Evaluation of a systematic design for a virtual patient community

Journal of Computer-Mediated Communication

Volumn 10, Issue 4, 2005, Pages

  Leimeister, Jan Marco ^a   Krcmar, Helmut ^a  

^a TECHNICAL UNIVERSITY OF MUNICH   (Germany)

Author keywords

[No Author keywords available]

Indexed keywords

CANCER PATIENTS; CONSTITUENT ELEMENTS; DESIGN COMPONENT; DESIGN ELEMENTS; DESIGN FACTORS; SYSTEMATIC DESIGNS; UBIQUITOUS ACCESS; USERS' ACCEPTANCE; VIRTUAL COMMUNITY; VIRTUAL PATIENTS;

VIRTUAL REALITY;

EID: 24144463830     PISSN: 10836101     EISSN: 10836101     Source Type: Journal    
DOI: 10.1111/j.1083-6101.2005.tb00269.x     Document Type: Review

References (61)

1. Abdul-Rahman, A., & Halles, S. (2000). Supporting trust in virtual communities. Proceedings of the 33rd Hawaii International Conference on System Sciences. Los Alamitos: IEEE Press.
2. Arnold, Y., Leimeister, J. M., & Krcmar, H. (2003, June). COPEP: A development process model for a community platform for cancer patients. Proceedings of the 11th European Conference on Information Systems (ECIS), Naples.
3. Bahrs, O., & Klingenberg, A. (1995). Die Beurteilung ärztlicher Arbeit durch Teilnehmer von Selbsthilfegruppen. In J. Szecsenyi & F. Gerlach (Eds.), Stand und Zukunft der Qualitätssicherung in der Allgemeinmedizin. Stuttgart: Hippokrates.
4. Bilodeau, B. A., & Degner, L. F. (1996). Information needs, sources of information, and decisional roles in women with breast cancer. Oncology Nursing Forum, 23 (4), 691-696.
5. Blanchard, A. L., & Markus, M. L. (2002). Sense of virtual community-Maintaining the sense of belonging. Proceedings of the 35th Hawai'i International Conference on System Sciences. Los Alamitos: IEEE Press.
6. Brockopp, D. Y., Hayko, D., Davenport, W., & Winscott, R. N. (1989). Personal control and needs for hope and information among adults diagnosed with cancer. Cancer Nursing, 12 (2), 112-116.
7. Cothrel, J. (2000). Measuring the success of an online community. Strategy & Leadership, 28 (2), 17-21.
8. Daum, M., Klein, A., Leimeister, J. M., & Krcmar, H. (2001). Webbasierte Informations- und Interaktionsangebote für Onkologiepatienten - Ein Überblick. Arbeitspapier No. 109. Hohenheim: Universität Hohenheim, Lehrstuhl für Wirtschaftsinformatik.
9. Derdiarian, A. (1987). Informational needs of recently diagnosed cancer patients. A theoretical framework. Part 1. Cancer Nursing, 10 (2), 107-115.
10. Deutsche Krebshilfe (2003). Krebs: Zahlen, Daten, Fakten. Retrieved July 16, 2005 from http://www.krebshilfe.de/neu/medieninfos/zahlen_daten_fakten.htm
11. Dierks, C., Nitz, G., & Grau, U. (2003). Gesundheitstelematik und Recht. Frankfurt am Main: Frankfurter Schriften, MedizinRecht.de-Verlag.
12. Döring, N. (2003). Sozialpsychologie des Internet: die Bedeutung des Internet für Kommunikationsprozesse, Identitäten, soziale Beziehungen und Gruppen. Internet und Psychologie, 2nd Edition. Göttingen: Hogrefe.
13. Ebner, W., Leimeister, J. M., & Krcmar, H. (2003). Vertrauen in virtuellen Communities: Konzeption und Umsetzung vertrauensunterstützender Komponenten in der Domäne Healthcare. Proceedings of the 6. Internationale Tagung Wirtschaftsinformatik, Dresden, 619-638.
14. Ebner, W., Leimeister, J. M., & Krcmar, H. (2004). Trust in virtual healthcare communities: Design and implementation of trust-enabling functionalities. Proceedings of the 37th Hawai'i International Conference on System Sciences. Los Alamitos: IEEE Press.
15. Eysenbach, G., Powell, J., Englesakis, M., Rizo, C., & Stern, A. (2004). Health related virtual communities and electronic support groups: Systematic review of the effects of online peer to peer interactions. British Medical Journal, 328 (7449), 1-6.
16. Fox, S., & Fallows, D. (2003). Internet Health Resources. Pew Internet & American Life Project. Retrieved July 25, 2005 from http://www.pewinternet.org/PPF/r/95/report_display.asp
17. Ferber, C. von (Ed.). (1987). Gesundheitsselbsthilfe und professionelle Dienstleistungen: Soziologische Grundlagen einer bürgerorientierten Gesundheitspolitik. Berlin: Springer.
