Self-efficacy, pulmonary function, perceived health and global quality of life of cystic fibrosis patients

Social Indicators Research

Volumn 72, Issue 2, 2005, Pages 239-261

  Wahl, Astrid K ^a   Rustøen, Tone ^a   Hanestad, Berit R ^b   Gjengedal, Eva ^b   Moum, Torbjørn ^c  

^a OSLO METROPOLITAN UNIVERSITY   (Norway)

^b UNIVERSITY OF BERGEN   (Norway)

^c UNIVERSITY OF OSLO   (Norway)

Author keywords

Cystic fibrosis; Health status; Pulmonary function; Quality of life; Self efficacy

Indexed keywords

HEALTH STATUS; QUALITY OF LIFE; SELF ASSESSMENT;

EID: 23944482744     PISSN: 03038300     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11205-004-5580-2     Document Type: Article

References (50)

1. G.L. Albrect and P.J. Devlieger 1999 'The disability paradox: High quality of life against all odds' Social Science and Medicine 48 pp. 977-988 10.1016/S0277-9536(98)00411-0 10390038
2. B. Archenholtz E. Nordborg and T. Bremell 2001 'Lower level of education in young adults with arthritis starting in the early adulthood' Scandinavian Journal of Rheumatology 30 pp. 353-355 10.1080/ 030097401317148552 11846054
3. A. Bandura 1986 Social Foundations of Thought and Action. A Social Cognitive Theory (Prentice-Hall Inc. Englewood Cliffs, New Jersey)
4. K. Bo T. Talseth and A. Vinsnes 2000 'Randomized controlled trial on the effect of pelvic floor muscle training on quality of life and sexual problems in genuine stress incontinent women' Acta Obstetricia et Gynecologica Scandinavica 79 pp. 598-603 10.1034/ j.1600-0412.2000.079007598.x 10929962
5. J. Bradley M. Dempster E. Wallace and S. Elborn 1999 'The adaptation of a quality of life questionnaire for routine use in clinical practice: The Chronic Respiratory Disease Questionnaire in cystic fibrosis' Quality of Life Research 8 pp. 65-71 10.1023/A:1026437214170 10457739
6. J. Bradley O. McAlister and S. Elborn 2001 'Pulmonary function, inflammation, exercise capacity and quality of life in cystic fibrosis' European Respiratory Journal 17 712-715 10.1183/09031936.01.17407120 11401068
7. M.T. Britto U.R. Kotagal R.W. Hornung H.D. Atherton J. Tsevat and R.W. Wilmott 2002 'Impact of recent pulmonary exacerbations on quality of life in patients with cystic fibrosis' Chest 121 64-72 10.1378/ chest.121.1.64 11796433
8. C.S. Burckhardt S.L. Woods A.A. Schultz and D.M. Ziebarth 1989 'Quality of life of adults with chronic illness: A psychometric study' Research in Nursing and Health 12 347-354 2602575
9. C.S. Burckhardt B. Archenholtz and A. Bjelle 1992 'Measuring the quality of life of women with rheumatoid arthritis or systemic lupus erythematosus: A Swedish version of the Quality of Life Scale (QOLS)' Scandinavian Journal of Rheumatology 21 190-195 1529286
10. C.S. Burckhardt B. Archenholtz and A. Bjelle 1993 'Quality of life of women with systemic lupus erythematosus: A comparison with women with rheumatoid arthritis' Journal of Rheumatology 20 977-981 8350334
11. J.J. Busschbach P.E. Horikx Bosch J.M.van den Riviere A.Brutelde la and Charro F.T. de 1994 'Measuring the quality of life before and after bilateral lung transplantation in patients with cystic fibrosis' Chest 105 911-917 8131563
12. J. Congleton M.E. Hodson and Duncan-Skingle F. 1996 'Quality of life in adults with cystic fibrosis' Thorax 51 936-940 8984707
13. S. Conway 1998 'Cystic fibrosis Greater expectations'. Health Service Journal 108 11-13
14. A.J. Cunningham G.A. Lockwood and J.A. Cunningham 1991 'A relationship between perceived self-efficacy and quality of life in cancer patients' Patient Education Counselling 17 71-78 10.1016/0738-3991(91)90052-7
15. W. Jong de A.A. Kaptein C.P. Schans van der G.P. Mannes W.M. Aalderen van R.G. Grevink and G.H. Koeter 1997 'Quality of life in patients with cystic fibrosis' Pediatric Pulmonology 23 95-100 10.1002/ (SICI)1099-0496(199702)23:2<95::AID-PPUL4>3.0.CO;2-N 9065946
