Well-being among children and adolescents with mobility impairment in relation to demographic data and disability characteristics

Acta Paediatrica, International Journal of Paediatrics

Volumn 94, Issue 5, 2005, Pages 616-623

  Jemtå, Lena ^a,b   Dahl, M ^a   Fugl Meyer, Kerstin S ^a   Stensman, Richard ^a  

^a UPPSALA UNIVERSITY   (Sweden)

^b UPPSALA UNIVERSITY HOSPITAL   (Sweden)

Author keywords

Adolescent; Children; Disability; Quality of life; Well being

Indexed keywords

ADOLESCENCE; ADOLESCENT; ADULT; AGE; ARTICLE; CHILD PARENT RELATION; DAILY LIFE ACTIVITY; DEMOGRAPHY; DIAGNOSIS RELATED GROUP; DISABILITY; FEMALE; HUMAN; IMMIGRANT; INDEPENDENCE; INDEX OF INDEPENDENCE IN ACTIVITIES OF DAILY LIVING; INTERVIEW; LOCOMOTION; MAJOR CLINICAL STUDY; MALE; MOTOR ACTIVITY; MULTIVARIATE ANALYSIS; NOCICEPTION; PAIN; PHYSICAL DISABILITY; PRIORITY JOURNAL; QUALITY OF LIFE; SCHOOL CHILD; SNOOPY SCALE; VISUAL ANALOG SCALE; WELLBEING;

ADOLESCENT; CHILD; DIAGNOSIS-RELATED GROUPS; DISABLED CHILDREN; FEMALE; HUMANS; INTERVIEWS; MALE; MOBILITY LIMITATION; PAIN; PAIN MEASUREMENT; QUALITY OF LIFE; SEVERITY OF ILLNESS INDEX; SWEDEN;

EID: 18444400852     PISSN: 08035253     EISSN: None     Source Type: Journal    
DOI: 10.1080/08035250410022152     Document Type: Article

References (35)

