Conceptualising intensive caring activities: The changing lives of families with young disabled children

Sociological Research Online

Volumn 11, Issue 1, 2006, Pages 59-72

  McLaughlin, Janice ^a  

^a NEWCASTLE UNIVERSITY   (United Kingdom)

Author keywords

Care; Disability; Family; Feminist Theory

Indexed keywords

EID: 33645671840     PISSN: 13607804     EISSN: None     Source Type: Journal    
DOI: 10.5153/sro.1219     Document Type: Article

References (41)

1. BARNES, C. (1998) 'The Social Model of Disability: A Sociological Phenomenon Ignored by Sociologists'? In T. Shakespeare (editor) The Disability Reader: Social Sciences Perspectives. London: Cassell.
2. BERESFORD, B. (1994) Positively Parents: Caring for a Severely Disabled Child. London: HMSO.
3. BERESFORD, B., SLOPER, P., BALDWIN, S. and NEWMAN, T. (1996) 'What Works in Services for Families with a Disabled Child?' Ilford: Barnado's.
4. BOGDAN, R., BROWN, M. A. and FOSTER, S. B., (1992) 'Be Honest but not Cruel: Staff/parent Communication on a Neonatal Unit' In P. M. Ferguson, D. L. Ferguson and S. J. Taylor (editors) Interpreting Disability: A Qualitative Reader. New York: Teachers College Press.
5. BRETT, J. (2002) 'The Experience of Disability from the Perspective of Parents of Children with Profound Impairment: Is it Time for an Alternative Model of Disability', Disability & Society, 17 (7), pp: 825-843.
6. CHAMBERLAYNE, P. and KING, A. (1997) 'The Biographical Challenge of Caring', Sociology of Health & Illness, 19, pp. 601-621.
7. DALE, N. (1996) Working with Families of Children with Special Needs: Partnership in Practice. London: Routledge.
8. DEELEY, S. (2000) 'Professional Ideology and Learning Disability: An Analysis of Internal Conflict', Disability and Society, 17, pp 19-33.
9. DOBSON, B., MIDDLETON, S. and BEARDSWORTH, A. (2001) The Impact of Childhood Disability on Family Life. York: YPS.
10. FINCH, J. and GROVES, D. (editors) (1983) A Labour of Love: Women, Work, and Caring. London: Routledge & Kegan Paul Ltd.
11. FINKELSTEIN, V. (1996) 'Outside 'Inside Out", Coalition, April, pp 30-36.
12. GILLIGAN, C. (1993) In a Different Voice. London: Harvard University Press.
13. GRAY, D. E. (2002) "Everybody Just Freezes. Everybody Is Just Embarrassed': Felt and Enacted Stigma among Parents of Children with High Functioning Autism', Sociology of Health & Illness, 24 (6), pp: 734-749.
14. GREEN, S. E. (2003) '"What Do You Mean 'What's Wrong with Her?'": Stigma and the Lives of Families of Children with Disabilities', Social Science & Medicine, 57, pp: 1361-1374.
15. HARRIS, J. (2003) Ostrich Politics: Exploring the Place of Social Care in Disability Studies. Keynote paper at Disability Studies: Theory, Policy and Practice Conference, Lancaster, September.
16. HAYS, S. (1996) The Cultural Contradictions of Motherhood. New Haven and London: Yale University Press.
17. HUGHES, B. (1999) 'The Constitution of Impairment: Modernity and the Aesthetic of Oppression', Disability & Society, 14, pp 155-172.
18. HUGHES, B. (2002) 'Bauman's Strangers: Impairment and the Invalidation of Disabled People in Modern and Post-Modern Cultures'. Disability & Society, 17, pp 571-584.
19. JAMES, A. (1993) Childhood Identities, Self and Social Relationships in the Experience of the Child. Edinburgh: Edinburgh University Press.
