Reliability of information collected by proxy in family studies of Alzheimer's disease

Neuroepidemiology

Volumn 20, Issue 2, 2001, Pages 105-111

  Demissie, Serkalem ^a   Green, Robert C ^a,b   Mucci, Lorelei ^a   Tziavas, Sophia ^a   Martelli, Kathy ^c   Bang, Kaitlin ^a   Coons, Lisa ^d   Bourque, Sylvie ^j   Buchillon, Dina ^e   Johnson, Kris ^f   Smith, Tamisson ^g   Sharrow, N ^h   Lautenschlager, Nicola ^k   Friedland, Robert ⁱ   Cupples, L Adrienne ^a   Farrer, Lindsay A ^a,b  

^a HARVARD MEDICAL SCHOOL   (United States)

^b BOSTON UNIVERSITY SCHOOL OF MEDICINE   (United States)

^c UNIVERSITY OF SOUTHERN CALIFORNIA   (United States)

^d UNIVERSITY OF WASHINGTON   (United States)

^e UNIVERSITY OF MIAMI MILLER SCHOOL OF MEDICINE   (United States)

^f MAYO CLINIC   (United States)

^g UNIVERSITY OF KANSAS SCHOOL OF MEDICINE   (United States)

^h The University of Alabama at Birmingham   (United States)

ⁱ CASE WESTERN RESERVE UNIVERSITY SCHOOL OF MEDICINE   (United States)

^j UNIVERSITY OF BRITISH COLUMBIA   (Canada)

^k NONE

more..

Author keywords

Statistic; Alzheimer's disease; Informants; Nonresponse; Proxy data; Reliability

Indexed keywords

ADULT; AGED; ALZHEIMER DISEASE; ARTICLE; CORRELATION FUNCTION; FAMILY STUDY; FEMALE; HEAD INJURY; HUMAN; INFORMATION PROCESSING; MAJOR CLINICAL STUDY; MALE; RELIABILITY;

AGED; ALZHEIMER DISEASE; FEMALE; HEALTH BEHAVIOR; HEALTH STATUS; HUMANS; MALE; MEDICAL HISTORY TAKING; MIDDLE AGED; PROXY; REPRODUCIBILITY OF RESULTS;

EID: 17744383775     PISSN: 02515350     EISSN: None     Source Type: Journal    
DOI: 10.1159/000054768     Document Type: Article

References (20)

1. Farrer LA: Genetics and the dementia patient. Neurologist 1997;3:13-30.
2. Nelson LM, Longstreth WT, Koepsell TD, Checkoway H, Belle GV: Completeness and accuracy of interview data from proxy respondents: Demographic, medical and lifestyle factors. Epidemiology 1994;5:204-217.
3. Nelson LM, Longstreth WT, Koepsell TD, Belle GV: Proxy respondents in epidemiologic research. Epidemiol Rev 1990;12:71-78.
4. Pickle LW, Brown LM, Blot WJ: Information available from surrogate respondents in case control interview studies. Am J Epidemiol 1983;118:99-108.
5. Blot WJ, McLaughlin JK: Practical issues in the design and conduct of case-control studies: Use of next-of-kin interviews; in Blot WJ, Hirayama T, Hoel DG (ed): Statistical Methods in Cancer Research. Hiroshima, Radiation Effects Research Foundation, 1984, pp 49-62.
6. Little RJA, Rubin DB: Statistical Analysis with Missing Data. New York, Wiley, 1987.
7. Lautenschlager NT, Cupples LA, Rao VS, Auerbach SA, Becker R, Burke J, Chui H, Duara R, Foley EJ, Glatt SL, Green RC, Jones R, Karlinsky H, Kukull WA, Kurz A, Larson EB, Martelli K, Sadovnick AD, Volicer L, Waring SC, Growdon JH, Farrer LA: Risk of dementia among relatives of Alzheimer's disease patients in the MIRAGE study: What is in store for the oldest of the old. Neurology 1996;46:641-650.
8. Fleiss JL: Statistical Methods for Rates and Proportions. New York, Wiley, 1981.
9. Landis JR, Koch GG: The measurement of observer agreement for categorical data. Biometrics 1977;33:159-174.
10. SAS Institute Inc: http://ftp.sas.com/techsup/ download/stat/jackboot.sas, 1999.
11. SAS Institute Inc: http://ftp.sas.com/techsup/ download/stat/intracc.sas, 1999.
12. Bartko JJ:The intraclass correlation coefficient as a measure of reliability. Psychol Rep 1966; 19:3-11.
13. Tepper A, Connally LB, Haltmeier P, Smith E, Sweeney MH: Knowledge of medical history information among proxy respondents for deceased study subjects. J Clin Epidemiol 1993; 46:1243-1248.
14. Wynder EL: Epidemiological issues in weak associations. Int J Epidemiol 1990;19:S5-S7.
15. Herrmann N: Retrospective information from questionnaires: Comparability of primary respondents and their next-of-kin. Am J Epidemiol 1985;121:937-947.
16. Broe GA, Henderson AS, Creasey H, McCusker E, Korton AE, Jorm AF, Longley W, Anthony JC: A case-control study of Alzheimer's disease in Australia. Neurology 1990;40:1698-1707.
17. Graves AB: A case-control study of Alzheimer's disease. Unpublished PhD thesis, University of Washington, 1988.
18. Heyman A, Wilkinson WE, Stafford JA, Helms MJ, Sigmon AH, Weinberg T: Alzheimer's disease: A study of epidemiological aspects. Ann Neurol 1984;15:335-341.
19. Rocca WA, Fratiglioni L, Bracco L, Bracco L, Pedone D, Groppi C, Schoenberg BS: The use of surrogate respondents to obtain questionnaire data in case-control studies of neurologic diseases. J Chronic Dis 1986;39:907-912.
20. Korten AE, Jorn AF, Henderson AS, McCusker E, Creasey H: Control-informant agreement on exposure history in case-control studies of Alzheimer's disease. Int J Epidemiol 1992;21:1121-1131.