Quality of life as an outcome measure in pulmonary diseases

Journal of Cardiopulmonary Rehabilitation

Volumn 25, Issue 6, 2005, Pages 321-331

  Kaplan, Robert M ^a   Ries, Andrew L ^b  

^a UNIVERSITY OF CALIFORNIA   (United States)

^b UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

COPD; Cost effectiveness; Lung disease; Quality of life; Utility measures

Indexed keywords

CHRONIC LUNG DISEASE; CLINICAL STUDY; COST EFFECTIVENESS ANALYSIS; DECISION THEORY; DISEASE CLASSIFICATION; DYSPNEA; HEALTH STATUS; HUMAN; LUNG DISEASE; MEASUREMENT; METHODOLOGY; OUTCOME ASSESSMENT; POPULATION AND POPULATION RELATED PHENOMENA; PSYCHOMETRY; QUALITY OF LIFE; QUESTIONNAIRE; RATING SCALE; REVIEW; SELF REPORT; SHORT FORM 36; ARTICLE; CHRONIC OBSTRUCTIVE LUNG DISEASE; COST BENEFIT ANALYSIS; ECONOMICS;

COST-BENEFIT ANALYSIS; DECISION THEORY; HEALTH STATUS; HUMANS; OUTCOME ASSESSMENT (HEALTH CARE); PSYCHOMETRICS; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE; QUALITY OF LIFE; QUESTIONNAIRES;

EID: 33646981351     PISSN: 08839212     EISSN: None     Source Type: Journal    
DOI: 10.1097/00008483-200511000-00002     Document Type: Review

References (87)

