메뉴 건너뛰기




Volumn 16, Issue 2, 2006, Pages 99-106

Health related quality of life in people with hereditary neuromuscular diseases: An investigation of test-retest agreement with comparison between two generic questionnaires, the Nottingham health profile and the short form-36 items

Author keywords

Muscular dystrophies; Neuromuscular diseases; Quality of life; Questionnaires

Indexed keywords

ADOLESCENT; ADULT; AGED; CONTROLLED STUDY; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; NEUROMUSCULAR DISEASE; NOTTINGHAM EXTENDED ACTIVITIES OF DAILY LIVING SCALE; PRIORITY JOURNAL; QUALITY OF LIFE; REPRODUCIBILITY; REVIEW; SHORT FORM 36; TEST RETEST RELIABILITY;

EID: 31944448013     PISSN: 09608966     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.nmd.2005.11.002     Document Type: Article
Times cited : (33)

References (43)
  • 1
    • 0027762127 scopus 로고
    • Epidemiology of neuromuscular diseases, including the postpolio sequelae, in a Swedish county
    • G. Ahlstrom, L.G. Gunnarsson, P. Leissner, and P.O. Sjoden Epidemiology of neuromuscular diseases, including the postpolio sequelae, in a Swedish county Neuroepidemiology 12 1993 262 269
    • (1993) Neuroepidemiology , vol.12 , pp. 262-269
    • Ahlstrom, G.1    Gunnarsson, L.G.2    Leissner, P.3    Sjoden, P.O.4
  • 2
    • 0025998134 scopus 로고
    • Population frequencies of inherited neuromuscular diseases. I. a world survey
    • A.E. Emery Population frequencies of inherited neuromuscular diseases. I. A world survey Neuromuscul Disord 1 1991 19 29
    • (1991) Neuromuscul Disord , vol.1 , pp. 19-29
    • Emery, A.E.1
  • 3
  • 5
    • 0036358705 scopus 로고    scopus 로고
    • Assessment of pain and health-related quality of life in slowly progressive neuromuscular disease
    • R.T. Abresch, G.T. Carter, M.P. Jensen, and D.D. Kilmer Assessment of pain and health-related quality of life in slowly progressive neuromuscular disease Am J Hosp Palliat Care 19 2002 39 48
    • (2002) Am J Hosp Palliat Care , vol.19 , pp. 39-48
    • Abresch, R.T.1    Carter, G.T.2    Jensen, M.P.3    Kilmer, D.D.4
  • 6
    • 0028235284 scopus 로고
    • Respiratory function, electrocardiography and quality of life in individuals with muscular dystrophy
    • G. Ahlstrom, L.G. Gunnarsson, A. Kihlgren, A. Arvill, and P.O. Sjoden Respiratory function, electrocardiography and quality of life in individuals with muscular dystrophy Chest 106 1994 173 179
    • (1994) Chest , vol.106 , pp. 173-179
    • Ahlstrom, G.1    Gunnarsson, L.G.2    Kihlgren, A.3    Arvill, A.4    Sjoden, P.O.5
  • 7
    • 0030272889 scopus 로고    scopus 로고
    • Coping with illness-related problems and quality of life in adult individuals with muscular dystrophy
    • G. Ahlstrom, and P.O. Sjoden Coping with illness-related problems and quality of life in adult individuals with muscular dystrophy J Psychosom Res 41 1996 365 376
    • (1996) J Psychosom Res , vol.41 , pp. 365-376
    • Ahlstrom, G.1    Sjoden, P.O.2
  • 8
    • 0029759707 scopus 로고    scopus 로고
    • Disability and quality of life in individuals with muscular dystrophy
    • G. Ahlstrom, and L.G. Gunnarsson Disability and quality of life in individuals with muscular dystrophy Scand J Rehabil Med 28 1996 147 157
    • (1996) Scand J Rehabil Med , vol.28 , pp. 147-157
    • Ahlstrom, G.1    Gunnarsson, L.G.2
  • 9
    • 0033679684 scopus 로고    scopus 로고