18. Fogg, B. J., Soohoo, C., Danielson, D., Marable, L., Stanford, J., & Tauber, E. R. (2002). How Do People Evaluate a Web Site's Credibility? Results from a Large Study. Stanford University, Consumer WebWatch, Sliced Bread Design, LLC. Retrieved July 10, 2005 from http://www.consumerwebwatch.org/news/ report3_credibilityresearch/stanfordPTL.pdf
19. Forbiger, A. (2001). Leben ist, wenn man trotzdem lacht. München: Heyne.
20. Gallivan, M. J. (1997). Value in triangulation: A comparison of two approaches for combining qualitative and quantitative methods. In A. S. Lee, J. Liebenau, & J. I. DeGross (Eds.), Information Systems and Qualitative Research (pp. 417-443). London: Chapman & Hall.
21. Hiller, B. (2001). Unkonventionelle Verfahren in der Onkologie: der Informationsbedarf der Anrufer beim Krebsinformationsdienst im Deutschen Krebsforschungszentrum zu Methoden mit bisher unbewiesener Wirksamkeit. Heidelberg: Universität Heidelberg.
22. Hinds, C., Streater, A., & Mood, D. (1995). Functions and preferred methods of receiving information related to radiotherapy: Perceptions of patients with cancer. Cancer Nursing, 18 (5), 374-384.
23. Holmström, H., & Henfridsson, O. (2002). Customer role ambiguity in community management. Proceedings of the 35th Annual Hawaiian International Conference on System Sciences. Los Alamitos: IEEE Press.
24. Kaminski, E., Thomas, R. J., Charnley, S., & Mackay, J. (2001). Measuring patients' response to received information. European Journal of Cancer, 37, Supplement 6, 387.
25. Lechner, U., & Schmid, B. F. (2001). Communities - Business models and system architectures: The blueprint of MP3. com, Napster and Gnutella revisited. Proceedings of the 34th Annual Hawaiian International Conference on System Sciences. Los Alamitos: IEEE Press.
26. Leimeister, J. M. (2004). Pilotierung virtueller Communities im Gesundheitsbereich - Bedarfsgerechte Entwicklung, Einführung und Betrieb. Dissertation, Universität Hohenheim.
27. Leimeister, J. M., Daum, M., & Krcmar, H. (2002). Mobile virtual healthcare communities: An approach to community engineering for cancer patients. Proceedings of the 10th European Conference on Information Systems (ECIS), Gdansk, Poland, 1626-1637.
28. Leimeister, J. M., Sidiras, P., & Krcmar, H. (2004). Success factors of virtual communities from the perspective of members and operators - an empirical study. Proceedings of the 37th Hawaiian International Conference on System Sciences. Los Alamitos: IEEE Press.
29. Leimeister, J. M., Ebner, W., & Krcmar, H. (2005). Design, implementation, and evaluation of trust-supporting components in virtual communities for patients. Journal of Management Information Systems, 21 (4), 101-135.
30. Leimeister, J. M., & Krcmar, H. (2005, June). Acceptance & Utility of a Systematically Designed Virtual Community for Cancer Patients. Paper presented at Communities & Technologies 2005, Milan.
31. Levenson, R. W., & Ruef, A. W. (1992). Empathy: A psychological substrate. Journal of Personality and Social Psychology, 63 (2), 234-246.
32. Leydon, G. M., Boulton, M., Moynihan, C., Jones, A., Mossman, J., Boudioni, M., & McPherson, K. (2000). Cancer patients' information needs and information seeking behaviour: In depth interview study. British Medical Journal, 320 (7239), 909-913.
33. Lieberman, M.,Golant, M., Giese-Davis, J., Winzlenberg, A., Benjamin, H., Humphreys, K., Kronenwetter, C., Russo, S., & Spiegel, D. (2003). Electronic support groups for breast carcinoma: A clinical trial of effectiveness. Cancer, 97 (4), 920-925.
34. Madara, E. J. (1997). The mutual-aid self-help online revolution. Social Policy, 27 (3), 20-27.
35. Manaszewicz, R., Williamson, K., & McKemmish, S. (2002, July). Breast cancer knowledge online: Towards meeting the diverse information needs of the breast cancer community. Proceedings of the Electronic Networking - Building Community. 5th Community Networking Conference, Monash University, Melbourne.
36. Mannhartsperger, M., Linder, J., & Zellhofer, N. (2003). Ergebnisbericht "Usability von Gesundheitsinformationen im Internet." Vienna: Interface Consult.
