Nutritional follow-up of cystic fibrosis patients: The role of nutrition education

Jornal de Pediatria

Volumn 80, Issue 6, 2004, Pages 475-482

  Adde, Fabíola Villac ^a,b   Rodrigues, Joaquim C ^a   Cardoso, Ary L ^a  

^a UNIVERSITY OF SÃO PAULO   (Brazil)

^b USP ^*  (Brazil)

Author keywords

Cystic fibrosis; Malnutrition; Nutrition intervention; Nutritional status

Indexed keywords

PANCREAS ENZYME;

ADOLESCENT; ADULT; ANTHROPOMETRY; ARTICLE; BODY FAT; BODY HEIGHT; BODY WEIGHT; CALORIC INTAKE; CHILD; CONTROLLED STUDY; CYSTIC FIBROSIS; ENZYME THERAPY; FEMALE; FOLLOW UP; HUMAN; INFANT; MAJOR CLINICAL STUDY; MALE; MALNUTRITION; NUTRITION EDUCATION; NUTRITIONAL ASSESSMENT; NUTRITIONAL COUNSELING; NUTRITIONAL STATUS; PATIENT COMPLIANCE; PATIENT MONITORING; SCORING SYSTEM; SUPPLEMENTATION; AGE DISTRIBUTION; COMPARATIVE STUDY; DIET SUPPLEMENTATION; EPIDEMIOLOGY; METHODOLOGY; PATIENT EDUCATION; PRESCHOOL CHILD;

ADOLESCENT; AGE DISTRIBUTION; CHILD; CHILD, PRESCHOOL; CYSTIC FIBROSIS; DIETARY SUPPLEMENTS; ENERGY INTAKE; EPIDEMIOLOGIC METHODS; FEMALE; HUMANS; INFANT; MALE; MALNUTRITION; NUTRITION ASSESSMENT; NUTRITIONAL STATUS; PATIENT EDUCATION;

EID: 28744432824     PISSN: 00217557     EISSN: None     Source Type: Journal    
DOI: 10.2223/1261     Document Type: Article

References (30)

