At the edge: Negotiating boundaries in research with children and young people

Forum Qualitative Sozialforschung

Volumn 4, Issue 2, 2003, Pages

  Kay, Helen ^a   Cree, Viviene ^b   Tisdall, Kay ^c   Wallace, Jennifer ^c  

^a Commonwealth Youth Project ^*  (Guyana)

^b UNIVERSITY OF EDINBURGH   (United Kingdom)

^c Children in Scotland   (United Kingdom)

Author keywords

Children; HIV; Parental illness; Reflexivity; Research team; Subjectivities; Young people

Indexed keywords

EID: 3342945977     PISSN: 14385627     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (36)

1. Alanen, Leena (2001). Explorations in generational analysis. In Leena Alanaen & Berry Mayall (Eds.), Conceptualizing child-adult relations (pp.11-22). London: Routledge Falmer.
2. Alderson, Pia (1995). Listening to children: Children and social research ethics. London: Barnardo's.
3. Aldridge, Jo & Becker, Saul (1993). Children who care: inside the world of young carers. Loughborough: Loughborough University.
4. Altschuler, Jenny (1997). Working with chronic illness. Basingstoke: Macmillan.
5. Backett-Millburn, Kathryn & McKie, Linda (1999). A Critical Appraisal of the Write and Draw Technique. Health Education Research, 14(3), 387-398.
6. Bartunek, Jean M. & Louis, Margaret R. (1996). Insider/outsider team research. Thousand Oaks, CA: Sage.
7. Batty, Daphne (1993). HIV infection and children in need. London: BAAF.
8. Bor, Robert & Elford, Jonathan (1998). The family and HIV today. Recent research and practice. London: Cassell.
9. Bourne, Jill (1998). Researchers Experience Emotions Too. In Rosaline S. Barbour & Guro Huby (Eds.), Meddling with mythology. AIDS and the social construction of knowledge (pp.90-103) London: Routledge.
10. Brashers, D.E., Neidig, J.L., Cardillo, L.W., Dobbs, L.K., Russell, J.A., & Haas, S.M. (1999). "In an Important Way, I Did Die": Uncertainty and Revival in Persons Living with HIV or AIDS. AIDS Care, 11(2), 201-219.
11. Coffey, Amanda (1999). The ethnographic self. Fieldwork and the representation of identity. Thousand Oaks, CA: Sage.
12. Cree, Viviene E., Kay, Helen, Tisdall, Kay & Wallace, Jennifer (2002). Research with Children: Sharing the Dilemmas. Child and Family Social Work, 7(1), 47-56.
13. Ennew, Judith (1986). The sexual exploitation of children. Oxford: Basil Blackwell.
14. Hertz, Rosanna (Ed.) (1997). Reflexivity and voice. Thousand Oaks, CA: Sage.
15. Honigsbaum, Naomi (1991). HIV, AIDS and children. A cause for concern. London: National Children's Bureau.
16. Hubbard, Gill, Backett-Millburn, Kathryn & Kemmer, Debbie (2001). Working with Emotion: Issues for the Researcher in Fieldwork and Teamwork. International Journal of Social Research Methodology, 4(2), 119-137.
17. Inglis, Sheila & Morton, Sarah (1996). Children affected by HIV in Dundee, Edinburgh and Glasgow. Edinburgh: Children in Scotland.
18. Lee-Treweek, Geraldine (2000). The Insight of Emotional Danger: Research Experiences in a Home for Older People. In Geraldine Lee-Treweek & Stephanie Linkogle (Eds.), Danger in the field. Risk and ethics in social research (pp.114-131). London: Routledge.
19. Marcus, George (1998). Ethnography through thick and thin. Princeton, New Jersey: Princeton University Press
20. Melvin, Diane & Sherr, Lorraine (1993). The Child in the Family - Responding to AIDS and HIV. AIDS Care, 5 (1), 35-42.
21. Niven, C.A. & Knussen, C. (1999). Measuring the Stress Associated with Caring for Clients with HIV/AIDS. AIDS Care, 11(2), 171-218.
22. O'Kane, Claire (2000). The Development of Participatory Techniques. In Pia Christensen & Allison James (Eds.), Research with children. Perspectives and practices (pp.136-159). London: Falmer Press.
23. Prout, Alan & James, Allison (1997). A new Paradigm for the Sociology of Childhood? Provenance, Promise and Problems. In Allison James & Alan Prout (Eds.), Constructing and reconstructing childhood (pp.7-33) London: Falmer Press.
24. Reynolds, Nancy R. & Alonzo, Angelo A. (1998). HIV and Informal Caregiving: Emergent Conflict and Growth. Research in Nursing and Health, 21, 251-260.
25. Robertson, J.R., Bucknall, A.B.V., Welsby, P.D., Roberts, J.J.K., Inglis, J.M., Peutherer, J.F. & Brettle, R.P. (1986). Epidemic of AIDS Related Virus (HTLV-III/LAV) Infection among Intravenous Drug Abusers. British Medical Journal, 292, 527-529.
26. Sandbaek, Michael (1999). Children with Problems: Focusing on Everyday Life. Children and Society, 13, 106-118.
27. SCIEH (2002). HIV/AIDS quarterly report to 31st December 2001. Edinburgh: Scottish Council on Infection and Environmental Health.
28. Scott, Jacqueline (2000). Children as Respondents. The Challenge for Quantitative Methods. In Pia Christensen & Allison James (Eds.), Research with children: perspectives and practices (pp.98-119). London: Falmer Press.
29. Siegel, Karolynn & Gorey, Eileen (1998). Childhood Bereavement due to Parental Death from Acquired Immunodeficiency Syndrome. In Robert Bor & Jonathan Elford (Eds.), The family & HIV today (pp.262-272). London: Cassell.
30. St. Louis, Kathleen & Calabrese Barton, Angela (2002, September). Tales from the Science Education Crypt: A Critical Reflection of Positionality, Subjectivity, and Reflexivity in Research [40 paragraphs]. Forum Qualitative Sozialforschung / Forum: Qualitative Social Research [On-line Journal], 3(3). Available at:
31. Strode, Ann & Grant, Kitty Barrett (2001). The Role of Sigma and Discrimination in the Increasing the Vulnerability of Children and Youth infected with and Affected by HIV/AIDS Arcadia, South Africa: Save the Children. Available at: h ttp://www.savethechildren.org.uk/hiv/pdfs/stigmav2.pdf.
32. Thomas, Caroline & Verna Beckford (1999). Adopted children speaking. London: BAAF.
33. Thomas, G. & Jolly, R. Drawing Conclusions: A Re-Examination of Empirical and Conceptual Bases for Psychological Evaluation of Children from their Drawings. British Journal of Clinical Psychology, 37, 127-39.
34. Thomas, Nigel & O'Kane, Claire (1998). The Ethics of Participatory Research with Children. Children and Society, 12, 336-348.
35. Thorne, Claire, Newell, Marie-Louise & Peckham, Catherine S. (1999). Clinical and Psychosocial Service Needs of Children and Families Affected by Human Immunodeficiency Virus in Europe. European Journal of Public Health, 9, 8-14.
36. Wallace, Jennifer, Cree, Viviene E., Kay, Helen & Tisdall, Kay (2002). Thinking positively. Report on findings from survey of Scottish Secondary Schools. Edinburgh: Children in Scotland.