Doc.com: Reviewing the literature on remote health information provision

Aslib Proceedings

Volumn 54, Issue 2, 2002, Pages 127-141

  Williams, Peter ^a   Nicholas, David ^a   Huntington, Paul ^a   Gunter, Barrie ^b  

^a CITY UNIVERSITY   (United Kingdom)

^b UNIVERSITY OF SHEFFIELD   (United Kingdom)

Author keywords

Health care; Information; Internet; Literature

Indexed keywords

EID: 31244434760     PISSN: 0001253X     EISSN: None     Source Type: Journal    
DOI: 10.1108/00012530210435257     Document Type: Article

References (87)

1. Acheson, T. (Chair) (1998), Independent Inquiry Into Inequalities in Health, HMSO, London.
2. ACS (2000), Shark cartilage, available at: www2.cancer.org/SiteSearch/www/AltFrame.cfm?select=/sharkcartilage.htm American Cancer Society (accessed 19 April 2000).
3. Age Concern (2000), Statistics (On Age Concern Website, available at: www.ageconcern.org.uk/SiteArchitek/facts.nsf/d268e7e7eea08ab74125675b00364294/ fb9a1f6f55337ed8802568a1005c03b1? OpenDocument'The+Health+of+Older+People (accessed 15 May 2000).
4. Atri, J., Falshaw, M., Livingstone, A. and Robson, J. (1996), "Fair shares in health care? Ethnic and socio-economic influences on recording of preventive care in selected inner London general practices", British Medical Journal, Vol. 312, pp. 614-17.
5. Attwell, P. (1999), "Home computers and school performance", Information Society, Vol. 15 No. 1, pp. 1-10.
6. Bacon, E.S. (1999), "A description of an Internet self-help group for widows with dependent children", Master of Science degree Hampton University, Dissertations Abstracts International, Vol. 3705, p. 1432.
7. Beresford, B. (1999), The Information Needs of Chronically III or Physically Disabled Children and Adolescents, York University Social Policy Research Unit, York.
8. BHIA (1996), "Quality standards for medical publishing on the Web", British Healthcare Internet Association Website, available at: www.bhia.org/reference/documents/recommend_Webquality.htm (accessed 10 May 2000).
9. Blake, M. (1998), "Internet access for older people", Aslib Proceedings, Vol. 50 No. 10, pp. 308-15.
10. Boseley, S. (1999), "Web life: health", The Guardian, 16 December, Online section, p. 5.
11. Bower, H. (1996), "Internet sees growth of unverified health claims", British Medical Journal, Vol. 313, p. 381.
12. Bristol Inquiry Unit (2000), The Inquiry into the Management of Care of Children Receiving Complex Heart Surgery at the Bristol Royal Infirmary Unit. Interim Report: Removal and Retention of Human Material, available at: www.bristol-inquiry.org.uk (posted 10 May 2000, accessed 12 May 2000).
13. Charnock, D. and Shepperd, S. (1997), The DISCERN Instrument, available at: www.discern.org.uk/ (accessed 26 August 2001).
14. Charnock, D., Shepperd, S., Needham, and Gan, R. (1999), "DISERN: an instrument for judging the quality of written consumer health information on treatment choices", Journal of Epidemiology and Community Health, Vol. 53 No. 2, pp. 105-11.
15. Chisholm, I., Carey, J. and Hernandez, A. (1999), "Access and utilization of computer technology by minority university students", SITE 99: Society for Information Technology & Teacher Education 10th International Conference, San Antonio, TX, 28 February-4 March.
16. Coulter, A., Entwistle V. and Gilbert, D. (1999a), Informing Patients: An Assessment of the Quality of Patient Information Materials, The King's Fund, London.
17. Coulter, A., Entwistle, V. and Gilbert, D. (1999b), "Sharing decisions with patients: is the information good enough?", British Medical Journal, Vol. 318, January, pp. 318-22.
18. Cross, D. (1989), "Salmonella in eggs scare", The Times, 28 February (DialogWeb search: File 711).
19. Culver, J.D., Gerr, F. and Frumkin, H. (1997), "Medical information on the Internet: a study of an electronic bulletin board", Journal of General Internal Medicine, Vol. 12 No. 8, pp. 466-70.
