The Usher lifestyle survey: Maintaining independence: A multi-centre study

International Journal of Rehabilitation Research

Volumn 28, Issue 4, 2005, Pages 309-320

  Damen, Godelieve W J A ^a   Krabbe, Paul F M ^a   Kilsby, M ^b   Mylanus, Emmanuel A M ^a  

^a RADBOUD UNIVERSITY MEDICAL CENTER   (Netherlands)

^b Sense Organization   (United Kingdom)

Author keywords

Independence; Questionnaire; Usher syndrome

Indexed keywords

BEHAVIORAL RESEARCH; HEALTH CARE; PATIENT MONITORING; PATIENT REHABILITATION; SOCIAL ASPECTS;

INDEPENDENCE; QUESTIONNAIRE; SIGHT PROBLEMS; USHER SYNDROMES;

MEDICAL PROBLEMS;

ADULT; ARTICLE; BLINDNESS; DISEASE SEVERITY; EUROPE; HEALTH SURVEY; HEARING IMPAIRMENT; HUMAN; INTERPERSONAL COMMUNICATION; LIFESTYLE; MAJOR CLINICAL STUDY; PATIENT MOBILITY; PHYSICAL DISABILITY; PRIORITY JOURNAL; QUESTIONNAIRE; RETINITIS PIGMENTOSA; SOCIAL SUPPORT; USHER SYNDROME; VISUAL DISORDER; VISUAL IMPAIRMENT; AGING; CLASSIFICATION; CROSS-SECTIONAL STUDY; DAILY LIFE ACTIVITY; DISABILITY; MIDDLE AGED;

ACTIVITIES OF DAILY LIVING; ADULT; AGING; COMMUNICATION; CROSS-SECTIONAL STUDIES; DISABILITY EVALUATION; EUROPE; HUMANS; LIFE STYLE; MIDDLE AGED; QUESTIONNAIRES; USHER SYNDROMES;

EID: 33645883543     PISSN: 03425282     EISSN: None     Source Type: Journal    
DOI: 10.1097/00004356-200512000-00003     Document Type: Article

References (22)

1. Dalton DS, Cruickshanks KJ, Klein BE, Klein R, Wiley TL, Nondahl DM (2003). The impact of hearing loss on quality of life in older adults. Gerontologist 43:661-668.
2. Edwards A, Fishman GA, Anderson RJ, Grover S, Derlacki DJ (1998). Visual acuity and visual field impairment in Usher syndrome. Arch Ophthalmol 116:165-168.
3. Gething L (2000). Ageing with long-standing hearing impairment and deafness. Int J Rehabil Res 23:209-215.
4. Haymes S, Guest D, Heyes A, Johnston A (1996). Mobility of people with retinitis pigmentosa as a function of vision and psychological variables. Optom Vis Sci 73:621-637.
5. Heine C, Browning CJ (2002). Communication and psychosocial consequences of sensory loss in older adults: overview and rehabilitation directions. Disabil Rehabil 24:763-773.
6. Kimberling WJ, Moller C (1995). Clinical and molecular genetics of Usher syndrome. J Am Acad Audiol 6:63-72.
7. Pennings RJ, Fields RR, Huygen PL, Deutman AF, Kimberling WJ, Cremers CW (2003a). Usher syndrome type III can mimic other types of Usher syndrome. Ann Otol Rhinol Laryngol 112:525-530.
8. Pennings RJ, Huygen PL,Weston MD, van Aarem A,Wagenaar M, KimberlingWJ, et al. (2003b). Pure tone hearing thresholds and speech recognition scores in Dutch patients carrying mutations in the USH2A gene. Otol Neurotol 24:58-63.
9. Pennings RJ, Huygen PL, Orten DJ, Wagenaar M, van Aarem A, Kremer H, et al. (2004). Evaluation of visual impairment in Usher syndrome 1b and Usher syndrome 2a. Acta Ophthalmol Scand 82:131-139.
10. Piazza L, Fishman GA, Farber M, Derlacki D, Anderson RJ (1986). Visual acuity loss in patients with Usher's syndrome. Arch Ophthalmol 104:1336-1339.
11. Plantinga RF, Kleemola L, Huygen PL, Joensuu T, Sankila EM, Pennings RJ, et al. (2005). Serial audiometry and speech recognition findings in Finnish USH3 patients. Audiol Neurootol 10:79-89.
12. Reisser CF, Kimberling WJ, Otterstedde CR (2002). Hearing loss in Usher syndrome type II is nonprogressive. Ann Otol Rhinol Laryngol 111:1108-1111.
13. Seeliger M, Pfister M, Gendo K, Paasch S, Apfelstedt-Sylla E, Plinkert P, et al. (1999). Comparative study of visual, auditory, and olfactory function in Usher syndrome. Graefes Arch Clin Exp Ophthalmol 237:301-307.
14. Smith RJ, Berlin CI, Hejtmancik JF, Keats BJ, Kimberling WJ, Lewis RA, et al. (1994). Clinical diagnosis of the Usher syndromes Usher Syndrome Consortium. Am J Med Genet 50:32-38.
15. Spandau UH, Rohrschneider K (2002). Prevalence and geographical distribution of Usher syndrome in Germany. Graefes Arch Clin Exp Ophthalmol 240:495-498.
16. Szlyk JP, Fishman GA, Grover S, Revelins BI, Derlacki DJ (1998). Difficulty in performing everyday activities in patients with juvenile macular dystrophies: comparison with patients with retinitis pigmentosa. Br J Ophthalmol 82:1372-1376.
17. Szlyk JP, Seiple W, Fishman GA, Alexander KR, Grover S, Mahler CL (2001). Perceived and actual performance of daily tasks: relationship to visual function tests in individuals with retinitis pigmentosa. Ophthalmology 108:65-75.
18. Tamaskar P, Malia T, Stern C, Gorenflo D, Meador H, Zazove P (2000). Preventive attitudes and beliefs of deaf and hard-of-hearing individuals. Arch Fam Med 9:518-525.
19. Tsilou ET, Rubin BI, Caruso RC, Reed GF, Pikus A, Hejtmancik JF, et al. (2002). Usher syndrome clinical types I and II: could ocular symptoms and signs differentiate between the two types? Acta Ophthalmol Scand 80:196-201.
20. Turano KA, Geruschat DR, Stahl JW, Massof RW (1999). Perceived visual ability for independent mobility in persons with retinitis pigmentosa. Invest Ophthalmol Vis Sci 40:865-877.
21. Wagenaar M, van Aarem A, Huygen P, Pieke-Dahl S, Kimberling W, Cremers C (1999). Hearing impairment related to age in Usher syndrome types 1B and 2A. Arch Otolaryngol Head Neck Surg 125:441-445.
22. Zazove P, Niemann LC, Gorenflo DW, Carmack C, Mehr D, Coyne JC, et al. (1993). The health status and health care utilization of deaf and hard-of-hearing persons. Arch Fam Med 2:745-752.