The perceived personal control (PPC) questionnaire as an outcome of genetic counseling: Reliability and validity of the instrument

American Journal of Medical Genetics

Volumn 140 A, Issue 8, 2006, Pages 843-850

  Smets, Ellen M A ^a   Pieterse, Arwen H ^b   Aalfs, Cora M ^a   Ausems, Margreet G E M ^c   Van Dulmen, Alexandra M ^b  

^a UNIVERSITY OF AMSTERDAM   (Netherlands)

^b NETHERLANDS INSTITUTE FOR HEALTH SERVICES RESEARCH   (Netherlands)

^c UNIVERSITY MEDICAL CENTER UTRECHT   (Netherlands)

Author keywords

Evaluation; Genetic counseling; Perceived personal control; Validity

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; COGNITION; CONSULTATION; CONTROLLED STUDY; EVALUATION; FEMALE; GENETIC COUNSELING; HUMAN; MAJOR CLINICAL STUDY; NETHERLANDS; OUTCOME ASSESSMENT; PERCEIVED PERSONAL CONTROL QUESTIONNAIRE; PREGNANT WOMAN; PRIORITY JOURNAL; PSYCHOMETRY; QUESTIONNAIRE; RELIABILITY; SATISFACTION; VALIDATION PROCESS;

ADOLESCENT; ADULT; DECISION MAKING; FEMALE; GENETIC COUNSELING; HUMANS; NEOPLASMS; PERSONAL AUTONOMY; QUESTIONNAIRES; REPRODUCTIVE TECHNIQUES;

EID: 33645561486     PISSN: 15524825     EISSN: 15524833     Source Type: Journal    
DOI: 10.1002/ajmg.a.31185     Document Type: Article

References (27)

1. Aalfs CM, Mollema ED, Oort FJ, de Haes JCJM, Leschot NJ, Smets EMA. 2004. Genetic counseling for familial conditions during pregnancy; an analysis of patient characteristics. Clin Genet 66:112-121.
2. Aalfs CM, Oort FJ, de Haes JCJM, Leschot NJ, Smets EMA. 2006. Counselor-counselee interaction in reproductive genetic counseling: Does a pregnancy in the counselee make a difference? Patient Educ Couns 60:80-90.
3. Audrain J, Schwartz MD, Lerman C. 1997. Psychological distress among women seeking genetic counselling for breast-ovarian cancer risk: The contribution of personality and appraisal. Ann Behav Med 19:370-377.
4. Averill JR. 1973. Personal control over aversive stimuli and its relationship to stress. Psych Bull 80:286-303.
5. Berkenstadt M, Shiloh S. Barkai G, Bat-Miriam-Katzelson M, Goldman B. 1999. Perceived Personal Control (PPC): A new concept in measuring outcome of genetic counseling. Am J Med Genet 82:53-59.
6. Bernhardt BA, Biesecker BB, Mastromarino CL. 2000. Goals, benefits and outcomes of genetic counseling: Client and genetic counselor assessment. Am J Med Genet 94:189-197.
7. Biesecker BB. 2001. Goals of genetic counseling. Clin Genet 60:323-330.
8. Biesecker BB, Peters KF. 2001. Process studies in genetic counseling. Am J Med Genet 106:191-198.
9. Blanchard CG, Ruckdeschel JC, Fletcher BA, Blanchard EB. 1986. The impact of oncologists' behaviors on patient satisfaction with morning rounds. Cancer 58:387-393.
10. Brom D, Kleber RJ. 1985. De Schok Verwerkings Lijst (The Dutch Impact of Event Scale). Ned TiJd Psych 40:164-168.
11. Davey A, Rostant K, Harrop K, Goldblatt J, O'Leary P. 2005. Evaluating genetic counseling: Client expectations, psychological adjustment and satisfaction with service. J Genet Couns 14:197-206.
12. Green MJ, Peterson SK, Wagner Baker M. Friedman LC, Rubinstein WS, Mauger DT. 2004. Effect of a computer based decision aid on knowledge, perceptions and intentions about genetic testing for breast cancer susceptibility. J Am Med Ass 46:442-452.
13. Guillemin F, Bombardier C, Beaton D. 1993. Cross-cultural adaptation of health related quality of life measures: Literature review and proposed guidelines. J Clin Epid 292:1417-1432.
14. Helmes AW, Bowen DJ, Bowden DJ, Bengel J. 2000. Predictors of participation in genetic research in a primary care physician network. Cancer Epidem Biom Prev 9:1377-1379.
15. Horowitz M, Wilner N, Alvarez W. 1979. Impact of Event Scale; a measure of subjective stress. Psychosom Med 41:209-218.
16. Howe A. 1997. Refusal of videorecording: What factors may influence patient consent? Fam Pract 14:233-237.
17. Ong LML, Visser MRM, Lammes FB, de Haes JCJM. 2000. Doctor-patient communication and cancer patients' quality of life and satisfaction. Patient Educ Couns 41:145-156.
18. Pearlin LI, Schooler C. 1978. The structure of coping. J Health Soc Behav 19:2-21.
19. Pieterse AH, Ausems MGEM, van Dulmen AM, Beemer FA, Bensing JM. 2005a. Initial cancer genetic counselling consultation: Change in counselees' cognitions and anxiety, and associations with addressing their needs and preferences. Am J Med Genet Part A 137A:27-35.
20. Pieterse AH, van Dulmen AM, Ausems MGEM, Beemer FA, Bensing JM. 2005b. Communication in cancer genetic counselling: Does it reflect counselees' pre-visit needs and preferences? Br J Cancer 92:1671-1678.
21. Pieterse AH, van Dulmen AM, Ausems MGEM, Schoemaker A, Beemer FA, Bensing JM. 2005c. QUOTE-gene(ca): Development of a counselee-centered instrument to measure needs and preferences in genetic counseling for hereditary cancer. Psycho-oncology 14:361-375.
22. Pieterse AH, van Dulmen AM, Beemer FA, Ausems MGEM, Bensing JM. 2006. Tailoring communication in cancer genetic counseling through video-supported feedback: A controlled pretest-posttest design. Patient Educ Couns (in press).
23. Pilnick A, Dingwall R. 2001. Research directions in genetic counselling: A review of the literature. Patient Educ Couns 44:95-105.
24. Shiloh S, Berkenstadt M, Meiran N, Bat-Miriam-Katzelson M, Goldman B. 1997. Mediating effects of perceived personal control in coping with a health threat: The case of genetic counseling. J Appl Soc Psychol 27:1146-1174.
25. Taylor SE. 1983. Adjustment to threatening events. Am Psychol 38:1161-1171.
26. Thompson SC, Sobolev-Shubin A, Galbraith ME, Schwakovsky L, Cruzen D. 1993. Maintaining perceptions of control: Finding perceived control in low control circumstances. J Pers Soc Psychol 64:293-304.
27. Wang C, Gonzalez R, Merajver DS. 2004. Assessment of genetic testing and related counseling services: Current research and future directions. Soc Sci Med 58:1427-1442.