Dementia diagnosis and disclosure: A dilemma in practice

Journal of Clinical Nursing

Volumn 13, Issue 3 A, 2004, Pages 22-29

  Monaghan, Catherine ^a   Begley, Ann ^a  

^a QUEEN'S UNIVERSITY BELFAST   (United Kingdom)

Author keywords

Dementia; Dementia diagnosis; Disclosure; Health care ethics; Nursing practice; Older people; Paternalism

Indexed keywords

ALZHEIMER DISEASE; HUMAN; INTERPERSONAL COMMUNICATION; MEDICAL DECISION MAKING; MEDICAL ETHICS; MEDICAL PRACTICE; MEDICAL RECORD; NURSING EDUCATION; PATIENT CARE; PATIENT RIGHT; REVIEW; TEAMWORK; THEORY;

EID: 1842453959     PISSN: 09621067     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1365-2702.2004.00922.x     Document Type: Review

References (49)

1. Beauchamp T.L. & Childress J.F. (1994) Principles of Biomedical Ethics, 4th edn. Oxford University Press, Oxford.
2. Begley A.M. (2003) Creative approaches to ethics: poetry, prose and dialogue. In Approaches to Ethics (Tschudin V. ed.). Butterworth Heineman, London, pp. 125-135.
3. Begley A.M. & Blackwood B. (2000) Truth-telling versus hope: a dilemma in practice. International Journal of Nursing Practice 6, 26-31.
4. Berghmans R.L.P. & Widdershoven G.A.M. (1997) Ethics in Dementia care: a Booklet for Professional Carers. (English version), pp. 1-19. Available at: http://www.each.be (accessed 12 March 2002).
5. Botes A. (2000) An integrated approach to ethical decision-making in the health team. Journal of Advanced Nursing 32, 1076-1082.
6. Brown J.M., Kitson A.L. & McKnight T.J. (1992) Challenges in Caring: Explorations in Nursing and Ethics. Chapman and Hall, London.
7. Burnard P. (1992) Making ethical decisions. Journal of Community Nursing 6, 18-19.
8. Chauhan G. & Long A. (2000) Communication is the essence of nursing care 2: ethical foundations. British Journal of Nursing 9, 979-984.
9. Cheston R. & Bender M. (1999) Understanding Dementia: The Man with the Worried Eyes. Jessica Kingsley Publishers Ltd, London.
10. Clarke C. (2003) The community mental health nurse role in sharing a diagnosis of dementia. In Community Mental Health Nursing and Dementia Care (Keady J., Clarke C.L. & Adams T. eds). Open University Press, London.
11. Cox S. & Keady J. (1999) Younger People with Dementia. Jessica Kingsley Publishers Ltd, London.
12. Day L.J. (1999) Developing trust and connection with patients and their families. Critical Care Nurse 19, 66-70.
13. Department of Health (2001) National Service Framework for Older People. The Stationery Office, London.
14. Department of Health, Social Services and Public Safety (2002) Review of Community Care: First Report. Department of Health, Social Services and Public Safety, Belfast.
15. Edwards S.D. (1996) Nursing Ethics. A Principle-Based Approach. Macmillan Press Ltd, London.
16. Ellis P.A. (1993) Role of ethics in modern healthcare: 1. British Journal of Nursing 2, 144-146.
17. Fahy M., Wald C., Walker Z. & Livingstone G. (2003) Secrets and lies: the dilemma of disclosing the diagnosis to an adult with dementia. Age and Ageing 32, 439-441.
18. Fletcher J.F. (1974) Four indicators of human hood - the enquiry matures. Hastings Centre Report 4, 4-7.
19. Fox G. (1995) Guiding principles. Nursing Times 91, 62-63.
20. Hawkins D. & Eagger S. (1999) Group therapy: sharing the pain of diagnosis. Journal of Dementia Care 7, 12-13.
21. Higgs R. (1985) On telling patients the truth. In Moral Dilemmas in Modern Medicine (Lockwood M. ed.). Oxford University Press, Oxford.
22. Hope T. (1995) Deception and lying. Journal of Medical Ethics 21, 67-68.