20. DoH (1992), The Patients' Charter, HMSO, London.
21. DoH (1997), The New NHS: Modern; Dependable, HMSO, London.
22. Doyle, C.S. (1994), Information Literacy in an Information Society: A Concept for the Information Age, ERIC Clearinghouse, Syracuse, NY.
23. Eysenbach, G. and Diepgen, T (1998), "Responses to unsolicited patient e-mail requests for medical advice on the World Wide Web", JAMA, Vol. 280 No. 15, pp. 1333-5.
24. Eysenbach, G., Bauer, J., Sager, A., Bittorf, A., Simon, M. and Diepgen, T. (1999a), "An international dermatological image atlas on the WWW: practical use for undergraduate and continuing medical education, patient education and epidemiological research", Medinfo, Vol. 9 No. 2, pp. 788-92.
25. Eysenbach, G., Sa, E. and Diepgen, T. (1999b), "Shopping around the Internet today and tomorrow: towards the millennium of cybermedicine", British Medical Journal, Vol. 319, p. 1294.
26. FDA (1999), FDA Takes Action Against Firm Marketing Unapproved Drugs, Food and Drug Administration, available at: www.fda.gov/bbs/topics/ANSWERS/ANS00988.html
27. Finn, J. (1999), "An exploration of helping processes in an online self-help group focusing on issues of disability", Health & Social Work, Vol. 24 No. 3, pp. 220-31.
28. Geffert, B. and Christensen, B. (1998), "Things they carry: attitudes toward, opinions about, and knowledge of libraries and research among incoming college students", Reference and User Services Quarterly, Vol. 37 No 3, pp. 279-85.
29. Gillam, S. and Levenson, R. (1999), "Editorial, linkworkers in primary care: an untapped resource", British Medical Journal, Vol. 319, p. 1215.
30. Gilster, P. (1997), Digital Literacy, Wiley, New York, NY.
31. Graber, M., Roller, C. and Kaeble, B. (1999), "Readability levels of patient education material on the World Wide Web", Journal of Family Practice, Vol. 48 No. 1, pp. 58-61.
32. Greenfield, S., Kaplan, S. and Ware, J.E. (1985), "Expanding patient involvement in care: effects on patient outcomes", Annals of Internal Medicine, Vol. 102 No. 4, pp. 520-8.
33. Griffiths, K.M. and Christensen, H. (2000), "Quality of Web-based information on treatment of depression: cross-sectional survey", British Medical Journal, Vol. 321, pp. 1511-15.
34. Grossman, L.K. (1999), "An outbreak of Internet phobia", Columbia Journalism Review, Vol. 38 No. 3, pp. 15-16.
35. Gunter, B., Huntington, P., Williams, P. and Nicholas, D. (2001b), "Health advice on the TV: early opinions of users", CD and Online Notes, Vol. 14 No. 9, pp. 4-8.
36. Gunter, B., Nicholas, D., Williams, P. and Huntington, P. (2001a), "Is DiTV good for you?", Library Association Record, Vol. 103 No. 9, September, pp. 558-9.
37. GVU (1998), GVU (Graphic, Visualisation and Usability Centre)'s 10th WWW User Survey, available at: www.gvu.gatech.edu/user_surveys/
38. Harrison. J. and Cooke, M. (2000), "Study of early warning of accident and emergency departments by ambulance services", Journal of Accident and Emergency Medicine, Vol. 16 No. 5, pp. 339-41.
39. Hernández-Borges, Aa., Macías-Cervi, P., Gaspar-Guardado, Ma., Torres-Álvarez De Arcaya, Ml., Ruiz-Rabaza, A. and Jiménez-Sosa, A. (1999), "Can examination of WWW usage statistics and other indirect quality indicators help to distinguish the relative quality of medical Websites?", Journal of Medical Internet Research, Vol. 1 No. 1, e1, available at: www.symposion.com/jmir/1999/1/e1/
40. HONF (1997), "HON code of conduct for medical and health Websites", Health on the Net Foundation Website, available at: www.hon.ch/HONcode/Conduct.html
41. HONF (1999), "HON's fourth survey on the use of the Internet for medical and health purposes", Health on the Net Foundation Website, available at: www.hon.ch/Survey/ (accessed 17 April 2000).
