The new genetics, public involvement, and citizens' juries: A Welsh case study

Health, Risk and Society

Volumn 1, Issue 3, 1999, Pages 313-324

  Glasner, Peter ^a   Dunkerley, David ^b  

^a UNIVERSITY OF THE WEST OF ENGLAND   (United Kingdom)

^b NONE

Author keywords

Citizens' jury; Democratic deficit; New genetics; Risk; Wales

Indexed keywords

EID: 26444608054     PISSN: 13698575     EISSN: None     Source Type: Journal    
DOI: 10.1080/13698579908406320     Document Type: Article

References (52)

1. BECK, U. (1992) Risk Society: Towards a New Modernity (London, Sage).
2. BECK, U. (1995) Ecological Politics in an Age of Risk (Cambridge, Polity).
3. BECK-GERNSHEIM, E. (1995) The Social Implications of Bioengineering (New Jersey, Humanities Press).
4. BLOOMFIELD, B.P. and VERDUBAKIS, T. (1995) Disrupted boundaries: new reproductive technologies and the language of anxiety and expectation, Social Studies of Science, 25, pp. 533-551.
5. BRADBY, H. (1996) Genetics and racism, in: T.M. MARTEAU and M.P.M. RICHARDS (Eds.) The Troubled Helix: Social and Psychological Implications of the New Human Genetics (Cambridge, Cambridge University Press).
6. CARTER, S. (1995) Boundaries of danger and uncertainty: an analysis of the technological culture of risk assessment, in: J. GABE (Ed.) Medicine, Health and Risk: Sociological Approaches (Oxford, Blackwell).
7. COCHRANE, A. (1996) From theories to practices: looking for local democracy in Britain, in: D. KING and G. STOKER (Eds.) Rethinking Local Democracy (Basingstoke, Macmillan).
8. COOTE, A. and LENAGHAN, J. (1997) Citizens' Juries: Theory into Practice (London, Institute for Public Policy Research).
9. DOUGLAS, M. (1985) Risk Acceptability According to the Social Sciences (London, Routledge and Kegan Paul).
10. DUNKERLEY D. and GLASNER P. (1998) Empowering the public? Citizens' juries and the new genetic technologies, Critical Public Health 8; pp. 181-192.
11. EDEN, S. (1996) Public participation in environmental policy: considering scientific, counter-scientific and non-scientific contributions Public Understanding of Science 5, pp. 183-204.
12. EDMOND, G. and MERCER, D. (1997) Scientific literacy and the jury: reconsidering jury competence, Public Understanding of Science 6, pp. 329-357.
13. ELLISON, N. (1997) Towards a new social politics: citizenship and reflexivity in late modernity, Sociology 31, pp. 697-717.
14. EVANS, G. and DURANT, J. (1989) Understanding of science in Britain and America, in: R. JOWELL et al. (Eds.) British Social Attitudes: Special International Report (Aldershot, Gower).
15. FIXDAL, J. (1997) Consensus conferences as 'extended peer groups', Science and Public Policy, 24, pp. 366-376.
16. FUNTOWICZ, S.O. and RAVETZ, J. (1993) Science for the post-normal age, Futures 25, pp. 739-755.
17. GIDDENS, A. (1990) The Consequences of Modernity (Cambridge, Polity).
18. GIDDENS, A. (1998) The Third Way (Cambridge, Polity).
19. GIERYN, T.F. (1994) Boundaries of science, in: S. JASANOFF, G.E. MARKLE, J.C. PETERSEN and T. PINCH (Eds.) Handbook of Science and Technology Studies (London, Sage).
20. GILBERT, G.N. and MULKAY, M. (1984) Opening Pandora's Box. A Sociological Analysis of Scientists' Discourse (Cambridge, Cambridge University Press).
21. HILL, A. and MICHAEL, M. (1998) Engineering acceptance: representations of 'the public' in debates on biotechnology, in: P. WHEALE, R. VON SCHOMBERG and P. GLASNER (Eds.) The Social Management of Genetic Engineering (Aldershot, Ashgate).
22. HUBBARD, R. (1986) Eugenics and prenatal testing, International Journal of Health Services, 16, pp. 227-242.
23. IREDALE, R. and LONGLEY, M. (1995) The Human Genome Project, Health Care and the Public in the UK, (Glamorgan Welsh Institute of Health and Social Care).
24. IREDALE, R. and LONGLEY, M. (1997) Citizens' Juries: Getting Non-Scientists Involved, (Glamorgan, Welsh Institute for Health and Social Care).
