Home care for children with life-threatening illness

Journal of Palliative Care

Volumn 14, Issue 3, 1998, Pages 33-38

  Liben, Stephen ^a   Goldman, Ann ^b  

^a MONTREAL CHILDREN S HOSPITAL   (Canada)

^b GREAT ORMOND STREET HOSPITAL   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

CANADA; CAREGIVER; CHILD; FAMILY RELATION; HOME CARE; HUMAN; PALLIATIVE THERAPY; REVIEW; TERMINAL CARE;

CAREGIVERS; CHILD; FAMILY RELATIONS; HOME CARE SERVICES; HUMANS; PALLIATIVE CARE; QUEBEC; TERMINAL CARE;

EID: 0032161248     PISSN: 08258597     EISSN: None     Source Type: Journal    
DOI: 10.1177/082585979801400307     Document Type: Article

References (36)

1. Martinson IM, Armstrong GD, Geis EP, et al. Home care for children with cancer. Pediatrics 1978; 62: 106-113.
2. Lauer LE, Camitta BM. Home care for dying children: a nursing model. J Paediatrics 1980; 97: 1032-1035.
3. Goldman A, Beardsmore S, Hunt J. Palliative care - home, hospital or hospice. Arch Dis Child 1990; 65: 641-643.
4. Martin BB. Home care for terminally ill children and their families. In: Corr CA, Corr DM (eds). Hospice Approaches to Pediatric Care. New York: Springer, 1985; pp. 65-86.
5. Sligh JS. An early model of care. In: Armstrong-Daley A, Zarbock-Goltzer S (eds). Hospice Care for Children. New York: Oxford University Press, 1993; pp. 219-230.
6. Bume SR, Dominica F, Baum JD. Helen House - a hospice for children: analysis of the first year. Br Med J 1984; 289: 1665-1668.
7. Kopecky EA, Jacobson S, Joshi P, et al. Review of a home-based palliative care program for children with malignant and non-malignant diseases. J Palliat Care 1997; 13(4): 28-33.
8. A Guide to the Development of Children's Palliative Care Services. Report of a joint working party of the Royal College of Paediatrics and Child Health (RCPCH) and Association for Children with Life-Threatening or Terminal Conditions and their Families. London: RCPCH, 1997.
9. Humbert N. Soins palliatifs et pediatrie entre l'abandon et l'achamement. Rev Med Suisse Romande 1997; 117(3): 197-200.
10. Goldman A (ed). Care of the Dying Child. Oxford: Oxford University Press, 1998.
11. Hunt AM. A survey of signs, symptoms and symptom control in 30 terminally ill children. Dev Med Child Neurol 1990; 32(4): 341-346.
12. McGrath PA, Cohen D, Fowler-Kerry S, McIntosh N. Controlling children's pain: a practical approach to assessment and management. In: International Association for the Study of Pain. Pain 1996 - An Updated Review. IASP Press, 1996.
13. Doyle D, Hanks G, MacDonald N (eds). Oxford Textbook of Palliative Medicine. Oxford: Oxford University Press, 1998.
14. Goldman A. Home care of the dying child. J Palliat Care 1996; 12(3): 16-19.
15. Papadatou D, Yeantopoulos J, Kosmidis HV. Death of a child at home or in the hospital: experiences of Greek mothers. Death Studies 1996; 20: 215-235.
16. Lauer ME, Mulhern RK, Wallskog JM, Camitta BM. A comparison study of parental adaptation following a child's death at home or in the hospital. Pediatrics 1983; 71(1): 107-112.
17. Mulhem RK, Lauer ME, Hoffmann RG. Death of a child at home or in the hospital: subsequent psychological adjustment of the family. Pediatrics 1983; 71(1): 743-747.
18. Stevens MM. Palliative care for children dying of cancer, psychological issues. In: Adams A, Deveau EJ (eds). Beyond the Innocence of Childhood. New York: Baywood Publishing, 1995; pp. 181-209.
19. James L, Johnson B. The needs of parents of pediatric oncology patients during the palliative care phase. J Pediatr Oncol Nurs 1997; 14(2): 83-95.
20. Bluebond-Langner M. The Private Worlds of Dying Children. New Jersey: Princeton University Press, 1978.
21. Goldman A, Christie D. Children with cancer talk about their own deaths with their families. Pediatr Hematol Oncol 1993; 10: 223-231.
22. Sourkes BM. Armfuls of Time: The Psychological Experience of the Child with a Life-Threatening Illness. Pittsburgh: University of Pittsburgh Press, 1995.
23. Davies B. Long-term effects of sibling death in childhood. In: Adams A, Deveau EJ (eds). Beyond the Innocence of Childhood. New York: Baywood Publishing, 1995; pp. 89-98.
24. Lauer ME, Mulhem RK, Bohne JB, Camitta BM. Children's perceptions of their sibling's death at home or hospital: the precursors of differential adjustment. Cancer Nurs 1985; 8(1): 21-27.
25. Mahon MM, Page ML Childhood bereavement after the death of a sibling. Holist Nurs Pract 1995; 9(3): 15-26.
26. Lauer ME, Mulhem RK, Hoffmann RG, Camitta BM. Utilization of hospice/home care in pediatric oncology: a national survey. Cancer Nurs 1986; 9(3): 102-107.
27. Gutheil TG, Gabbard GO. The concept of boundaries in clinical practice: theoretical and risk-management dimensions. Am J Psychiatry 1993; 150(2): 188-196.
28. Cribb A, Bignold S, Ball SJ. Linking the parts; an exemplar of philosophical and practical issues in holistic nursing. J Adv Nurs 1994; 20: 233-238.
29. Ahmann E. Thinking critically about family-centered home care nursing. Pediatr Nurs 1994; 20: 588-590.
30. While A, Citrone C, Comish J. Executive Summary: A Study of the Needs and Provisions for Families Caring for Children with Life-Limiting Incurable Disorders. London: UK Department of Health, 1996.
31. Lavery C. An Investigation into Respite Care, Needs and Facilities Offered to Families of Children Suffering from Mucopolysaccharide Diseases. Harlow, Essex: Society for MPS Diseases, 1988.
32. Ray LD, Ritchie JA. Caring for chronically ill children at home: factors that influence parents' coping. J Pediatr Nurs 1993; 8(4): 217-225.
33. Thomes R. Evaluation of the Pilot Project Programme for Children with Life-Threatening Illness. NHS Executive Document. London: NHS, 1998.
34. Dominica F. The role of the hospice for the dying child. Br J Hosp Med 1987; 38(4): 334-342.
35. Simons J. Practical issues at the time of death. In: Goldman A (ed). Care of the Dying Child. Oxford: Oxford University Press, 1998.
36. Dominica F. Just My Reflection - Helping Parents To Do Things Their Way When Their Child Dies. London: Darton, Longman and Todd, 1997.