1. The rise in chronic obstructive disease mortality. Am Rev Respir Dis. 1989;140(3 Pt 2):S1-S107.
2. Edelman NH, Kaplan RM, Buist AS, et al. Chronic obstructive pulmonary disease. Task Force on Research and Education for the Prevention and Control of Respiratory Diseases. Chest. 1992;102(3 suppl):243S-256S.
3. Fishman A, Martinez F, Naunheim K, et al. A randomized trial comparing lung-volume-reduction surgery with medical therapy for severe emphysema. N Engl J Med. May 22, 2003;348(21):2059-2073.
4. Ries AL, Kaplan RM, Limberg TM, Prewitt LM. Effects of pulmonary rehabilitation on physiologic and psychosocial outcomes in patients with chronic obstructive pulmonary disease. Ann Intern Med. 1995;122(11):823-832.
5. Resnikoff PM, Ries AL. Maximizing functional capacity. Pulmonary rehabilitation and adjunctive measures. Respir Care Clin N Am. September 1998;4(3):475-492.
6. Puhan MA, Schunemann HJ, Frey M, Scharplatz M, Bachmann LM. How should COPD patients exercise during respiratory rehabilitation? Comparison of exercise modalities and intensities to treat skeletal muscle dysfunction. Thorax. May 2005;60(5):367-375.
7. Goldstein RS. Health resource utilization and rehabilitation. Monaldi Arch Chest Dis. July-September 2003;59(3):244-249.
8. Puhan MA, Scharplatz M, Troosters T, Steurer J. Respiratory rehabilitation after acute exacerbation of COPD may reduce risk for readmission and mortality - a systematic review. Respir Res. June 8, 2005;6(1):54.
9. Holman H, Lorig K. Patients as partners in managing chronic disease. Partnership is a prerequisite for effective and efficient health care [editorial; comment]. BMJ (Clin Res Ed). 2000;320(7234):526-527.
10. Kaplan RM. Two pathways to prevention. Am Psychol. 2000;55(4):382-396.
11. Kaplan RM, Ries AL, Reilly J, Mohsenifar Z. Measurement of health-related quality of life in the national emphysema treatment trial. Chest. September 2004;126(3):781-789.
12. Kaplan RM. The Ziggy theorem: toward an outcomes-focused health psychology. Health Psychol. 1994;13(6):451-460.
13. Kaplan RM. Behavior as the central outcome in health care. Am Psychol. 1990;45(11):1211-1220.
14. Kaplan RM, Bush JW. Health-related quality of life measurement for evaluation research and policy analysis. Health Psychol. 1982;1(1):61-80.
15. Bourbeau J, Maltais F, Rouleau M, Guimont C. French-Canadian version of the Chronic Respiratory and St George's Respiratory questionnaires: an assessment of their psychometric properties in patients with chronic obstructive pulmonary disease. Can Respir J. October 2004;11(7):480-486.
16. Dimitrov D, Rumrill PD. Multivariate methods in rehabilitation. Work. 2005;24(2):205-212.
17. Schmier JK, Halpern MT, Higashi MK, Bakst A. The quality of life impact of acute exacerbations of chronic bronchitis (AECB): a literature review. Qual Life Res. March 2005;14(2):329-347.
18. Ware JE, Jr, Gandek B. Overview of the SF-36 Health Survey and the International Quality of Life Assessment (IQOLA) Project. J Clin Epidemiol. 1998;51(11):903-912.
19. Guyatt GH, Berman LB, Townsend M, Pugsley SO, Chambers LW. A measure of quality of life for clinical trials in chronic lung disease. Thorax. October 1987;42(10):773-778.
20. Guyatt GH, Townsend M, Pugsley SO, et al. Bronchodilators in chronic air-flow limitation. Effects on airway function, exercise capacity, and quality of life. Am Rev Respir Dis. May 1987;135(5):1069-1074.
21. Guyatt GH, Townsend M, Keller JL, Singer J. Should study subjects see their previous responses: data from a randomized control trial. J Clin Epidemiol. 1989;42(9):913-920.
22. Jaeschke R, Guyatt GH, Keller J, Singer J. Interpreting changes in quality-of-life score in N of 1 randomized trials. Control Clin Trials. August 1991;12(4 suppl):226S-233S.
23. Lacasse Y, Brosseau L, Milne S, et al. Pulmonary rehabilitation for chronic obstructive pulmonary disease. Cochrane Database Syst Rev. 2002(3):CD003793.
24. Jones PW, Quirk FH, Baveystock CM. The St George's Respiratory Questionnaire. Respir Med. 1991;85(suppl B(5)):25-31; discussion 33-37.
25. Schrier AC, Dekker FW, Kaptein AA, Dijkman JH. Quality of life in elderly patients with chronic nonspecific lung disease seen in family practice. Chest. October 1990;98(4):894-899.
26. Eakin EG, Resnikoff PM, Prewitt LM, Ries AL, Kaplan RM. Validation of a new dyspnea measure: the UCSD Shortness of Breath Questionnaire. University of California, San Diego. Chest. 1998;113(3):619-624.
27. Khanna D, Clements PJ, Furst DE, et al. Correlation of the degree of dyspnea with health-related quality of life, functional abilities, and diffusing capacity for carbon monoxide in patients with systemic sclerosis and active alveolitis: results from the Scleroderma Lung Study. Arthritis Rheum. February 2005;52(2):592-600.
28. Meek PM, Lareau SC. Critical outcomes in pulmonary rehabilitation: assessment and evaluation of dyspnea and fatigue. J Rehabil Res Dev. September-October 2003;40(5 suppl 2):13-24.
29. Dudley DL, Glaser EM, Jorgenson BN, Logan DL. Psychosocial concomitants to rehabilitation in chronic obstructive pulmonary disease: 3. Dealing with psychiatric disease (as distinguished from psychosocial or psychophysiologic problems). Chest. May 1980;77(5):677-684.
