Stress trajectories in mothers of young children with Down syndrome

Journal of Intellectual Disability Research

Volumn 50, Issue 7, 2006, Pages 501-514

  Most, D E ^a   Fidler, Deborah J ^a   Laforce Booth, C ^b   Kelly, J ^b  

^a Department of Environmental and Radiological Health Sciences   (United States)

^b UNIVERSITY OF WASHINGTON   (United States)

Author keywords

Down syndrome; Early development; Family stress; Growth modelling; Longitudinal data analysis

Indexed keywords

ADULT; AGE DISTRIBUTION; ARTICLE; CHILD BEHAVIOR; CHILD DEVELOPMENT; CLINICAL ARTICLE; COGNITION; CONTROLLED STUDY; DATA COLLECTION METHOD; DOWN SYNDROME; FAMILY THERAPY; FEMALE; HUMAN; LINGUISTICS; MALADJUSTMENT; MALE; MATERNAL BEHAVIOR; MENTAL STRESS; ROLE STRESS;

ADULT; CHILD BEHAVIOR DISORDERS; CHILD, PRESCHOOL; DATA INTERPRETATION, STATISTICAL; DEVELOPMENTAL DISABILITIES; DOWN SYNDROME; FEMALE; HUMANS; INFANT; INTELLIGENCE; LANGUAGE DEVELOPMENT DISORDERS; LONGITUDINAL STUDIES; MALE; MODELS, STATISTICAL; MOTHERS; STRESS, PSYCHOLOGICAL;

EID: 33746541022     PISSN: 09642633     EISSN: 13652788     Source Type: Journal    
DOI: 10.1111/j.1365-2788.2006.00796.x     Document Type: Article

References (41)

