Ethical and legal issues in the care of demented people

Reviews in Clinical Gerontology

Volumn 7, Issue 2, 1997, Pages 147-162

  Jones, R G ^a  

^a QUEEN S MEDICAL CENTRE   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

NEUROLEPTIC AGENT;

BEHAVIOR MODIFICATION; CONFIDENTIALITY; DECISION MAKING; DEMENTIA; EUTHANASIA; EXTRAPYRAMIDAL SYMPTOM; HEALTH CARE COST; HUMAN; INSTITUTIONALIZATION; JUSTICE; LAW SUIT; LIVING WILL; LONG TERM CARE; MEDICAL ASSESSMENT; MEDICAL ETHICS; MEDICOLEGAL ASPECT; NOSE FEEDING; QUALITY OF LIFE; REVIEW; SEXUAL BEHAVIOR; SOCIAL WELFARE; TERMINAL DISEASE;

EID: 0030795202     PISSN: 09592598     EISSN: None     Source Type: Journal    
DOI: 10.1017/S0959259897000166     Document Type: Review

References (94)

1. Jones RG. Ethical and legal issues in the care of demented people. Rev Clin Gerontol 1993; 3: 55-68.
2. Jonsen AR. The end of medical ethics. J Am Geriatr Soc 1992; 40: 393-97.
3. Law Commission. Mental incapacity, Report no. 231. London: HMSO, 1995.
4. Evans JG. The sanctity of life. In: Elford RJ ed. Medical ethics & elderly people. Edinburgh: Churchill Livingstone, 1987: 78-92.
5. Oppenheimer C. Ethics and the psychiatry of old age. In: Jacoby R, Oppenheimer C eds. Psychiatry in the elderly. Oxford: Oxford University Press, 1991: 940-50.
6. House of Lords Select Committee on Medical Ethics. Report for the Select Committee on Medical Ethics. London: HMSO, 1994.
7. Boyd KM ed. Report of a working party on the teaching of medical ethics - the Pond report. London: IME Publications, 1987.
8. Weatherall DJ. Teaching ethics to medical students [Editorial]. J Med Ethics 1995; 21: 133-34.
9. Jackson J. Telling the truth. J Med Ethics 1991; 17: 5-9.
10. Hope T. Deception and lying [Editorial]. J Med Ethics 1995; 21: 67-68.
11. Pitt B. Exercising restraint [Editorial]. Int J Geriatr Psychiatry 1988; 2: 207-10.
12. Dodds F. Exercising restraint: autonomy, welfare and elderly patients. J Med Ethics 1996; 22: 160-63.
13. Singer PA, Choudry S, Armstrong J. Public opinion regarding consent to treatment. J Am Geriatr Soc 1993; 41: 112-16.
14. Age Concern. Abuse of elderly people. Guidelines for action. London: Age Concern England, 1990.
15. Sundström P. Debate: Peter Singer and 'Lives not worth living' - comments on a flawed argument from analogy. J Med Ethics 1995; 21: 35-38.
16. Emanuel LL, Emanuel EJ. Decisions at the end of life: guided by communities of patients. Hastings Cent Rep 1993; 23: 6.
17. Gillett G. Euthanasia, letting die and the pause. J Med Ethics 1989; 14: 61-68.
18. Beauchamp TL, Childress JF. Principles of biomedical ethics, third edition. Oxford: Oxford University Press, 1989.
19. Bloch S, Chodoff P. Psychiatric ethics, second edition. Oxford: Oxford University Press, 1991.
20. Holm S. Not just autonomy - the principles of American biomedical ethics. J Med Ethics 1995; 21: 332-38.
21. Gillon R. Medical ethics: four principles plus scope. BMJ 1994; 309: 184-88.
22. Ekman SL, Norberg A. The autonomy of demented patients: interviews with caregivers. J Med Ethics 1988; 14: 184-87.
23. Jones RG. Problems in senile dementia. Elford RJ ed. Medical ethics and elderly people. Edinburgh: Churchill Livingstone, 1987: 49-68.
24. Norman AJ. Rights and risk. London: National Corporation for the Care of Old People, 1980.
25. Age Concern. The law and vulnerable elderly people. London: Age Concern Publications, 1986.
26. The Law Commission. Mentally incapacitated adults and decision-making: an overview. Consultation paper no. 119. London: HMSO, 1991.
27. McKnight CJ. Autonomy and the akratic patient. J Med Ethics 1993; 19: 206-10.
28. Gillon R. Autonomy, respect for autonomy, and weakness of will [Editorial]. J Med Ethics 1994; 19: 195-96.
29. A Working Party Report under the auspices of the Age Concern Institute of Gerontology and the Centre of Medical Law and Ethics, King's College, London. The living will: consent to treatment at the end of life. London: Edward Arnold, 1988.
