1995;19:105-126.
4. Appelbaum PS, Roth LH. Competency to consent to research: A psychiatric overview. Arch Gen Psychiatry 1982;39:951-958.
5. Birren JE, Sloane B, Cohen GD (eds). Handbook of Mental Health and Aging, Second Edition. New York, NY: Academic Press, 1992.
6. Burns B. Mental health service research on the hospitalized and institutionalized CMI elderly. In: Light E, Lebowitz B (eds), The Elderly with Chronic Mental Illness. New York, NY: Springer, 1991:207-215.
7. Carney MT, Neugroschl J, Morrison RS, et al. The development and piloting of a capacity assessment tool. J Clin Ethics 2001;12:17-23.
8. Casasanto M, Simian M, Roman J. (n.d.) A Model Code of Ethics for Guardians. Retrieved March 9, 2003 from the National Guardianship Association web site: http://www.guardianship.org/whatis/index.htm.
9. Cea CD, Fisher CB. Health care decision-making by adults with mental retardation. Ment Retard 2003;41:78-87.
10. Cockerham WC. This Aging Society. Upper Saddle River, NJ: Prentice-Hall Inc., 1997.
11. Committee on Mental Health. Report on Electroconvulsive Therapy (BCT). Albany, NY: New York State Assembly, March, 2002.
12. Conditions of Participation for Intermediate Care Facilities for the Mentally Retarded, 42, CFR Subchapter E Part 483, 1988.
13. Dinerstein R, Herr S, O'Sullivan J (eds). A Guide to Consent. Washington, D.C.: American Association on Mental Retardation, 1999.
14. Doyle C. Guardianship. Workshop presented at the Albany Law School Institute of Legal Studies Disability Law Day Conference, Albany, NY: June, 2002.
15. Ellis JW. Decisions by and for people with mental retardation: Balancing considerations of autonomy and protection. Villanova Law Rev 1992;37:1779-1809.
16. Grisso T, Appelbaum PS. Mentally ill and non-mentally-ill patients' abilities to understand informed consent disclosures for medication: Preliminary data. Law Hum Behav 1991;15:377-388.
17. Howe EG. How to determine competency. J Clin Ethics 2001;12:3-16.
18. In re Adams S., 729 N.Y.S. 2d 734, 285 A.D. 2d 175 (2 Dept 2001).
19. In re Conroy, 486 A. 2d 1209 (Supreme Court of New Jersey, Jan. 17, 1985).
20. Kalachnik JE. Informed consent. In: Kalachnik JE (ed), Handbook of Psychopharmacologic Medication Monitoring. Columbia, SC: Kalachnik Consulting, 1999:128-135.
21. Kalachnik JE, Leventhal BL, James DH, et al. Guidelines for the use of medicine to treat psychiatric disorder. In: Reiss S, Aman MG (eds), Medicine to Treat Psychiatric Disorder and Developmental Disabilities: The International Consensus Handbook. Columbus, OH: Ohio State University, Nisonger Center, 1998:45-72.
22. Krynski M, Tymchuk A, Ouslander J. How informed can consent be? New light on comprehension among elderly people making decisions about enteral tube feeding, Gerontologist 1994;34:36-43.
23. LaRue A, Markee T. Clinical assessment research with older adults. Psychol Assess 1995;7:376-386.
24. Melton GB, Stanley BH. Research Involving Special Populations. Lincoln, NE: University of Nebraska Press, 1996.
25. Orel N. Ethical considerations in assessing the competency of older adults: A provision of informed consent. J Ment Health Counsel 1998;20:189-202.
26. Parry, J. Legal parameters of informed consent applied to electroconvulsive therapy (n.d.). Retrieved September 18, 2003 from http://www.healthyplace.com/Communities/Depression/ect/resources/summary.asp.
27. President's Commission for the Study of Ethical Problems In Medicine and Biomedical and Behavioral Research. Making Health Care Decisions, Volume One. Washington, DC: US Government Printing Office, 1982.
28. President's Commission for the Study of Ethical Problems In Medicine and Biomedical and Behavioral Research. Decisions to Forego Life-Sustaining Treatment. Washington, DC: US Government Printing Office, 1983.
29. Proctor AW. Ethical issues in research with dementia patients: A neuroscience perspective. Int J Geriatr Psychiatry 1995;10:653-654.
30. Rasmussen KG. Clinical applications of recent research on electroconvulsive therapy. Bull Menninger Clin 2003; 67:18-31.
31. Rivers v. Katz, 495 N.E.2d 337, 504 N.Y.S. 2d 74, 67 N.Y.2d 485, 1986.
32. Rush AJ, Frances A. Treatment of psychiatric and behavioral problems in mental retardation. Am J Ment Retard 2000;105:159-227.
33. Stavis P. Sexual activity and the law of consent. Quality Care Newsletter. Albany, NY: November/December, 1991.
34. Stern RG, Mohs RC, Davidson M. A longitudinal study of Alzheimer's disease: Measurement, rate, and predictors of cognitive deterioration. Am J Psychiatry 1994;151:390-396.
35. Storandt M. General principles of assessment of older adults. In: Storandt M, VandenBos GR (eds), Neuropsychological Assessment of Dementia and Depression in Older Adults: A Clinician's Guide. Washington, DC: American Psychological Association, 1994:7-32.
36. Stratton J, Bailly R, Meyer J, et al. A Practical Guide to Making Decisions for Persons with Developmental and Age-Related Disabilities: The Challenges of Sexuality, Housing and Health Care. Manual presented at the Albany Law School Institute of Legal Studies Continuing Education Conference. Albany, NY: October, 1999.
37. Sundram CJ, Stavis PF. Sexuality and mental retardation: Unmet challenges. Ment Retard 1994;32:255-264.
38. United States Census Bureau. Statistical Abstract of the United States. Washington, DC: U.S. Government Printing Office, 1995.
39. Zarit SH, Knight BG (eds). A Guide to Psychotherapy and Aging: Effective Clinical Interventions in a Life-Stage Context. Washington, DC: American Psychological Association, 1996.