42. HONF (2001), Evolution of Internet use for health purposes - Feb/Mar 2001, available at: www.hon.ch/Survey/FebMar2001/survey.html
43. Hoot, J.L. and Hayslip, B. (1983), "Microcomputers and the elderly: new directions for self-sufficiency and lifelong learning", Educational Gerontology, Vol. 9 No. 5/6, pp. 493-9.
44. Impicciatore, P., Pandolfini, C., Casella, N. and Bonati, M. (1997), "Reliability of health information for the public on the World Wide Web: systematic survey of advice on managing fever in children at home", British Medical Journal, Vol. 314, pp. 1875-81.
45. Jadad, A.R. and Gagliardi, A. (1998), "Rating health information on the Internet. Navigating to knowledge or to Babel?", JAMA, Vol. 279, pp. 611-14.
46. James, C., James, N., Davies, D., Harvey, P. and Tweedle, S. (1999), "Preferences for different sources of information about cancer", Patient Education and Counseling, Vol. 37 No. 3, pp. 273-82.
47. Jameson, R. (2000), National Opinion Poll Internet Surveys: Britain Leads EU Internet Race, available at: www.nopres.co.uk/ (accessed 23 October 2001).
48. Jones, D. and Gill, P. (1998a), "Editorial: breaking down language barriers", British Medical Journal, Vol. 316, pp. 1476-80.
49. Jones, D. and Gill, P. (1998b), "Refugees and primary care: tackling the inequalities", British Medical Journal, Vol. 317, pp. 1444-6.
50. Kai, J. (1996), "Parents' difficulties and information needs in coping with acute illness in their pre-school children: a qualitative study", British Medical Journal, Vol. 313, pp. 987-90.
51. Kiley, R. (1999), Medical Information on the Internet: A Guide for Health Professionals, 2nd ed., Churchill-Livingstone, London.
52. Kim, P., Eng, T., Deering, M. and Maxfield, A. (1999), "Published criteria for evaluating health related Websites: review", British Medical Journal, Vol. 318, pp. 647-9.
53. Leake, J. (2000), "Scientists fear thousands may have CJD", The Times, April, DialogWeb search: file 711.
54. Lindberg, A.B. (1998), Testimony of Dr Donald Lindberg, Director of the National Library of Medicine, to the House Appropriations Sub-Committee on Labour, HHS and Education, 18 March, available at: www.nlm.nih.gov/pubs/staffpubs/od/budget99.html (accessed 8 April 2000).
55. London, J. (1999), "Lay public use of healthcare Websites", in Davidson, P.L. (Ed.), Handbook of Healthcare Information Systems, CRC Press, Boca Raton, FL, pp. 495-506.
56. McClung, H.J., Murray, R.D. and Heitlinger, L.A. (1998), "The Internet as a source for current patient information", Pediatrics, Vol. 101 No. 6, 1-4.
57. Marwick, C. (1999, "Cyberinformation for seniors", JAMA, Vol. 281 No 16, p. 1474.
58. Mazzuca, S.A. (1982), "Does patient education in chronic disease have theraputic value?", Journal of Chronic Disease, Vol. 35 No. 7, pp. 521-9.
59. Munro, J., Nicholl, J., O'Cathain, A. and Knowles, E. (1999), Evaluation of NHS Direct First Wave Sites, First Interim Report to the Department of Health, available at: www.shef.ac.uk/uni/academic/R-Z/scharr/mcru/reports/nhsd1.pdf
60. Munro, J., Nicholl, J., O'Cathain, A. and Knowles, E. (2000), Evaluation of NHS Direct First Wave Sites, Second Interim Report to the Department of Health, available at: www.shef.ac.uk/uni/academic/R-Z/scharr/mcru/reports/nhsd2.htm
61. NHS Executive (1996), Patient Partnership: Building a Collaborative Strategy, HMSO, London.
62. NHS Executive (1998), Information for Health: An Information Strategy for the Modern NHS - 1998-2005, HMSO London, available at: www.doh.gov.uk/nhsexipu/strategy/
63. NOP (2001), Seasonal cheer for E-tailers, National Opinion Poll, available at: www.nopres.co.uk/ (accessed 17 January 2002).
64. Nicholas, D., Huntington, P. and Williams, P. (2000), "Digital health information: case study the information kiosk", Aslib Proceedings, Vol. 52 No. 9, pp. 315-30.
