A brief quality-of-life measure for ALS clinical trials based on a subset of items from the sickness impact profile

Journal of the Neurological Sciences

Volumn 152, Issue SUPPL. 1, 1997, Pages

  McGuire, Dawn ^a,b   Garrison, Louis ^b   Armon, Carmel ^c   Barohn, Richard J ^d   Bryan, Wilson W ^d   Miller, Robert ^e   Parry, Gareth J ^f   Petajan, Jack H ^g   Ross, Mark A ^h  

^a UNIVERSITY OF CALIFORNIA   (United States)

^b Roche   (United States)

^c LOMA LINDA UNIVERSITY MEDICAL CENTER   (United States)

^d UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER   (United States)

^e CALIFORNIA PACIFIC MEDICAL CENTER   (United States)

^f UNIVERSITY OF MINNESOTA   (United States)

^g UNIVERSITY OF UTAH   (United States)

^h UNIVERSITY OF IOWA HOSPITALS AND CLINICS   (United States)

Author keywords

ALS; Clinical trial outcomes measures; Quality of life measures; Sickness impact profile; TQNE

Indexed keywords

ADULT; AMYOTROPHIC LATERAL SCLEROSIS; CONFERENCE PAPER; DISEASE COURSE; FEMALE; HEALTH STATUS; HUMAN; LUNG FUNCTION; MAJOR CLINICAL STUDY; MALE; MUSCLE ISOMETRIC CONTRACTION; MUSCLE WEAKNESS; PRIORITY JOURNAL; QUALITY OF LIFE; SCORING SYSTEM;

AMYOTROPHIC LATERAL SCLEROSIS; HUMANS; ISOMETRIC CONTRACTION; MUSCLE, SKELETAL; QUALITY OF LIFE; REGRESSION ANALYSIS; RESPIRATORY FUNCTION TESTS; SICKNESS IMPACT PROFILE;

EID: 0030666284     PISSN: 0022510X     EISSN: None     Source Type: Journal    
DOI: 10.1016/S0022-510X(97)00239-6     Document Type: Conference Paper

References (7)

1. Andres L.A., Hedlund W., Finison L., Conlon T., Felmus M., Munsat T.L. Quantitative motor assessment in amyotrophic lateral sclerosis. Neurology. 36:1986;937-941.
2. Andres P.L., Finison L.J., Conlon T., Thibodeau L.M., Munsat T.L. Use of compositie scores (megascores) to measure deficit in amyotrophic lateral sclerosis. Neurology. 38:1988;405-408.
3. Bergner M., Bobbitt R.A., Carter W.B., Gilson B.S. The Sickness Impact Profile: development and final revision of a health status measure. Med. Care. 19:1981;787-805.
4. Longstreth W.T., Nelson L., Linde M., Munoz D. Utility of the Sickness Impact Profile in Parkinson's disease. J. Geriatr. Psychiatry Neurol. 5:1992;142-148.
5. McGuire D., Garrison L., Armon C., Barohn R., Bryan W., Miller R., Parry G., Petajan J., Ross M. Relationship of the Tufts Quantitative Neuromuscular Exam (TQNE) and the Sickness Impact Profile (SIP) in measuring progression of ALS. Neurology. 46:1996;1442-1444.
6. Miller R.G., Petajan J.H., Bryan W.W., Armon C., Barohn R.J., Goodpasture J.C., Hoagland R.J., Parry G.J., Ross M.A., Stromatt S.C. A placebo-controlled trial of recombinant human ciliary neurotrophic factor (rhCNTF) in amyotrophic lateral sclerosis. Ann. Neurol. 39:1996;256-260.
7. Ross M.A., Parry G.J., Miller R.G.et al. Evaluation of amyotrophic lateral sclerosis diagnostic criteria (ALSDC) for a controlled trial of recombinant human ciliary neurotrophic factor (abstract). Neurology. 45(Suppl. 4):1995;A280.