30. Bailey PH. The dyspnea-anxiety-dyspnea cycle - COPD patients' stories of breathlessness: "It's scary/when you can't breathe". Qual Health Res. July 2004;14(6):760-778.
31. Brenes GA. Anxiety and chronic obstructive pulmonary disease: prevalence, impact, and treatment. Psychosom Med. November-December 2003;65(6):963-970.
32. Eakin EG, Kaplan RM, Ries AL. Measurement of dyspnoea in chronic obstructive pulmonary disease. Qual Life Res. June 1993;2(3):181-191.
33. Shumaker SA, Berzon R. The International Assessment of Health-related Quality of Life: Theory, Translation, Measurement and Analysis. New York: Oxford; 1995.
34. Walker SR, Rosser R. Quality of Life Assessment: Key Issues in the 1990s. Dordrecht: Kluwer Academic Publishers; 1993.
35. McDowell I, Newell C. Measuring Health: A Guide to Rating Scales and Questionnaires. 2nd ed. New York: Oxford University Press; 1996.
36. Kosinski M, Keller SD, Hatoum HT, Kong SX, Ware JE, Jr. The SF-36 Health Survey as a generic outcome measure in clinical trials of patients with osteoarthritis and rheumatoid arthritis: tests of data quality, scaling assumptions and score reliability. Med Care. 1999;37(5 suppl):MS10-MS22.
37. Stewart AL, Ware JE. Measuring Functioning and Well-Being: The Medical Outcomes Study Approach. Durham: Duke University Press; 1992.
38. Scott-Lennox JA, Wu AW, Boyer JG, Ware JE, Jr. Reliability and validity of French, German, Italian, Dutch, and UK English translations of the Medical Outcomes Study HIV Health Survey. Med Care. 1999;37(9):908-925.
39. Keller SD, Ware JE, Jr, Hatoum HT, Kong SX. The SF-36 Arthritis-Specific Health Index (ASHI): II. Tests of validity in four clinical trials. Med Care. 1999;37(5 suppl):MS51-MS60.
40. McEwen J. The Nottingham Health Profile. In: Walker SR, Rosser RM, eds. Quality of Life Assessment: Key Issues for the 1990s. Dordrecht: Kluwer Academic Publishers; 1992.
41. Kaplan RM, Feeny D, Revicki DA. Methods for assessing relative importance in preference based outcome measures. In: Joyce CRB, O'Boyle CA, McGee HM, eds. Individual Quality of Life: Approaches to Conceptualisation and Assessment. Amsterdam, Netherlands: Harwood Academic Publishers; 1999:135-149.
42. Kaplan RM, Groessl EJ. Applications of Cost/effectiveness analysis in behavioral medicine. J Consult Clin Psychol. 2002;70(3):482-493.
43. Gold MR. Cost-Effectiveness in Health and Medicine. New York: Oxford University Press; 1996.
44. Kaplan RM, Ganiats TG, Sieber WJ, Anderson JP. The Quality of Well-Being Scale: critical similarities and differences with SF-36 [see comments]. Int J Qual Health Care. 1998;10(6):509-520.
45. Kind P. The performance characteristics of EQ-5D, a measure of health related quality of life for use in technology assessment [abstract]. Annual Meeting of International Society of Technology Assessment in Health Care. 1997;13(5):81.
46. Hurst NP, Kind P, Ruta D, Hunter M, Stubbings A. Measuring health-related quality of life in rheumatoid arthritis: validity, responsiveness and reliability of EuroQol (EQ-5D). Br J Rheumatol. 1997;36(5):551-559.
47. Gudex C, Dolan P, Kind P, Williams A. Health state valuations from the general public using the visual analogue scale. Qual Life Res. 1996;5(6):521-531.
48. Feeny D, Furlong W, Mulhern RK, Barr RD, Hudson M. A framework for assessing health-related quality of life among children with cancer. Int J Cancer Suppl. 1999;12(5):2-9.
49. Feeny D, Furlong W, Boyle M, Torrance GW. Multi-attribute health status classification systems. Health Utilities Index. Pharmacoeconomics. 1995;7(6):490-502.
50. Torrance GW, Furlong W, Feeny D, Boyle M. Multi-attribute preference functions. Health Utilities Index. Pharmacoeconomics. 1995;7(6):503-520.
51. Glaser AW, Furlong W, Walker DA, et al. Applicability of the Health Utilities Index to a population of childhood survivors of central nervous system tumours in the U.K. Eur J Cancer. 1999;35(2):256-261.
52. Glaser AW, Davies K, Walker D, Brazier D. Influence of proxy respondents and mode of administration on health status assessment following central nervous system tumours in childhood. Qual Life Res. 1997;6(1):43-53.
53. Glaser AW, Abdul Rashid NF, U CL, Walker DA. School behaviour and health status after central nervous system tumours in childhood. Br J Cancer. 1997;76(5):643-650.
54. Furlong WJ, Feeny DH, Torrance GW, Barr RD. The Health Utilities Index (HUI) system for assessing health-related quality of life in clinical studies. Ann Med. 2001;33(5):375-384.
55. Barr RD, Chalmers D, De Pauw S, Furlong W, Weitzman S, Feeny D. Health-related quality of life in survivors of Wilms' tumor and advanced neuroblastoma: a cross-sectional study. J Clin Oncol. 2000;18(18):3280-3287.
56. Feeny D, Furlong W, Barr RD. Multiattribute approach to the assessment of health-related quality of life: Health Utilities Index. Med Pediatr Oncol. 1998;suppl(1):54-59.
57. Barr RD, Furlong W, Feeny D. Comments on health-related quality of life of adults surviving malignancies in childhood [Apajasalo et al., Eur J Cancer, 32A, No. 8, pp. 1354-1358, 1996]. Eur J Cancer. 1997;33(3):506-507.
