The experience of disability from the perspective of parents of children with profound impairment: Is it time for an alternative model of disability?

Disability and Society

Volumn 17, Issue 7, 2002, Pages 825-843

  Brett, Jane ^a  

^a NONE   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 0036947138     PISSN: 09687599     EISSN: None     Source Type: Journal    
DOI: 10.1080/0968759022000039109     Document Type: Article

References (63)

1. ALLEN D. & HUDD S. (1987) Are we professionalising parents? Weighing benefits and pitfalls, Mental Retardation, 25, pp. 133-139.
2. APPLETON, B. & MINCHOM, P. (1991) Models of parent partnership and child development centres, Child: Care, Health and Development, 17, pp. 27-38.
3. ARMSTRONG, D. (1983) Political Anatomy of the Body: medical knowledge in Britain in the twentieth century (Cambridge, Cambridge University Press).
4. AVERY, D. (1999) Talking tragedy-identity issues in the parental story of disability, in: M. CORKER & S. FRENCH (Eds) Disability Discourses (Buckingham, Open University Press/Macmillan).
5. BANCROFT, D. & CARR, R. (1997) Influencing Children's Development (Buckingham, Open University Press/Macmillan).
6. BARNES, C. (1992) Disabling Imagery and the Media (Derby, Ryburn/BCODP).
7. BERESFORD, B. (1994) Positively Parents: caring for a severely disabled child (London, Social Policy Research Unit, HMSO).
8. BERESFORD, B. (1997) Personal Accounts: involving disabled children in research (London, HMSO).
9. BOOTH, T. (1996) Sounds of still voices: issues in the use of narrative methods with people who have learning difficulties, in: L. BARTON (Ed.) Disability and Society: emerging issues and insights (London, Longman).
10. BRICHER, G. (2000) Disabled people: health professionals and the social model of disability, can there be a research relationship? Disability & Society, 15, pp. 781-793.
11. BROWN, S. (1998) The Orchestrated Body: an anthropology of embodiment and experience in brain injured children (Edinburgh, University of Edinburgh).
12. CASE, S. (2000) Refocusing on the parent: what are the social issues for parents of disabled children? Disability & Society, 15, pp. 271-292.
13. CASEY, A. (1995) Partnership nursing: influences on involvement of informal carers, Journal of Advanced Nursing, 22, pp. 1058-1062.
14. CHADWICK, R. & TODD, W. (1992) Ethics and Nursing Practice (London, Macmillan).
15. GHAPPELL, A., GOODLEY, D. & LAWTHOM, R. (2001) Making connections: the relevance of the social model of disability for people with learning difficulties, British Journal of Learning Disabilities, 29, pp. 45-50.
16. COCKS, A. (2000) Respite care for disabled children: macro and micro reflections, Disability & Society, 13, pp. 507-519.
17. CORBEN, V. (1999) Misusing phenomenology in nursing research: identifying the issues, Nurse Researcher, 6, pp. 52-66.
18. CROW, L. (1996) Including all of our lives: renewing the social model of disability, in: C. BARNES & G. MERCER (Eds) Exploring the Divide: illness and disability (pp. 91-102) (Leeds, Disability Press).
19. DALE, N. (1996) Working with Families of Children with Special Needs: partnership and practice (London, Routledge).
20. DARKE, P. (1997) Understanding cinematic representations of disability, in: T. SHAKESPEARE (Ed.) The Disability Reader (pp. 181-200) (London, Cassell).
21. DARLING, R. (1988) Parental entrepreneurship: a consumerist response to professional dominance, Journal of Social Issues, 44, pp. 141-158.
22. DEPARTMENT OF HEALTH (2000) NHS National Plan (London, HMSO).
23. DOWLING, M. & DOLAN, L. (2001) Families with children with disabilities-inequalities and the social model, Disability & Society, 16, pp. 21-35.
24. DOWSE, L. (2001) Contesting practices, challenging codes:2 self advocacy, disability politics and the social model, Disability & Society, 16, pp. 123-141.
25. FINKELSTEIN, V. (1980) Attitudes and Disabled People (New York, World Rehabilitation Fund).
26. FRENCH, S. (1993) Disability, impairment or something in between?, in: J. SWAIN, V. FINKELSTEIN, S. FRENCH & M. OLIVER (Eds) Disabling Barriers-Enabling Environments (London, Sage).
27. GOFFMAN, I. (1963) Stigma: notes on the management of spoiled identity (Harmondsworth, Penguin).
28. GOODLEY, D. (2000) Self Advocacy in the Lives of People with Learning Disabilities (Buckingham, Open University Press/Macmillan).
