Information to the relatives of people with ostomies: Is it satisfactory and adequate?

Journal of Wound, Ostomy and Continence Nursing

Volumn 32, Issue 4, 2005, Pages 238-245

  Persson, Eva ^a,b   Gustavsson, Bengt ^a   Hellström, Anna Lena ^b   Fridstedt, Gisela ^a   Lappas, George ^a   Hultén, Leif ^a  

^a UNIVERSITY OF GOTHENBURG   (Sweden)

^b SAHLGRENSKA UNIVERSITY HOSPITAL   (Sweden)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 23244440717     PISSN: 10715754     EISSN: None     Source Type: Journal    
DOI: 10.1097/00152192-200507000-00008     Document Type: Article

References (46)

1. Cohen A. Body image in the person with a stoma. J Enterostomal Ther. 1991;18:68-71.
2. Coe M, Kluka S. Comparison of concerns of clients and spouses regarding ostomy surgery for treatment of cancer: Phase II. J Enterostomal Ther. 1990;17:106-111.
3. Northouse LL, Schafer JA, Tipton J. The concerns of patients and spouses after the diagnosis of colon cancer: A qualitative analysis. J Wound Ostomy Continence Nurs. 1999;26:8-17.
4. Northouse LL, Mood D, Templin T, et al. Couples' patterns of adjustment to colon cancer. Soc Sci Med. 2000;50:271-284.
5. Germino BB, Fife BL, Punk SG. Cancer and the partner relationship: what is its' meaning? Sem Oncol Nurs. 1995;11:43-50.
6. Erwin-Toth P, Spencer M. A survey of patient perception of quality of care. J Enterostomal Nurs. 1991;18:122-125.
7. Kelly MP, Henry T. A thirst for practical knowledge. Stoma patients' opinions of the services they receive. Prof Nurse. 1992;7:350-351, 354-356.
8. Goodwin K. An insight into patient satisfaction. Evaluation of a stoma care service. Prof Nurse. 1992;8:153-156.
9. Coe M, Kluka S. Concerns of clients and spouses regarding ostomy surgery for cancer. J Enterostomal Ther. 1988;15:232-239.
10. Kristjanson LJ, Leis A, Koop PM, et al. Family members' care expectations, care perceptions, and satisfaction with advanced cancer care: results of a multi-site pilot study. J Palliat Care. 1997;13(4):5-13.
11. Malett J. Caring for the caretakers: the patient's family. J Enterostomal Nurs. 1993;20:78-81.
12. Ludwig-Beymer P, Ryan CJ, Johnson NJ, et al. Using patient perceptions to improve quality care. J Nurs Care Qual. 993;7(2):42-51.
13. Vuory H. Patient satisfaction - does it matter? Qual Assur Health Care. 1991;3:183-189.
14. Jackson AL, Pokorny ME, Vincent P. Relative satisfaction with nursing care of patients with ostomies. J Enterostomal Nurs. 1993;20:233-238.
15. Jeffries E, Joels J, Butler J, et al. A service evaluation of stoma care nurses' practice. J Clin Nurs. 1995;4:235-242.
16. Deeny P, McCrea H. Stoma care: the patient's perspective. J Adv Nurs. 1991;16:39-46.
17. Persson E, Severinsson E, Hellström AL. Spouses' perceptions of and reactions to living with a partner who has undergone surgery for rectal cancer resulting in a stoma. Cancer Nurs. 2003;27:85-90.
18. Piwonka MA, Merino JM. A multidimensional modeling of predictors influencing the adjustment to a colostomy. J Wound Ostomy Continence Nurs. 1999;26:298-305.
19. Swedish National Board of Health and Welfare (SOSF 1996-24). Stockholm: Liber; 2003.
20. Larsson BW, Larsson G, Starrin B. Patients' views on quality of care: a comparison of men and women. J Nurs Manage. 1999;7:133-139.
21. Lövgren G, Sandman PO, Engström B, et al. The view of caring among patients and personnel. Scand J Caring Sci. 1998;12(1):33-41.
22. Ottosson B, Hallberg IR, Axelsson K, Loven L. Patients' satisfaction with surgical care impaired by cuts in expenditure and after interventions to improve nursing care at a surgical clinic. Int J Qual Health Care. 1997;9(1):43-53.