    • Psychometric properties of a new instrument for evaluating quality of life, the WHOQOL-26, in a population of patients with neuromuscular diseases [Propriétés psychométriques d'un nouvel instrument d'évaluation de la qualité de vie, le WHOQOL-26, à partir d'une population de malades neuro-musculaires]
    • A. Leplège, C. Reveillere, E. Ecosse, A. Caria, and H. Riviere Psychometric properties of a new instrument for evaluating quality of life, the WHOQOL-26, in a population of patients with neuromuscular diseases [Propriétés psychométriques d'un nouvel instrument d'évaluation de la qualité de vie, le WHOQOL-26, à partir d'une population de malades neuro-musculaires] Encephale 26 2000 13 22 [in French]
    • (2000) Encephale , vol.26 , pp. 13-22
    • Leplège, A.1    Reveillere, C.2    Ecosse, E.3    Caria, A.4    Riviere, H.5
  • 10
    • 0034518948 scopus 로고    scopus 로고
    • Disability, coping and quality of life in individuals with muscular dystrophy: A prospective study over five years
    • B. Natterlund, L.G. Gunnarsson, and G. Ahlstrom Disability, coping and quality of life in individuals with muscular dystrophy: a prospective study over five years Disabil Rehabil 22 2000 776 785
    • (2000) Disabil Rehabil , vol.22 , pp. 776-785
    • Natterlund, B.1    Gunnarsson, L.G.2    Ahlstrom, G.3
  • 11
    • 0034845294 scopus 로고    scopus 로고
    • Activities of daily living and quality of life in persons with muscular dystrophy
    • B. Natterlund, and G. Ahlstrom Activities of daily living and quality of life in persons with muscular dystrophy J Rehabil Med 33 2001 206 211
    • (2001) J Rehabil Med , vol.33 , pp. 206-211
    • Natterlund, B.1    Ahlstrom, G.2
  • 12
    • 0842329788 scopus 로고    scopus 로고
    • Quality of life in hereditary neuromuscular diseases
    • M. Piccininni, C. Falsini, and A. Pizzi Quality of life in hereditary neuromuscular diseases Acta Neurol Scand 109 2004 113 119
    • (2004) Acta Neurol Scand , vol.109 , pp. 113-119
    • Piccininni, M.1    Falsini, C.2    Pizzi, A.3
  • 13
    • 0024002889 scopus 로고
    • Quality of life: What is it? How should it be measured?
    • N.K. Aaronson Quality of life: what is it? How should it be measured? Oncology 2 1988 69 76
    • (1988) Oncology , vol.2 , pp. 69-76
    • Aaronson, N.K.1
  • 14
    • 0026050876 scopus 로고
    • The Nottingham Health Profile as an example of a tool for measuring the quality of life in health [L'indicateur de Santé Perceptuelle de Nottingham comme exemple d'instrument de mesure de la 'Qualité de Vie liée à la Santé']
    • D. Bucquet The Nottingham Health Profile as an example of a tool for measuring the quality of life in health [L'indicateur de Santé Perceptuelle de Nottingham comme exemple d'instrument de mesure de la 'Qualité de Vie liée à la Santé'] Rev Med Interne 12 1991 255 256 [in French]
    • (1991) Rev Med Interne , vol.12 , pp. 255-256
    • Bucquet, D.1
  • 16
    • 0027569430 scopus 로고
    • The MOS 36-item short-form health survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs
    • C.A. McHorney, J.E. Ware, and A.E. Raczek The MOS 36-item short-form health survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs Med Care 31 1993 247 263
    • (1993) Med Care , vol.31 , pp. 247-263
    • McHorney, C.A.1    Ware, J.E.2    Raczek, A.E.3
  • 17
    • 0028120266 scopus 로고
    • The MOS 36-item short-form health survey (SF-36): III. Tests of data quality, scaling assumptions, and reliability across diverse patient groups