23. Husband H. (1996) Sharing the diagnosis - how do carers feel? Journal of Dementia Care 4, 18-20.
24. Husband H. (1999) The psychological consequences of learning a diagnosis of dementia: three case examples. Aging and Mental Health 3, 179-183.
25. Jackson J. (1991) Telling the truth. Journal of Medical Ethics 17, 5-9.
26. Jackson J. (1993) On the morality of deception - does method matter? A reply to David Bakhurst. Journal of Medical Ethics 19, 183-187.
27. Jones R.G. (1997) Ethical and legal issues in the care of demented people. Reviews in Clinical Gerontology 7, 147-162.
28. Keady J., Clarke C.L. & Adams T. (2003) Community Mental Health Nursing and Dementia Care. Open University Press, London.
29. Kendrick K. (1994a) Tools which aid the decision-making process: addressing moral dilemmas in nursing practice. Professional Nurse 9, 632-636.
30. Kendrick K. (1994b) A freedom to choose: the ethics of informed consent. Professional Nurse 9, 739-742.
31. Kitwood T. (1997) Dementia Reconsidered: the Person comes First. Open University Press, Buckingham.
32. Kovach C. R. (1997) Moral and intellectual imagination. Journal of Gerontological Nursing 23, 5-6.
33. McCormack B. (2002) The person of the voice: narrative identities in informed consent. Nursing Philosophy 3, 114-119.
34. Maguire C.P., Kirby M., Coen R., Coakley D. & Lawlor B.A. (1996) Family members' attitudes toward telling the patient with Alzheimer's disease their diagnosis. British Medical Journal 313, 529-530.
35. Marzanski M. (2000) Would you like to know what is wrong with you? On telling the truth to patients with dementia. Journal of Medical Ethics 26, 108-113.
36. Nursing and Miderwifery Council (2002) Code of Professional Conduct. Nursing and Midwifery Council, London.
37. Pinner G. (2000) Truth-telling and the diagnosis of dementia. The British Journal of Psychiatry 176, 514-518.
38. Post S.G., Volicer L. & Ortigara A. (1999) The real-world ethics of dementia. Annals of Long-term Care 7(Special Issue), 6-11.
39. Pratt R. & Wilkinson H. (2001) Tell Me the Truth: the Effect of Being Told the Diagnosis from the Perspective of the Person with Dementia. The Mental Health Foundation, Stirling.
40. Rice K. & Warner N. (1994) Breaking the bad news: what do psychiatrists tell patients with dementia about their illness? International Journal of Geriatric Psychiatry 9, 467-471.
41. Scott H. (2001) People with dementia are not told their diagnosis. British Journal of Nursing 10, 1096.
42. Smith A., King E., Hindley N., Barneston L., Barton J. & Jobst K.A. (1998) The experience of research participation and the value of diagnosis in dementia: implications for practice. Journal of Mental Health 7, 309-321.
43. Thompson I.E., Melia K.M. & Boyd K.M. (2000) Nursing Ethics, 4th edn. Churchill Livingstone, London.
44. Walton J. (1999) Young-onset dementia. In Dementia Care: Developing Partnerships in Practice (Adams T. & Clarke C.L. eds). Bailliere Tindall, London.
45. World Health Organisation (1998) Health 21-Health for All in the 21st Century. WHO, Copenhagen.
46. World Health Organisation (2000) Social Development and Ageing: Crisis or Opportunity? pp. 1-12. Available at: http:// www.who.int/ageing/global- movement/docs.html (accessed 21 March 2003).
47. Williams B.O. (2000) Ageism helps to ration medical treatment. Health Bulletin 58, 198-201.
48. Wolff L.E., Woods J.P. & Reid J. (1995) Do general practitioners and old age psychiatrists differ in their attitudes to dementia? International Journal of Geriatric Psychiatry 10, 63-69.
49. Yeo M.T. (1991) Concepts and Cases in Nursing Ethics. Broadview Press Ltd, Peterborough.