메뉴 건너뛰기




Volumn 162, Issue 4, 2006, Pages 508-514

Quality of life measurement: A fashion or a valid assessment?;Mesurer la qualité de vie: Effet de mode ou véritable critère de jugement?

Author keywords

Motoneuron disease; Quality of life; Validation

Indexed keywords

HUMAN; MOTOR NEURON DISEASE; PREDICTOR VARIABLE; QUALITATIVE ANALYSIS; QUALITY OF LIFE; QUESTIONNAIRE; REVIEW; SHORT FORM 36; VALIDATION STUDY; VALIDITY;

EID: 33645753315     PISSN: 00353787     EISSN: None     Source Type: Journal    
DOI: 10.1016/s0035-3787(06)75042-1     Document Type: Review
Times cited : (7)

References (41)
  • 2
    • 0037154132 scopus 로고    scopus 로고
    • Comparison of instruments addressing quality of life in patients with ALS and their caregivers
    • BROMBERG MB, FORSHEW DA. (2002). Comparison of instruments addressing quality of life in patients with ALS and their caregivers. Neurology, 58: 320-322.
    • (2002) Neurology , vol.58 , pp. 320-322
    • Bromberg, M.B.1    Forshew, D.A.2
  • 4
    • 0001720230 scopus 로고
    • Indices vs profiles-advantages and disadvantages
    • Walker S, Rosser R, editors. Dordrecht, Kluwer Academic Publishers
    • BULLINGER M. (1994). Indices vs profiles-advantages and disadvantages. In: Walker S, Rosser R, editors. Quality of life assessment, Key issues in the 1990's. Dordrecht, Kluwer Academic Publishers.
    • (1994) Quality of Life Assessment, Key Issues in the 1990's
    • Bullinger, M.1
  • 5
    • 7244254230 scopus 로고    scopus 로고
    • A cross sectional study on determinants of quality of life in ALS
    • CHIO A, GAUTHIER A, MONTUSCHI A et al. (2004). A cross sectional study on determinants of quality of life in ALS. J Neurol Neurosurg Psychiatry, 75: 1597-1601.
    • (2004) J Neurol Neurosurg Psychiatry , vol.75 , pp. 1597-1601
    • Chio, A.1    Gauthier, A.2    Montuschi, A.3
  • 6
    • 0034824554 scopus 로고    scopus 로고
    • Assessing individual quality of life in amyotrophic lateral sclerosis
    • CLARKE S, HICKEY A, O'BOYLE C, HARDIMAN O. (2001). Assessing individual quality of life in amyotrophic lateral sclerosis. Qual Life Res, 10: 149-158.
    • (2001) Qual Life Res , vol.10 , pp. 149-158
    • Clarke, S.1    Hickey, A.2    O'Boyle, C.3    Hardiman, O.4
  • 7
    • 0034489229 scopus 로고    scopus 로고
    • Norm values for the Generic children's Quality of Life Measure (GCQ) from a large school-based sample
    • COLLIER J, MACKINLAY D, PHILLIPS D. (2000). Norm values for the Generic children's Quality of Life Measure (GCQ) from a large school-based sample. Qual Life Res, 9: 617-623.
    • (2000) Qual Life Res , vol.9 , pp. 617-623
    • Collier, J.1    MacKinlay, D.2    Phillips, D.3
  • 8
    • 1642312979 scopus 로고    scopus 로고
    • Le concept de qualité de vie à travers la littérature anglo-saxonne
    • CORTEN P. (1998). Le concept de qualité de vie à travers la littérature anglo-saxonne. L'information psychiatrique, 9 : 922-932.
    • (1998) L'information Psychiatrique , vol.9 , pp. 922-932
    • Corten, P.1
  • 9
    • 0003814867 scopus 로고
    • CROCKER L, ALGINA J, editors. New York, Holt, Rinehart and Winston
    • CROCKER L, ALGINA J, editors. (1986). Introduction to classical and modern test theory. New York, Holt, Rinehart and Winston.
    • (1986) Introduction to Classical and Modern Test Theory
  • 11
    • 0033374158 scopus 로고    scopus 로고
    • Health-related quality of life measures for children
    • EISER C, COTTER I, OADES P et al. (1999). Health-related quality of life measures for children. Int J Cancer, 12: 87-90.
    • (1999) Int J Cancer , vol.12 , pp. 87-90
    • Eiser, C.1    Cotter, I.2    Oades, P.3