    • C.A. McHorney, J.E. Ware, J.F. Lu, and C.D. Sherbourne The MOS 36-item short-form health survey (SF-36): III. Tests of data quality, scaling assumptions, and reliability across diverse patient groups Med Care 32 1994 40 66
    • (1994) Med Care , vol.32 , pp. 40-66
    • McHorney, C.A.1    Ware, J.E.2    Lu, J.F.3    Sherbourne, C.D.4
  • 18
    • 0026877917 scopus 로고
    • The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection
    • J.E. Ware, and C. Sherbourne The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection Med Care 30 1992 473 481
    • (1992) Med Care , vol.30 , pp. 473-481
    • Ware, J.E.1    Sherbourne, C.2
  • 19
    • 0034671279 scopus 로고    scopus 로고
    • SF-36 health survey update
    • J.E. Ware SF-36 health survey update Spine 25 2000 3130 3139
    • (2000) Spine , vol.25 , pp. 3130-3139
    • Ware, J.E.1
  • 21
    • 0024637480 scopus 로고
    • Generic and disease-specific measures in assessing health status and quality of life
    • D.L. Patrick, and R.A. Deyo Generic and disease-specific measures in assessing health status and quality of life Med Care 27 1989 S217 S232
    • (1989) Med Care , vol.27
    • Patrick, D.L.1    Deyo, R.A.2
  • 23
    • 0025276372 scopus 로고
    • The French version of the Nottingham Health Profile. a comparison of items weights with those of the source version
    • D. Bucquet, S. Condon, and K. Ritchie The French version of the Nottingham Health Profile. A comparison of items weights with those of the source version Soc Sci Med 30 1990 829 835
    • (1990) Soc Sci Med , vol.30 , pp. 829-835
    • Bucquet, D.1    Condon, S.2    Ritchie, K.3
  • 24
    • 0029119535 scopus 로고
    • Preliminary analysis of the psychometric properties of the French version of an international questionnaire measuring the quality of life: The MOS SF-36 (version 1.1) [Analyse preliminaire des proprietes psychometriques de la version francaise d'un questionnaire international de mesure de qualite de vie: Le MOS SF-36 (version 1.1)]
    • A. Leplège, M. Mesbah, and P. Marquis Preliminary analysis of the psychometric properties of the French version of an international questionnaire measuring the quality of life: the MOS SF-36 (version 1.1) [Analyse preliminaire des proprietes psychometriques de la version francaise d'un questionnaire international de mesure de qualite de vie: le MOS SF-36 (version 1.1)] Rev Epidemiol Sante Publique 43 1995 371 379 [in French]
    • (1995) Rev Epidemiol Sante Publique , vol.43 , pp. 371-379
    • Leplège, A.1    Mesbah, M.2    Marquis, P.3
  • 25
    • 0035126457 scopus 로고    scopus 로고
    • Adapting the Nottingham Health Profile for use in people with severe physical disabilities
    • M.W. Post, J. Gerritsen, N.D. van Leusen, M.A. Paping, and A.J. Prevo Adapting the Nottingham Health Profile for use in people with severe physical disabilities Clin Rehabil 15 2001 103 110
    • (2001) Clin Rehabil , vol.15 , pp. 103-110
    • Post, M.W.1    Gerritsen, J.2    Van Leusen, N.D.3    Paping, M.A.4    Prevo, A.J.5
  • 26
    • 0035871130 scopus 로고    scopus 로고
    • Measuring health status of people who are wheelchair-dependent: Validity of the Sickness Impact Profile 68 and the Nottingham Health Profile
    • M.W. Post, J. Gerritsen, J.P. Diederikst, and L.P. DeWittet Measuring health status of people who are wheelchair-dependent: validity of the Sickness Impact Profile 68 and the Nottingham Health Profile Disabil Rehabil 23 2001 245 253
    • (2001) Disabil Rehabil , vol.23 , pp. 245-253
    • Post, M.W.1    Gerritsen, J.2    Diederikst, J.P.3    Dewittet, L.P.4
