Communication and older people with lifelong disability: A role for speech pathologists?

International Journal of Speech-Language Pathology

Volumn 4, Issue 2, 2002, Pages 109-117

  Balandin, Susan ^a  

^a UNIVERSITY OF SYDNEY   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 3242709032     PISSN: 17549515     EISSN: 17549507     Source Type: Journal    
DOI: 10.1080/14417040210001669331     Document Type: Article

References (82)

1. American Gastroenterological Association Clinical Practice and Practice Economics Committee. (1999). Australian Gastroenterological Association technical review on management of oropharyngeal dysphagia. Gastroenterology, 116, 455-478.
2. Ashman, A. E, Suttie, J., & Bramley, J. (1993). Older Australians with an intellectual disability. Brisbane: Fred and Eleanor Schonell Special Education Research Centre.
3. Australian Institute of Health and Welfare. (2000). Disability and ageing: Australian population patterns and implications. Canberra: Australian Institute of Health and Welfare.
4. Balandin, S. (1997). Aging-is it a communication issue? Intellectual Disability Australia, 18(2), 7.
5. Balandin, S. (2000). Witnessing without words. In T. Shaddock, M. Bond, I. Bowen, & K. Hales (Eds.), Intellectual disability & the law: Contemporary Australian issues (pp. 31-40). Newcastle, Australia: ASSID Inc.
6. Balandin, S., & Iacono, T. (1998). AAC and Australian speech pathologists: A report on a national survey. Augmentative and Alternative Communication, 14, 239-249. (Pubitemid 128614841)
7. Balandin, S., & Kerse, N. (1999). Aged care. In N. Lennox & J. Diggens (Eds.), Management guidelines. People with developmental and intellectual disabilities (pp. 47-60). Melbourne: Therapeutic Guidelines.
8. Balandin, S., & Morgan, J. (1997). Adults with cerebral palsy: Whaf s happening? Journal of Intellectual and Developmental Disability, 22(2), 109-124. (Pubitemid 27326084)
9. Balandin, S., & Morgan, J. (2001). Preparing for the future: Aging and AAC. Augmentative and Alternative Communication, 17, 99-108.
10. Beange, H. (1996). Caring for a vulnerable population. Medical Journal of Australia, 164(5), 159-160. (Pubitemid 126613647)
11. Beange, H., & Bauman, A. (1990). Caring for the developmentally disabled in the community. Australian Family Physician, 19(10), 1555-1563.
12. Beange, H., Gale, L., & Stewart, L. (1995). Project renourish: A dietary intervention to improve nutritional status in people with multiple disabilities. Australia and New Zealand Journal of Developmental Disabilities, 20(3), 165-174.
13. Beange, H., McElduff, A., & Baker, W. (1995). Medical disorders of adults with mental retardation: A population study. American Journal on Mental Retardation, 99(6), 595-604.
14. Bergman, J. S. (1994, May). Protecting the Mobility of the Aging Person with Cerebral Palsy or Spina Bifida. Paper presented at the Preventing Secondary Conditions associated with Spina Bifida or Cerebral Palsy Conference, Crystal City, Virginia.
15. Bigby, C. (1997a). Later life for adults with intellectual disability: A time of opportunity and vulnerability. Journal of Intellectual and Developmental Disability, 22(2), 97-108. (Pubitemid 27326083)
16. Bigby, C (1997b). Parental substitutes? The role of siblings in the lives of older people with intellectual disability. Journal of Gerontological Social Work, 29(1), 3-21. (Pubitemid 127823331)
17. Bigby, C. (2000). Moving on without parents: Planning, transitions and sources of support for older adults with intellectual disabilities. Sydney/Baltimore, MD: Mclennan+Petty/Paul H. Brookes Publishing.
18. Bigby, C., & Balandin, S. (in press). Issues in researching the aging of people with intellectual disability. In E. Emerson, C. Hatton, T. Parmenter, & T. Thompson (Eds.), International handbook of applied research in intellectual disabilities. Chichester, UK: John Wiley & Sons Ltd.
19. Bigby, C., Fyffe, C., Balandin, S., McCubbery, G., & Gordon, M. (2001). Ensuring successful aging: Report of a national study of day support service options for older adults with a disability unrelated to aging. Melbourne: Latrobe University.
