-
1
-
-
0035895505
-
The Sequence of the Human Genome
-
Venter JC, Adams MD, Myers EW, et al. The Sequence of the Human Genome. Science 2001;291:1304-1351.
-
(2001)
Science
, vol.291
, pp. 1304-1351
-
-
Venter, J.C.1
Adams, M.D.2
Myers, E.W.3
-
2
-
-
0037103276
-
Commentary: Epidemiology and the continuum from genetic research to genetic testing
-
Khoury M. Commentary: Epidemiology and the continuum from genetic research to genetic testing. Am J Epidemiol 2002;156:297-299.
-
(2002)
Am J Epidemiol
, vol.156
, pp. 297-299
-
-
Khoury, M.1
-
3
-
-
0035861017
-
Informed consent for population-based research involving genetics
-
Beskow LM, Burke W, Merz JF, Barr PA, Terry S, Penchaszadeh VB, Gostin LO, Gwinn M, Khoury MJ. Informed consent for population-based research involving genetics. JAMA 2001;286:2315-2321.
-
(2001)
JAMA
, vol.286
, pp. 2315-2321
-
-
Beskow, L.M.1
Burke, W.2
Merz, J.F.3
Barr, P.A.4
Terry, S.5
Penchaszadeh, V.B.6
Gostin, L.O.7
Gwinn, M.8
Khoury, M.J.9
-
4
-
-
0038618794
-
Genebanks. A comparison of eight proposed international genetic databases
-
Austin M, Harding S, McElroy C. Genebanks. A comparison of eight proposed international genetic databases. Community Genet 2003;6:37-45.
-
(2003)
Community Genet
, vol.6
, pp. 37-45
-
-
Austin, M.1
Harding, S.2
McElroy, C.3
-
5
-
-
0036663043
-
Declaration of Helsinki: Ethical principles for medical research involving human subjects
-
World Medical Association. Declaration of Helsinki: Ethical principles for medical research involving human subjects. J Postgrad Med 2002;48:206-208.
-
(2002)
J Postgrad Med
, vol.48
, pp. 206-208
-
-
-
8
-
-
0032226958
-
Recommendation No. R(97)5 of the Committee of Ministers to member states on the protection of medical data
-
Council of Europe. Recommendation No. R(97)5 of the Committee of Ministers to member states on the protection of medical data. Int Dig Health Legis 1998;49:502-508.
-
(1998)
Int Dig Health Legis
, vol.49
, pp. 502-508
-
-
-
9
-
-
0003192534
-
Convention for the protection of human rights and dignity of the human being with regard to the application of biology and medicine: Convention on human rights and biomedicine
-
Council of Europe. Convention for the protection of human rights and dignity of the human being with regard to the application of biology and medicine: Convention on human rights and biomedicine. Int Dig Health Legis 1997;48:99-105.
-
(1997)
Int Dig Health Legis
, vol.48
, pp. 99-105
-
-
-
10
-
-
0013180384
-
Draft report on the collection, treatment, storage and use of genetic data, SHS-503/01/CIB-8/3
-
International Bioethics Committee, Paris
-
United Nations Educational, Scientific, and Cultural Organization (UNESCO). Draft report on the collection, treatment, storage and use of genetic data, SHS-503/01/CIB-8/3, International Bioethics Committee, Paris 2001.
-
(2001)
-
-
-
11
-
-
0003578532
-
-
International Bioethics Committee, Paris
-
United Nations Educational, Scientific, and Cultural Organization (UNESCO). Declaration on the Human Genome and Human Rights, International Bioethics Committee, Paris 1997.
-
(1997)
Declaration on the Human Genome and Human Rights
-
-
-
12
-
-
0004837296
-
Statement on DNA sampling: Control and access
-
London; Accessed July 21, 2003
-
Human Genome Organization (HUGO) Ethics Committee. Statement on DNA sampling: Control and access, London, 1998. Available at: http://www.gene.u-cl.ac.uk/hugo/sampling.html. Accessed July 21, 2003.