  • 27
    • 24944480889 scopus 로고    scopus 로고
    • Hereditary neuromuscular disease and multicomposite subjective health status:feasability, internal consistency and test-retest reliability in the French version of the Nottingham Health Profile, the ISPN
    • F. Boyer, J.L. Novella, S. Bertaud, F. Delmer, B. Vesselle, and J.C. Etienne Hereditary neuromuscular disease and multicomposite subjective health status:feasability, internal consistency and test-retest reliability in the French version of the Nottingham Health Profile, the ISPN Clin Rehabil 19 2005 644 653
    • (2005) Clin Rehabil , vol.19 , pp. 644-653
    • Boyer, F.1    Novella, J.L.2    Bertaud, S.3    Delmer, F.4    Vesselle, B.5    Etienne, J.C.6
  • 28
    • 33845945922 scopus 로고
    • Coefficient alpha and the internal structure of tests
    • L. Cronbach Coefficient alpha and the internal structure of tests Psychometrika 16 1951 297 334
    • (1951) Psychometrika , vol.16 , pp. 297-334
    • Cronbach, L.1
  • 29
    • 0021736206 scopus 로고
    • Measuring agreement between 2 observers: A quantitative case [Mesure de l'accord entre deux juges: Cas quantitatif]
    • J. Fermanian Measuring agreement between 2 observers: a quantitative case [Mesure de l'accord entre deux juges: cas quantitatif] Rev Epidemiol Sante Publique 32 1984 408 413 [in French]
    • (1984) Rev Epidemiol Sante Publique , vol.32 , pp. 408-413
    • Fermanian, J.1
  • 30
    • 20444444601 scopus 로고    scopus 로고
    • Validation of assessment scales in physical medicine and rehabilitation: How are psychometric properties determined? [Validation des échelles d'évaluation en Médecine Physique et de Réadaptation: Comment apprécier correctement leurs qualités psychomé triques]
    • J. Fermanian Validation of assessment scales in physical medicine and rehabilitation: how are psychometric properties determined? [Validation des échelles d'évaluation en Médecine Physique et de Réadaptation: comment apprécier correctement leurs qualités psychométriques] Ann Readapt Med Phys 48 2005 281 287 [in French]
    • (2005) Ann Readapt Med Phys , vol.48 , pp. 281-287
    • Fermanian, J.1
  • 31
    • 48249153186 scopus 로고
    • Intraclass correlations: Uses in assessing rater reliability
    • P. Schrout, and J. Fleiss Intraclass correlations: uses in assessing rater reliability Psychol Bull 86 1979 420 428
    • (1979) Psychol Bull , vol.86 , pp. 420-428
    • Schrout, P.1    Fleiss, J.2
  • 33
    • 0025835096 scopus 로고
    • Life satisfaction of individuals with Duchenne muscular dystrophy using long-term mechanical ventilatory support
    • J.R. Bach, D.I. Campagnolo, and S. Hoeman Life satisfaction of individuals with Duchenne muscular dystrophy using long-term mechanical ventilatory support Am J Phys Med Rehabil 70 1991 129 135
    • (1991) Am J Phys Med Rehabil , vol.70 , pp. 129-135
    • Bach, J.R.1    Campagnolo, D.I.2    Hoeman, S.3
  • 34
    • 0021281238 scopus 로고
    • Perceived health: Age and sex comparisons in a community
    • S.M. Hunt, J. McEwen, and S.P. McKenna Perceived health: age and sex comparisons in a community J Epidemiol Commun Health 38 1984 156 160
    • (1984) J Epidemiol Commun Health , vol.38 , pp. 156-160
    • Hunt, S.M.1    McEwen, J.2    McKenna, S.P.3
  • 35
    • 0032213607 scopus 로고    scopus 로고
    • The French SF-36 health survey: Translation, cultural adaptation and preliminary psychometric evaluation
