Chronicity of challenging behaviours in people with severe intellectual disabilities and/or autism: A total population sample

Journal of Autism and Developmental Disorders

Volumn 35, Issue 4, 2005, Pages 405-418

  Murphy, Glynis H ^a,e   Beadle Brown, Julie ^a   Wing, Lorna ^b   Gould, Judy ^b   Shah, Amitta ^c   Holmes, Nan ^d  

^a UNIVERSITY OF KENT   (United Kingdom)

^b NATIONAL AUTISTIC SOCIETY   (United Kingdom)

^c Leading Edge Psychology   (United Kingdom)

^d UNIVERSITY OF SURREY   (United Kingdom)

^e LANCASTER UNIVERSITY   (United Kingdom)

Author keywords

Challenging behaviour; Chronicity; Intellectual disabilities; Longitudinal

Indexed keywords

ADOLESCENT; ADULT; AGE DISTRIBUTION; ARTICLE; AUTISM; BEHAVIOR DISORDER; CHILD; CONTROLLED STUDY; DIAGNOSTIC PROCEDURE; DISEASE SEVERITY; FEMALE; FOLLOW UP; HUMAN; INTELLECTUAL IMPAIRMENT; INTERVIEW; LANGUAGE; MAJOR CLINICAL STUDY; MALE; PREDICTION; PRIORITY JOURNAL; QUALITY CONTROL; SAMPLING; SKILL; SOCIAL ASPECT; SOCIAL INTERACTION;

ADOLESCENT; ADULT; AUTISTIC DISORDER; CHILD; CHRONIC DISEASE; DEMOGRAPHY; FEMALE; HUMANS; MALE; MENTAL DISORDERS; MENTAL RETARDATION; POPULATION SURVEILLANCE; PREVALENCE; SEVERITY OF ILLNESS INDEX; SOCIAL BEHAVIOR;

EID: 24044432918     PISSN: 01623257     EISSN: 15733432     Source Type: Journal    
DOI: 10.1007/s10803-005-5030-2     Document Type: Article

References (75)