20. Bloomberg, K., & Johnson, H. (1990). A statewide demographic survey of people with severe communication impairments. Augmentative and Alternative Communication, 6(1), 50-60.
21. Bourgeois, M. S., Dijkstra, K., Burgio, L., & Allen-Burge, R. (2001). Memory aids as an augmentative and alternative communication strategy for nursing home residents with dementia. Augmentative and Alternative Communication, 17, 196-210. (Pubitemid 32887940)
22. Burt, D. B. (1999). Dementia and depression. In M. P. Janicki & A. J. Dalton (Eds.), Dementia, aging, and intellectual disabilities (pp. 198-216). Philadelphia, PA: Brunner/Mazel.
23. Clemson, L., Cumming, R., & Roland, M. (1996). Home environmental hazards and the risk of falls and hip fracture. Age and Ageing, 25, 97-101. (Pubitemid 26091160)
24. Coleman, L. M., & DePaulo, B. M. (1991). Uncovering the human spirit: Moving beyond disability and "missed" communication. In N. Coupland, H. Giles, & J. M. Wiemann (Eds.), "Miscommunication" and problematic talk (pp. 61-84). Newbury Park, CA: Sage Publications.
25. Connell, B. R., & Wolf, S. L. (1997). Environmental and behavioural circumstances associated with falls at home among healthy elderly individuals. Archives of Physical and Medical Rehabilitation, 78(February), 179-186. (Pubitemid 27078679)
26. Connelly, G., & Keilty, J. (2000). Making a statement. Sydney: Intellectual Disability Rights Service.
27. Conway, R. N. F., Bergin, L., & Thornton, K. (1996). Abuse and adults with intellectual disability living in residential services. Canberra: National Council on Intellectual Disability.
28. Cosgrave, M. P., Tyrrell, J., McCarron, M., Gill, M., and Lawlor, B. A. (1999). Age at onset of dementia and age of menopause in women with Down's syndrome. Journal of Intellectual Disability Research, 43, 461-465. (Pubitemid 30000153)
29. Costello, J. M. (2000). AAC intervention in the intensive care unit: The Children's Hospital Boston model. Augmentative and Alternative Communication, 16, 137-153.
30. Crichton, J. U., Mackinnon, M., & White, C. P. (1995). The life expectancy of persons with cerebral palsy. Developmental Medicine and Child Neurology, 37, 567-576.
31. Detmar, S. B., Muller, M. J., Wever, L. D., Schornagel, J. H., & Aaronson, N. K. (2001). The patient-physician relationship. Patient-physician communication during outpatient palliative treatment visits: An observational study. Journal of the American Medical Association, 285(10), 1351-1357. (Pubitemid 32218690)
32. Duchan, J. F. (2001). Impairment and social views of speech-language pathology: Clinical practices re-examined. Advances in Speech-Language Pathology, 1(1), 37-47.
33. Evenhuis, H. M., Mul, M., Lemaire, E. K. G., & Wijs, J. P. M. (1997). Diagnosis of sensory impairment in people with intellectual disability in general practice. Journal of Intellectual Disability Research, 41, 422-429. (Pubitemid 127502712)
34. Gordon, G. H., Joos, S. K., & Byrne, J. (2000). Physician expressions of uncertainty during patient encounters. Patient Education & Counseling, 40(1), 59-65. (Pubitemid 30110553)
35. Hemsley, B., & Balandin, S. (in press). Ageing, disability, dysphagia, and severe communication impairment. In S. v. Tetzchner & J. Clibbens (Eds.), ISAAC Research Symposim 2000. Toronto: International Society of Augmentative and Alternative Communication.
36. Hemsley, B., Sigafoos, J., Balandin, S., Forbes, R., Taylor, C., Green, V. A., & Parmenter, T. (2001). Nursing the patient with severe communication impairment. Journal of Advanced Nursing, 35(6), 827-835. (Pubitemid 33609453)
37. Herr, S., & Weber, G. (1999). Prospects of ensuring rights, quality supports, and a good old age. In S. Herr & G. Weber (Eds.), Aging, rights, and quality of life (pp. 343-366). Baltimore, MD: Paul H. Brookes Publishing.