1. Gaskin K, Gurwitz D, Durie P, Corey M, Levison H, Forstner G. Improved respiratory prognosis in patients with cystic fibrosis with normal fat absorption. J Pediatr. 1982;100:857-62.
2. Corey M, McLaughlin FJ, Williams M, Levison H. A comparison of survival, growth and pulmonary function in patients with cystic fibrosis in Boston and Toronto. J Clin Epidemiol. 1988;41:583-91.
3. Cystic Fibrosis Foundation. Patient Registry 2001: Annual Report. Bethesda, MD: Cystic Fibrosis Foundation; 2002.
4. Morison S, Dodge JA, Cole TJ, Lewis PA, Coles EC, Geddes D, et al. Height and weight in cystic fibrosis: a cross sectional study. Arch Dis Child. 1997;77:497-500.
5. Reilly JJ, Edwards CA, Weaver LT. Malnutrition in children with cystic fibrosis: the energy-balance equation. J Pediatr Gastroenterol Nutr. 1997;25:127-36.
6. Girardet JP, Tounian P, Sardet A, Veinberg F, Grimfeld A, Tournier G, et al. Resting energy expenditure in infants with cystic fibrosis. J Pediatr Gastroenterol Nutr. 1994;18:214-9.
7. Zemel BS, Kawchak DA, Cnaan A, Zhao H, Scanlin TF, Stallings VA. Prospective evaluation of resting energy expenditure, nutritional status, pulmonary function, and genotype in children with cystic fibrosis. Pediatr Res. 1996;40:578-86.
8. Ramsey BW, Farrell PM, Pencharz P, and the Consensus Committee. Nutritional assessment and management in cystic fibrosis: a consensus report. Am J Clin Nutr. 1992;55:108-16.
9. Sinaasappel M, Stern M, Littlewood J, Wolfe S, Steinkamp G, Heijerman HGM, et al. Nutrition in patients with cystic fibrosis: a European Consensus. J Cystic Fibrosis. 2002;1:51-75.
10. Borowitz D, Baker RD, Stallings V. Consensus report on nutrition for pediatric patients with cystic fibrosis. J Pediatr Gastroenterol Nutr. 2002;35:246-59.
11. Navarro J, Munck A, Varille V. Energy balance and nutritional support in cystic fibrosis. Pediatr Pulmonol. 1995;20(Suppl 11):74-5.
12. Duff AJ, Wolfe SP, Dickson C, Conway SP. Feeding behaviour problems in children with CF: a comparison with healthy controls. Pediatr Pulmonol. 1998;26(Suppl 17):372.
13. Tomezsko JL, Stallings VA, Scanlin TF. Dietary intake of healthy children with cystic fibrosis compared with normal control children. Pediatrics. 1992;90:547-53.
14. Luder E, Kattan M, Thornton JC, Koehler KM, Bonforte RJ. Efficacy of a nonrestricted fat diet in patients with cystic fibrosis. Am J Dis Child. 1989;143:458-64.
15. Luder E. Self-management of nutrition: intervention with adolescents. Pediatr Pulmonol. 1994;18(Suppl 10):97-8.
16. Jelalian E, Stark LJ, Reynolds L, Seifer R. Nutrition intervention for weight gain in cystic fibrosis: a meta analysis. J Pediatr. 1998;132:486-92.
17. Hamill PVV, Drizd TA, Johnson CL, Reed RB, Roche AF, Moore WM. Physical growth: National Center for Health Statistics percentiles. Am J Clin Nutr. 1979;32:607-29.
18. Dean AG, Dean JA, Coulombier D, Burton AH, Brendel KA, Smith DC, et al. Epi Info, version 6. A word processing, database and statistics program for epidemiology on microcomputers. Atlanta: Center for Disease Control and Prevention; 1994.
19. Frisancho AR. Anthropometric standards for the assessment of growth and nutritional status. Ann Arbor (MI): The University of Michigan Press; 1993. p. 31-42.
20. Brook CGD. Determination of body composition of children from skinfold measurements. Arch Dis Child. 1971;46:182-4.
21. Shwachman H, Kulczycki LL. Long-term study of 105 patients with cystic fibrosis. Am J Dis Child. 1958;96:6-15.
22. Timm NH. Profile Analysis. In: Timm NH, editor. Multivariate analysis with applications in education and psychology. Monterrey (CA): Brooks/Cole Publishing Company; 1975. p. 444-498.
23. Lai HC, Kosorok MR, Sondel AS, Chen ST, Fitzsimmons SC, Green CG, et al. Growth status in children with cystic fibrosis based on the National Cystic Fibrosis Patient Registry data: evaluation of various criteria used to identify malnutrition. J Pediatr. 1998;132:478-85.
24. Holt TL, Ward LC, Francis PJ, Isles A, Cooksley WGE, Shepherd RW. Whole body protein turnover in malnourished cystic fibrosis patients and its relationship to pulmonary disease. Am J Clin Nutr. 1985;41:1061-6.
25. Marcus MS, Sondel AS, Farrel PM, Laxova A, Carey PM, Langhough R, et al. Nutritional status of infants with cystic fibrosis associated with early diagnosis and intervention. Am J Clin Nutr. 1991;54:578-85.
26. Farrel PM, Kosorok MR, Laxova A, Shen G, Koscik RE, Bruns WT, et al. Nutritional benefits of neonatal screening for cystic fibrosis. N Engl J Med. 1997;337:963-9.
27. Elborn JS, Bell SC. Nutrition and survival in cystic fibrosis. Thorax. 1996;51:971-2.
28. Nir M, Lanng S, Johansen HK, Koch C. Long term survival and nutritional data in patients with cystic fibrosis treated in a Danish centre. Thorax. 1996;51:1023-7.
29. Steinkamp G, von der Hardt H. Improvement of nutritional status and lung function after long-term nocturnal gastrostomy feedings in cystic fibrosis. J Pediatr. 1994;124:244-9.
30. Stapleton DR, Gurrin LC, Zubrick SR, Silburn SR, Sherriff JL, Sly PD. What do children with cystic fibrosis and their parents know about nutrition and pancreatic enzymes? J Am Diet Assoc. 2000;100:1494-1500.