1. A. Baghdadli C. Pascal S. Grisli C. Aussilloux 2003 Risk factors for self-injurious behaviours among 222 young children with autistic disorders Journal of Intellectual Disabilities Research 47 622 627
2. L. Baker D. P. Cantwell 1982 Developmental, social and behavioural characteristics of speech and language disordered children Child Psychiatry and Human Development 12 195 206
3. L. Bartak M. Rutter 1976 Differences between mentally retarded and normally intelligent autistic children Journal of Autism and Childhood Schizophrenia 6 109 120
4. J. Beadle-Brown G. H. Murphy L. Wing J. Gould A. Shah N. Holmes 2000 Changes in skills for people with intellectual disabilities: A follow-up of the Camberwell Cohort Journal of Intellectual Disabilities Research 44 12 24
5. J. Beadle-Brown G. H. Murphy L. Wing J. Gould A. Shah N. Holmes 2002 Changes in social impairment for people with intellectual disabilities: a follow-up of the Camberwell Cohort Journal of Autism and Developmental Disorders 32 195 206
6. G. Berkson 1983 Repetitive stereotyped behaviours American Journal of Mental Deficiency 88 239 246
7. P. Bibby S. Eikeseth N. T. Martin O. C. Mudford D. Reeves 2001 Progress and outcomes for children with autism receiving parent-managed intensive interventions Research in Developmental Disabilities 22 425 447
8. M. M. Black V. A. Molaison M. W. Smull 1990 Families caring for a young adult with mental retardation: Service needs and urgency of community living requests American Journal on Mental Retardation 95 32 39
9. S. A. Borthwick-Duffy 1994 Prevalence of destructive behaviours: A study of aggression, self-injury and property destruction T. D. B. Thompson Gray Destructive behaviour in developmental disabilities: Diagnosis and treatment Sage Thousand Oaks 3 23
10. B. E. Bromley J. Blacher 1991 Parental reasons for out-of-home placement of children with severe handicaps Mental Retardation 29 275 280
11. E. G. Carr V. M. Durand 1985 Reducing behaviour problems through functional communication training Journal of Applied Behaviour Analysis 18 111 126
12. E. G. Carr L. Levin G. McConnachie J. I. Carlson D. C. Kemp C. E. Smith 1994 Communication-based intervention for problem behaviour: A user's guide for producing positive change Paul H. Brookes Baltimore
13. M. B. Caulfield J. Fischel B. D. De Baryshe G. J. Whitehurst 1989 Behavioural correlates of developmental expressive language disorder Journal of Abnormal Child Psychology 17 187 201
14. J. Chadsey-Rusch R. L. Sprague 1989 Maladaptive behaviours associated with neuroleptic drug maintenance American Journal on Mental Retardation 93 607 617
15. C. Cullen K. Partidge 1981 The constructional approach: A way of using different data Apex: Journal of the British Institute of Mental Handicap 8 135 136
16. P. W. Davidson N. N. Cain J. E. Sloane-Reeves A. Speybroech J. Segel J. Gutkin L. E. Quijano B. M. Kramer B. Porter I. Shoham E. Goldstein 1994 Characteristics of community-based individuals with mental retardation and aggressive behavioural disorders American Journal on Mental Retardation 98 704 716
17. A. M. Donnellan G. W. LaVigna N. Negri-Shultz L. L. Fassbender 1988 Progress without punishment: effective approaches for learners with behaviour problems Teacher's College Press New York
18. V. M. Durand 1990 Severe behaviour problems: A functional communication training approach Guilford Press New York
19. V. M. Durand D. B. Crimmins 1988 Identifying the variables maintaining self-injurious behaviour Journal of Autism and Developmental Disorders 18 99 117
20. E. Emerson 1995 Challenging behaviour: Analysis and intervention in people with learning difficulties Cambridge University Press Cambridge
21. E. Emerson 2003 Mothers of children and adolescents with intellectual disability: Social and economic situation, mental health status, and the self-assessed social and psychological impact of the child's difficulties Journal of Intellectual Disabilities Research 47 385 399
22. E. Emerson R. Cummings S. Barrett H. Hughes C. McCool A. Toogood 1988 Challenging behaviour and community services: 2. Who are the people who challenge services? Mental Handicap 16 16 19
23. E. Emerson C. Kiernan A. Alborz D. Reeves H. Mason R. Swarbrick L. Mason C. Hatton 2001 Predicting the persistence of severe self-injurious behaviour Research in Developmental Disabilities 22 67 76
24. C. Gillberg S. Steffenburg 1987 Outcome and prognostic factors in infantile autism and similar conditions: A population based study of 46 cases followed through puberty Journal of Autism and Developmental Disorders 17 273 287