37. Mayhew, D. J. (1992). Principles and Guidelines in Software User Interface Design. Englewood Cliffs, NJ: Prentice Hall.
38. McCaughan, E. M., & Thompson, K. A. (1995). Issues in patient care: Information needs of cancer patients receiving chemotherapy at a day-case unit in Northern Ireland. Cancer Nursing, 18 (5), 374-384.
39. McPherson, C. J., Higginson, I. J., & Hearn, J. (2001). Effective methods of giving information in cancer: A systematic literature review of randomized controlled trials. Journal of Public Health Medicine, 23 (3), 227-234.
40. Mills, M. E., & Sullivan, K. (1999). The importance of information giving for patients newly diagnosed with cancer: A review of the literature. Journal of Clinical Nursing, 8 (6), 631-642.
41. Moeller, M. L. (1996). Selbsthilfegruppen: Anleitungen und Hintergründe. Rororo-Sachbuch: Psychologie aktiv. Reinbek bei Hamburg: Rowohlt.
42. Nielsen, J. (Ed.). (2002). Coordinating User Interfaces for Consistency (Reprinted from 1989). San Francisco: Moran Kaufmann.
43. Nonnecke, B., & Preece, J. (2000). Lurker demographics: Counting the silent. Proceedings of CHI 2000, 73-80.
44. Norman, D. A. (1988). The Psychology of Everyday Things. New York: Basic Books.
45. Norman, D. A. (1992). Turn Signals are the Facial Expressions of Automobiles. Reading, MA: Addison-Wesley.
46. Peppers, D., & Rogers, M. (1997). Enterprise One to One: Tools for Competing the Interactive Age. New York: Currency Doubleday.
47. Preece, J. (1999). Emphatic communities: Balancing emotional and factual communication. Interacting with Computers, 12, 63-77.
48. Preece, J. (2000). Online Communities - Designing Usability, Supporting Sociability. Chichester, New York: John Wiley and Sons.
49. Preece, J., & Maloney-Krichmar, D. (2003). Online communities: Focussing on sociability and usability. In J. Jacko & A. Sears (Eds.), Handbook of Human-Computer Interaction (pp. 596-620). Mahwah, NJ: Lawrence Earlbaum Associates Inc.
50. Rafaeli, S., & LaRose, R. J. (1993). Electronic bulletin boards and "public goods" - Explanations of collaborative mass media. Communication Research, 20 (2), 277-290.
51. Ruprecht, T. M. (Eds.). (1998). Experten fragen - Patienten antworten: Patientenzentrierte Qualitätsbewertung von Gesundheitsdienstleistungen; Konzepte, Methoden, praktische Beispiele. Sankt Augustin: Asgard-Verlag.
52. Schubert, P. (1999). Virtuelle Transaktionsgemeinschaften im Electronic Commerce: Management, Marketing und Soziale Umwelt. Electronic Commerce. Lohmar, Köln: Josef Eul Verlag.
53. SEKIS. (2000). Nutzeranliegen an Patienteninformation - Auswertung des Expertendialogs und der Fragebogenerhebung zum Informationsbedarf aus Patientensicht. Berlin: SEKIS Selbsthilfe Kontakt- und Informationsstelle.
54. Shneiderman, B. (2000) Designing trust into online experiences. Communications of the ACM, 43 (12), 57-59.
55. Shuyler, K. S., & Knight, K. M. (2003). What are patients seeking when they turn to the Internet? Qualitative content analysis of questions asked by visitors to an orthopaedics web site. Journal of Medical Internet Research, 5 (4), e24.
56. Spolsky, J. (2001). User interface design for programmers. Berkeley, CA: Apress.
57. WEBforALL (2003a). Die Bedeutung des Internets für Behinderte. Retrieved July 16, 2005 from http://www.webforall.info/html/deutsch/ bedeutung_des_internet.php
58. WEBforALL (2003b). Empfehlungen für ein barri ere frei es Webdesign. Retrieved July 16, 2005 from http://webforall.info/html/deutsch/empfehlungen. php
59. Zemore, R., & Shepel, L. F. (1987). Information seeking and adjustment to cancer. Psychological Reports, 60 (3 Pt.1), 874.
60. Ziegler, G., Müller, F., & Grünwald, W. (1986). Psychische Reaktionen und Krankheitsverarbeitung von Tumorpatienten - weitere Ergebnisse. Zeitschrift für Psychotherapie und medizinische Psychologie, 36, 150-158.
61. Ziegler, G., Pulwer, R., & Koloczek, D. (1984). Psychische Reaktionen und Krankheitsverarbeitung von Tumorpatienten. Zeitschrift für Psychotherapie und medizinische Psychologie, 34, 44-49.