16. J.A. Dodge S. Morrison P.A. Lewis E.C. Coles D. Geddes G. Russell J.M. Littlewood and M.T. Scott 1997 'Incidence, population, and survival of cystic fibrosis in the UK, 1968-95 UK Cystic Fibrosis Survey Management Committee' Archives of Disease in Childhood 77 493-496 9496181
17. T.J. Fogarty 1996 'Who we are, what we do, and where we are going' Journal of Vascular Surgery 23 887-893 8667511
18. L. Gee J. Abbott S.P. Conway C. Etherington and A.K. Webb 2000 'Development of a disease-specific health-related quality of life measure for adults and adolescents with cystic fibrosis' Thorax 55 946-954 10.1136/thorax.55.11.946 11050265
19. L. Goldbeck and T.G. Schmitz 2001 'Comparison of three generic questionnaires measuring quality of life in adolescents and adults with cystic fibrosis: The 36-item short form health survey, the quality of life profile for chronic diseases, and the questions on life satisfaction' Quality of Life Research 10 23-36 10.1023/A:1016711704283 11508473
20. R.L. Henry L.C. Hettiarachchi P. Colley C. Collins E.V. O'Loughlin and D.M. Cooper 1996 'Genotype of the cystic fibrosis population of the Hunter Region of New South Wales' Journal of Paediatric and Child Health 32 416-418
21. M.E. Hodson 2000 'Treatment of cystic fibrosis in the adult' Respiration 67 595-607 10.1159/000056287 11124641
22. R. Holman and K. Lorig 1992 'Perceived self-efficacy in self-management of chronic diseases' R. Schwarzer (ed.) Self-efficacy Thought Control of Action. Taylor & Francis Publishers USA 305-325
23. J.A. Johnson M. Connolly P. Zuberbuhler and N.E. Brown 2000 'Health-related quality of life for adults with cystic fibrosis: A regression approach to assessing the impact of recombinant human DNase' Pharmacotherapy 20 1167-1174 10.1592/phco.20.15.1167.34583 11034039
24. P.W. Jones 1995 'Issues concerning health-related quality of life in COPD' Chest 107 187S-193S 7743825 (Suppl 5)
25. P.W. Jones 1998 'Testing health status ("quality of life") questionnaires for asthma and COPD' European Respiratory Journal 11 5-6 10.1183/09031936.98.11010005 9543262
26. P.W. Jones 2001 'Health status measurement in chronic obstructive pulmonary disease' Thorax 56 880-887 10.1136/thorax.56.11.880 11641515
27. P.W. Jones and T.K. Bosh 1997 'Quality of life changes in COPD patients treated with salmeterol' American Journal of Respiratory and Critical Care Medicine 155 1283-1289 9105068
28. P.W. Jones F.H. Quirk C.M. Baveystock and P. Littlejohns 1992 'A self-complete measure of health status for chronic airflow limitation. The St. George's Respiratory Questionnaire' American Review of Respiratory Disease 145 1321-1327 1595997
29. R.M. Kaplan J.P. Anderson A.W. Wu W.C. Mathews F. Kozin and D. Orenstein 1989 'The Quality of Well-being Scale. Applications in AIDS, cystic fibrosis, and arthritis' Medical Care 27 S27-S43 2921885
30. C.L. Kohler L. Fish and P.G. Greene 2002 'The relationship of perceived self-efficacy to quality of life in chronic obstructive pulmonary disease' Health Psychology 21 610-614 10.1037//0278-6133.21.6.610 12433014
31. C.M. Lees and R.L. Smyth 2000 'The current management of cystic fibrosis' International Journal of Clinical Practice 54 171-179 10829360
32. K.R. Lorig D.S. Sobel A.L. Stewart B.W. Brown A. Bandura P. Ritter V.M. Gonzalez D.D. Laurent and H.R. Holman 1999 'Evidence suggesting that a chronic disease self-management program can improve health status while reducing hospitalization' Medical Care 37 5-14 10.1097/ 00005650-199901000-00003 10413387
33. K.R. Lorig P. Ritter A.L. Stewart D.S. Sobel B.W. Brown A. Bandura V.M. Gonzalez D.D. Laurent and H.R. Holman 2001 'Chronic disease self-management program. 2 year health status and health care utilization outcomes' Medical Care 39 1217-1223 10.1097/ 00005650-200111000-00008 11606875