  • 12
    • 1642364970 scopus 로고
    • Qualité de vie et règne de la quantité
    • FURTOS J. (1992). Qualité de vie et règne de la quantité. L'information psychiatrique, 5 : 17-20.
    • (1992) L'information Psychiatrique , vol.5 , pp. 17-20
    • Furtos, J.1
  • 13
    • 0031588998 scopus 로고    scopus 로고
    • Prospective study of the quality of life in intermittent self-ventilation
    • HEIN H, SCHUCHER B, KIRSTEN D, MAGNUSSEN H. (1997). Prospective study of the quality of life in intermittent self-ventilation. Med Klin (Munich), 92: 93-94.
    • (1997) Med Klin (Munich) , vol.92 , pp. 93-94
    • Hein, H.1    Schucher, B.2    Kirsten, D.3    Magnussen, H.4
  • 14
    • 0002016943 scopus 로고
    • Measuring quality of life in psychiatry
    • Walker SR, Rosser RM. Editors. Dordrecht, Kluwer Academic Publishers
    • HUNT SM, MC KENNA SP. (1990). Measuring quality of life in psychiatry. In: Walker SR, Rosser RM. Editors. Quality of life assessment, Key issues in the 1990's. Dordrecht, Kluwer Academic Publishers.
    • (1990) Quality of Life Assessment, Key Issues in the 1990's
    • Hunt, S.M.1    Mc Kenna, S.P.2
  • 15
    • 0029432345 scopus 로고
    • Development of a quality of life rating scale for patients with chronic neurological diseases
    • HOSHINO A, SHINOZAKI I, SHINNO S, FUJITA T, MINOWA M. (1995). Development of a quality of life rating scale for patients with chronic neurological diseases. Nippon Koshu Eisei Zasshi, 42: 1069-1082.
    • (1995) Nippon Koshu Eisei Zasshi , vol.42 , pp. 1069-1082
    • Hoshino, A.1    Shinozaki, I.2    Shinno, S.3    Fujita, T.4    Minowa, M.5
  • 17
    • 0033675585 scopus 로고    scopus 로고
    • The ALS Health Profile Study: Quality of life of amyotrophic lateral sclerosis patients and carers in Europe
    • ALS-HPS Steering Group
    • JENKINSON C, FITZPATRICK R, SWASH M, PETO V. (2000). ALS-HPS Steering Group. The ALS Health Profile Study: quality of life of amyotrophic lateral sclerosis patients and carers in Europe. J Neurol, 247: 835-840.
    • (2000) J Neurol , vol.247 , pp. 835-840
    • Jenkinson, C.1    Fitzpatrick, R.2    Swash, M.3    Peto, V.4
  • 18
    • 0034326807 scopus 로고    scopus 로고
    • The amyotrophic lateral sclerosis assessment questionnaire (ALSAQ-40): Tests of data quality, score reliability and response rate in a survey of patients
    • JENKINSON C, LEVVY G, FITZPATRICK R, GARRATT A. (2000). The amyotrophic lateral sclerosis assessment questionnaire (ALSAQ-40): tests of data quality, score reliability and response rate in a survey of patients. J Neurol Sci, 180: 94-100.
    • (2000) J Neurol Sci , vol.180 , pp. 94-100
    • Jenkinson, C.1    Levvy, G.2    Fitzpatrick, R.3    Garratt, A.4
  • 19
    • 0034281302 scopus 로고    scopus 로고
    • Comment on: Amyotroph Lateral Scler other Motor Neuron Disord. 2000 Sep;1(4):269-75. Quality of life in ALS
    • JENKINSON C. (2000). Comment on: Amyotroph Lateral Scler other Motor Neuron Disord. 2000 Sep;1(4):269-75. Quality of life in ALS. Amyotroph Lateral Scler Other Motor Neuron Disord, 1: 223-224.
    • (2000) Amyotroph Lateral Scler Other Motor Neuron Disord , vol.1 , pp. 223-224
    • Jenkinson, C.1
  • 20
    • 0035047380 scopus 로고    scopus 로고
    • Quality of life in children with celiac disease
    • KOLSTEREN M, KOOPMAN HM, SCHALEKAMP G et al. (2001). Quality of life in children with celiac disease. J Pediatr, 138: 593-595.
    • (2001) J Pediatr , vol.138 , pp. 593-595
    • Kolsteren, M.1    Koopman, H.M.2    Schalekamp, G.3
  • 22
    • 1842376852 scopus 로고    scopus 로고
    • The problem of quality of life in medicine