-
(1998)
-
-
-
13
-
-
0345338615
-
Statement on benefit-sharing, Vancouver
-
Accessed July 21, 2003
-
Human Genome Organization (HUGO) Ethics Committee. Statement on benefit-sharing, Vancouver 2000 Available at: http://www.hugo-international.org/hugo. Accessed July 21, 2003.
-
(2000)
-
-
-
15
-
-
0344907436
-
Research ethics guidelines for using biobanks in genome research Dnr 1999-570
-
Accessed July 21, 2003
-
Swedish Medical Research Council (MFR). Research ethics guidelines for using biobanks in genome research Dnr 1999-570, 1999. Available at: http://www.mfr.se/filserver/index.asp?fil=J1SHVF2XTCCO.. Accessed July 21, 2003.
-
(1999)
-
-
-
16
-
-
10644243316
-
Statement of principles: Human genome research
-
Accessed July 21, 2003
-
Network of Applied Genetic Medicine (RMGA). Statement of principles: Human genome research, 2000. Available at: http://www.rmga.qc.ca. Accessed July 21, 2003.
-
(2000)
-
-
-
17
-
-
0003568396
-
Research involving human biological materials: Ethical issues and policy guidelines
-
Accessed July 21, 2003
-
National Bioethics Advisory Committee. Research involving human biological materials: Ethical issues and policy guidelines, 1999. Available at: http://www.georgetown.edu/research/nrcbl/nbac/pubs.html. Accessed July 21, 2003.
-
(1999)
-
-
-
18
-
-
0344044675
-
About conventions and agreements in the European Treaty Series (ETS)
-
Accessed July 21, 2003
-
Council of Europe. About conventions and agreements in the European Treaty Series (ETS), 2002. Available at: http://conventions.coe.int. Accessed July 21, 2003.
-
(2002)
-
-
-
19
-
-
0345338620
-
Legal Affairs: Treaty Office
-
Accessed July 21, 2003
-
Council of Europe. Legal Affairs: Treaty Office, 2003. Available at: http://conventions.coe.int/treaty/EN/cadreprincipal.htm. Accessed July 21, 2003.
-
(2003)
-
-
-
20
-
-
0344907437
-
Genewatch UK
-
Accessed July 21, 2003
-
Genewatch UK. 2003. Available at: http://www.genewatch.org. Accessed July 21, 2003.
-
(2003)
-
-
-
21
-
-
0037044656
-
Population database boom, from Iceland to the U.S
-
Kaiser J. Population database boom, from Iceland to the U.S. Science 2002;298:1158-1161.
-
(2002)
Science
, vol.298
, pp. 1158-1161
-
-
Kaiser, J.1
-
22
-
-
0033596464
-
People are not commodities
-
January 23
-
Lewontin R. People are not commodities. New York Times January 23, 1999:A19.
-
(1999)
New York Times
-
-
Lewontin, R.1
-
23
-
-
0035375583
-
The case for caution: Being protective of human dignity in the face of corporate forces taking title to our DNA
-
Brown B. The case for caution: Being protective of human dignity in the face of corporate forces taking title to our DNA. J Law Med Ethics 2001;29:166-169.
-
(2001)
J Law Med Ethics
, vol.29
, pp. 166-169
-
-
Brown, B.1
-
24
-
-
0035463249
-
Genetics, commodification, and social justice in the globalization era
-
Cahill L. Genetics, commodification, and social justice in the globalization era. Kennedy Inst Ethics J 2001;11:221-238.
-
(2001)
Kennedy Inst Ethics J
, vol.11
, pp. 221-238
-
-
Cahill, L.1
-
25
-
-
0004229270
-
-
Cambridge, Mass: Harvard Univ. Press
-
Radin M. Contested Commodities. Cambridge, Mass: Harvard Univ. Press, 1996.
-
(1996)
Contested Commodities
-
-
Radin, M.1
-
26
-
-
19044379822
-
Proposed genetic database on Tongans opposed
-
Burton B. Proposed genetic database on Tongans opposed. BMJ 2002;324:443.