1. Abidin R. (1995) Parenting Stress Index: Professional Manual, 3rd edn. Psychological Assessment Resources, Odessa, FL.
2. Achenbach T. M. (1991a) Manual for the Child Behavior Checklist and the Revised Child Behavior Profile, 2nd edn. University of Vermont, Burlington, VT.
3. Achenbach T. M. (1991b) Manual for the Teacher's Report Form and 1991 Profile. University of Vermont, Burlington, VT.
4. Achenbach T. M., Edelbrock C. & Howell C. T. (1987) Empirically based assessment of behavioral/emotional problems of 2- and 3-year-old children. Journal of Abnormal Child Psychology 15, 629-50.
5. Bayley N. (1993) Bayley Scales of Infant Development, 2nd edn. Psychological Corporation, San Antonio, TX.
6. Boudreau D. (2002) Literacy skills in children and adolescents with Down syndrome. Reading and Writing: An Interdisciplinary Journal 15, 497-525.
7. Byrne A., Buckley S., MacDonald J. & Bird G. (1995) Investigating the literacy, language, and memory skills of children with Down's syndrome. Down's Syndrome: Research and Practice 3, 53-8.
8. Cahill B. M. & Glidden L. M. (1997) Influence of child diagnosis on family and parental functioning: Down syndrome versus other disabilities. American Journal on Mental Retardation 101, 149-60.
9. Carey W. B. & McDevitt S. C. (1978) Revised Infant Temperament Questionnaire. Pediatrics 61, 735-9.
10. Cupples L. & Iacono T. (2000) Phonological awareness and oral reading skills in children with Down syndrome. Journal of Speech, Language, and Hearing Research 43, 595-608.
11. Dykens E. M. & Hodapp R. M. (2001) Research in mental retardation: toward an etiologic approach. Journal of Child Psychology and Psychiatry and Allied Disciplines 42, 49-71.
12. Dykens E. M., Hodapp R. M. & Finucane B. M. (2000) Genetics and Mental Retardation Syndromes: A New Look at Behavior and Interventions. Paul H. Brookes Publishing, Baltimore, MD.
13. Dykens E., Shah B., Beck T. & King B. H. (2002) Maladaptive behavior in children and adolescents with Down's syndrome. Journal of Intellectual Disability Research 46, 484-92.
14. Elliott C. D. (1990) Differential Ability Scales. Psychological Corporation, San Antonio, TX.
15. Fenson L., Dale P. S., Reznick J. S., Thal D., Bates E., Hartung J. P., Pethick S. & Reilly J. S. (1993) The MacArthur Communicative Developmental Inventories. Singular Publishing Group, San Diego, CA.
16. Fidler D. J., Barrett K. C. & Most D. E. (2005) Age-related differences in smiling and personality in Down syndrome. Journal of Developmental and Physical Disabilities 17, 263-80.
17. Fidler D. J., Hepburn S. & Rogers S. (2005) Early learning and adaptive behavior in toddlers with Down syndrome: Evidence for an emerging behavioral phenotype?. Down Syndrome: Research and Practice (in press).
18. Fidler D. J., Hodapp R. M. & Dykens E. M. (2000) Stress in families of young children with Down syndrome, Williams syndrome, and Smith-Magenis syndrome. Early Education and Development 11, 395-406.
19. Fidler D. J., Most D. E. & Guiberson M. M. (2005) Neuropsychological correlates of word identification in children with Down syndrome. Research in Developmental Disabilities 26, 487-501.
20. Hodapp R. M. (1999) Indirect effects of genetic mental retardation disorders: Theoretical and methodological issues. International Review of Research in Mental Retardation 22, 27-50.
21. Hodapp R. M., Dykens E. M. & Masino L. L. (1997) Families of children with Prader-Willi syndrome: Stress-support and relations to child characteristics. Journal of Autism and Developmental Disorders 27, 11-24.
22. Hodapp R. M., Fidler D. J. & Smith A. C. M. (1998) Stress and coping in families of children with Smith-Magenis syndrome. Journal of Intellectual Disability Resaerch 42, 331-40.
23. Hodapp R. M., Ly T. L., Ricci L. & Fidler D. J. (2001) Less stress, more rewarding: Parenting children with Down syndrome. Parenting: Science and Practice 1, 317-37.
24. Hodapp R. M., Ricci L. A., Ly T. M. & Fidler D. J. (2003) The effects of the child with Down syndrome on maternal stress. British Journal of Developmental Psychology 21, 137-51.
25. Holroyd J. & McArthur D. (1976) Mental retardation and stress on the parents: A contrast between Down's syndrome and childhood autism. American Journal on Mental Deficiency 80, 431-6.
26. Jarrold C. & Baddeley A. D. (1997) Short-term memory for verbal and visuospatial information in Down's syndrome. Cognitive Neuropsychiatry 2, 101-22.
27. Jarrold C., Baddeley A. D. & Hewes A. K. (1999) Genetically dissociated components of working memory: Evidence from Down's and Williams syndrome. Neuropsychologia 37, 637-51.
28. Karmiloff-Smith A. (1997) Crucial differences between developmental cognitive neuroscience and adult neuropsychology. Developmental Neuropsychology 13, 513-24.
29. Karmiloff-Smith A. (1998) Is atypical development necessarily a window on the normal mind/brain? The case of Williams syndrome. Developmental Science 1, 273-7.
30. Kasari C. & Sigman M. (1997) Linking parental perceptions to interactions in young children with autism. Journal of Autism and Developmental Disorders 27, 39-57.
31. Kay-Raining Bird E., Cleave P. L. & McConnell L. (2000) Reading and phonological awareness in children with Down syndrome. American Journal of Speech-Language Pathology 9, 319-30.
32. Laws G. & Gunn D. (2002) Relations between reading, phonological skills and language development in individuals with Down syndrome: A five-year follow-up study. Reading and Writing 15, 527-48.
33. Mervis C. & Klein-Tasman B. (2004) Methodological issues in a group - Matching designs: α-levels for control variable comparisons and measurement characteristics of control and target variables. Journal of Autism and Developmental Disorders 34, 7-17.
34. Mink I. T., Meyers C. & Nihira K. (1984) Taxonomy of family life styles. II. Homes with slow-learning children. American Journal on Mental Retardation 89, 111-23.
35. Noh S., Dumas J. E., Wolf L. C. & Fisman S. N. (1989) Delineating sources of stress in parents of exceptional children. Family Relations: Journal of Applied Family and Child Studies 38, 456-61.
36. Paterson S. J., Brown J. J., Gsoedl M. K., Johnson M. H. & Karmiloff-Smith A. (1999) Cognitive modularity and genetic disorders. Science 286, 2355-8.
37. Sameroff A. (1975) Transactional models in early social relations. Human Development 18, 65-79.
38. Seltzer M. M., Greenberg J. S. & Krauss M. W. (1995) A comparison of coping strategies of aging mothers of adults with mental illness or mental retardation. Psychology and Aging 10, 64-75.
39. Seltzer M. M., Krauss M. W. & Tsunematsu N. (1993) Adults with Down syndrome and their aging mothers: Diagnostic group differences. American Journal on Mental Retardation 97, 496-508.
40. Singer J. D. & Willett J. B. (2003) Applied Longitudinal Data Analysis. Oxford University Press, New York.
41. Zimmerman I. L., Steiner V. G. & Pond R. E. (1992) PLS-3 Examiner's Manual and Picture Manual. Psychological Corporation, New York.