Overcoming challenges: The role of rehabilitation in educating individuals with SCI to reduce secondary conditions

Topics in Spinal Cord Injury Rehabilitation

Volumn 10, Issue 1, 2004, Pages 41-50

  Wolfe, D L ^a   Potter, P J ^a   Sequeira, K A J ^a  

^a UNIVERSITY OF WESTERN ONTARIO   (Canada)

Author keywords

Patient education; Rehabilitation; Secondary conditions; Spinal cord injury

Indexed keywords

ADULT; COMMUNITY CARE; EDUCATION PROGRAM; HEALTH CARE ACCESS; HEALTH PROGRAM; HUMAN; INDIVIDUALITY; MEDICAL RESEARCH; PATIENT EDUCATION; PROCESS DESIGN; REVIEW; SPINAL CORD INJURY; STATISTICAL SIGNIFICANCE; TEAMWORK;

EID: 3042683290     PISSN: 10820744     EISSN: None     Source Type: Journal    
DOI: 10.1310/J9MW-P9AK-JRPE-7NTV     Document Type: Review

References (41)

1. Amador M, Lynne C, Brackett N. A guide and resource directory to male fertility following spinal cord injury/dysfunction. Available at: http://www.miamiproject.miami.edu/mfrp/mfpguide.pdf. Accessed February 16, 2004.
2. CareCure Community. Available at: http://www.sciwire.org. Accessed February 16, 2004.
3. Christopher and Dana Reeve Paralysis Resource Center. Available at: http://www.paralysis. org. Accessed February 16, 2004.
4. Craig Hospital. Educational brochures: maintaining your health, and living long-term with a spinal cord injury. Available at: http://www. craighospital.org/SCI/educationalTracts.asp. Accessed February 16, 2004.
5. Klebine P. Pushin' On Newsletter. Available at: http://www.spinalcord. uab.edu/show.asp?durki=21396. Accessed February 16, 2004.
6. Medical Rehabilitation Research and Training Center in Secondary Complications in Spinal Cord Injury. Preventing secondary medical complications: a guide for personal assistants to people with spinal cord injury. Available at: http://images.main.uab.edu/spinalcord/pdffiles/PCAs.pdf. Accessed February 16, 2004.
7. Northwest Regional Spinal Cord Injury System. SCI pamphlets index. Available at: http://depts.washington.edu/rehab/sci/ pamphlets.html. Accessed February 16, 2004.
8. Northwest Regional Spinal Cord Injury System. SCI Update Newsletter. Available at: http://depts.washington.edu/rehab/sci/update.html. Accessed February 16, 2004.
9. Spinal Cord Injury Info Pages. Quadriplegic, paraplegic & caregiver resources. Available at: http://www.sci-info-pages.com. Accessed February 16, 2004.
10. Spinal Cord Injury Information Network. Available at: http://www.spinalcord.uab.edu/. Accessed February 16, 2004.
11. Spinal Cord Injury InfoSheets. Assorted topics. Available at: http://www.spinalcord.uab.edu/show.asp?durki=21479. Accessed February 16, 2004.
12. Young W. Genitourinary tract infections and infertility. Available at: http://carecure.rutgers.edu/ spinewire/Research/Suprapubic.htm. Accessed February 16, 2004.
13. Young W. Suprapubic cystostomy versus urethral catheterization. Available at: http://carecure.rutgers.edu/spinewire/Research/Suprapubic.htm. Accessed February 16, 2004.
14. Young W. Cranberry prevention of urinary tract infections. Available at: http://carecure.rutgers.edu/spinewire/Articles/Cranberry_UTI.htm. Accessed February 16, 2004.
15. Wolfe DL, Potter PJ, Jutai JW, et al. Long-term physical impact of spinal cord injury: the role of rehabilitation in educating consumers to reduce complications over the long-term. Presented at 1st Joint Scientific Meeting of the American Spinal Injury Association (28th Annual Meeting) and the International Medical Society of Paraplegia (41 st Annual Meeting). J Spinal Cord Med. 2002;22(suppl 1):S50.
16. Brundage D, MacKeracher D. Adult Learning Principles and Their Application to Program Planning. Toronto: Ontario Ministry of Education; 1980.
17. Boschen KA, Tonack M, Gargaro J. Long-term adjustment and community reintegration following spinal cord injury. Int J Rehabil Res. 2003;26(3):157-164.