30. Ryan CJ. Betting your life: an argument against certain advance directives. J Med Ethics 1996; 22: 95-99.
31. Dyck AJ. Ethical aspects of care of the dying incompetent. J Am Geriatr Soc 1984; 32: 661-64.
32. Veatch RM. An ethical framework for terminal care decisions: a new classification of patients. J Am Geriatr Soc 1984; 32: 665-69.
33. Sonnenblick M, Friedlander Y, Steinberg A. Dissociation between the wishes of terminally ill parents and decisions by their offspring. J Am Geriatr Soc 1993; 41: 599-604.
34. Nelson JL, Nelson HL. Guided by intimates. Hastings Cent Rep 1993; 23: 14.
35. Elliott C. The rules of insanity: moral responsibility in mental disorder. New York: State University of New York Press, 1994.
36. Annas GJ. Nancy Cruzan and the right to die. N Engl J Med 1990; 323: 670-73.
37. Hope T. Advance directives [Editorial]. J Med Ethics 1996; 22: 67-68.
38. Elliott C, Elliott B. From the patient's point of view: medical ethics and the moral imagination. J Med Ethics 1991; 17: 173-78.
39. Royal College of Nursing, British Geriatrics Society and the Royal College of Psychiatrists. Improving care of elderly people in hospital. London: RCN, 1986.
40. Rabkin MT. Cost containment - ethical implications. J Am Geriatr Soc 1992; 40: 413-16.
41. Wikler D. Ethics and rationing: 'whether', 'how', or 'how much?' J Am Geriatr Soc 1992; 40: 398-403.
42. Schneider LF, Pollock VE, Lyness SA. A meta-analysis of controlled trials of neuroleptic treatment in dementia. J Am Geriatr Soc 1990; 38: 553-63.
43. McGrath AM, Jackson GA. Survey of neuroleptic prescribing in residents of nursing homes in Glasgow. BMJ 1996; 312: 611-12.
44. Levin E. Carers - problems, strains, and services. In: Jacoby R, Oppenheimer C eds. Psychiatry in the elderly. Oxford: Oxford University Press, 1991: 301-12.
45. Mace NL, Rabins PV. The 36-hour day. London: Johns Hopkins Press, 1986.
46. Daniels N. Am I my parents' keeper? Oxford: Oxford University Press, 1988.
47. Williams A. Cost-effectiveness analysis: is it ethical? J Med Ethics 1992; 18: 7-11.
48. Dickson J, Welsh HG. Priority setting; lessons from Oregon. Lancet 1991; 337: 891-94.
49. Tooley N. Abortion and infanticide. Philos Publ Affairs, 1972; 2: 37-65.
50. Brock DW. Justice and the severely demented elderly. J Med Philos 1988; 13: 73-99.
51. Rosser RM, Watts VC. The measurement of hospital output. Int J Epidemiol 1972; 1: 361-66.
52. Williams A. Quality-adjusted life-years. Lancet 1987; ii: 1372.
53. Black D. Paying for health. J Med Ethics 1991; 17: 117-23.
54. Harris J. Unprincipled QALY's: a response to Cubbon. J Med Ethics 1991; 17: 185-88.
55. Harris J. Double jeopardy and the veil of ignorance - a reply. J Med Ethics 1995; 21: 151-57.
56. Harris J. Debate: would Aristotle have played Russian roulette? J Med Ethics 1996; 22: 209-15.
57. Calman KC. The ethics of allocation of scarce health care resources: a view from the centre. J Med Ethics 1994; 20: 71-74.
58. Hunt RW. Debate: a critique of using age to ration health care. J Med Ethics 1993; 19: 19-23.
59. Stanley JM. The Appleton Consensus: suggested international guidelines for decisions to forego medical treatment. J Med Ethics 1989; 15: 129-36.
60. Institute of Medical Ethics Working Party. Withdrawal of life-support from patients in a persistent vegetative state. Lancet 1991; 337: 96-98.
61. Institute of Medical Ethics Working Party. Assisted death. Lancet 1990; 336: 610-13.
62. House of Lords, Law Report. Withdrawal of medical treatment from hopeless case not unlawful. The Times Feb 5 1993.
63. Clouston E, Dyer C. Life or death decision goes to Lord Advocate. The Guardian Mar 23 1996.
64. Dyer C. Judge rules doctors can let coma woman die. The Guardian 25 Apr 1996.
65. van der Maas PJ, van Delden JJM, Pijnenborg L, Looman CWN. Clinical practice: euthanasia and other medical decisions concerning the end of life. Lancet 1991; 338: 669-74.
66. Jochemson H. Euthanasia in Holland: ethical critique of the new law. J Med Ethics 1994; 20: 212-17.