38. Hickson, L., Lind, C., Worrall, L., Yiu, E., Barnett, H., and Lovie-Kitchin, J. (1999). Hearing and vision in healthy older Australians: Objective and self-report measures. Advances in Speech Language Pathology, 1(2), 95-105.
39. Hogg, J. (1997). Intellectual disability and aging: Ecological perspectives from recent research. Journal of Intellectual Disability Research, 41(2), 136-143. (Pubitemid 27424984)
40. Hogg, J., Lucchino, R., Wang, K., Janicki, M. P., & Group., W. (2000). Healthy aging-Adults with intellectual disabilities: Ageing and social policy. Geneva, Switzerland: World Health Organization.
41. Human Rights and Equal Opportunity Commission (1999). Disability Discrimination Act Action Plans: A guide for the tertiary sector. Canberra: Government Publishing Services.
42. ISAAC. (2002, February). From the President. ISAAC Bulletin, 67, p. 2.
43. Janicki, M. P. (1989). Aging, cerebral palsy, and older persons with mental retardation. Australia and New Zealand Journal of Developmental Disabilities, 15(3 & 4), 311-320. (Pubitemid 20316636)
44. Janicki, M. P. (1994). Policies and supports for older people with mental retardation. In M. M. Seltzer, M. W. Krauss, & M. P. Janicki (Eds.), Life course perspectives on adulthood and old age (pp. 143-166). Washington, DC: American Association on Mental Retardation.
45. Janicki, M. P., & Ansello, E. F. (Eds.). (2000). Community supports for aging adults with lifelong disabilities. Baltimore, MD: Paul H. Brookes Publishing.
46. Janicki, M. P., & Dalton, A. J. (Eds.). (1999). Dementia, aging, and intellectual disabilities. Philadelphia, PA: Brunner/Mazel.
47. Kaatzke-McDonald, M. (2000). Dysphagia: The social perspective. Current Therapeutics, May, 69-72.
48. Kailes, J. I. (1993). Aging with a disability: Educating myself. The Networker, 7(1), 6-9.
49. Kendig, H., Browning, C J., & Young, A. E. (2000). Impacts of illness and disability on the well-being of older people. Disability & Rehabilitation, 22(1/2), 15-22. (Pubitemid 30037785)
50. Laerum, E., Schattner, P., McCall, L., Steine, S., & Murtagh, J. (2001). The patient perspective survey. Can consultations for complex health problems be enhanced? Australian Family Physician, 30(6), 616-619.
51. Logemann, J. (1998). Evaluation and treatment of swallowing disorders (2nd ed.). Austin, TX: Pro-Ed.
52. Lubinski, R. (1997). Perspectives on aging and communication. In R. Lubinski & D. J. Higginbotham (Eds.), Communication technologies for the elderly (pp. 1-22). San Diego, CA: Singular Publishing Group.
53. Ludlow, B. L. (1999). Life after loss-Legal, ethical, and practical issues. In S. Herr & G. Weber (Eds.), Aging, rights, and quality of life (pp. 189-221). Baltimore, MD: Paul H. Brookes Publishing.
54. Machemer, R. H. (Ed.). (1997). Aging and developmental disabilities-An in-service curriculum. Rochester, NY: University of Rochester.
55. McCallion, P. (1998). Maintaining communication. In M. P. Janicki & A. J. Dalton (Eds.), Dementia, aging, and intellectual disabilities (pp. 261-277). Philadelphia, PA: Brunner/Mazel.
56. McFee, G., & Bray, G. (1995). Older people in New South Wales: A profile (Government report 4108.1). Canberra: Australian Bureau of Statistics.
57. Ministerial Council of Review on Ageing. (1994). Positive ageing: On our agenda. Sydney: NSW Government Printing Office.
58. Mitsuda, P., Baarslag-Benson, R., Hazel, K., & Therriault, T. (1992). Augmentative communication in intensive and acute care settings. In K. Yorkston (Ed.), Augmentative communication in the medical setting (pp. 5-58). Tucson, AZ: Communication Skill Builders.
59. Morse, J. L. (1988). Assessment procedures for people with mental retardation: The dilemma and suggested adaptive procedures. In S. N. Calculator & J. L. Bedrosian (Eds.), Communication assessment and intervention for adults with mental retardation (pp. 109-138). London: Taylor and Francis.
