Sociocultural perspective on organ and tissue donation among reservation-dwelling American Indian adults

Ethnicity and Health

Volumn 10, Issue 4, 2005, Pages 341-354

  Fahrenwald, Nancy L ^a   Stabnow, Wendy ^b  

^a SOUTH DAKOTA STATE UNIVERSITY   (United States)

^b NONE

Author keywords

American Indian; Health Disparities; Minority Health; Oglala Lakota; Organ Donation; Sioux; Transplantation

Indexed keywords

ETHNICITY; HEALTH SERVICES; INDIGENOUS POPULATION; TRANSPLANTATION;

ADULT; AGED; AMERICAN INDIAN; ARTICLE; CULTURAL FACTOR; DIABETES MELLITUS; DONOR; FEMALE; HEALTH CARE SYSTEM; HUMAN; HUMAN EXPERIMENT; INTERVIEW; KIDNEY DONOR; MALE; ORGAN DONOR; QUALITATIVE RESEARCH; QUESTIONNAIRE; SOCIAL ASPECT; SOCIAL BELIEF; UNITED STATES;

ADULT; AGED; AGED, 80 AND OVER; CULTURAL CHARACTERISTICS; DIABETES COMPLICATIONS; FEMALE; HEALTH EDUCATION; HUMANS; INDIANS, NORTH AMERICAN; MALE; MIDDLE AGED; ORGAN TRANSPLANTATION; TISSUE AND ORGAN PROCUREMENT; TISSUE DONORS;

NORTH AMERICA; SOUTH DAKOTA; UNITED STATES; WESTERN HEMISPHERE; WORLD;

EID: 26644453346     PISSN: 13557858     EISSN: None     Source Type: Journal    
DOI: 10.1080/13557850500168826     Document Type: Article

References (26)

