PRINTO/PRES international website for families of children with rheumatic diseases: www.pediatric-rheumatology.printo.it

Annals of the Rheumatic Diseases

Volumn 64, Issue 7, 2005, Pages 1101-1106

  Ruperto, N ^a,ah   Garcia Munitis, P ^a   Villa, L ^a   Pesce, M ^a   Aggarwal, A ^b   Fasth, A ^c   Avcin, T ^d   Bae, S C ^e   Balogh, Z ^f   Li, C ^g   De Inocencio, J ^h   Dibra, M ⁱ   Dolezalova, P ^j   El Miedany, Y ^k   Flato, B ^l   Harjacek, M ^m   Huppertz, H I ^h   Kanakoudi Tsakalidou, F ⁿ   Wulffraat, N ^o   Landenne, P ^p   Melo Gomes, J A ^q   Mihaylova, D ^r   Nielsen, S ^s   Nikishina, I ^t   Ozdoqan, H ^u   Pagava, K ^v   Panaviene, V ^w   Prieur, A M ^x   Romicka, A M ^y   Rumba, I ^z   Shafaie, N ^aa   Susic, G ^ab   Takei, S ^ac   Uziel, Y ^ad   Vesely, R ^ae   Woo, P ^af   Martini, A ^ag   more..

^a PRINTO   (Serbia)

^b SANJAY GANDHI POSTGRADUATE INSTITUTE OF MEDICAL SCIENCES   (India)

^c QUEEN SILVIA CHILDREN'S HOSPITAL   (Sweden)

^d Ljubljana University Medical Center   (Serbia)

^e Hanyang University   (South Korea)

^f NATIONAL INSTITUTE OF RHEUMATOLOGY AND PHYSIOTHERAPY   (Hungary)

^g CAPITAL MEDICAL UNIVERSITY   (China)

^h CS Estrecho de Corea ^*  (Serbia)

ⁱ UNIVERSITY HOSPITAL CENTER MOTHER TERESA   (Albania)

^j CHARLES UNIVERSITY   (Czech Republic)

^k AIN SHAMS UNIVERSITY   (Egypt)

^l OSLO UNIVERSITY HOSPITAL   (Norway)

^m Croatia   (Serbia)

ⁿ ARISTOTLE UNIVERSITY OF THESSALONIKI   (Greece)

^o Wilhelmina Kinderziekenhuis   (Serbia)

^p HELSINKI UNIVERSITY CENTRAL HOSPITAL   (Finland)

^q INSTITUTO PORTUGUÊS DE REUMATOLOGIA   (Portugal)

^r University Children Hospital   (Serbia)

^s Rigshospitalet   (Serbia)

^t V A NASONOVA RESEARCH INSTITUTE OF RHEUMATOLOGY   (Russian Federation)

^u ISTANBUL UNIVERSITY   (Turkey)

^v TBILISI STATE MEDICAL UNIVERSITY   (Georgia)

^w VILNIUS UNIVERSITY   (Lithuania)

^x HÔPITAL NECKER ENFANTS MALADES   (France)

^y INSTITUTE OF RHEUMATOLOGY   (Czech Republic)

^z UNIVERSITY OF LATVIA   (Latvia)

^aa IRAN UNIVERSITY OF MEDICAL SCIENCES   (Iran)

^ab INSTITUTE OF RHEUMATOLOGY   (Serbia)

^ac KAGOSHIMA UNIVERSITY   (Japan)

^ad MEIR MEDICAL CENTER   (Israel)

^ae University Hospital   (Serbia)

^af Great Ormand Street Children Hospital   (Serbia)

^ag UNIVERSITY OF GENOA   (Italy)

^ah Pediatria II Reumatologia   (Serbia)

more..

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CHILD; CHILDHOOD DISEASE; FAMILY; HEALTH CARE PERSONNEL; HUMAN; INTERNET; LANGUAGE; MEDICAL INFORMATION SYSTEM; MEDICAL RESEARCH; ORGANIZATION; PEDIATRICIAN; PRIORITY JOURNAL; RHEUMATIC DISEASE; SELF HELP;

EID: 21344466317     PISSN: 00034967     EISSN: None     Source Type: Journal    
DOI: 10.1136/ard.2004.030221     Document Type: Article

References (12)

1. Commission of the European Communities, Brussels, Belgium. eEurope 2002: quality criteria for health related websites. J Med Internet Res 2002;4:e15.
2. Winker MA, Flanagin A, Chi-Lum B, White J, Andrews K, Kennett RL, et al. Guidelines for medical and health information sites on the internet - principles governing AMA web sites. JAMA 2000;283:1600-6.
3. Ruperto N, Martini A. International research networks in pediatric rheumatology: the PRINTO perspective. Curr Opin Rheumatol 2004;16:566-70.
4. Delbecq AL, Van de Ven AH, Gustafson DH. Group Techniques for program planning. A guide to nominal group and Delphi processes, 1st ed. Glenview, Ill.: Scott, Foresman and Company, 1975.
5. Sniderman AD. Clinical trials, consensus conferences, and clinical practice. Lancet 1999;354:327-30.
6. Giannini EH, Ruperto N, Ravelli A, Lovell DJ, Felson DT, Martini A. Preliminary definition of improvement in juvenile arthritis. Arthritis Rheum 1997;40:1202-9.
7. Ruperto N, Ravelli A, Murray KJ, Lovell DJ, Andersson-Gare B, Feldman BM, et al. Preliminary core sets of measures for disease activity and damage assessment in juvenile systemic lupus erythematosus and juvenile dermatomyositis. Rheumatology (Oxford) 2003;42:1452-9.
8. Prady SL, Norris D, Lester JE, Hoch DB. Expanding the guideline for electronic communication with patients. Application to a specific tool. J Am Med Inform Assoc 2001;8:344-8.
9. Connor JD. A look at the future of pediatric therapeutics: an investigator's perspective of the new pediatric rule. Pediatrics 1999;104:610-13.
10. FDA. Regulations requiring manufacturers to assess the safety and effectiveness of new drugs and biologic products in pediatrics patients (21 CFR Parts 201, 312, 314, and 601). Federal Register 1998:63.
11. Ruperto N, Martini A, for the Paediatric Rheumatology International Trials Organization (PRINTO). Use of unlabelled and off licence drugs in children. A European paediatric rule is needed to protect children. BMJ 2000;320:1210-11.
12. European Commission. Proposal for a regulation of the European Parliament and of the Council on medicinal products for paediatric use and amending Regulation (EEC). No 1768/92, Directive 2001/83/EC and Regulation (EC) No 726/2004. Available at http://pharmacos.eudra.org/F2/Paediatrics/ docs/_2004_09/EN.pdf (accessed 8 April 2005).