Assessing health-related quality of life after severe brain damage: Potentials and limitations

Progress in Brain Research

Volumn 150, Issue , 2005, Pages 545-553

  Petersen, Corinna ^a   Bullinger, Monika ^a  

^a UNIVERSITY OF HAMBURG   (Germany)

Author keywords

[No Author keywords available]

Indexed keywords

BRAIN INJURY; CONSCIOUSNESS DISORDER; DISABILITY; DISEASE SEVERITY; FUNCTIONAL ASSESSMENT; FUNCTIONAL INDEPENDENCE MEASURE; HUMAN; MEDICAL RESEARCH; METHODOLOGY; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; RATING SCALE; REVIEW; SELF REPORT; SHORT FORM 36; WELLBEING;

BRAIN INJURIES; HEALTH STATUS; HUMANS; QUALITY OF LIFE; TRAUMA SEVERITY INDICES;

EID: 25644450206     PISSN: 00796123     EISSN: None     Source Type: Book Series    
DOI: 10.1016/S0079-6123(05)50038-4     Document Type: Review

References (44)

1. N.K. Aaronson Assessing the quality of life of patients in cancer clinical trials: common sense problems and common sense solutions Eur. J. Cancer 28 1992 1304 1307
2. N.K. Aaronson, B.E. Meyerowitz, M. Bard, J.R. Bloom, F.I. Fawzy, M. Feldstein, D. Fink, J.C. Holland, J.E. Johnson, J.T. Lowman, W.B. Patterson, and J.E. Ware Quality of life research in oncology: past achievements and future priorities Cancer Nurs. 67 1991 839 843
3. F. Baker, and J. Intagliata Quality of life in the evaluation of community support systems Eval. Program. Plann. 5 1982 69 79
4. M. Bergner, R.A. Bobbit, W.B. Carter, and B.S. Gilson The sickness impact profile: Development and final revision of a health status measure Med. Care 19 1981 780 805
5. E. Berger, F. Leven, N. Pirente, B. Bouillon, and E. Neugebauer Quality of life after TBI: A systematic review of literature Restor. Neurol. Neurosci. 14 1999 93 102
6. J. Bruns Jr., and W.A. Hauser The epidemiology of TBI: a review Epilepsia 2 2003 2 10
7. M. Bullinger Health related quality of life and subjective health Overview of the status of research for new evaluation criteria in medicine. Psychother. Psychosom. Med. Psychol. 47 1997 76 91
8. Bullinger M. and The TBI Consensus Group Quality of life in patients with TBI- basis issues, assessment and recommendations Restor. Neurol. Neurosci. 20 2002 111 124
9. Cella, D., Bullinger, M., Scott, C., Barofsky, I. and The Clinical Significance Consensus Meeting Group (2002) Group vs individual approaches to understanding the clinical significance of differences or changes in quality of life. Mayo Clin. Proc., 77: 384-392.
10. A.M. Damiano The sickness impact profile B. Spilker Quality of Life and Pharmaeconomics in Clinical Trials 1996 Lippincott-Raven Philadelphia, PA 347 354
11. G. Deloche, G. Dellatolas, and A. Christensen The European Brain Injury Questionnaire. Patients' and families' subjective evaluation of brain-injured patients' current and prior to injury difficulties 2000 International Handbook of Neuropsychological Rehabilitation, Kluwer Academic Publishers New York
12. M.P. Dijkers Quality of life after TBI: a review of research approaches and findings Arch. Phys. Med. Rehabil. 85 2004 21 35
13. G.L. Engel The need for a new medical model: A challenge for biomedicine Science 196 1977 129 136
14. M. Eisen, J.E. Ware, C.A. Donald, and R.H. Brook Measuring components of children's health status Med. Care 17 1979 575 579
15. C. Eiser, and R. Morse Quality-of-life measures in chronic diseases of childhood Health Tech. Assess. 5 2001 1 157
16. D. Felce, and J. Perry Quality of life: its definition and measurement Res. Dev. Disabil. 16 1995 51 74
17. B.M. Feldman, B. Grundland, L. McCullough, and V. Wright Distinction of quality of life, health related quality of life, and health status in children referred for rheumatologic care J. Rheumatol. 27 2000 226 233
18. G.H. Guyatt, R. Jaeschke, D.H. Feeney, and D.L. Patrick Measurement in clinical trials: Choosing the right approach B. Spilker Quality of life and pharmacoeconomics in clinical trials 1996 Lippincott-Raven Philadelphia, PA 41 48
19. S.M. Hunt, J. McEwen, S.P. McKenna, J. Williams, and E. Papp The Nottingham health profile: Subjective health status and medical consultations Soc. Sci. Med. 15 1981 221 229
20. M.V. Johnston, and C.S. Miklos Activity-related quality of life in rehabilitation and TBI Arch. Phys. Med. Rehabil. 83 2002 26 38