25. IRWIN, A. (1995) Citizen Science. A Study of People, Expertise and Sustainable Development (London, Routledge).
26. IRWIN, A. and WYNNE, B. (Eds.) (1996) Misunderstanding Science? The Public Reconstruction of Science and Technology (Cambridge, Cambridge University Press).
27. JOSS, S. and DURANT, J. (Eds.) (1995) Public Participation in Science. The Role of Consensus Conferences in Europe (London, The Science Museum).
28. KERR, A., CUNNINGHAM-BURLEY, S. and AMOS, A. (1998) The new genetics and health: mobilizing lay expertise, Public Understanding of Science 7, pp. 41-60.
29. LASH, S., SZERSZYNSKI, B. and WYNNE, B. (1996) Risk, Environment and Modernity: Towards a New Ecology (London, Sage).
30. LONDON CENTRE FOR GOVERNANCE, INNOVATION and SCIENCE (1998) Citizen Foresight: A Tool to Enhance Democratic Policy-making. Vol. 1: The Future of Food and Agriculture (London, London Centre for Governance, Innovation and Science, and The Genetics Forum).
31. LYNCH, M. and JASANOFF, S. (Eds.) (1998) Contested identities: science law and forensic practice, Social Studies of Science (Special Issue) 28, pp. 5-6.
32. MCIVER, S. (1997) An Evaluation of the King's Fund Citizens' Juries Programme (Birmingham, Health Services Management Centre, University of Birmingham).
33. MCNALLY, R. (1995) Eugenics here and now, The Genetic Engineer and Biotechnologist, 15, pp. 135-144.
34. MARLIER, E. (1992) Eurobarometer 35.1: opinions of Europeans on biotechnology in 1991, in: J. DURANT (Ed.) Biotechnology in Public: a Review of Recent Research (London, The Science Museum).
35. NELKIN, D. (1982) Controversy as a political challenge, in: B. BARNES and D. EDGE (Eds.) Science in Context: Readings in the Sociology of Science (Milton Keynes, Open University Press).
36. NHS MANAGEMENT EXECUTIVE (1992) Local Voices: The Views of Local People in Purchasing for Health (London, HMSO).
37. OLIVER, M. (1996) Understanding Disability: From Theory to Practice (Basingstoke, Macmillan).
38. PHILLIPS, A. (1994) Plurality, solidarity and change, in: J. WEEKS (Ed.) The Lesser Evil and the Greater Good (London, Rivers Oram).
39. PURDUE, D. (1995) Whose knowledge counts? 'Experts', 'counter-experts' and the 'lay' public, The Ecologist 25, pp. 170-172.
40. RENN, O., WEBLER, T. and WIEDEMANN, P. (Eds.) (1995) Fairness and Competence in Citizen Participation (Amsterdam, Kluwer Academic Publishers).
41. ROSE, N. (1996) Inventing Our Selves (Cambridge, Cambridge University Press).
42. ROTHMAN, B.K. (1986) The Tentative Pregnancy: Prenatal Diagnosis and the Future of Motherhood (London, Allen and Unwin).
43. SEARGEANT, J. and STEELE, J. (Eds.) (1998) Consulting the Public. Guidelines and Good Practice (London, Policy Studies Institute).
44. SMITH, R. and WYNNE, B. (Eds.) (1989) Expert Evidence. Interpreting Science in the Law (London, Routledge).
45. STEWART, J., KENDALL, E. and COOTE, A. (1994) Citizens' Juries (London, Institute for Public Policy Research).
46. STRONG, P. (1983) The Ceremonial Order of the Clinic (London, Routledge and Kegan Paul).
47. VINES, G. (1997) Genetics: let the public decide, British Medical Journal, 314 (5 April), p. 1055.
48. WIHSC (1997) Citizens' Jury on Genetic Testing for Common Disorders: Recommendations (Glamorgan, Welsh Institute for Health and Social Care).
49. WYNNE, B. (1982) Rationality and Ritual: The Windscale Inquiry and Nuclear Decisions in Britain (Chalfont St. Giles, British Society for the History of Science).
50. WYNNE, B. (1989) Establishing rules of laws: constructing expert authority, in: R. SMITH and B. WYNNE (Eds.) Expert Evidence. Interpreting Science in the Law (London, Routledge).
51. WYNNE, B. (1994) Public understanding of science, in: S. JASANOFF et al. (Eds.) Handbook of Science and Technology Studies (London, Sage).
52. WYNNE, B. (1996) May the sheep safely graze? A reflexive view of the expert-lay knowledge divide, in: S. LASH, B. SZERSZYNSKI and B. WYNNE (Eds.) Risk, Environment and Modernity. Towards a New Ecology (London, Sage).