    • A. Leplège, E. Ecosse, A. Verdier, and T. Perneger The French SF-36 health survey: translation, cultural adaptation and preliminary psychometric evaluation J Clin Epidemiol 51 1998 1013 1023
    • (1998) J Clin Epidemiol , vol.51 , pp. 1013-1023
    • Leplège, A.1    Ecosse, E.2    Verdier, A.3    Perneger, T.4
  • 37
    • 0019860014 scopus 로고
    • The Nottingham Health Profile: Subjective health status and medical consultations
    • S.M. Hunt, S.P. McKenna, J. McEwen, J. Williams, and E. Papp The Nottingham Health Profile: subjective health status and medical consultations Soc Sci Med 15 1981 221 229
    • (1981) Soc Sci Med , vol.15 , pp. 221-229
    • Hunt, S.M.1    McKenna, S.P.2    McEwen, J.3    Williams, J.4    Papp, E.5
  • 38
    • 0030918055 scopus 로고    scopus 로고
    • Are results of the SF-36 health survey and the Nottingham health profile similar? a comparison in COPD patients. Quality of life in COPD study group
    • L. Prieto, J. Alonso, M. Ferrer, and J.M. Anto Are results of the SF-36 health survey and the Nottingham health profile similar? A comparison in COPD patients. Quality of life in COPD study group J Clin Epidemiol 50 1997 463 473
    • (1997) J Clin Epidemiol , vol.50 , pp. 463-473
    • Prieto, L.1    Alonso, J.2    Ferrer, M.3    Anto, J.M.4
  • 39
    • 0036676772 scopus 로고    scopus 로고
    • Nottingham Health profile and short-form 36 health survey questionnaires in patients with chronic lower limb ischemia: Before and after revascularization
    • R. Klevsgard, B.L. Froberg, B. Risberg, and I.R. Hallberg Nottingham Health profile and short-form 36 health survey questionnaires in patients with chronic lower limb ischemia: before and after revascularization J Vasc Surg 36 2002 310 317
    • (2002) J Vasc Surg , vol.36 , pp. 310-317
    • Klevsgard, R.1    Froberg, B.L.2    Risberg, B.3    Hallberg, I.R.4
  • 41
    • 0031135823 scopus 로고    scopus 로고
    • An empirical comparison of four generic health status measures. the Nottingham Health Profile, the medical outcomes study 36-item short-form health survey, the COOP/WONCA charts, and the EuroQol instrument
    • M.L. Essink-Bot, P.F. Krabbe, G.J. Bonsel, and N.K. Aaronson An empirical comparison of four generic health status measures. The Nottingham Health Profile, the medical outcomes study 36-item short-form health survey, the COOP/WONCA charts, and the EuroQol instrument Med Care 35 1997 522 537
    • (1997) Med Care , vol.35 , pp. 522-537
    • Essink-Bot, M.L.1    Krabbe, P.F.2    Bonsel, G.J.3    Aaronson, N.K.4
  • 42
    • 0035923579 scopus 로고    scopus 로고
    • The illness experience of adult persons with muscular dystrophy
    • B. Natterlund, P.O. Sjoden, and G. Ahlstrom The illness experience of adult persons with muscular dystrophy Disabil Rehabil 23 2001 788 798
    • (2001) Disabil Rehabil , vol.23 , pp. 788-798
    • Natterlund, B.1    Sjoden, P.O.2    Ahlstrom, G.3
  • 43
    • 12344314856 scopus 로고    scopus 로고
    • Adult life with Duchenne muscular dystrophy: Observations among an emerging and unforeseen patient population
    • J. Rahbek, B. Werge, A. Madsen, J. Marquardt, B.F. Steffensen, and J. Jeppesen Adult life with Duchenne muscular dystrophy: observations among an emerging and unforeseen patient population Pediatr Rehabil 8 2005 17 28
    • (2005) Pediatr Rehabil , vol.8 , pp. 17-28
    • Rahbek, J.1    Werge, B.2    Madsen, A.3    Marquardt, J.4    Steffensen, B.F.5    Jeppesen, J.6


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.