-
(2002)
BMJ
, vol.324
, pp. 443
-
-
Burton, B.1
-
27
-
-
0003578535
-
Universal Declaration of Human Rights, Adopted by General Assembly
-
Accessed July 21, 2003
-
United Nations. Universal Declaration of Human Rights, Adopted by General Assembly 1948. Available at: http://www.un.org/Overview/rights.html. Accessed July 21, 2003.
-
(1948)
-
-
-
28
-
-
0034442679
-
Populations genetics and benefits sharing
-
Knoppers B. Populations genetics and benefits sharing. Community Genet 2000;3:212-214.
-
(2000)
Community Genet
, vol.3
, pp. 212-214
-
-
Knoppers, B.1
-
31
-
-
0344044669
-
The deCode proposal for an Icelandic Health Database
-
Accessed July 21, 2003
-
Anderson R. The deCode proposal for an Icelandic Health Database, 1998. Available at: http://www.ftp.cl.cam.ac.uk/ftp/users/rja14/iceland.pdf. Accessed July 21, 2003.
-
(1998)
-
-
Anderson, R.1
-
32
-
-
0034659688
-
The Icelandic healthcare database and informed consent
-
Gulcher J, Stefansson K. The Icelandic healthcare database and informed consent. N Engl J Med 2000;342:1827-1830.
-
(2000)
N Engl J Med
, vol.342
, pp. 1827-1830
-
-
Gulcher, J.1
Stefansson, K.2
-
33
-
-
0037132576
-
Banking (on) Genes: DNA south as key to disease causes and cures
-
Mitka M. Banking (on) Genes: DNA south as key to disease causes and cures. JAMA 2002;288:2951-2952.
-
(2002)
JAMA
, vol.288
, pp. 2951-2952
-
-
Mitka, M.1
-
34
-
-
0344907432
-
-
Tartu, Estonia: Estonian Genome Project
-
Estonian Genome Project Foundation. Tartu, Estonia: Estonian Genome Project, 2002.
-
(2000)
-
-
-
35
-
-
0033549712
-
'Strengthened' Icelandic bioethics committee comes under fire
-
Abbott A. 'Strengthened' Icelandic bioethics committee comes under fire. Nature 1999;400:602.
-
(1999)
Nature
, vol.400
, pp. 602
-
-
Abbott, A.1
-
36
-
-
0344907435
-
Conflict of interest in the National Bioethics Committee
-
Accessed July 21, 2003
-
Mannvernd, Association of Icelanders for Ethics in Science, and Medicine. Conflict of interest in the National Bioethics Committee, 1999. Available at: http://www-mannvernd.is/english/news/hg.minister.html. Accessed July 21, 2003.
-
(1999)
-
-
-
37
-
-
0345338618
-
Personalized Medicine Research Project
-
Accessed July 21, 2003
-
Marshfield Clinic. Personalized Medicine Research Project, 2003. Available at: http://www.mfldclin.edu/pmrp/. Accessed July 21, 2003.
-
(2003)
-
-
-
38
-
-
23044530831
-
Gene pool expeditions
-
Hollon T. Gene pool expeditions. Scientist 2001;15:1.
-
(2001)
Scientist
, vol.15
, pp. 1
-
-
Hollon, T.1
-
39
-
-
0034995410
-
Biotechnology in the Baltic
-
Frank L. Biotechnology in the Baltic. Nat Biotechnol 2001;19:513-515.
-
(2001)
Nat Biotechnol
, vol.19
, pp. 513-515
-
-
Frank, L.1
-
40
-
-
0344475916
-
Mere foolishness?
-
September 13
-
Johannesson V. Mere foolishness? Morgunblad September 13, 2002.
