The internet as a source of data to support the development of a quality-of-life measure for eating disorders

Qualitative Health Research

Volumn 16, Issue 4, 2006, Pages 538-546

  Adair, E Carol ^a   Marcoux, Gisele ^a   Williams, Amy ^b   Reimer, Marlene ^a,c  

^a UNIVERSITY OF CALGARY   (Canada)

^b CALGARY HEALTH REGION   (Canada)

^c UNIVERSITY OF MANITOBA   (Canada)

Author keywords

Eating disorders; Qualitative data sources; Quality of life

Indexed keywords

ACCESS TO INFORMATION; ANOREXIA NERVOSA; ARTICLE; BULIMIA; CLINICAL ARTICLE; CONTROLLED STUDY; EATING DISORDER; FEMALE; HUMAN; INFORMATION PROCESSING; INTERNET; INTERVIEW; MALE; NARRATIVE; PRIORITY JOURNAL; PUBLICATION; QUALITATIVE ANALYSIS; QUALITY OF LIFE; SENSITIVITY ANALYSIS; VALIDATION PROCESS;

DATA COLLECTION; EATING DISORDERS; HUMANS; INTERNET; NARRATION; QUALITATIVE RESEARCH; QUALITY OF LIFE;

EID: 33645655105     PISSN: 10497323     EISSN: 15527557     Source Type: Journal    
DOI: 10.1177/1049732305285850     Document Type: Article

References (18)

1. Anderson, A. (1999). Eating disorders in males: Critical questions. In L. Cohn (Ed.), Eating disorders: Areference sourcebook (pp. 73-79). Phoenix, AZ: Oryx.
2. Bayliss, M., Dewey, J., Dunlap, I., Batenhorst, A., Cady, R., Diamond, M., et al. (2003). Astudy of the feasibility of Internet administration of a computerized health survey: The headache impact test (HIT). Quality of Life Research, 12, 953-961.
3. Buchanan, R., & Smith, J. (1999). Using the Internet for psychological research: Personality testing on the World Wide Web. British Journal of Psychology, 90, 125-144.
4. Cotton, A. (2003). The discursive field of Web-based health research: Implications for nursing research in cyberspace. Advances in Nursing Science, 26 (4), 307-319.
5. Eysenbach, G., & Till, J. (2001). Information in practice: Ethical issues in qualitative research on Internet communities. British Medical Journal, 323, 1103-1105.
6. Eysenbach, G., & Wyatt, J. (2002). Using the Internet for surveys and health research. Journal of Medical Internet Research, 4, e13.
7. Fleitas, J. (1998). Computer Monitor. Spinning tales from the World Wide Web: Qualitative research in an electronic environment. Qualitative Health Research, 8, 283-292.
8. Hilsden, R., Meddings, J., & Verhoef, M. (1999). Complementary and alternative medicine use by patients with inflammatory bowel disease: An Internet survey. Canadian Journal of Gastroenterology, 13 (4), 327-332.
9. Infoplease.com. (2004). How many online worldwide? Retrieved March 5, 2004, from http://www.infoplease.com/ipa/
10. Lakeman, R. (1997). Using the Internet for data collection in nursing research. Computers in Nursing, 15, 269-275.
11. Murray, D., & Fisher, J. (2002). The Internet: A virtually untapped tool for research. Journal of Technology in Human Services, 19, 5-18.
12. Public Broadcasting System (Producer). (2003). Perfect illusions: Eating disorders and the family. Retrieved December 15, 2005, from http://www.pbs.org/perfectillusions/
13. Revicki, D., Osoba, D., Fairclough, D., Barofsky, I., Berzon, R., Leidy, N., et al. (2000). Recommendations on health-related quality of life research to support labeling and promotional claims in the United States. Quality of Life Research, 9, 887-900.
14. Robinson, K. (2001). Unsolicited narratives from the Internet: A rich source of qualitative data. Qualitative Health Research, 11, 706-714.
15. Sharf, B. (1997). Communicating breast cancer on-line: Support and empowerment on the Internet. Women & Health, 26 (1), 65-84.
16. Soetikno, R., Mrad, R., Pao, V., & Lenert, L. (1997). Quality of life research on the Internet: Feasibility and potential biases in patients with ulcerative colitis. Journal of the American Medical Informatics Association, 4, 426-435.
17. Wilmoth, M. (1995). Computer networks as a source of research subjects. Western Journal of Nursing Research, 17, 335-338.
18. Winzelberg, A. (1997). The analysis of an electronic support group for individuals with eating disorders. Computers in Human Behavior, 13 (3), 393-407.