Whose information is it anyway? Informing a 12-year-old patient of her terminal prognosis

Journal of Medical Ethics

Volumn 31, Issue 7, 2005, Pages 427-434

  Goldie, John ^a   Schwartz, L ^b   Morrison, J ^a  

^a UNIVERSITY OF GLASGOW   (United Kingdom)

^b MCMASTER UNIVERSITY   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; COHORT ANALYSIS; CONTROLLED STUDY; CURRICULUM; FEMALE; HEALTH BEHAVIOR; HEALTH SURVEY; HUMAN; HUMAN EXPERIMENT; HUMAN RIGHTS; INTERPERSONAL COMMUNICATION; MALE; MEDICAL EDUCATION; MEDICAL ETHICS; MEDICAL INFORMATION; MEDICAL PRACTICE; MEDICAL PROFESSION; MEDICAL STUDENT; PATIENT EDUCATION; PROFESSIONAL PRACTICE; QUALITATIVE ANALYSIS; QUALITY OF LIFE; QUANTITATIVE ANALYSIS; STATISTICAL ANALYSIS; STATISTICAL SIGNIFICANCE; TERMINAL DISEASE;

EMPIRICAL APPROACH; PROFESSIONAL PATIENT RELATIONSHIP;

AGE FACTORS; ATTITUDE OF HEALTH PERSONNEL; ATTITUDE TO HEALTH; CHILD; COHORT STUDIES; COMMUNICATION BARRIERS; CURRICULUM; DISCLOSURE; FEMALE; HUMANS; LEUKEMIA; PARENTS; PATERNALISM; PERSONAL AUTONOMY; PHYSICIAN-PATIENT RELATIONS; PROGNOSIS; STUDENTS, MEDICAL; TERMINALLY ILL;

EID: 21744451668     PISSN: 03066800     EISSN: None     Source Type: Journal    
DOI: 10.1136/jme.2004.009886     Document Type: Article

References (46)