18. Chernoff RG, Ireys HT, DeVet KA, Kim YJ. A randomized, controlled trial of a community-based support program for families of children with chronic illness: pediatric outcomes. Arch Pediatr Adolesc Med. 2002;156(6):533-539.
19. Penttinen J, Nevala-Puranen N, Airaksinen O, Jaaskelainen M, Sintonen H, Takala J. Randomized controlled trial of back school with and without peer support. J Occup Rehabil. 2002;12(1):21-29.
20. Payne JA. The contribution of group learning to the rehabilitation of spinal cord injured adults. Rehabil Nurs. 1993;18(6):375-379.
21. Price G, Lightbody S. A community living skills education programme within spinal cord injury rehabilitation. Aust Occup Ther J. 1994;41:37-40.
22. Lanig IS. Principles of effective patient education: general considerations. In: IS Lanig IS, et al., ed. A Practical Guide to Health Promotion After Spinal Cord Injury. Gaithersburg, MD: Aspen Publishers; 1996.
23. Bleiberg J, Merbitz C. Learning goals during initial rehabilitation hospitalization. Arch Phys Med Rehabil. 1983;64(10):448-450.
24. Basta SM. Pressure sore prevention education with the spinal cord injured. Rehabil Nurs. 1991;16(1):6-8.
25. Brookfield S. Understanding and Facilitating Adult Learning. San Francisco: Jossey-Bass; 1986.
26. Lorig KR, Sobel DS, Ritter PL, Laurent D, Hobbs M. Effect of a self-management program on patients with chronic disease. Eff Clin Pract. 2001;4(6):256-262.
27. Seedroff KR, McVeigh K. Changing educational strategies. In: Whiteneck GG, et al., eds. Aging with Spinal Cord Injury. New York: Demos; 1993:333-341.
28. Smith RM. Learning to Learn Across the Life Span. San Francisco: Jossey-Bass; 1990.
29. Chase TM. Learning styles and teaching strategies: enhancing the patient education experience. SCI Nurs. 2001;18(3):138-141.
30. Felder RM. Matters of style. ASEE Prism. 1996;6(4):18-23.
31. Phillips LD. Patient education: understanding the process to maximize time and outcomes. J Intravenous Nurs. 1999;22(1):19-35.
32. Cline RJ, Haynes KM. Consumer health information seeking on the Internet: the state of the art. Health Educ Res. 2001;16(6):671-692.
33. McKinley WO, Jackson AB, Cardenas DD, DeVivo MJ. Long-term medical complications after traumatic spinal cord injury: a regional model systems analysis. Arch Phys Med Rehabil. 1999;80(11):1402-1410.
34. Krause JS, Coker JL, Charlifue S, Whiteneck GG. Health outcomes among American Indians with spinal cord injury. Arch Phys Med Rehabil. 2000;81(7):924-931.
35. Krause JS, Vines CL, Farley TL, Sniezek J, Coker J. An exploratory study of pressure ulcers after spinal cord injury: relationship to protective behaviors and risk factors. Arch Phys Med Rehabil. 2001;82(1):107-113.
36. Yasenchak PA, Bridle MJ. A low-literacy skin care manual for spinal cord injury patients. Patient Educ Couns. 1993;22(1):1-5.
37. Mathewson C, Adkins VK, Jones ML. Initial experiences with telerehabilitation and contingency management programs for the prevention and management of pressure ulceration in patients with spinal cord injuries. J Wound Ostomy Continence Nurs. 2000; 27(5):269-271.
38. Phillips VL, Vesmarovich S, Hauber R, Wiggers E, Egner A. Telehealth: reaching out to newly injured spinal cord patients. Public Health Rep. 2001;116(suppl 1):94-102.
39. Schopp LH, Johnstone BR, Merveille OC. Multidimensional telecare strategies for rural residents with brain injury. J Telemed Telecare. 2000;6(suppl 1):S146-149.
40. Forducey PG, Ruwe WD, Dawson SJ, Scheideman-Miller C, McDonald NB, Hantla MR. Using telerehabilitation to promote TBI recovery and transfer of knowledge. NeuroRehabilitation. 2003;18(2):103-111.
41. Houlihan BV, Drainoni ML, Warner G, Nesathurai S, Wierbicky J, Williams S. The impact of Internet access for people with spinal cord injuries: a descriptive analysis of a pilot study. Disabil Rehabil. 2003;25(8):422-431.