25. I. Goldiamond 1974 Towards a constructional approach to social problems Behaviourism 2 1 84
26. J. Gould 1976 Language development and non-verbal skills in severely mental retarded children: An epidemiological study Journal of Mental Deficiency Resources 2 129 146
27. D. Graham M. Rutter 1968 The reliability and validity of the psychiatric assessment of the child: II Interview with the parents British Journal of Psychiatry 114 581 592
28. J. C. Griffin D. E. Williams M. T. Stark B. K. Altmeyer M. Mason 1984 Self-injurious behaviour: A state-wide prevalence survey, assessment of severe cases and follow-up of aversive programmes J. C. Griffin M. T. Stark D. E. Williams B. K. Altmeyer H. K. Griffin Advances in the treatment of self-injurious behaviour Dept. of Health and Human Services Austin, TX
29. R. P. Hastings 2002 Parental stress and behaviour problems in children with developmental disability Journal of Intellectual &Developmental Disability 27 149 160
30. P. Harris 1993 The nature and extent of aggressive behaviour amongst people with learning difficulties (mental handicap) in a single health district Journal of Intellectual Disability Research 37 221 242
31. B. A. Iwata M. F. Dorsey K. J. Slifer K. E. Bauman G. S. Richman 1982 Toward a functional analysis of self-injury Analysis and Intervention in Developmental Disabilities 2 3 30
32. C. Kasari 2002 Assessing change in early intervention programmes for children with autism Journal of Autism and Developmental Disorders 32 447 461
33. C. Kiernan A. Alborz 1995 A different life Hester Adrian Research Centre Manchester
34. C. Kiernan A. Alborz 1996 Persistence and change in challenging and problem behaviours of young adults with intellectual disability living in the family home Journal of Applied Research in Intellectual Disabilities 9 181 193
35. C. Kiernan D. Kiernan 1994 Challenging behaviour in schools for pupils with severe learning disabilities Mental Handicap Research 7 177 201
36. C. Kiernan H. Qureshi 1993 Challenging behaviour C. Kiernan Research to practice? Implications of research on the challenging behaviour of people with learning disability B.I.L.D. Publications Clevedon Avon 53 65
37. Kings Fund Centre 1980 An ordinary life: comprehensive locally-based residential services for mentally handicapped people King's Fund Centre London
38. O. I. Lovaas 1987 Behavioural treatment and normal educational and intellectual functioning in young autistic children Journal of Consulting and Clinical Psychology 55 3 9
39. O. I. Lovaas J. Q. Simmons 1969 Manipulation of self-destruction in three retarded children Journal of Applied Behaviour Analysis 2 143 157
40. K. Lowe D. Felce J. Perry H. Baxter E. Jones 1998 The characteristics and residential situations of people with severe intellectual disability and the most severe challenging behaviour in Wales Journal of Intellectual Disability Research 42 375 389
41. L. L. MacIntyre J. Blacher B. L. Baker 2002 Behaviour/mental health problems in young adults with intellectual disability: The impact on families Journal of Intellectual Disabilities Research 46 239 249
42. J. Mansell K. Ericcson 1996 Deinsitutionalisation and community living: Intellectual disability services in Britain, Scandinavia and the USA Chapman and Hall London
43. K. McClintock S. Hall C. Oliver 2003 Risk markers associated with challenging behaviours in people with intellectual disabilities: a meta-analytic study Journal of Intellectual Disabilities Research 47 405 416
44. J. J. McEachin T. Smith O. I. Lovaas 1993 Long-term outcome for children with autism who received early intensive behavioural treatment American Journal on Mental Retardation 97 359 372
45. Murphy, G. (1991). MIETS meets needs. Nursing Times, September 4th, 47-49
46. G. Murphy 1994a Services for children and adolescents with severe learning disabilities (mental retardation) M. Rutter E. Taylor L. Hersov Child and adolescent psychiatry: Modern approaches 3 Blackwell Scientific Publications Oxford 1023 1039
47. G. Murphy 1994b Understanding challenging behaviour E. Emerson P. McGill J. Mansell Severe learning disabilities and challenging behaviours: Designing high quality services Chapman and Hall London 37 68
48. G. Murphy C. Oliver J. Corbett 1993 Epidemiology of self-injury, characteristics of people with severe self-injury and initial treatment outcome C. Kiernan Research to practice? Implications of research on the challenging behaviour of people with learning disability B.I.L.D. Publications Clevedon Avon 1 35
