Development of a measure to assess the impact of epilepsy on people with an intellectual disability: The Glasgow Epilepsy Outcome Scale - Client version (GEOS-C)

Journal of Intellectual Disability Research

Volumn 50, Issue 3, 2006, Pages 161-171

  Watkins, J ^a   Espie, Colin A ^a   Curtice, L ^a   Mantala, K ^a   Corp, A ^b   Foley, J ^c  

^a UNIVERSITY OF GLASGOW   (United Kingdom)

^b SOUTHERN GENERAL HOSPITAL   (United Kingdom)

^c Lothian Learning Disabilities Service   (United Kingdom)

Author keywords

Measurement; Mental retardation; Outcome; Quality of life; Seizures

Indexed keywords

ADULT; ARTICLE; CAREGIVER; DAILY LIFE ACTIVITY; DATA COLLECTION METHOD; DISEASE SEVERITY; DRUG USE; EPILEPSY; HUMAN; INJURY; INTELLECTUAL IMPAIRMENT; MAJOR CLINICAL STUDY; PATIENT; PILOT STUDY; PREDICTION; PSYCHOMETRY; QUALITATIVE ANALYSIS; QUESTIONNAIRE; RELIABILITY; SEIZURE; VALIDATION PROCESS; VALIDITY;

ACTIVITIES OF DAILY LIVING; ADOLESCENT; ADULT; ANTICONVULSANTS; EPILEPSY; FEMALE; HUMANS; MALE; MENTAL RETARDATION; MIDDLE AGED; NEEDS ASSESSMENT; PILOT PROJECTS; PSYCHOMETRICS; QUALITY OF LIFE; REPRODUCIBILITY OF RESULTS; SICK ROLE; SICKNESS IMPACT PROFILE; SOCIAL ENVIRONMENT;

EID: 33645908794     PISSN: 09642633     EISSN: 13652788     Source Type: Journal    
DOI: 10.1111/j.1365-2788.2005.00714.x     Document Type: Article

References (22)

1. Baker G. A., Jacoby A., Smith D. F., Dewey M. & Chadwick D. W. (1994) Development of a novel scale to assess quality of life as part of a further refinement of a QOL model for epilepsy. Epilepsia 35, 591-6.
2. Bowley C. & Kerr M. (2000) Epilepsy and intellectual disability. Journal of Intellectual Disability Research 44, 529-43.
3. Clark A., Espie C. A. & Paul A. (2001) Adults with learning disabilities: knowledge about epilepsy before and after a psychoeducational package. Seizure 10, 492-9.
4. Clinical Standards Advisory Group (1999) Services for Patients with Epilepsy. CSAG, London.
5. Coulter D. L. (1993) Epilepsy and mental retardation: an overview. American Journal on Mental Retardation 98, S1-S11.
6. Espie C. A., Paul A., Graham M., Sterrick M., Foley J. & McGarvey C. (1998) The Epilepsy Outcome Scale: the development of a measure for use with carers of people with epilepsy and intellectual disabilities. Journal of Intellectual Disabilities Research 42, 90-6.
7. Espie C. A., Watkins J., Curtice L., Espie A., Duncan R., Ryan J. A., Brodie M. J., Mantala K. & Sterrick M. (2003a) Psychopathology in people with epilepsy and intellectual disability: an investigation of potential explanatory variables. Journal of Neurology, Neurosurgery and Psychiatry 74, 1485-92.
8. Espie C. A., Watkins J., Duncan R., Espie A., Sterrick M., Brodie M. J., McGarvey C. & Curtice L. (2001) Development and validation of the Glasgow Epilepsy Outcome Scale (GEOS): a new instrument for measuring concerns about epilepsy in people with mental retardation. Epilepsia 42, 1043-51.
9. Espie C. A., Watkins J., Duncan R., Sterrick M., McDonach E., Espie A. & McGarvey C. (2003b) Perspectives on epilepsy in people with intellectual disability: comparison of family carer, staff carer and clinician score profiles on the Glasgow Epilepsy Outcome Scale (GEOS). Seizure 12, 195-202.
10. Eucare (2001) European White Paper on Epilepsy. UCB. S.A., Brussels.
11. Hannah J. A. & Brodie M. J. (1998) Epilepsy and learning disabilities - a challenge for the next millennium? Seizure 7, 3-13.
12. Hauser W. A., Annegers J. F. & Kurland L. T. (1991) Prevalence of epilepsy in Rochester, Minnesota. Epilepsia 32, 225-429.
13. International Association of the Scientific Study of Intellectual Disability (Working Group) (2001) Clinical guidelines for the management of epilepsy in adults with an intellectual disability. Seizure 10, 401-9.
14. Jacoby A. & Baker G. A. (2000) Quality of life in epilepsy: beyond seizure counts in assessment and treatment. Harwood Academic Publishers, Reading, UK.
15. Kerr M. & Espie C. A. (2000) Epilepsy and learning disability: implications for quality of life. In: Quality of Life in Epilepsy; Beyond Seizure Counts in Assessment and Treatment (eds G. Baker & A. Jacoby), pp. 145-58. Harwood Academic Publishers, Amsterdam.
16. Morgan D. (1993) Successful Focus Groups; Advancing the State of the Art. Sage, Newbury Park, England.
17. Qualitative Solutions & Research (1997) QSR NUD*IST. Scolari, Sage Publications Software, London.
18. Sander J. W. & Shorvon S. D. (1996) Epidemiology of the epilepsies. Journal of Neurology, Neurosurgery and Psychiatr 61, 433-43.
19. Sillanpaa M., Gram L., Johannessen S. I. & Tomson T. (1999) Epilepsy and Mental Retardation. Wrightson Biomedical Publishing, Petersfield, UK.
20. Sparrow S. A., Balla D. A. & Cichetti D. V. (1984) Vineland Adaptive Behaviour Scale: Expanded Interview Edition. American Guidance, Circle Pines, MN.
21. Weinfurt K. P., Trucco S. M., Willke R. & Schulman K. A. (2002) Measuring agreement between patient and proxy responses to multidimensional health-related quality of life measures in clinical trials: an application of psychometric profile analysis. Journal of Clinical Epidemiology 55, 608-18.
22. Welsh Office (1995) Welsh Health Survey. Welsh Office, Cardiff.