Spanish adaptation of the disease-specific questionnaire MSQOL-54 in multiple sclerosis patients;Adaptación al Español del cuestionario específico MSQOL-54 para pacientes con esclerosis múltiple

Neurologia

Volumn 21, Issue 4, 2006, Pages 181-187

  Aymerich, Marta ^a,b   Guillamon I ^a   Perkal, H ^a   Nos, C ^a   Porcel, J ^a   Berra, S ^a   Rajmil, L ^a   Montalban X ^a  

^a HOSPITAL UNIVERSITARI VALL D HEBRON   (Spain)

^b Catalan Agency for Health Technology Assessment and Research   (Spain)

Author keywords

Adaptation; Health related quality of life; Multiple sclerosis; Results measure

Indexed keywords

ADULT; ARTICLE; CONTROLLED STUDY; DEMOGRAPHY; FEMALE; HEALTH SURVEY; HUMAN; INTERVIEW; LANGUAGE; MAJOR CLINICAL STUDY; MALE; MULTIPLE SCLEROSIS; PSYCHOMETRY; QUALITY OF LIFE; QUESTIONNAIRE; SCREENING; SPAIN; TECHNIQUE;

ACTIVITIES OF DAILY LIVING; ADULT; FEMALE; HUMANS; MALE; MIDDLE AGED; MULTIPLE SCLEROSIS; QUALITY OF LIFE; QUESTIONNAIRES;

EID: 33745142224     PISSN: 02134853     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (26)

1. Rivera-Navarro J, Benito-León J, Morales-González JM. Hacia la búsqueda de dimensiones más especificas en la medición de la calidad de vida en la esclerosis múltiple. Rev Neurol (Barc) 2001;32:705-13.
2. Benito-León J, Martínez-Martín P. Calidad de vida relacionada con la salud en la esclerosis múltiple. Neurologia 2003;18:210-7.
3. Hernández Mejia R, Fernández López JA, Rancano García I, Cueto Espinar A. Calidad de vida y enfermedades neurológicas. Neurología 2001;16:30-7.
4. Guyatt GH, Feeny DH, Patrick DL Measuring Health-related Quality of Life. Ann Int Med 1993;118:622-9.
5. Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life for multiple sclerosis. Qual Life Res 1995;4:187-206.
6. Cella DF, Dineen K, Arnason B, Reder A, Webster KA, Karabatsos G, et al. Validation of the functional assessment of multiple sclerosis quality of life instrument. Neurology 1996;47:129-39.
7. Fischer JS, La Rocca NG, Miller DM, Ritvo PG, Andrews H, Paty D. Recent developments in the assessment of quality of life in multiple sclerosis (MS). Mult Scler 1999;5:251-9.
8. Rotstein Z, Barak Y, Shlomo N, Achiron A. Quality of life in multiple sclerosis: development and validation of the «RAYS» scale and comparison with the SF-36. Int J Qual Health Care 2000;12:511-7.
9. Hobart J, Lamping D, Fitzpatrick R, Riazi A, Thompson A. The Multiple Sclerosis Impact Scale (MSIS-29). Brain 2001;124:962-9.
10. Lankhorst GJ, Jelles F, Smits RC, Polman CH, Kuik DJ, Pfennings LE, et al. Quality of life in multiple sclerosis: the disability and impact profile (DIP). J Neurol 1996;243:469-74.
11. Gold SM, Heesen C, Schulz H, Guder U, Monch A, Gbadamosi J, et al. Disease specific quality of life instruments in multiple sclerosis: validation of the Hamburg Quality of Life Questionnaire in Multiple Sclerosis (HAQUAMS). Mult Scler 2001;7:119-30.
12. Ford HL, Gerry E, Tennant A, Whalley D, Haigh R, Johnson MH. Developing a disease-specific quality of life measure for people with multiple sclerosis. Clin Rehabil 2001;15:247-58.
13. Chang CH, Cella D, Fernández O, Luque G, de Castro P, de Andrés C, et al. Grupo Español de Calidad de Vida en Esclerosis Múltiple. Quality of life in multiple sclerosis patients in Spain. Mult Scler 2002;8:527-31.
14. Ware JE Jr, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care 1992;30:473-83.
15. Solari A, Filippini Q, Mendozzi L, Ghezzi A, Cifani S, Barbieri E, et al. Validation of Italian Multiple Sclerosis Quality of Life 54 Questionnaire. J Neurol Neurosurg Psychiatry 1999;67:158-62.
16. Vernay D, Gerbaud L, Biolay S, Coste J, Debourse J, Aufauvre D, et al. Qualité de vie et sclérose en plaques: validation de la version française de l'auto-questionnaire SEP-59. Rev Neurol (Paris) 2000;156:247-63.
17. Acquadro C, Lafortune L, Mear I. Quality of life in multiple sclerosis: translation in French Canadian of the MSQoL-54. Health Qual Life Outcomes 2003;1:70.
18. Yamamoto T, Ogata K, Katagishi M, Shimizu H, Ogawa M, Yamamura T, et al. Validation of the Japanese-translated version Multiple Sclerosis Quality of Life-54 instrument. Rinsho Shinkeigaku 2004;44:417-21.
19. Idiman E, Uzunel F, Ozakbas S, Yozbatiran N, Oguz M, Callioglu B, et al. Cross-cultural adaptation and validation of multiple sclerosis quality of life questionnaire (MSQoL-54) in a Turkish multiple sclerosis sample. J Neurol Sci 2005 (en prensa).
20. Alonso J, Prieto L, Antó JM. La versión española del SF-36 Health Survey (Cuestionario de Salud SF-36): un instrumento para la medida de los resultados clinicos. Med Clin (Barc) 1995;104:771-6.
21. Scientific Advisory Committe of the Medical Outcomes Trust. Assessing health status an dquality-of-life instruments: attributes and review criteria. Qual Life Res 2002;11:193-205.
22. Mear I. Difficulties of international clinical trials: cultural adaptation of quality of life questionnaires. En: Chassany O, Caulin C, editores. Health-related quality of life and patient-reported outcomes: scientific and useful outcome criteria. Paris: Springer Verlag Publishers, 2002; p. 55-62.
23. Conrad F. Verbal reports are data! A theoretical approach to cognitive interviews, 2003 [en linea]. URL disponible en: http: //www.fcsm.gov/99papers/ conrad1.pdf.
24. Freeman JA, Hobart JC, Thompson AJ. Does adding MS-specific items to a generic measure (the SF-36) improve measurment? Neurology 2001;57:68-74.
25. Grunewald DA, Higginson IJ, Vivat B, Edmonds P, Burman RE. Quality of life measures for the palliative care of people severely affected by multiple sclerosis: a systematic review. Mult Scler 2002;10:690-704.
26. Mitchell AJ, Benito León J, Morales González JM, Rivera-Navarro J. Quality of life and its assessment in multiple sclerosis: integrating physical and psychological components of wellbeing. Lancet Neurol 2005;4:556-66.