-
(2002)
Morgunblad
-
-
Johannesson, V.1
-
41
-
-
0345338617
-
Decode was meant to save lives⋯now it's destroying them
-
Accessed July 21, 2003
-
Meek J. Decode was meant to save lives⋯now it's destroying them. The Guardian, Available at: http://www.guardian.co/uk/g2/story/0,3604,822816,00.html. Accessed July 21, 2003.
-
(2002)
The Guardian
-
-
Meek, J.1
-
42
-
-
0344044670
-
Kari sleeps quietly like the boy Paul
-
Accessed July 21, 2003
-
Erlingsson S. Kari sleeps quietly like the boy Paul, 2001. Available at: http://www.raunvis.hi.is/~steindor/kari2.html. Accessed July 21, 2003.
-
(2001)
-
-
Erlingsson, S.1
-
43
-
-
85087233210
-
Icelanders opt out of genetic database
-
Hauksson P. Icelanders opt out of genetic database. Nature 1999;400:707-708.
-
(1999)
Nature
, vol.400
, pp. 707-708
-
-
Hauksson, P.1
-
46
-
-
0035088598
-
Context and content of Iceland's Biobank Act
-
Winickoff D. Context and content of Iceland's Biobank Act. J Biolaw Bus 2000;4:11-17.
-
(2000)
J Biolaw Bus
, vol.4
, pp. 11-17
-
-
Winickoff, D.1
-
48
-
-
0034659819
-
Rules for research on human genetic variation: Lessons from Iceland
-
Annas G. Rules for research on human genetic variation: Lessons from Iceland. N Engl J Med 2000;342:1830-1833.
-
(2000)
N Engl J Med
, vol.342
, pp. 1830-1833
-
-
Annas, G.1
-
49
-
-
0344907431
-
-
St. Paul, MN West Group
-
Andrews LB, Mehlman MJ, Rothstein MA. Genetics: Ethics, Law and Policy, St. Paul, MN West Group 2002.
-
(2002)
Genetics: Ethics, Law and Policy
-
-
Andrews, L.B.1
Mehlman, M.J.2
Rothstein, M.A.3
-
50
-
-
0344044671
-
Personalized Medicine Research Project: Is there a risk to my confidentiality?
-
Accessed July 21, 2003
-
Marshfield Clinic. Personalized Medicine Research Project: Is there a risk to my confidentiality? 2003. Available at: http://www.mfldclin.edu/pmrp/pmrpprivate.asp. Accessed July 21, 2003.
-
(2003)
-
-
-
51
-
-
0344475914
-
Protocol for the UK Biobank: A study of genes, environment and health
-
Accessed July 21, 2003
-
Biobank UK. Protocol for the UK Biobank: A study of genes, environment and health, 2002. Available at: http://www.ukbiobank.ac.uk/documents/draft_protocol.pdf. Accessed July 21, 2003.
-
(2002)
-
-
-
52
-
-
0003755607
-
-
Philadelphia: W.B. Saunders Company
-
Gordis L. Epidemiology, 2nd ed. Philadelphia: W.B. Saunders Company, 2000.
-
(2000)
Epidemiology, 2nd ed.
-
-
Gordis, L.1
-
53
-
-
0344044672
-
Giving your genes to Biobank UK: Questions to ask
-
Accessed July 21, 2003
-
Staley K. Giving your genes to Biobank UK: Questions to ask, 2001 Available at: http://www.genewatch.org. Accessed July 21, 2003.
-
(2001)
-
-
Staley, K.1
-
54
-
-
0037994180
-
Assessing the impact of biobanks
-
Cambon-Thomsen A. Assessing the impact of biobanks. Nat Genet 2000;34:25-26.
-
(2003)
Nat Genet
, vol.34
, pp. 25-26
-
-
Cambon-Thomsen, A.1
-
57
-
-
25344434159
-
Informed consent document
-
Accessed July 21, 2003
-
DeCode Genetics. Informed consent document, 2002. Available at: http:www.decode.com/files/cache/files/file40420.pdf?filecontent= 40420&filecontenttype=application/pdf. Accessed July 21, 2003.
-
(2002)
-
-
|