34. P.J. Munzenberger C.A. Wagnen Van I. Abdulhamid and P.C. Walker 1999 'Quality of life as a treatment outcome in patients with cystic fibrosis' Pharmacotherapy 19 393-398 10.1592/phco.19.6.393.31047 10212009
35. D.M. Orenstein P.A. Nixon E.A. Ross and R.M. Kaplan 1989 'The quality of well-being in cystic fibrosis' Chest 95 344-347 2914486
36. G.S. Parcel P.R. Swank M.J. Mariotto L.K. Bartholomew D.I. Czyzewski M.M. Sockrider and D.K. Seilheimer 1994 'Self-management of cystic fibrosis: A structural model for educational and behavioral variables' Social Science and Medicine 38 1307-1315 10.1016/0277-9536(94)90194-5 8016694
37. P. Pinkerton T. Trauer F. Duncan M.E. Hodson and J.C. Batten 1985 'Cystic fibrosis in adult life: A study of coping patterns' Lancet 2 761-763 10.1016/S0140-6736(85)90638-5 2864493
38. A.L. Quittner 1998 'Measurement of quality of life in cystic fibrosis' Current Opinion in Pulmonary Medicine 4 326-331 10813210
39. C.E. Schwartz and M.A. Sprangers 1999 'Methodological approaches for assessing response shift in longitudinal health-related quality-of-life research' Social Science and Medicine 48 1531-1548 10.1016/ S0277-9536(99)00047-7 10400255
40. R. Schwarzer and A. Born 1997 'Optimistic self-beliefs: Assessment of general perceived self-efficacy in thirteen cultures' World Psychology 3 177-190
41. R. Schwarzer and M. Jerusalem 1995 'Generalized self-efficacy scale', in J. Weinman S. Wright and M. Johnston (eds.), Measures in Health Psychology: A User's Portfolio Causal and Control Beliefs. NFER-Nelson Windsor, UK 35-37
42. S.L. Shepherd M.F. Hovell D.J. Slymen I.R. Harwood C.R. Hofstetter L.E. Granger and R.M. Kaplan 1992 'Functional status as an overall measure of health in adults with cystic fibrosis: Further validation of a generic health measure' Journal of Clinical Epidemiology 45 117-125 10.1016/ 0895-4356(92)90004-7 1573428
43. M.A. Sprangers and C.E. Schwartz 1999 'Integrating response shift in health-related quality of life research: A theoretical model' Social Science and Medicine 48 1507-1515 10.1016/S0277-9536(99)00045-3 10400253
44. D. Staab K. Wenninger N. Gebert K. Rupprath S. Bisson M. Trettin K.D. Paul K.M. Keller and U. Wahn 1998 'Quality of life in patients with cystic fibrosis and their parents: What is important besides disease severity?' Thorax 53 727-731 10319053
45. The COPD Guidelines Group of the Standards of Care Committee of the BTS 1997 'BTS guidelines for the management of chronic obstructive pulmonary disease' Thorax 52 S1-S28 (Suppl 5)
46. Tsay S.L., and Chao Y.F. 2002. 'Effects of perceived self-efficacy and functional status on depression in patients with chronic heart failure'. Journal of Nursing Research, 271-278.
47. A. Wahl C. Burckhardt I. Wiklund and B.R. Hanestad 1998 'The Norwegian version of the Quality of Life Scale (QOLS-N). A validation and reliability study in patients suffering from psoriasis' Scandinavian Journal of Caring Sciences 12 215-222 10.1080/02839319850162823 10067647
48. A.K. Wahl T. Rustøen B.R. Hanestad A. Lerdal and T. Moum 2004 'Quality of life in the general Norwegian population, measured by the Quality of Life Scale (QOLS-N)' Quality of Life Research 13 1001-1009 10.1023/B:QURE.0000025583.28948.5b 15233513
49. I.B. Wilson and P.D. Cleary 1995 'Linking clinical variables with health-related quality of life. A conceptual model of patient outcomes' JAMA 273 59-65 10.1001/jama.273.1.59 7996652
50. J.M. Wolter S.D. Bowler P.J. Nolan and J.G. McCormack 1997 'Home intravenous therapy in cystic fibrosis: A prospective randomized trial examining clinical, quality of life and cost aspects' European Respiratory Journal 10 896-900 9150331