58. Grootendorst P, Feeny D, Furlong W. Health Utilities Index Mark 3: evidence of construct validity for stroke and arthritis in a population health survey. Med Care. 2000;38(3):290-299.
59. Kaplan RM, Atkins CJ, Timms R. Validity of a quality of well-being scale as an outcome measure in chronic obstructive pulmonary disease. J Chronic Dis. 1984;37(2):85-95.
60. Kaplan RM, Patterson TL, Kerner DN, Atkinson JH, Heaton RK, Grant I. The Quality of Well-Being scale in asymptomatic HIV-infected patients. HNRC Group. HIV Neural Behavioral Research Center. Qual Life Res. 1997;6(6):507-514.
61. Kaplan RM, Anderson JP, Patterson TL, et al. Validity of the Quality of Well-Being Scale for persons with human immunodeficiency virus infection. HNRC Group. HIV Neurobehavioral Research Center. Psychosom Med. 1995;57(2):138-147.
62. Orenstein DM, Pattishall EN, Nixon PA, Ross EA, Kaplan RM. Quality of well-being before and after antibiotic treatment of pulmonary exacerbation in patients with cystic fibrosis. Chest. 1990;98(5):1081-1084.
63. Orenstein DM, Kaplan RM. Measuring the quality of well-being in cystic fibrosis and lung transplantation. The importance of the area under the curve. Chest. 1991;100(4):1016-1018.
64. Kaplan RM, Hartwell SL, Wilson DK, Wallace JP. Effects of diet and exercise interventions on control and quality of life in noninsulin-dependent diabetes mellitus. J Gen Intern Med. 1987;2(4):220-228.
65. Ganiats TG, Palinkas LA, Kaplan RM. Comparison of Quality of Well-Being scale and Functional Status Index in patients with atrial fibrillation. Med Care. 1992;30(10):958-964.
66. Squier HC, Ries AL, Kaplan RM, et al. Quality of well-being predicts survival in lung transplantation candidates. Am J Respir Crit Care Med. 1995;152(6 Pt 1):2032-2036.
67. Kaplan RM, Schmidt SM, Cronan TA. Quality of well being in patients with fibromyalgia. J Rheumatol. 2000;27(3):785-789.
68. Kaplan RM, Alcaraz JE, Anderson JP, Weisman M. Quality-adjusted life years lost to arthritis: effects of gender, race, and social class. Arthritis Care Res. 1996;9(6):473-482.
69. Rocco MV, Gassman JJ, Wang SR, Kaplan RM. Cross-sectional study of quality of life and symptoms in chronic renal disease patients: the Modification of Diet in Renal Disease Study. Am J Kidney Dis. 1997;29(6):888-896.
70. Kaplan RM. Quality of life assessment for cost/utility studies in cancer. Cancer Treat Rev. 1993;19(suppl A(1)):85-96.
71. Pyne JM, Patterson TL, Kaplan RM, et al. Preliminary longitudinal assessment of quality of life in patients with major depression. Psychopharmacol Bull. 1997;33(1):23-29.
72. Pyne JM, Patterson TL, Kaplan RM, Gillin JC, Koch WL, Grant I. Assessment of the quality of life of patients with major depression. Psychiatr Serv. 1997;48(2):224-230.
73. Kaplan RM, California Policy Seminar. Allocating Health Resources in California: Learning From the Oregon Experiment. Berkeley, CA: California Policy Seminar; 1993.
74. Kaplan RM. Value judgment in the Oregon Medicaid experiment. Med Care. 1994;32(10):975-988.
75. Bombardier C, Ware J, Russell IJ, Larson M, Chalmers A, Read JL. Auranofin therapy and quality of life in patients with rheumatoid arthritis. Results of a multicenter trial. Am J Med. 1986;81(4):565-578.
76. Kaplan RM, Sieber WJ, Ganiats TG. The Quality of Well-being Scale: comparison of the interviewer-administered version with a self-administered questionnaire. Psychol Health. 1997;12(6):783-791.
77. Erickson P. Evaluation of a population-based measure of quality of life: the Health and Activity Limitation Index (HALex). Qual Life Res. February 1998;7(2):101-114.
78. Erickson P, Wilson R, Shannon I. Years of healthy life. Healthy People 2000 Stat Notes. April 1995(7):1-15.
79. Erickson P, Kendall EA, Anderson JP, Kaplan RM. Using composite health status measures to assess the nation's health. Med Care. March 1989;27(3 suppl):S66-S76.
80. Gold M, Franks P, Erickson P. Assessing the health of the nation. The predictive validity of a preference-based measure and self-rated health. Med Care. February 1996;34(2):163-177.
81. Detsky AS. Economics and cost-effectiveness in evaluating the value of cardiovascular therapies. Terminology I would like to see disappear. Am Heart J. 1999;137(5):S51-S52.
82. Williams A. Cochrane Lecture. All cost effective treatments should be free. or, how Archie Cochrane changed my life! J Epidemiol Community Health. 1997;51(2):116-120.
83. Aitken RC. Measurement of feelings using visual analogue scales. Proc R Soc Med. October 1969;62(10):989-993.
84. Mahler DA, Weinberg DH, Wells CK, Feinstein AR. The measurement of dyspnea. Contents, interobserver agreement, and physiologic correlates of two new clinical indexes. Chest. June 1984;85(6):751-758.
85. Stoller JK, Ferranti R, Feinstein AR. Further specification and evaluation of a new clinical index for dyspnea. Am Rev Respir Dis. December 1986;134(6):1129-1134.
86. McGavin CR, Artvinli M, Nace H, McHardy GJ. Dyspnoea, disability and distance walked: comparison of estimates of exercise performance in respiratory disease. Int J Rehabil Res. 1980;3(2):235-236.
87. Borg G. Psychophysical scaling with applications in physical work and the perception of exertion. Scand J Work Environ Health. 1990;16(suppl 1):55-58.