21. C.Z. Kalpakjian, C.S. Lam, L.L. Toussaint, and N.K. Merbitz Describing quality of life and psychosocial outcomes after TBI Am. J. Phys. Med. Rehabil. 83 2004 255 265
22. P. Kind The EuroQOL instrument: an index of health-related quality of life B. Spilker Quality of Life and Pharmacoeconomics in Clinical Trials 1996 Lippincott-Raven Philadelphia, PA 191 203
23. S. Koskinen Quality of life 10 years after a very severe TBI (TBI): the perspective of the injured and the closest relative Brain Injury 12 1998 631 648
24. O. Kozlowski, B. Pollez, A. Thevenon, P. Dhellemmes, and M. Rousseaux Outcome and quality of life after three years in a cohort of patients with severe TBI Ann. Readapt. Med. Phys. 45 2002 466 473
25. B. Levine, D. Dawson, I. Boutet, M.L. Schwartz, and D.T. Stuss Assessment of strategic self-regulation in TBI: its relationship to injury severity and psychosocial outcome Neuropsychology 14 2000 491 500
26. F. Masson, M. Thicoipe, T. Mokni, P. Aye, P. Erny, and P. Dabadie Epidemiology of traumatic comas: a prospective population-based study Brain Injury 17 2003 279 293
27. J. McEwen, and S.P. McKenna Nottingham health profile B. Spilker Quality of Life and Pharmaeconomics in Clinical Trials 1996 Lippincott-Raven Philadelphia, PA 281 286
28. D. Mellick, K.A. Gerhardt, and G.G. Whiteneck Understanding outcomes based on the post-acute hospitalization pathways followed by persons with TBI Brain Injury 17 1 2003 55 71
29. J.H. Powell, K. Beckers, and R.J. Greenwood Measuring progress and outcome in community rehabilitation after brain injury with a new assessment instrument- the BICRO-39 scales Arch. Phys. Med. Rehabil. 79 1998 1213 1225
30. J.M. Powell, N.R. Temkin, J.E. Machamer, and S.S. Dikmen Nonrandomized studies of rehabilitation for TBI: can they determine effectiveness? Arch. Phys. Med. Rehabil. 83 9 2002 1235 1244
31. U. Ravens-Sieberer, S. Bettge, M. Heilmann, and S. Walleser Assessment of quality of life in young children with a computer assisted touch screen program (CAT-SCREEN ©) Qual. Life Res. 9 2000 298
32. R.E. Ready, and B.R. Ott Quality of life measures for dementia Health Qual. Life Outcomes I 2003 11
33. B. Spilker Introduction. Quality of life assessments in clinical trials B. Spilker Quality of Life and Pharmacoeconomics in Clinical Trials 1990 Raven Press New York 3 9
34. D. Steadman-Pare, A. Colantonio, G. Ratcliff, S. Chase, and L. Vernich Factors associated with perceived quality of life many years after TBI J. Head Trauma Rehabil. 16 2001 330 342
35. C.V. Strand, and A.S. Russell WHO/ILAR taskforce on quality of life J. Rheumatol. 24 1997 1630 1633
36. Symonds, T., Berzon, R., Marquis, P., Rummans, T. and the Clinical Significance Consensus Meeting Group (2002) The clinical significance of quality of life results: practical considerations for specific audience. Mayo Clin. Proc., 77, 572-583.
37. T.W. Teasdale, A. Christensen, K. Willmes, G. Deloche, L. Braga, F. Stachowiak, J.M. Vendrell, A. Castro-Caldas, R. Laaksonen, and M. Leclercq Subjective experience in brain-injured patients and their close relatives: A European brain injury questionnaire study Brain Injury 11 1997 543 563
38. The WHOQOL Group Study Protocol of the World Health Organization project to develop a quality of life assessment instrument (WHOQOL) Qual. Life Res. 2 1993 153 159
39. The WHOQOL Group The World Health Organization quality of life assessment (WHOQOL): Development and general psychometric properties Soc. Sci. Med. 46 1998 569 1585
40. N. Von Steinbüechel, C. Petersen, M. Bullinger the Qolibri Group Assessment of health-related quality of life in persons after traumatic brain injury-development of the Qolibri, a specific measure Acta. Neurochir. 93 2005 1 7
41. J.E. Ware The SF-36 health survey B. Spilker Quality of Life and Pharmaeconomics in Clinical Trials 1996 Lippincott-Raven Philadelphia, PA 337 346
42. J.E. Ware, and C.D. Sherbourne The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection Med. Care 30 1992 473 483
43. World Health Organization Constitution of the World Health Organisation 1948 Geneva
44. T. Wedcliffe, and E. Ross The psychological effects of TBI on the quality of life of a group of spouses/partners S. Africa J. Commun. Disord. 48 2001 77 99