The Icelandic database—do modern times need modern sagas?

BMJ

Volumn 319, Issue 7207, 1999, Pages 441-

  Chadwick, Ruth ^a  

^a UNIVERSITY OF CENTRAL LANCASHIRE   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

DATA BASE; GOVERNMENT; HUMAN RIGHTS; ICELAND; INFORMED CONSENT; MEDICAL RECORD; PRIORITY JOURNAL; PRIVACY; SHORT SURVEY;

BIOMEDICAL AND BEHAVIORAL RESEARCH; CLINICAL APPROACH/SOURCE; DECODE GENETICS; GENETIC INFORMATION; GENETIC RESEARCH; GENETICS AND REPRODUCTION; HEALTH CARE; ICELAND; RISKS AND BENEFITS; STANDARDS;

COMPUTER SECURITY; CONFIDENTIALITY; DATABASES, FACTUAL; FREEDOM; GENETIC PRIVACY; GENETIC RESEARCH; GENETICS; HUMANS; ICELAND; INFORMED CONSENT; RISK ASSESSMENT;

EID: 0033554255     PISSN: 09598138     EISSN: 14685833     Source Type: Journal    
DOI: 10.1136/bmj.319.7207.441     Document Type: Article

References (15)

1. Ministry of Health. Act on a health sector database. Reykjavik: Ministry of Health, 1998 (No 139/1998.)
2. Mannvernd (Icelanders for Ethics in Science and Medicine). www.mannvernd.is (Accessed 14 May 1999.)
3. deCODE genetics. www.database.is (Accessed 14 May 1999.)
4. Specter M. Decoding Iceland. New Yorker 1999 Jan 18: 40–51.
5. Council of Europe Steering Committee on Bioethics. The Icelandic act on a health sector database and Council of Europe conventions. Strasbourg: Ministry of Health and Social Security, 1999 (CDBI-CO-GT2(99) 7 1999.)
6. Ministry of Health. Bill on a health sector database. Reykjavik: Ministry of Health, 1998.
7. Council of Europe. Convention for the protection of individuals with regard to automatic processing of personal data. Strasbourg, Council of Europe, 1981.
8. European Parliament. Directive on the protection of individuals with regard to the processing of personal data. Brussels: European Parliament, 1995 (Directive 95/46/EC.)
9. Council of Europe. Recommendation on the protection of medical data. Strasbourg: Council of Europe, 1997 (No R(97) 5.)
10. Council of Europe. Recommendation concerning the protection of personal data collected and processed for statistical purposes. Strasbourg: Council of Europe, 1997 (No R(97) 18.)
11. Unesco. Universal declaration on the human genome and human rights. Geneva: Unesco, 1997.
12. McInnis MG. The assent of a nation: genethics and Iceland. Clin Genet 1999; 55: 234–9.
13. Human Genome Organisation Ethics Committee. Statement on the principled conduct of genetic research. Genome Digest 1996 May: 2–3.
14. Greely H., King MC. Letter to the government of Iceland. www.mannvernd.is (Accessed 14 May 1999.)
15. Lewontin RC. A human population for sale. New York Times 1999; Jan 23.