65. Nicholas, D., Huntington, P. and Williams, P. (2001a), "Establishing metrics for the evaluation of touch-screen kiosks", Journal of Information Science, Vol. 27 No. 2, pp. 61-72.
66. Nicholas, D., Williams, P. and Huntington, P. (2001b), "Health information kiosk use in health organisations: the views of the health professionals", Aslib Proceedings, Vol. 53 No. 9, pp. 312-30.
67. Nicholas, D., Huntington, P., Williams, P. and Blackburn, P. (2001c), "Digital health information and health outcomes", Journal of Information Science, Vol. 27 No. 4, pp. 265-76.
68. Nicholas, D., Huntington, P., Williams, P. and Gunter, B. (2001d), "Delivering consumer health information digitally: platform comparisons", in Graham, C. (Ed.), Online Information 2001 Conference Proceedings, Learned Information, Oxford, pp. 145-54.
69. Nicholas, D., Huntington, P., Williams, P. and Jordan, M. (2002), "NHS Direct Online: its users and their concerns", Journal of Information Science.
70. Nuttall, N. (1999), "GM crop toxins are leaking into soil", The Times, 2 December, DialogWeb search: file 711.
71. O'Mahony, B. (1999), "Irish health care Websites: a review", Irish Medical Journal, Vol. 92 No. 4, pp. 332-7.
72. ONS (2000), Dataset: Dimensions: Gender by Year by Age, Office of National Statistics, available at: www.statistics.gov.uk/statbase/xsdataset.asp
73. Pointon, T. (1996), "Telephone interpreting service is available", British Medical Journal, Vol. 312, p. 53.
74. Quick, B.G. (1999), "The role of support groups on the Internet for those suffering from chronic kidney disease", Dissertations Abstracts International, Vol. 3705, University of The Pacific, Stockton, CA. p. 1522.
75. Robinson, T.N., Patrick, K., Eng, T.R. and Gustafson, D. (1998), "An evidence-based approach to interactive health communication: a challenge to medicine in the information age", JAMA, Vol. 280, pp. 1264-9.
76. RRRS (n.d), Rife Information, Royal Rife Research Society, available at: www.rrrs.com/RRRSinfo.htm (accessed 19 April 2000).
77. Shon, J. and Musen, M.A. (1999), "The low availability of metadata elements for evaluating the quality of medical information on the World Wide Web", Proc. AMIA Symp, Vol. 1-2, pp. 945-9.
78. Sieving, P.C. (1999), Factors Driving the Increase in Medical Information on the Web - One American Perspective, available at: www.symposion.com/jmir/1999/1/e3/index.htm (accessed 23 October 2001).
79. Silberg, W.M., Lundberg, G.D. and Musacchio, R.A. (1997), "Assessing, controlling and assuring the quality of medical information on the Internet", JAMA, Vol. 277, pp. 1244-5.
80. Soot, L.C., Moneta, G.L. and Edwards, J.M. (1999), "Vascular surgery and the Internet: a poor source of patient-oriented information", Journal of Vascular Surgery, Vol. 30 No. 1, pp. 84-91.
81. Sullivan, D.A. (1999), Webmaster's Guide to Search Engines, available at: www.searchenginewatch.com/Webmasters/index.html (accessed 19 April 2000).
82. Vickery, P. (2000), "The information kiosk project report" (internal unpublished document), Royal Cornwall Hospitals, Truro.
83. Williams, P., Nicholas, D. and Huntington, P. (2001), "Walk in to (digital) health information: the introduction of a digital health information system at a NHS walk-in centre", CD & Online Notes, Vol. 14 No. 2, pp. 4-7.
84. Williams, P., Nicholas, D., Huntington, P. and McClean, F. (2002a), "Surfing for health: user evaluation of a health information Website", Health Information and Libraries Journal.
85. Williams, P., Nicholas, D., Huntington, P. and Gunter, B. (2002b), "DiTV - a healthy future?", iTV Futures.
86. Williamson, K., Bow, A. and Wale, K. (1997), "Older people and the Internet", Link-Up, March, pp. 9-12.
87. Wyatt, J.C. (1997), "Measuring quality and impact of the World Wide Web", British Medical Journal, Vol. 314, pp. 1879-81.