60. Moss, S., Hogg, J., & Home, M. (1992). Demographic characteristics of a population of people with moderate, severe and profound intellectual disability (mental handicap) age structure, IQ and adaptive skills. Journal of Intellectual Disability Research, 36, 387-401.
61. Murphy, K. P., Molnar, G. E., & Lankasky, K. (1995). Medical and functional status of adults with cerebral palsy. Developmental Medicine and Child Neurology, 37, 1075-1084. (Pubitemid 26013587)
62. Overeynder, J. (1994). Aging and cerebral palsy: Pathways to successful aging. The UCPA Networker, 7, 2-4.
63. Overeynder, J., Turk, M., Dalton, A. J., & Janicki, M. P. (1992). I'm worried about the future: The aging of adults with cerebral palsy. Albany: New York State Developmental Disabilities Planning Council.
64. Parke, B. (1997). The young adult as a nursing home client... the challenge of Karl's legacy. Canadian Nursing Home, 8(1), 27-28.
65. Paterson, W. G. (1996). Dysphagia in the elderly. Canadian Family Physician, 42, 925-932. (Pubitemid 126699791)
66. Pellegrino, L. (1995). Cerebral palsy: A paradigm for developmental disabilities. Developmental Medicine and Child Neurology, 37, 834-839.
67. Robillard, A. B. (1994). Communication problems in the intensive care unit. Qualitative Sociology, 17, 383-395.
68. Scott, J., & Balandin, S. (in press). AAC and the Law. Paper presented at Silent Voices, Kolkata, India.
69. Seltzer, M., & Krauss, M. (1987). Aging and mental retardation. Extending the continuum. Washington, DC: AAMR.
70. Spirduso, W. W. (1995). Physical dimensions of aging. Clapham, SA: Human Kinetics.
71. Strauss, D, Cable, W., & Shavelle, R. (1999). Causes of excess mortality in cerebral palsy. Developmental Medicine and Child Neurology, 41, 580-585. (Pubitemid 29425583)
72. Thorpe, L. (1999). Psychiatric disorders. In M. P. Janicki & A. J. Dalton (Eds.), Dementia, aging, and intellectual disabilities (pp. 217-231). Philadelphia, PA: Brunner/Mazel.
73. Turk, M. A. (1994, November). Attaining and Retaining Mobility: Clinical Issues. Paper presented at the Preventing Secondary Conditions Associated with Spina Bifida or Cerebral Palsy Conference, Crystal City, Virginia.
74. Turk, M. A., Geremski, C. A., Rosenbaum, P. F., & Weber, R. J. (1997). The health status of women with cerebral palsy. Archives of Physical Medicine and Rehabilitation, 78 (December), S-10-S-17. (Pubitemid 28007687)
75. Turk, M. A., Overeynder, J. C., & Janicki, M. P. (Eds.). (1995). Uncertain Future-Aging and cerebral palsy: Clinical concerns. Albany: New York State Developmental Disabilities Planning Council.
76. Wallace, K. L., Middleton, S., & Cook, I. J. (2000). Development and validation of a self-report symptom inventory to assess the severity of oral-pharyngeal dysphagia. Gastroenterology, 118, 678-687. (Pubitemid 30171617)
77. Ward, D. (2000). Adult/elderly care nursing. Ageism and the abuse of older people in health and social care. British Journal of Nursing, 9(9), 560-563.
78. Warren, A. C., Holroyd, S., & Folstein, M. F. (1989). Major depression in Down's syndrome. British Journal of Psychiatry, 155, 202-205. (Pubitemid 19204902)
79. West, C., & Frankel, R. M. (1991). Miscommunication in medicine. In N. Coupland, H. Giles, & J. M. Wiemann (Eds.), Miscommunication and problematic talk (pp. 166-194). London: Sage Publications.
80. Williams, M. B. (1993). Getting older. The UCPA Networker, 7(1), 13.
81. Willner, L., & Dunning, D. (1993). Ageing with cerebral palsy. London: SCOPE.
82. World Health Organization. (2000). Ageing and intellectual disabilities-Improving longevity and promoting healthy ageing: Summative report. Geneva, Switzerland: World Health Organziation.