23. Törnkvist L, Gardulf A, Strender L-E. Patients' satisfaction with the care given by district nurses at home and at primary health care. Scand J Caring Sci. 2000;14:67-74.
24. Wilde B, Starrin B, Larsson G, Larsson M. Quality of care from a patient's perspective. Scand J Caring Sci. 1993;7:113-120.
25. Wilde B, Larsson G, Larsson M, Starrin B. Quality of care from the elderly person's perspective: Subjective importance and perceived reality. Aging Clin Exp Res. 1995;7:140-149.
26. Davies A, Ware J. Involving consumers in quality of care assessment. Health Affairs. 1988;7:33-48.
27. Merkouris A, Ifantopoulos J, Lanara V, Lemonidou C. Patient satisfaction: a key concept for evaluating and improving nursing services. J Nurs Manage. 1999;7(1):19-28.
28. Van Campen C, Sixma H, Friele R, et al. Quality of care and patient satisfaction: a review of measuring instruments. Med Care Res Rev. 1995;52:109-133.
29. Wilde B, Larsson G, Larsson M, Starrin B. Quality of care. Development of a patient-centered questionnaire based on a grounded theory model. Scand J Caring Sci. 1994;8:39-48.
30. Kristjanson LJ, Atwood J, Degner LF. Validity and reliability of the family inventory of needs (FIN): measuring the care needs of families of advanced cancer patients. J Nurs Meas. 1995;3:109-126.
31. Wasser T, Pasquale MA, Matchett SC, et al. Establishing reliability and validity of the critical care family satisfaction survey. Crit Care Med. 2001;29(1):192-196.
32. Hall-Lord ML, Johansson I, Schmidt I, Larsson BW. Family members' perceptions of pain and distress related to analgesics and psychotropic drugs, and quality of care of elderly nursing home residents. Health Soc Care Community. 2003;11:262-274.
33. Larsson G, Wilde Larsson B, Munck I. Refinement of the questionnaire "Quality of Care from the Patients Perspective" using structural equation modelling. Scand J Caring Sci. 1998;12:111-118.
34. Wilde B, Larsson G, Larsson M, Starrin B. Patienten Värderar Vården. Vol 3. Stockholm: Vårdförbundet SHSTF; 1998.
35. Alstad B, Bach K, Domonkos I, et al. Nordic standard for preoperative stoma care. Norway: Nordnäs; 1997.
36. Olsen T, Alstad B, Thomsen L, et al. Nordic Standards for post-operative stoma and skin care. Göteborg: Nordic Cooperation; 2001.
37. Thomas LH, McColl E, Priest J, et al. Newcastle satisfaction with nursing scales: an instrument for quality assessments of nursing care. Qual Health Care. 1996;5(2):67-72.
38. Holmberg SK, Scott LL, Alexy W, Fife BL. Relationship issues of women with breast cancer. Cancer Nurs. 2001;24(1):53-60.
39. Persson L, Rasmusson M. Spouses' view during their partners' illness and treatment. Cancer Nurs. 1998;21:97-105.
40. Kelly MP. Patients' decision making in major surgery: the case of total colectomy. J Adv Nurs. 1994;19:1168-1177.
41. Bulman J. Changes in diet following the formation of a colostomy. Br J Nurs. 2001;10:179-186.
42. Floruta CV. Dietary choices of people with ostomies. J Wound Ostomy Continence Nurs. 2001;28:28-31.
43. Sainio C, Eriksson E, Lauri S. Patient participation in decision making about care. Cancer Nurs. 2001;24:172-179.
44. Bietz J. The lived experience of having an ileoanal reservoir: a phenomenologic study. J Wound Ostomy Continence Nurs. 1999;26:185-200.
45. Persson E, Hellström AL. Experiences of Swedish men and women 6 to 12 weeks after ostomy surgery. J Wound Ostomy Continence Nurs. 2002;29:103-108.
46. Kammerer Quayle B. Making positive choices: body image and the new ostomy patients. Ostomy Wound Manage. 1994;40:16-21.