67. Millard P. Kill or care: euthanasia and the doctor in the UK. Geriatr Med 1992; 22: 16.
68. Royal College of Psychiatrists. Joint working group on the consent of non-volitional patients and de facto detention of informal patients. Council Report CR6. London: Royal College of Psychiatrists, 1989.
69. Craig GM. On withholding artificial hydration and nutrition from terminally ill sedated patients. The debate continues. J Med Ethics 1996; 22: 147-53.
70. Morgan R, King D, Prajapati C, Rowe J. Views of elderly patients and their relatives on cardiopulmonary resuscitation. BMJ 1994; 308: 1677-78.
71. Doyal L, Wilsher D. Withholding cardiopulmonary resusciation: proposals for formal guidelines. BMJ 1993; 306: 1593-96.
72. Black D. Guidelines or gumption? The role of medical responsibility: a view from the profession. In: Hirsch S, Harris J eds. Consent and the incompetent patient - ethics, law and medicine. London: Royal College of Psychiatrists, 1986: 29-31.
73. Briscoe M, Harris B. Compulsory detention in hospital under the Mental Health Act 1983. BMJ 1987; 294: 1141-44.
74. DoH. Mental Health Act 1983, Code of Practice. London: HMSO, 1990.
75. Brahams D. Involuntary hospital admission under Section 47 of the National Assistance Act. Lancet 1987; ii: 406.
76. Greaves DA. Can compulsory removal ever be justified for adults who are mentally competent? J Med Ethics 1991; 17: 189-94.
77. Muir Gray JA. Section 47 - Assault on or protection of the freedom of the individual? A short response to Greaves. J Med Ethics 1991; 17: 195, 204.
78. Wear AN, Brahams D. At the coalface: to treat or not to treat: the legal, clinical and therapeutic implications of treatment refusal. J Med Ethics 1991; 17: 131-35.
79. Carson D, Being prepared, In: Carson D ed. Making the most of the Court of Protection: a guide to the law relating to the Court of Protection and of making use of the Court's services. London: King's Fund Centre, 1987: 14-23.
80. Public Trust Office. Handbook for receivers. London: Public Trust Office, 1988.
81. Public Trust Office. Enduring powers of attorney. London: Public Trust Office, 1989.
82. Department of Social Security. The Social Security (Claims and Payments) Regulations 1987, reg. 33. S.I. 1987/ 1968. London: HMSO, 1987.
83. Jacoby R. Appointeeship. In: Jacoby R, Oppenheimer C eds. Psychiatry in the elderly. Oxford: Oxford University Press, 1991: 935-36.
84. Benbow SM, Jones RG. Mental incapacity - implications of the Law Commission Report. Psychiatr Bull 1996; 20: 645-47.
85. Fulford KWM, Hows CK. Ethics of research with psychiatric patients: principles, problems and primary responsibilities of researchers. J Med Ethics 1993; 19: 85-91.
86. Kosberg JI. Abuse and maltreatment of the elderly: causes and interventions. Bristol and Massachusetts: John Wright and Son, 1983.
87. Quinn MJ, Tomita SK. Elder abuse and neglect: causes, diagnosis and intervention strategies. New York: Springer, 1986.
88. Brahams D. Sterilisation of a mentally incapable woman. Lancet 1989; i: 1275-76.
89. Applebaum PS, Grisso T. Assessing patient's capacities to consent to treatment. N Engl J Med 1988; 319: 1635-38.
90. Roth LH, Meisel A, Lidz CW. Tests of competency to consent to treatment. Am J Psychiatry 1977; 134: 279-84.
91. USA President's Commission for the study of ethical problems in medicine and biomedical and behavioural research, making health care decisions: a report on the ethical and legal implications of informed consent in the patient/practitioner relationship. Washington, DC: US Government Printing Office, 1982.
92. Tepper AM, Elwork A. Competence to consent to treatment as a psycholegal constraint. Law Hum Behav 1884; 8: 205-23.
93. Silberfeld M, Fish A. When the mind fails: a guide to dealing with incompetency. Toronto: University of Toronto Press, 1994.
94. Glover N, Brazier M. Ethical aspects of the Law Commission Report on mental incapacity. Rev Clin Gerontol 1996; 6: 365-70.