20. KELLY, S. E. (2005) '"a Different Light" - Examining, Impairment through Parent Narratives of Childhood Disability', Journal of Contemporary Ethnography, 34 (2), pp: 180-205.
21. KITTAY, E.F. (2002) 'When Caring is Just and Justice is Caring: Justice and Mental Retardation' in E.F. Kittay, and E.K. Feder, (editors) The Subject of Care: Feminist Perspectives on Dependency. Oxford: Rowan and Littlefield Publishers.
22. LANDSMAN, G. (1999) 'Does God Give Special Kids to Special Parents: Personhood and the Child with Disabilities as Gift and as Giver' in L.L. Layne, (editor) Transformative Motherhood: On Giving and Getting in a Consumer Culture. New York and London: New York University Press.
23. LANDSMAN, G. (2000) '"Real Motherhood," Class, and Children with Disabilities' in H. Ragone, and F.W. Twine, (editors) Ideologies and Technologies of Motherhood: Race, Class, Sexuality, Nationalism. New York: Routledge.
24. LANDSMAN, G. (2003) 'Emplotting Children's Lives: Developmental Delay Vs. Disability', Social Science & Medicine, 56 (9), pp: 1947-1960.
25. LARSON, E. (1998) 'Reframing the Meaning of Disability to Families: The Embrace of Paradox', Social Science & Medicine, 47, pp: 865-875.
26. LINDEMANN, K. (2003) 'The Ethics of Receiving', Theoretical Medicine, 24, pp 501-509.
27. LISTER, R. (1999) 'Citizenship and the Ethics of Care', Policy and Politics, 27, pp 233-246.
28. MCKEEVER, P. and MILLER, K. L. (2004) 'Mothering Children Who Have Disabilities: A Bourdieusian Interpretation of Maternal Practices', Social Science & Medicine, 59 (6), pp: 1177-1191.
29. MORRIS, J. (editor) (1996) Encounters with Strangers: Feminism and Disability. London: The Women's Press.
30. MURRAY, P., and PENMAN, J. (editors) (2000) Reflections on Disabled Family Life. Sheffield: Parents with Attitude.
31. OLIVER, M. (1996) Understanding Disability. Basingstoke: Macmillan.
32. PLACE, B. (2000) 'Constructing the Bodies of Critically III Children: An Ethnography of Intensive Care' in A. Prout, (editor) The Body, Childhood and Society. Basingstoke: Palgrave.
33. PROUT, A., et al. (1999) 'Medicines and the Maintenance of Ordinariness in the Household Management of Childhood Asthma', Sociology of Health & Illness, 21 (2), pp: 137-162.
34. SAFILIOS-ROTHSCHILD, C. (1970) The Sociology and Social Psychology of Disability and Rehabilitation. New York: Random House.
35. SEVENHUIJSEN, S. (1998) Citizenship and The Ethics of Care. London: Routledge.
36. SHELDON, A. (1999) 'Personal and Perplexing: Feminist Disability Politics Evaluated', Disability & Society, 14, pp 643-658.
37. SLOPER, P. (1999) 'Models of Service Support for Parents of Disabled Children. What do we know? What do we need to know'? Child: Care, Health and Development, 25 (2), pp.85-99.
38. SKEGGS, B. (1997) Formations of Class and Gender. London: Sage.
39. SWAIN, J., FINKELSTEIN, V., FRENCH, S. and OLIVER, M. (editors) (1993) Disabling Barriers - Enabling Environments, London: Sage.
40. TRAUSTADOTTIR, R. (1991) 'Mothers Who Care: Gender, Disability and Family Life', Journal of Family Issues, 12 (2), pp: 221-228.
41. WATSON, N., MCKIE, L., HUGHES, B., HOPKINS, D. and GREGORY, S. (2004) '(Interdependence, Needs and Care: The Potential for Disability and Feminist Theorists to Develop an Emancipatory Model', Sociology, 38, pp 331-35.