    • LEPLÈGE A, HUNT S. (1997). The problem of quality of life in medicine. JAMA, 278: 47-50.
    • (1997) JAMA , vol.278 , pp. 47-50
    • Leplège, A.1    Hunt, S.2
  • 23
    • 27644571899 scopus 로고    scopus 로고
    • Individual and health-related quality of life assessment in amyotrophic lateral sclerosis patients and their caregivers
    • Lo Coco G, Lo Coco D, CICERO V et al. (2005). Individual and health-related quality of life assessment in amyotrophic lateral sclerosis patients and their caregivers. J Neurol Sci, 238: 11-17.
    • (2005) J Neurol Sci , vol.238 , pp. 11-17
    • Lo Coco, G.1    Lo Coco, D.2    Cicero, V.3
  • 24
    • 0030666284 scopus 로고    scopus 로고
    • A brief quality-of-life measure for ALS clinical trials based on a subset of items from the sickness impact profile
    • The Syntex-Synergen ALS/CNTF Study Group
    • MCGUIRE D, GARRISON L, ARMON C et al. (1997). A brief quality-of-life measure for ALS clinical trials based on a subset of items from the sickness impact profile. The Syntex-Synergen ALS/CNTF Study Group. J Neurol Sci, 152: 18-22.
    • (1997) J Neurol Sci , vol.152 , pp. 18-22
    • McGuire, D.1    Garrison, L.2    Armon, C.3
  • 25
    • 0030914526 scopus 로고    scopus 로고
    • Propriétés psychométriques des questionnaires de qualité de vie. Une synthèse méthodologique
    • MIDY F, BÉJEAN S. (1997). Propriétés psychométriques des questionnaires de qualité de vie. Une synthèse méthodologique. J Econ Med, 15 : 35-48.
    • (1997) J Econ Med , vol.15 , pp. 35-48
    • Midy, F.1    Béjean, S.2
  • 26
    • 0035886617 scopus 로고    scopus 로고
    • Patients' assessment of quality of life instruments: A randomised study of SIP, SF-36 and SEIQoL-DW in patients with amyotrophic lateral sclerosis
    • NEUDERT C, WASNER M, BORASIO GD. (2001). Patients' assessment of quality of life instruments: a randomised study of SIP, SF-36 and SEIQoL-DW in patients with amyotrophic lateral sclerosis. J Neurol Sci, 191: 103-109.
    • (2001) J Neurol Sci , vol.191 , pp. 103-109
    • Neudert, C.1    Wasner, M.2    Borasio, G.D.3
  • 27
    • 4544329455 scopus 로고    scopus 로고
    • Health-related quality of life in amyotrophic lateral sclerosis: Determining a meaningful deterioration
    • NORQUIST JM, FITZPATRICK R, JENKINSON C. (2004). Health-related quality of life in amyotrophic lateral sclerosis: determining a meaningful deterioration. Qual Life Res. 13: 1409-1414.
    • (2004) Qual Life Res , vol.13 , pp. 1409-1414
    • Norquist, J.M.1    Fitzpatrick, R.2    Jenkinson, C.3
  • 28
    • 0003528130 scopus 로고
    • NUNNALLY JC, BERNSTEIN ICH, editors. New York, McGraw-Hill
    • NUNNALLY JC, BERNSTEIN ICH, editors. (1994). Psychometric theory. New York, McGraw-Hill.
    • (1994) Psychometric Theory
  • 30
  • 32
    • 0011796683 scopus 로고    scopus 로고
    • The development of the WHO quality of life assessment instrument (the WHO-QoL)
    • Orley J, Kruyken W, editors. Berlin, Springer-Verlag
    • QUALITY OF LIFE GROUP WHO. (1997). The development of the WHO quality of life assessment instrument (the WHO-QoL). In: Orley J, Kruyken W, editors. Quality of life assessment: international perspective. Berlin, Springer-Verlag.
    • (1997) Quality of Life Assessment: International Perspective
  • 33
    • 9144248980 scopus 로고    scopus 로고
    • Generic health-related quality of life instruments in children and adolescents: A qualitative analysis of content
    • RAJMIL L, HERDAMN M, FERNANDEZ DE SANMAMED MJ et al. (2004). Generic health-related quality of life instruments in children and adolescents: a qualitative analysis of content. J Adolesc Health, 34: 37-45.
