Communication on end-of-life decisions with patients wishing to die at home: The making of a guideline for GPs in Flanders, Belgium

British Journal of General Practice

Volumn 56, Issue 522, 2006, Pages 14-19

  Deschepper, Reginald ^a   Vander Stichele, Robert ^b   Bernheim, Jan L ^a   De Keyser, Els ^a   Van Der Kelen, Greta ^a   Mortier, Freddy ^c   Deliens, Luc ^c,d  

^a VRIJE UNIVERSITEIT BRUSSEL   (Belgium)

^b Scientific Society of Flemish General Practitioners   (Belgium)

^c GHENT UNIVERSITY   (Belgium)

^d VU UNIVERSITY MEDICAL CENTER   (Netherlands)

Author keywords

Communication; Euthanasia; Palliative care; Practice guidelines; Terminal care

Indexed keywords

ARTICLE; BELGIUM; CAREGIVER; CLINICAL ARTICLE; COMMUNICATION SKILL; DECISION MAKING; DYING; EUTHANASIA; GENERAL PRACTITIONER; HOME CARE; HUMAN; INTERDISCIPLINARY COMMUNICATION; PALLIATIVE THERAPY; PATIENT ATTITUDE; PATIENT RIGHT; PRACTICE GUIDELINE; PRIMARY MEDICAL CARE; TERMINAL CARE; TERMINAL DISEASE;

ADVANCE DIRECTIVES; ATTITUDE TO HEALTH; BELGIUM; CAREGIVERS; CHOICE BEHAVIOR; COMMUNICATION; DECISION MAKING; EUTHANASIA; FAMILY PRACTICE; FOCUS GROUPS; HOME CARE SERVICES; HUMANS; PATIENT EDUCATION; PRACTICE GUIDELINES; PROFESSIONAL-PATIENT RELATIONS; TERMINAL CARE;

EID: 30444457003     PISSN: 09601643     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (23)

1. Deliens L, Mortier F, Bilsen J, et al. End-of-life decisions in medical practice in Flanders, Belgium: a nationwide survey. Lancet 2000; 356: 1806-1811.
2. Van der Heide A, Deliens L, Faisst K, et al. End-of-life decision-making in six European countries: descriptive study. Lancet 2003; 362: 345-550.
3. Helou A, Wende A, Hecke T, Rohrmann S, Buser K, Dierks ML. Public opinion on active euthanasia. The results of a pilot project [German]. Dtsch Med Wochenschr 2000; 125: 308-315.
4. O'Neill C, Feenan D, Hughes C, McAlister DA. Physician and family assisted suicide: results from a study of public attitudes in Britain. Soc Sci Med 2003; 57; 721-731.
5. Hurst SA, Manton A. Assisted suicide and euthanasia in Switzerland: allowing a role for non-physicians. BMJ 2003; 326: 271-273.
6. Deliens L, van der Wal G. The euthanasia law in Belgium and the Netherlands. Lancet 2003; 362: 1239-1240.
7. Vander Stichele RH, Bilsen JJ, Bernheim JL, et al. Drugs used for euthanasia in Flanders, Belgium. Pharmacoepidemiol Drug Saf 2004; 13: 89-95.
8. Hays JC, Galanos AN, Palmer TA, et al. Preference for place of death in a continuing care retirement community. Gerontologist 2001; 41: 123-128.
9. Tang ST, Mccorkle R. Determinants of congruence between the preferred and actual place of death for terminally ill cancer patients. J Palliat Care 2003; 19: 230-237.
10. Grande GE, Farquhar MC, Barclay SI, Todd CJ. Valued aspects of primary palliative care: content analysis of bereaved carers' descriptions. Br J Gen Pract 2004; 54: 772-778.
11. Tang ST, Mccorkle R. Determinants of place of death for terminal cancer patients. Cancer Invest 2001; 19: 165-180.
12. Van den Eynden B, Hermann I, Schrijvers D, et al. Factors determining the place of palliative care and death of cancer patients. Support Care Cancer 2000; 8: 59-64.
13. Ewing G, Rogers M, Barclay S, et al. Palliative care in primary care: a study to determine whether patients and professionals agree on symptoms. Br J Gen Pract 2006; 56: 27-34.
14. Deschepper R, Vander Stichele RH, Mortier F, Deliens L. Carefully dying at home: a guideline for general practitioners [Zorgzaam thuis sterven: een zoegleidraad voor huisartsen]. Gent: Academia Press, 2003.
15. Schillemans L, Remmen R, Maes R, Grol R. Quality circles in primary health care: possibilities and applications. In: Chan CFL (ed). Quality and its applications. First Newcastle International Conference on Quality and its Applications 1-3 September 1993, Newcastle upon Tyne, United Kingdom. Newcastle: Newcastle Quality Centre, Faculty of Engineering, 1993: 393-398.
16. Bernard HR. Research methods in anthropology: qualitative and quantitative approaches. 2nd edn. Thousand Oaks, Ca.: Altamira Press, 1995.
17. Strauss A, Corbin J. Basics of qualitative research: techniques and procedures for developing grounded theory. 2nd edn. Thousand Oaks, Ca.: Sage Publications, 1998.
18. Deschepper R, Vander Stichele R, Mortier F, Deliens L. Quality communication about end-of-life decisions in competent patients who wish to die at home. Guidelines for general practitioners. Final report for ex post evaluation of the project 'Medical and ethical quality care when taking end-of-life decisions: development of a protocol for first-line health-care.' http://users.pandora.be/scancode/vub/zl3%20summary.PDF (accessed 22 Nov 2005).
19. Sackett DL, Straus SE, Richardson WS, et al. Evidence-based medicine: how to practice and teach EBM. 2nd edn. Edinburgh: Churchill Livingstone, 2000.
20. Griffin JP, Nelson JE, Koch KA, et al. End-of-life care in patients with lung cancer. Chest 2003; 123 (1 Suppl): 312S-331S.
21. Lo B, Quill T, Talsky J. Discussing palliative care with patients. ACP-ASIM End-of-Life Care Consensus Panel. American College of Physicians - American Society of Internal Medicine. Ann Intern Med 1999; 130: 744-749.
22. Balaban RB. A physician's guide to talking about end-of-life care. J Gen Intern Med 2000; 15: 195-200.
23. Gastmans C, Van Neste F, Schotsmans P. Facing requests for euthanasia: a clinical practice guideline. J Med Ethics 2004; 30: 212-217.