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Rodrigue JR, Cornell DL, Howard RJ. Organ donation decision: comparison of donor and nondonor families. Am J Transplant 2006; 6:190-198. This article describes a study that was very neatly carried out with a reasonable number of subjects (285). The authors provide a good overview of research about relatives' reasons for consent or refusal. What makes the study interesting is that the authors looked at other variables too, such as how they were approached by the OPO, what they thought about the competence of the requester and whether they thought the donation request was well timed. The way the study was carried out should be an example for other researchers.
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Siminoff LA, Burant C, Youngner SJ. Death and organ procurement: public beliefs and attitudes. Soc Sci Med 2004; 59:2325-2334. This is very good article that highlights why professionals, as well as ordinary people, have difficulty with the concept of brain death. Nearly a third of the sample studied were willing to donate the organs of patients they classified as being alive (vegetative state or coma), thereby violating the dead donor rule. The authors indicate that it is not clear whether the public lacks education or is rejecting the current formal medical-legal idea of brain death. Any change in the dead donor rule should be preceded by public debate and education.
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Sander SL, Kopp Miller B. Public knowledge and attitudes regarding organ and tissue donation: an analysis of the northwest Ohio community. Patient Educ Couns 2005; 58:154-163. This article is especially useful for the good overview of research results related to viewpoints of minorities and how these differ from mainstream viewpoints. The study that is described is not bad, but only supports earlier findings. Interesting is the comparison with data from 10-15 years ago.
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Alkhawari FS, Stimson GV, Warrens AN. Attitudes toward transplantation in U.K. Muslim Indo-Asians in west London. Am J Transplant 2005; 5:1326-1331. In this article a grassroots approach is described, 141 Muslims were observed in their daily functioning. It gives more insight into the ordinary Muslim's views on healthcare in general and organ donation particularly. ..The authors put the results in a broader perspective of how Islam is dealing with organ donation. The article provides a good overview of the dilemmas Muslims are facing.
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The impact and evaluation of two school-based interventions on intention to register an organ donation preference
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What a coincidence! the effects of incidental similarity on compliance
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Burger JM, Messian N, Patel S, et al. What a coincidence! The effects of incidental similarity on compliance. PSPB 2004; 30:35-43. In this article some experiments are described in which the effects of incidental similarities, not related to organ donation, are measured. The experiments are carried out in an excellent way, so that the results are robust. These are very useful for experiments that should be carried out to increase the number of positive decisions about organ donation. The methodology can also be used.
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The European Donor Hospital Education Programme [EDHEP]: Addressing the training needs of doctors and nurses who break bad news, care for the bereaved, and request donation
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Blok GA, Dalen van J, Jager K, et al. The European Donor Hospital Education Programme [EDHEP]: addressing the training needs of doctors and nurses who break bad news, care for the bereaved, and request donation. Transpl Int 1999; 12:161-167.
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The European Donor Hospital Education Programme [EDHEP]: Enhancing communication skills with bereaved relatives
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Morton J, Blok GA, Reid C, et al. The European Donor Hospital Education Programme [EDHEP]: enhancing communication skills with bereaved relatives. Anaesth Intensive Care 2000; 28:184-190.
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Effects of a course for requesters in the Netherlands
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The impact of changes in practice in organ procurement on the satisfaction of donor relatives
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Blok GA. The impact of changes in practice in organ procurement on the satisfaction of donor relatives. Patient Educ Couns 2005; 58:104-113. In this article the results of longitudinal comparative study is described. The study was undertaken to explore if any changes had occurred in the behaviour of professionals involved in organ donation over a period of more than 10 years. Satisfaction ratings of different groups of donor relatives were taken as outcome measures. Evaluations were gathered about the whole process from arrival in hospital to aftercare. Relatives in later years were significantly more satisfied than in earlier years about professional staff behaviour. How death was announced explained 60% of the variance of the satisfaction about the donation procedure, general information supply and genuine understanding were other important variables. Results indicate that future interventions aiming at decreasing the number of family refusals should therefore be competence-based.
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