Valued aspects of primary palliative care: Content analysis of bereaved carers' descriptions

British Journal of General Practice

Volumn 54, Issue 507, 2004, Pages 772-778

  Grande, Gunn E ^a   Farquhar, Morag C ^b   Barclay, Stephen I G ^b   Todd, Chris J ^a  

^a UNIVERSITY OF MANCHESTER   (United Kingdom)

^b UNIVERSITY OF CAMBRIDGE   (United Kingdom)

Author keywords

Caregivers; Home nursing; Palliative care; Primary health care

Indexed keywords

ADULT; AGED; ARTICLE; ATTITUDE; BEREAVEMENT; CANCER; CAREGIVER; CONTROLLED STUDY; DATA ANALYSIS; EQUIPMENT; FEMALE; GENERAL PRACTITIONER; HEALTH CARE DELIVERY; HOME CARE; HUMAN; INTERVIEW; MALE; NURSE; PALLIATIVE THERAPY; PRIMARY MEDICAL CARE; QUANTITATIVE ANALYSIS; RETROSPECTIVE STUDY; SOCIAL SUPPORT; UNITED KINGDOM;

AGED; ATTITUDE OF HEALTH PERSONNEL; BEREAVEMENT; CAREGIVERS; DATA COLLECTION; FAMILY PRACTICE; FEMALE; HOME NURSING; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; PALLIATIVE CARE; PHYSICIAN-PATIENT RELATIONS; RETROSPECTIVE STUDIES; TERMINAL CARE;

EID: 5444248521     PISSN: 09601643     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (38)

1. Cartwright A. Changes in life and care in the year before death 1969-1987. J Pub Health Med 1991; 13(2): 81-87.
2. Townsend J, Frank AO, Fermont D, et al. Terminal cancer care and patients' preference for place of death: a prospective study. BMJ 1990; 301(6749): 415-417.
3. Addington-Hall JM, MacDonald LD, Anderson HR, Freeling P. Dying from cancer: the views of bereaved family members and friends about the experiences of terminally ill patients. Palliat Med 1991; 5: 207-214.
4. Hinton J. Can home care maintain an acceptable quality of life for patient with terminal cancer and their relatives? Palliat Med 1994; 8(3): 183-196.
5. Addington-Hall J, McCarthy M. Dying from cancer: results of a national population-based investigation. Palliat Med 1995; 9(4 : 295-305.
6. Grande GE, Addington-Hall JM, Todd CJ. Place of death and access to home care services: are certain patient groups at a disadvantage? Soc Sci Med 1998, 47(5): 565-579.
7. Barclay S, Todd C, Grande G, Lipscombe J. Controlling cancer pain in primary care: the prescribing habits and knowledge base of general practitioners. J Pain Symptom Manage 2002; 23(5): 383-392.
8. Seale C, Cartwright A. The Year Before Death. Aldershot: Avebury, 1994.
9. Cartwright A. Dying when you're old. Age Ageing 1993; 22(6): 425-430.
10. Fakhoury W, McCarthy M, Addington-Hall J. Determinants of informal caregivers' satisfaction with services for dying cancer patients. Soc Sci Med 1996; 42(5): 721-731.
11. Lecouturier J, Jacoby A, Bradshaw C, Lovel T, Eccles M. Lay carers' satisfaction with community palliative care: results of a postal survey. South Tyneside MAAG Palliative Care Study Group. Palliat Med 1999; 13(4): 275-283.
12. Cartwright, A. The role of the general practitioner in caring for people in the last year of their lives. London: King's Fund Publishing Office, 1990.
13. Sykes NP, Pearson SE, Chell S. Quality of care of the terminally ill: the carer's perspective. Palliat Med 1992; 6: 227-236.
14. Jones RV, Hansford J, Fiske J. Death from cancer at home: the carers' perspective. BMJ 1993; 306(6872): 249-251.
15. Addington-Hall J. Reaching out: Specialist Palliative care for adult with non-malignant diseases. London: National Council for Hospice and Specialist Palliative Care Services and Scottish Partnership Agency for Palliative and Cancer Care, Occasional Paper 14, 1998.
16. Grogan S, Conner M, Norman P, et al. Validation of a questionnaire measuring patient satisfaction with general practitioner services. Qual Health Care 2000; 9(4): 210-215.
17. Grande GE, Todd CJ, Barclay SI, Farquhar MC. Does hospital at home for palliative care facilitate home death? a randomised controlled trial. BMJ 1999; 319(7223): 1472-1475.
18. Patton MQ. Qualitative evaluation and research methods. London: Sage, 1990.
19. Grande GE, Todd CJ, Barclay SI. Support needs in the last year of life: patient and carer dilemmas. Palliat Med 1997; 11(3): 202-208.
20. Patton MQ. Enhancing the quality and credibility of qualitative analysis. Health Serv Res 1999; 34(5 Pt 2): 1189-1208.
21. QSR NUD*IST 4 User Guide (2nd edn). Melbourne: Qualitative Solutions and Research Pty Ltd, 1997.
22. Landis JR, Koch GG. The measurement of observer agreement for categorical data. Biometrics 1977; 33(1): 159-174.
23. Ritchie J, Spencer L. Qualitative data analysis for applied policy research. In: Bryman A and Burgess B (eds). Analyzing Qualitative Data. London: Routledge 1994, 173-194.
24. Pope C, Ziebland S, Mays N. Qualitative research in health care. Analysing qualitative data. BMJ 2000; 320(7227): 114-116.
25. Lawton J. The dying process: patients' experiences of palliative care. London: Routledge, 2000.
26. Hanratty B. Palliative care provided by GPs: the carer's viewpoint. Br J Gen Pract 2000; 50(457): 653-4.
27. Silverman J, Kurtz M, Draper J. Skills for communicating with patients. Abingdon: Radcliffe Medical Press, 1998.
28. Stewart M, Brown JB, Weston WW, McWhinney IR, McWilliam C, Freeman TR. Patient-centred medicine. Transforming the clinical method. London: Sage, 1995.
29. Kinnersley P, Stott N, Peters TJ, Harvey I. The patient-centredness of consultations and outcome in primary care. Br J Gen Pract 1999; 49(446): 711-716.
30. Kearley KE, Freeman GK, Heath A. An exploration of the value of the personal doctor-patient relationship in general practice. Br J Gen Pract 2001; 51(470): 712-718.
31. Barclay S, Rogers M, Todd C. Communication between GPs and cooperatives is poor for terminally ill patients [letter]. BMJ 1997; 315(7117): 1235-1236.
32. Shipman C, Addington-Hall J, Barclay S, et al. Providing palliative care in primary care: how satisfied are GPs and district nurses with current out-of-hours arrangements? Br J Gen Pract 2000; 50(455): 477-478.
33. Grande GE, Todd CJ, Barclay SIG, Doyle JH. What terminally ill patients value in the support provided by GPs, district and Macmillan nurses. Int J Palliat Nurs 1996; 2(3): 138-143.
34. Grande GE, McKerral A, Todd CJ. Which cancer patients are referred to Hospital at Home for palliative care? Palliat Med 2002; 16(2): 115-123.
35. Harding G, Gantley M. Qualitative methods: beyond the cookbook. Fam Pract 1998; 15(1): 76-79.
36. Seale C. Constructing death: The sociology of dying and bereavement. Cambridge: Cambridge University Press, 1998.
37. Lazarus RS, Folkman S. Stress, appraisal and coping. New York: Springer, 1984.
38. Simon C, Kendrick T. Informal carers - the role of general practitioners and district nurses. Br J Gen Pract 2001; 51(469 : 655-657.