49. P. Molyneux E. Emerson A. Caine 1999 Prescription of psychotropic medication to people with intellectual disabilities in primary health care settings Journal of Applied Research in Intellectual Disabilities 12 46 57
50. Nihira, K., Leland, H., & Lambert, N. (1993). Adaptive Behaviour Scale-residential and community (2nd ed.). Austin Texas: Pro-ed
51. C. Oliver 1995 Self-injurious behaviour in children with learning disabilities: Recent advances in assessment and intervention Journal of Child Psychology and Psychiatry 30 909 927
52. C. Oliver G. Murphy J. A. Corbett 1987 Self-injurious behaviour in people with a mental handicap: A total population survey Journal of Mental Deficiency Research 31 147 162
53. L. Quine J. Pahl 1985 Examining the causes of stress in families with severely mentally handicapped children British Journal of Social Work 15 501 517
54. T. Risley 1968 The effects and side-effects of punishing the autistic behaviours of a deviant child Journal of Applied Behaviour Analysis 1 21 34
55. J. Robertson E. Emerson N. Gregory C. Hatton S. Kessissoglou A. Hallam 2000 Receipt of psychotropic medication by people with intellectual disability in residential settings Journal of Intellectual Disability Research 44 666 676
56. R. G. Rusch J. C. Hall H. C. Griffin 1986 Abuse-provoking characteristics of institutionalised mentally retarded individuals American Journal of Mental Deficiency 90 618 624
57. J. Salt J. Shemilt V. Sellars S. Boyd T. Coulson S. McCool 2002 The Scottish Centre for Autism preschool treatment programme II: The results of a controlled outcome study Autism 6 33 46
58. S. R. Schroeder C. S. Schroeder B. Smith J. Dalldorf 1978 Prevalence of self-injurious behaviours in a large state facility for the retarded: A three year follow-up study Journal of Autism and Childhood Schizophrenia 8 261 269
59. S. R. Schroeder W. K. Bickel G. Richmond 1986 Primary and secondary prevention in self-injurious behaviour: A life-long problem K. D. Gadow Advances in learning and behavioural disabilities 5 JAI Press Greenwich, CT
60. A. Shah 1986 Impairment of social interaction in autism and mental retardation: A 12 year follow-up study J. M. Berg Science and service in mental retardation Methuen London 132 141
61. M. J. Shodell H. H. Reiter 1968 Self-mutilative behaviour in verbal and nonverbal schizophrenic children Archives of General Psychiatry 19 453 455
62. J. Stevenson N. Richman 1978 Behaviour, language and development in three year old children Journal of Autism and Childhood Schizophrenia 8 299 313
63. L. W. Talkington S. Hall R. Altman 1971 Communication deficits and aggression in the mentally retarded American Journal of Mental Deficiency 76 235 237
64. B. G. Tate G. S. Baroff 1966 Aversive control of self-injurious behaviour of a psychotic boy Behaviour Research and Therapy 4 281 287
65. M. Tausig 1985 Factors in family decision-making about placement for developmentally disabled adults American Journal of Mental Deficiency 89 352 361
66. Windahl, S. (1988). SIB in a time perspective: A follow-up of SIB prevalence and frequency after 10-13 years. Paper presented at the 8th IASSMD conference, Dublin
67. L. Wing 1971 Severely retarded children in a London area: Prevalence and provision of services Psychological Medicine 1 405 415
68. L. Wing 1988 The continuum of autistic characteristics E. Schopler G. Mesibov Diagnosis and assessment in autism Plenum New York 91 110
69. L. Wing 1996a The autistic spectrum: A guide for parents and professionals Constable London
70. Wing, L. (1996b). Schedule of handicaps, behaviours and skills (HBS). In I. Rapin (Ed.), Pre-school children with inadequate communication. Clinics in developmental medicine no. 139 (Appendix 5, pp. 268-299). London: MacKeith Press
71. J. K. Wing A. M. Hailey 1972 Evaluating a community psychiatric service Oxford University Press London
72. L. Wing C. Bramley A. Hailey J. K. Wing 1968 Camberwell cumulative psychiatric case register part 1: Aims and methods Social Psychiatry 3 3 116 123
73. L. Wing J. Gould 1978 Systematic recording of behaviours and skills of retarded and psychotic children Journal of Autism and Childhood Schizophrenia 8 79 97
74. L. Wing J. Gould 1979 Severe impairments of social interaction and associated abnormalities in children: Epidemiology and classification Journal of Autism and Childhood Schizophrenia 9 11 29
75. L. Wing J. Gould S. R. Yeates L. M. Brierley 1977 Symbolic play in severely mentally retarded and autistic children Journal of Clinical Psychology and Psychiatry 18 167 178