29. GRAVELLE, A. (1997) Caring for a child with a progressive illness during the complex chronic phase, Journal of Advanced Nursing, 25, pp. 738-745.
30. HEVEY, D. (1999) The tragedy principle: strategies for change in the representation of disabled people, in J. SWAIN et al. (Eds) Disabling Barriers-Enabling Environments (London, Open University Press/Sage).
31. HOLLOWAY, I. & WHEELER, I. (1995) Ethical issues in qualitative nursing research, Nursing Ethics, 2, pp. 19-29.
32. HUGHES, B. & PATTERSON, K. (1997) The social model of disability and the disappearing body-towards a sociology of impairment, Disability & Society, 12, pp. 325-340.
33. HUTCHINSON, T. (1995) The classification of disease, Archives of Disease in Childhood, 7, pp. 91-99.
34. JOHNSON, M. (1996) Models of disability, Psychologist, May, pp. 205-210.
35. KENNEDY, M. (1996) Sexual abuse and the disabled child, in J. MORRIS (Ed.) Encounters with Strangers: feminism and disability (pp. 116-134) (London, Women's Press).
36. KOCH, T. (1996) Interpretive approaches in nursing research: the influences of Husserl and Heidegger, Journal of Advanced Nursing, 21, pp. 825-836.
37. LLEWELLYN, A. & HOGAN, K. (2000) The use and abuse of models of disability, Disability & Society, 15, pp. 157-165.
38. MERLEAU PONTY, M. (1962) The Phenomenology of Perception, transl. by C. SMITH (London, Routledge Kegan Paul).
39. MIDDLETON, L. (1992) Children First: working with children and disability (Birmingham, Venture Press).
40. MIDDLETON, L. (1998) Services for disabled children: integrating the perspective of social, Child and Family Social Work, 3, pp. 239-246.
41. MIDDLETON, L. (1999) Disabled Children: challenging social exclusion (Oxford, Blackwell.)
42. MINES, M. (2000) Disability on a different model: glimpses of an Asian heritage, Disability & Society, 15, pp. 603-618.
43. MORRIS, J. (1991) Pride Against Prejudice: transforming attitudes to disability (London, Women's Press).
44. MORRIS, J. (1997) Gone missing? Disabled children living away from their families, Disability & Society, 12, pp. 241-258.
45. MOUSTAKAS, C. (1996) Phenomenology and Research Methods (London, Sage).
46. OLIVER, M. (1983) Social Work with Disabled People (Basingstoke, Macmillan).
47. OLIVER, M. (1990) The Politics of Disablement (Basingstoke, Macmillan).
48. OLIVER, M. (1996) Understanding Disability: from theory to practice (Basingstoke, Macmillan).
49. OLIVER, M. & SAPEY, B. (1999) Social Work with Disabled People, 2nd edn (London, Macmillan).
50. OXFORD ENGLISH DICTIONARY (1995) (Oxford, Oxford University Press).
51. READ J. (2000) Disability, the Family and Society, Listening to Mothers (Buckingham, Open University Press).
52. RICHARDSON, M. (1997) Addressing barriers: disability rights and the implications for nursing of the social construction of disability, Journal of Advanced Nursing, 25, pp. 1269-1275.
53. SANDOW, S. (1994) Whose Special Need? Some Perceptions of Special Educational Needs (London, Paul Chapman Publishing).
54. SELIGMAN, M. & DARLING, R. (1989) Ordinary Families, Special Children: a systems approach to childhood disability (New York, Guilford Press).
55. SHAKESPEARE, T. (1994) Cultural representations of disabled people; dustbins for disavowal? Disability & Society, 9, pp. 283-299.
56. SHAKESPEARE, T. (1999) Life as a Disabled Child: a qualitative study of young people's experiences and perspectives (Leeds, Disability Research Unit).
57. SHAKESPEARE, T., BARNES, C. & MERCER, G. (1999b) Exploring Disability: a sociological introduction (Cambridge, Polity Press).
58. SILVERMAN, D. (1999) Research and social theory, in: C. SEALE (Ed.) Researching Society and Culture (pp. 85-96) (London, Sage).
59. THOMAS, C. (1999) Female Forms. Experiencing and Understanding Disability (Buckingham, Open University Press).
60. VON TETZCHNER, S. & JENSEN, K. (1999) Interacting with people who have severe communication problems, International Journal of Disability, Development and Education, 46, pp. 453-461.
61. WALMSLEY. J. (1997) Including people with learning difficulties: theory and practice, in: L. BARTON & M. OLIVER (Eds) Disability Studies: past, present and future (pp. 75-88) (University of Leeds, Disability Press).
62. WATES, M. (1997) Disabled Parents-Dispelling the Myths (Cambridge, NCT Press).
63. WHO (1980) International Classification of Impairment of Disabilities and Handicaps (Geneva, WHO).