1. Alden, D. L. & Cheung, A. H. (2000) 'Organ donation and culture: a comparison of Asian American and European American beliefs, attitudes, and behaviors', Journal of Applied Social Psychology, vol. 30, no. 2, pp. 293-314.
2. Bauling, P. C., Steyn, E., Venter, L. & van Wyk, J. A. L. (1989) 'Renal transplantation in black African patients, with special reference to survival rates, donor availability, cytomegalovirus', Transplant Proceedings, vol. 21, no. 1, pp. 2008-2009.
3. Blagg, C. R., Helgerson, S. D., Warren, C. W., Keen-Denton, K., Seely, M., Peterson, L., Kimball, E. H., Oge, L. L., Acton, K. & Evans, R. W. (1992) 'Awareness and attitudes of Northwest Native Americans regarding organ donation and transplantation', Clinical Transplantation, vol. 6, pp. 436-442.
4. Boulware, L. E., Ratner, L. E., Cooper, L. A., Sosa, J. A., LaVeist, T. A. & Powe, N. R. (2002) 'Understanding disparities in donor behavior: race and gender differences in willingness to donate blood and cadaveric organs', Medical Care, vol. 40, no. 2, pp. 85-95.
5. Callender, C., Borston, B., Yeager, C. & Miles, P. (1997) 'A national minority transplant program for increasing donation rates', Transplantation Proceedings, vol. 29, pp. 1482-1483.
6. Canadian Organ Replacement Registry (2002) CORR Annual Reports. Available at: http://secure.cihi.ca.cihiweb (accessed 21 January 2003).
7. Centers for Disease Control and Prevention (2003) 'American Indian and Alaska Natives diabetes prevalence from 1994-2002', Morbidity and Mortality Weekly Report, vol. 52, no. 30, pp. 702-704.
8. Danielson, B. L., LaPree, A. J., Odland, M. D. & Steffens, E. K. (1998) 'Attitudes and beliefs concerning organ donation among Native Americans in the upper Midwest', Journal of Transplantation Coordination, vol. 8, pp. 153-156.
9. Department of Health (DOH) (2003) Saving Lives, Valuing Donors: A Transplant Framework for England, Department of Health, London.
10. Kaufert, J. M. (1999) 'Cultural mediation in cancer diagnosis and end of life decision-making: the experience of Aboriginal patients in Canada', Anthropology & Medicine, vol. 6, no. 3, pp. 405-421.
11. Lee, E., Welty, T., Cowan, L. D., Wang, W., Rhoades, D. A., Devereux, R., Go, O., Fabsitz, R. & Howard, B. V. (2002) 'Incidence of diabetes in American Indians of three geographic areas: the Strong Heart study', Diabetes Care, vol. 25, no. 1, pp. 49-54.
12. Lee, S. M. K. (1996) 'End-stage renal disease in Asian-Americans', Nephrology News & Issues, vol. 6, pp. 13-14.
13. Leffell, M. S., Fallin, D., Hildebrand, W. H., Cavett, J. W., Iglehart, B. A. & Zachary, A. A. (2003) 'HLA alleles and haplotypes among the Lakota Sioux: report of the ASHI Minority Workshops, Part III', Human Immunology, vol. 65, no. 1, pp. 78-89.
14. McNamara, P., Guadagnoli, E., Evanisko, M. J., Beasley, C., Santiago-Delpin, E. A., Callender, C. O. & Christiansen, E. (1999) 'Correlates of support for organ donation among three ethnic groups', Clinical Transplantation, vol. 13, pp. 45-50.
15. Medical Record Review at 17 Main Donor Hospitals in the Region (1995) LifeSource, Upper Midwest Organ Procurement Organization, Minneapolis, MN.
16. Molzahn, A. E., Starzomski, R. & McCormick, J. (2003) 'The supply of organs for transplantation: issues and challenges', Nephrology Nursing Journal, vol. 30, no. 1, pp. 17-26.
17. Narva, A. S. (2003) 'The spectrum of kidney disease in American Indians', Kidney International, vol. 63, no. suppl. 83, pp. S3-S7.
18. Oglala Sioux Tribe (2005) Oglala Sioux Tribe a Profile. Available at: http://www.lakotamall.com/oglalasiouxtribe/the_area.htm (accessed 5 April 2005).
19. Ready, A. R., Trafford, J., Hooker, A. & Briggs, D. (1997) 'Impact of a large nonindigenous population on the renal transplant waiting list', Transplantation Proceedings, vol. 29, pp. 3724-3725.
20. Rene, A. A., Viera, E., Jiles, R. & Daniels, D. E. (1995) 'Organ donation awareness: knowledge, attitudes and beliefs in a Puerto Rican population', Transplantation Proceedings, vol. 27, no. 2, pp. 1893-1896.
21. Rocheleau, C. A. (2001) 'Increasing family consent for organ donation: findings and challenges', Progress in Transplantation, vol. 11, pp. 194-200.
22. Spradley, J. P. (1979) The Ethnographic Interview, Harcourt Brace Javonovich, Philadelphia.
23. Stokols, D. (1992) 'Establishing and maintaining healthy environments. Toward a social ecology of health promotion', American Psychologist, vol. 47, pp. 6-22.
24. US Organ Procurement and Transplantation Network and the Scientific Registry of Transplant Recipients (UNOS) (2003) Annual Report of Transplant Data 1993-2002, Dept. of Health and Human Services, Health Resources and Services Administration, Office of Special Programs, Div. of Transplantation, Rockville, MD; United Network for Organ Sharing, Richmond, VA; University Renal Research and Education Association, Ann Arbor, MI.
25. Weaver, M., Spigner, C., Pineda, M., Rabun, K. G. & Allen, M. D. (2000) 'Knowledge and opinions about organ donation among urban high school students: pilot test of a health education program', Clinical Transplantation, vol. 14, pp. 292-303.
26. Wheeler, M. S., O'Friel, M. & Cheung, A. H. S. (1994) 'Cultural beliefs of Americans as barriers to organ donation', Journal of Transplant Coordination, vol. 4, pp. 146-150.