1. Koot HM, Wallander JL, editors. Quality of life in child and adolescent illness: concepts, methods, and findings. East Sussex, Brunner-Routledge 2001.
2. Eiser C, Morse R. Quality-of-life measures in chronic diseases in childhood. Health Technol Assess 2001:5.
3. Reid DT, Renwick RM. Preliminary validation of a new instrument to measure life satisfaction in adolescents with neuromuscular disorders. Int J Rehabil Res 1994;17:184-8.
4. Parkin PC, Kirpalani HM, Rosenbaum PL, Fehlings DL, Van Nie A, Willan AR, et al. Development of a health-related quality of life instrument for use in children with spina bifida. Qual Life Res 1997;6:123-32.
5. Climent JM, Reig A, Sanchez J, Roda C. Construction and validation of a specific quality of life instrument for adolescents with spine deformities. Spine 1995;20:2006-11.
6. Padua L, Rendeli C, Rabini A, Girardi E, Tonali P, Salvaggio E. Health-related quality of life and disability in young patients with spina bifida. Arch Phys Med Rehabil 2002;83:1384-8.
7. Pit-ten Cate IM, Kennedy C, Stevenson J. Disability and quality of life in spina bifida and hydrocephalus. Dev Med Child Neurol 2002;44:317-22.
8. Kirpalani HM, Parkin PC, Willan AR, Fehlings DL, Rosenbaum PL, King D, et al. Quality of life in spina bifida: importance of parental hope. Arch Dis Child 2000;83:293-7.
9. Lindström B, Eriksson B. Quality of life for children with disabilities. Soz Präventiv Med 1993;38:83-9.
10. Watson SMR, Keith KD. Comparing the quality of life of school-age children with and without disabilities. Ment Retard 2002;40:304-12.
11. Diener E. Subjective well-being: The science of happiness and a proposal for a national index. Am Psychol 2000;55:34-43.
12. Diener E, Lucas RE, Oishi S. Subjective well-being: The science of happiness and life satisfaction. In: Snyder CR, Lopez SJ, editors. Handbook of positive psychology. London: Oxford University Press; 2002:63-73.
13. Stensman R. Severely mobility-disabled people asses the quality of their lives. Scand J Rehab Med 1985;17:87-99.
14. Robinson C, Stalker K, editors. Growing up with disability. 1st ed. London: Jessica Kingsley Publishers; 1998.
15. Börjeson M-C, Lagergren J. Life conditions of adolescents with myelomeningocele. Dev Med Child Neurol 1990;32:698-706.
16. Mulderij KJ. Research into the lifeworld of physically disabled children. Child Care Health Dev 1996;22:311-22.
17. Jemtå L. Barn med rörelsehinder-deras upplevelse av sjukgymnastik samt värdering av faktorer i livet och trivsel med tillvaron i jämförelse med barn man rörelsehinder. Uppsala: Centrum for omvårdnadsvetenskap, Uppsala Universitet. English summary; 1996.
18. Moskowitz HR. New directions for product testing and sensory analysis of foods. Westport: Food & Nutrition Press, Inc.; 1985.
19. Katz S, Ford AB, Moskowitz RW, Jackson BA, Jaffe MW. Studies of illness in the aged. The index of ADL: a standardized measure of biological and psychosocial function. JAMA 1963;185:914-9.
20. Lindmark B, Hamrin E. Evaluation of functional capacity after stroke as a basis for active intervention. Presentation of a modified chart for motor capacity assessment and its reliability. Scand J Rehab Med 1988;20:103-9.
21. McCullagh P, Nelder JA. Generalized linear models. 2nd ed. London: Chapman & Hall; 1989.
22. Lindström B. The essence of existence. On the quality of life of children in the Nordic countries. Doctoral thesis. Göteborg, Sweden: The Nordic School of Public Health; 1994.
23. Stewart DA, Law MC, Rosenbaum P, Willms DG. A qualitative study of the transition to adulthood for youth with physical disabilities. Phys Occup Ther Pediatr 2001;21:3-21.
24. Dorner S. Adolescents with spina bifida. How they see their situation. Arch Dis Child 1976;51:439-44.
25. Hirst M. Patterns of impairment and disability related to social handicap in young people with cerebral palsy and spina bifida. J Biosoc Sci 1989;21:1-12.
26. Stevens SE, Steele CA, Jutai JW, Kalnins IV, Bortolussi JA, Biggar WD. Adolescents with physical disabilities: Some psychosocial aspects of health. J Adolesc Health 1996;19:157-64.
27. Jonsson JO. Barns och ungdomars välfärd. Barns sociala demografi, familjeförhållanden och sociala resurser (SOU 2001:55). Stockholm: Socialdepartementet; 2001.
28. Amato PR, Keith B. Parental divorce and the well-being of children: A meta-analysis. Psychol Bull 1991;110:26-46.
29. Ringback Weitoft G, Hjern A, Haglund B, Rosén M. Mortality, severe morbidity, and injury in children living with single parents in Sweden: a population-based study. Lancet 2003;361:289-95.
30. Wallander JL, Feldman WS, Varni JW. Physical status and phychosocial adjustment in children with spina bifida. J Pediatr Psychol 1989;14:89-102.
31. Meuleners LB, Lee AH, Binns CW. Assessing quality of life for adolescents in western Australia. Asia Pac J Public Health 2001;13:40-4.
32. Oberlander TF, O'Donnell ME, Montgomery CJ. Pain in children with significant neurological impairment. J Dev Behav Pediatr 1999;20:235-43.
33. Roscigno CI. Addressing spasticity-related pain in children with spastic cerebal palsy. J Neurosci Nurs 2002;34:123-33.
34. Hadden KL, von Baeyer CL. Pain in children with cerebral palsy: common triggers and expressive behaviors. Pain 2002;99:281-8.
35. Porter FL, Grunau RE, Anand KJS. Long-term effects of pain in infants. J Dev Behav Pediatr 1999;20:253-61.