    • (2004) J Adolesc Health , vol.34 , pp. 37-45
    • Rajmil, L.1    Herdamn, M.2    Fernandez De Sanmamed, M.J.3
  • 34
    • 0031832474 scopus 로고    scopus 로고
    • Assessing health-related quality of life in chronically ill children with German KINDL: First psychometric and content analytical results
    • RAVENS-SIEBERER U, BULLINGER M. (1998). Assessing health-related quality of life in chronically ill children with German KINDL: First psychometric and content analytical results. Qual Life Res, 7: 399-407.
    • (1998) Qual Life Res , vol.7 , pp. 399-407
    • Ravens-Sieberer, U.1    Bullinger, M.2
  • 35
    • 0033672966 scopus 로고    scopus 로고
    • Validation of a French health-related quality of life instrument for adolescents: The VSP-A
    • SIMEONI MC, AUQUIER P, ANTONIOTTI S et al. (2000). Validation of a French health-related quality of life instrument for adolescents: the VSP-A. Qual Life Res, 9: 393-403.
    • (2000) Qual Life Res , vol.9 , pp. 393-403
    • Simeoni, M.C.1    Auquier, P.2    Antoniotti, S.3
  • 36
    • 0032951428 scopus 로고    scopus 로고
    • Conceptualisation et validation d'instruments de qualité de vie liée à la santé. Enseignements d'une revue critique de la littérature
    • SIMEONI MC, AUQUIER P, GENTILE S. (1999). Conceptualisation et validation d'instruments de qualité de vie liée à la santé. Enseignements d'une revue critique de la littérature. J Econ Med, 17 : 17-28.
    • (1999) J Econ Med , vol.17 , pp. 17-28
    • Simeoni, M.C.1    Auquier, P.2    Gentile, S.3
  • 37
    • 0027475541 scopus 로고
    • Adolescent health status measurement: Development of the child health and illness profile
    • STARFIELD B, BERGNER M, ENSMINGER M et al. (1993). Adolescent health status measurement: development of the child health and illness profile. Pediatrics, 91: 430-435.
    • (1993) Pediatrics , vol.91 , pp. 430-435
    • Starfield, B.1    Bergner, M.2    Ensminger, M.3
  • 38
    • 0029302223 scopus 로고
    • The child health and illness profile: A population-based measure of health
    • STARFIELD B, RILEY A, GREEN B et al. (1995). The child health and illness profile: a population-based measure of health. Med Care, 33: 553-566.
    • (1995) Med Care , vol.33 , pp. 553-566
    • Starfield, B.1    Riley, A.2    Green, B.3
  • 39
    • 0002726325 scopus 로고    scopus 로고
    • Pediatric health-related quality of life measurement technology: A guide for health care decision makers
    • VARNI JM, SEID M, KURTIN PS. (1999). Pediatric health-related quality of life measurement technology: a guide for health care decision makers. J Clin Outcomes Manag, 6: 33-40.
    • (1999) J Clin Outcomes Manag , vol.6 , pp. 33-40
    • Varni, J.M.1    Seid, M.2    Kurtin, P.S.3
  • 40
    • 0031877783 scopus 로고    scopus 로고
    • Measuring health-related quality of life in children: The development of the TACQOL parent form
    • VOGELS T, VERRIPS GH, VERLOOVE-VANHORICK SP et al. (1998). Measuring health-related quality of life in children: the development of the TACQOL parent form. Qual Life Res, 7: 457-465.
    • (1998) Qual Life Res , vol.7 , pp. 457-465
    • Vogels, T.1    Verrips, G.H.2    Verloove-Vanhorick, S.P.3
  • 41
    • 0026877917 scopus 로고
    • The MOS 36-item short-form health survey (SF-36): I. Conceptual framework and item selection
    • WARE JE, SHERBOURNE CD. (1992). The MOS 36-item short-form health survey (SF-36): I. Conceptual framework and item selection. Med Care, 30: 473-483.
    • (1992) Med Care , vol.30 , pp. 473-483
    • Ware, J.E.1    Sherbourne, C.D.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.