1. British Medical Association. Consent, rights and choices in health care for children and young people. 3rd ed. London: BMJ Books, 2003.
2. Nitschke R, Meyer WH, Sexauer CL, et al. Care of terminally ill children with cancer. Med Pediatr Oncol 2000; 34:268-70.
3. Nitschke R. Regarding guidelines for assistance to terminally ill children with cancer: report of the SIOP Working Committee on psychosocial issues in pediatric oncology. Med Pediatr Oncol 2000;34:271-3.
4. Kreicbergs U, Valdimarsdottir U, Onelov E, et al. Talking about death with children who have severe malignant disease. N Engl J Med 2004;351:1175-86.
5. Goldman A, Christie D. Children with cancer talk about their own death with their families. Pediatr Hematol Oncol 1993; 10:223-31.
6. Hilden JM, Watteron J, Chrastek J. Tell the children. J Clin Oncol 2000;18:3193-5.
7. Bluebond-Langner M. How terminally ill children come to know themselves and their world: the private worlds of dying children. Princeton, NJ: Princeton University Press, 1978:166-97.
8. Raimbault G. Children talk about death. Acta Paediatr Scand 1981;70:179-82.
9. Spinetta JJ, Swarner JA, Sheposh JP. Effective parental coping following the death of a child from cancer. J Pediatr Psychol 1981;6:251-63.
10. Massera G, Spinetta JJ, Jankovic M, et al. Guidelines for assistance to terminally ill children with cancer: a report of the SIOP Working Committee on psychosocial issues in pediatric oncology. Med Pediatr Oncol 1999;32:44-8.
11. Hilden JM, Emanuel EJ, Fairclough DL, et al. Attitudes and practices among pediatric oncologists regarding end-of-life care: results of the 1998 American Society of Clinical Oncology survey. J Clin Oncol 2001;19:205-12.
12. Himelstein BP, Hilden JM, Boldt AM, et al. Pediatric palliative care. N Engl J Med 2004;350:1752-62.
13. National Children's Bureau. Child health ten years after the Court report: report of the policy and practice review. London: NCB, 1987.
14. Dworkin G. The theory and practice of autonomy. Cambridge: Cambridge University Press, 1988:85.
15. Holder A. Legal issues in pediatrics and adolescent medicine. New Haven, CT: Yale University Press, 1985:264.
16. Stone GC. Patient compliance and role of the expert. J Soc Issues 1979;35:34-59.
17. Alderson P. Choosing for the children. Oxford: Oxford University Press, 1990:107-10.
18. Beauchamp TL, Childress JF. Principles of biomedical ethics. Oxford: Oxford University Press, 1994.
19. Kennedy I, Grubb A. Medical law: the text and materials. London: Butterworths, 1989.
20. Bluebond-Langer M. The private worlds of dying children. Princeton, NJ: Princeton University Press, 1978.
21. Alderson P. Children's consent to surgery. Buckingham: Open University Press, 1993.
22. Gardiner H. The unschooled mind. London: Fontana, 1993.
23. Kail RV. Memory development in children. 3rd ed. San Francisco, CA: Freeman, 1990.
24. Buchanan AE, Brock W. Deciding for others: the ethics of surrogate decision making. Cambridge: Cambridge University Press, 1989.
25. Archard D. Children, rights and childhood. London: Routledge, 1993.
26. Kennedy I. The doctor, the pill and the 15 year old girl. In: Lockwood M, ed. Moral dilemmas in modern medicine. Oxford: Oxford University Press, 1985:37-9.
27. Mental Health Act Review Expert Committee. Review of the Mental Health Act 1983: report of the Expert Committee. London: Department of Health, 1999.
28. Education Committee of the General Medical Council. Tomorrow's doctors. London: GMC, 1993.
29. Consensus Statement. Teaching medical ethics and law within medical education: a model for the UK core curriculum. J Med Ethics 1998;28:188-92.
30. Goldie J, Schwartz L, McConnachie A, et al. Impact of a new course on students' potential behaviour on encountering ethical dilemmas. Med Educ 2001;35:295-302.
31. Goldie J, Schwartz L, McConnachie A, et al. The impact of three years' ethics teaching, in an integrated curriculum, on students' proposed behaviour on meeting ethical dilemmas. Med Educ 2002;36:489-97.
32. Goldie J, Schwartz L, McConnachie A, et al. The impact of a modern medical curriculum on students' proposed behaviour on meeting ethical dilemmas. Med Educ 2004;38:942-9.
33. Goldie J, Schwartz, McConnachie A, et al. Can students' reasons for choosing set answers to ethical vignettes be reliably rated? Development and testing of a method. Med Teacher 2004;26:713-8.
34. Huberman AM, Miles MB. Data management and analysis methods. In: Denzin NK, Lincoln YS, eds. Handbook of qualitative research. Thousand Oaks, CA: SAGE, 1994:428-44.
35. Goldie J, Schwartz L, McConnachie A, et al. Students' attitudes and potential behaviour with regand to whistle blowing as they pass through a modern medical curriculum. Med Educ 2003;37:368-75.
36. Goldie J, Schwartz L, Morrison J. Students' attitudes and potential behaviour to a competent patient's request for withdrawal of treatment as they pass through a modern medical curriculum. J Med Ethics 2004;30:371-6.
37. Goldie J, Schwartz L, Morrison J. Sex and the surgery: students' attitudes and potential behaviour as they pass through a modern medical curriculum. J Med Ethics 2004;30:480-6.
38. Cohen L, Manion L, Morrison K. Research methods in education. 5th ed. London: Routledge Falmer, 2000.
39. Hafferty FW, Franks R. The hidden curriculum, ethics teaching and the structure of medical education. Acad Med 1994; 64:861-71.
40. Patient-provider partnership in health care [theme issue]. BMJ 1999;319(7212).
41. Gillick v West Norfolk and Wisbech AHA (1985) All ER 402.
42. Mezirow J. Transformative dimensions of adult learning. San Francisco, CA: Jossey Bass, 1991.
43. Goldie J. Review of ethics curricula in undergraduate medical education. Med Educ 2000;34:108-19.
44. Mezirow J. Contemporary paradigms of learning. Adult Education Quarterly 1996;46:158-72.
45. Cranton P. Understanding and promoting transformative learning: a guide for educators of adults. San Francisco, CA: Jossey Bass, 1994.
46. Goldie J, Schwartz L, Morrison J. A process evaluation of medical ethics education in the first year of a new medical curriculum. Med Educ 2000;34:468-73.