Home care of a child dying of a malignancy and parental awareness of a child's impending death

Palliative Medicine

Volumn 20, Issue 3, 2006, Pages 161-169

  Surkan, Pamela J ^a,e   Dickman, Paul W ^b   Steineck, Gunnar ^a,c   Onelöv, Erik ^a   Kreicbergs, Ulrika ^a,d  

^a KAROLINSKA UNIVERSITY HOSPITAL   (Sweden)

^b KAROLINSKA INSTITUTE   (Sweden)

^c UNIVERSITY OF GOTHENBURG   (Sweden)

^d DANA FARBER CANCER INSTITUTE   (United States)

^e HARVARD SCHOOL OF PUBLIC HEALTH   (United States)

Author keywords

Awareness; Cancer; Child; Health care facilities; Palliative care

Indexed keywords

ADOLESCENT; ADULT; ANALGESIA; ARTICLE; AWARENESS; CANCER PAIN; CHILD; CHILD CARE; CHILD DEATH; CHILDHOOD CANCER; CLINICAL TRIAL; CONFIDENCE INTERVAL; CONFIDENTIALITY; DYING; FEMALE; FOLLOW UP; HEALTH CARE ACCESS; HEALTH CARE DELIVERY; HEALTH CARE FACILITY; HOME CARE; HOSPITAL CARE; HUMAN; INFANT; MAJOR CLINICAL STUDY; MALE; PALLIATIVE THERAPY; PARENT COUNSELING; PARENTAL ATTITUDE; PARENTAL BEHAVIOR; PATIENT SATISFACTION; POPULATION RESEARCH; POSTAL MAIL; PREVALENCE; QUESTIONNAIRE; REGISTER; SWEDEN; TERMINAL CARE;

ADOLESCENT; ADULT; ATTITUDE TO DEATH; CHILD; FEMALE; HOME NURSING; HUMANS; MALE; NEOPLASMS; ODDS RATIO; PALLIATIVE CARE; PARENTS; TERMINAL CARE; TERMINALLY ILL;

EID: 33745038969     PISSN: 02692163     EISSN: None     Source Type: Journal    
DOI: 10.1191/0269216306pm1139oa     Document Type: Article

References (24)

1. Sirkia K, Saarinen UM, Ahlgren B, et al. Terminal care of the child with cancer at home. Acta Paediatr 1997; 86: 1125-30.
2. Papadatou D, Yfantopoulos J, Kosmidis HV. Death of a child at home or in hospital: experiences of Greek mothers. Death Stud 1996; 20: 215-35.
3. Chambers EJ, Oakhill A. Models of care for children dying of malignant disease. Palliat Med 1995; 9: 181-85.
4. Liben S, Goldman A. Home care for children with life-threatening illness. J Palliat Care 1998; 14: 33-38.
5. Davies B, Deveau E, deVeber B, et al. Experiences of mothers in five countries whose child died of cancer. Cancer Nurs 1998; 21: 301-11.
6. Milberg A, Strang P. Met and unmet needs in hospital-based home care: qualitative evaluation through open-ended questions. Palliat Med 2000; 14: 533-34.
7. Whittam EH. Terminal care of the dying child. Psychosocial implications of care. Cancer 1993; 71: 3450-62.
8. Goldman A. Home care of the dying child. J Palliat Care 1996; 12: 16-19.
9. Wolfe J, Grier HE, Klar N, et al. Symptoms and suffering at the end of life in children with cancer. N Engl J Med 2000; 342: 326-33.
10. Miser AW, Dothage JA, Wesley RA, et al. The prevalence of pain in a pediatric and young adult cancer population. Pain 1987; 29: 73-83.
11. Cummings EA, Reid GJ, Finley GA, et al. Prevalence and source of pain in pediatric inpatients. Pain 1996; 68: 25-31.
12. Goldman A, Beardsmore S, Hunt J. Palliative care for children with cancer - home, hospital, or hospice? Arch Dis Child 1990; 65: 641-43.
13. Rothman KJ, Greenland S. Modern epidemiology, second edition. Lippencott, Williams and Wilkins, 1998.
14. Lauer ME, Mulhern RK, Bohne JB, et al. Children's perceptions of their sibling's death at home or hospital: the precursors of differential adjustment. Cancer Nurs 1985; 8: 21-27.
15. Mulhern RK, Lauer ME, Hoffmann RG. Death of a child at home or in the hospital: subsequent psychological adjustment of the family. Pediatrics 1983; 71: 743-47.
16. Kreicbergs U, Valdimarsdottir U, Onelov E, et al. Talking about death with children who have severe malignant disease. N Engl J Med 2004; 351: 1175-86.
17. Valdimarsdottir U, Helgason AR, Furst CJ, et al. Awareness of husband's impending death from cancer and long-term anxiety in widowhood: a nationwide follow-up. Palliat Med 2004; 18: 432-43.
18. Stillion JM and Papa datou D. Suffer the children: an examination of psychological issues in children and adolescents with terminal illness. Am Behav Sci 2002; 46: 299-315.
19. Woodgate RL, Degner LF, Yanofsky R. A different perspective to approaching cancer symptoms in children. J Pain Symptom Manage 2003; 26: 800-17.
20. Kreicbergs UVU, Onelov E, Bjork O, et al. Care-related distress: a nation wide study of parents who lost a child to cancer. J Clin Oncol 2005; 23: 9162-71.
21. Newman CL, Barton C, Ryder H. Palliative care for children with cancer. Arch Dis Child 1990; 65: 1378.
22. Lansdown R, Goldman A. The psychological care of children with malignant disease. J Child Psychol Psychiatry 1988; 29: 555-67.
23. Himelstein BP, Hilden JM, Boldt AM, et al. Pediatric Palliative Care N Engl J Med 2004; 350: 1752-62.
24. Hilden JM, Emanuel EJ, Fairclough DL, et al. Attitudes and practices among pediatric oncologists regarding end-of-life care: results of the 1998 American Society of Clinical Oncology survey. J Clin Oncol 2001; 19: 205-12.