The measurement of health-related quality of life;Medida de la calidad de vida relacionada con la salud

Medicina Clinica

Volumn 114, Issue SUPPL. 3, 2000, Pages 22-25

  Herdman, Michael ^a  

^a UNIVERSITY OF BARCELONA   (Spain)

Author keywords

Effectiveness studies; Health outcomes research; Health related quality of life

Indexed keywords

ARTICLE; COST OF ILLNESS; HUMAN; OUTCOME ASSESSMENT; QUALITY OF LIFE; SICKNESS IMPACT PROFILE;

COST OF ILLNESS; HUMANS; OUTCOME ASSESSMENT (HEALTH CARE); QUALITY OF LIFE; SICKNESS IMPACT PROFILE;

EID: 17444443687     PISSN: 00257753     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (55)

1. Sanders C, Egger M, Donovan J, Talion D, Frankel S. Reporting on quality of life in randomised controlled trials bibliographic study. Br Med J 1998; 317: 1191-1194.
2. Guyatt C, Feeny D, Patrick DL. Measuring health-related quality of life. Ann Intern Med 1993; 118: 622-629.
3. Epstein RS, Sherwood LM. From outcomes research to disease management: a guide for the perplexed. Ann Intern Med 1996; 124: 832-837.
4. Clancy CM, Eisenberg JM. Outcomes research: measuring the end results of health care. Science 1998; 282: 245-246.
5. Simon G, Wagner E, Vonkorff M. Cost-effectiveness comparisons using «real world» randomized trials: the case of new antidepressant drugs. J Clin Epidemiol 1995; 48: 363-373.
6. Solo J, Sacristan JA, Galende I. Estudios naturalísticos para valorar la efectividad de los medicamentos tras su comercialización: ¿por qué, cuàndo y cómo? Aten Primaria 1998; 22: 182-185.
7. Revicki DA, Frank L. Pharmacoeconomic evaluation in the real world. Effectiveness versus efficacy studies. Pharmacoeconomics 1999; 15: 423-434.
8. Liang MH, Shadick N. Feasibility and utility of adding disease-specific outcome measures to administrative databases to improve disease management. Ann Intern Med 1997; 127: 739-742.
9. Kazis LE, Anderson JJ, Meenan RF. Effect sizes for interpreting changes in health status. Med Care 1989; 27: S178-189.
10. Ferrer M, Alonso J, Morera J, Marrades RM, Khalaf A, Aguar MC et al. Chronic obstructive pulmonary disease stage and health-related quality of life. The Quality of Life of Chronic Obstructive Pulmonary Disease Study Group. Ann Intern Med 1997; 127: 1072-1079.
11. Torres X, Arroyo S, Araya S, De Pablo J. The Spanish Version of the Quality-of-Life in Epilepsy Inventory (QOLIE-31): translation, validity, and reliability. Epilepsia 1999; 40: 1299-1304.
12. Safrin S, Finkelstein DM, Feinberg J, Frame P, Simpson G, Wu A at al. Comparison of three regimens for treatment of mild to moderate Pneumocystis carinii pneumonia in patients with AIDS. A double-blind, randomized, trial of oral trimethoprim-sulfamethosazole, dapsone-trimethoprim, and clindamycin-primaquine. ACTG 108 Study Group. Ann Intern Med 1996; 124: 792-802.
13. Wu AW, Gray SM, Brookmeyer R. Application of random effects models and other methods to the analysis of multidimensional quality of life data in an AIDS clinical trial. Med Care 1999; 37: 249-258.
14. Murawski MM, Miederhoff PA. On the generalizability of statistical expressions of health related quality of life instrument responsiveness: a data synthesis. Qual Life Res 1998; 1:11-22.
15. Badia X, Podzamczer D, García M, López-Lavid CC, Consiglio E. A randomized study comparing instruments for measuring health-related quality of life in HIV-infected patients. Spanish MOS-HIV and MQOL-HIV Validation Group. Medical Outcomes Study HIV Health Survey. AIDS 1999; 13: 1727-1735.
16. Liang MH, Fossel AH, Larson MG. Comparisons of five health status instruments for orthopedic evaluation. Med Care 1990; 28: 632-642.
17. Badia X, Mascaró JM, Lozano R. Measuring health-related quality of life in patients with mild to moderate eczema and psoriasis: clinical validity, reliability and sensitivity to change of the DLQI. Br J Dermatol 1999; 141:698-702.
18. Paterson C. Measuring outcomes in primary care: a patient generated measure, MYMOP, compared with the SF-36 health survey. Br Med J 1996; 312: 1016-1020.
19. Rutten-van Molken MP, Custers F, Van Doorslaer EK, Jansen CC, Heurman L, Maesen FP et al. Comparison of performance of four instruments in evaluating the effects of salmeterol on asthma quality of life. Eur Respir 1995; 8: 888-898.
20. Badia X, Salamero M, Alonso J. La medida de la salud. Guia de escalas de medición en español. Barcelona: Edimac, 1999.
21. Roset M, Badia X, Mayo NE. Sample size calculations in studies using the EuroQol 5D. Qual Life Res 1999; 8: 539-549.
22. Badia X, Baró E. Level of development of health and HRQOL measurement instruments in Spain. Qual Life Res 1999; 8: 631.
23. Xuan J, Kirchdoerfer U, Boyer JG, Norwood GJ. Effects of comorbidity on health-related quality-of-life scores: an analysis of clinical trial data. Clin Ther 1990; 21: 383-403.
24. Stier DM, Greenfield S, Lubeck DP, Dukes KA, Flanders SC, Henning JM et al. Quantifying comorbidity in a disease-specific cohort: adaptation of the total illness burden index to prostate cancer. Urology 1999; 54: 424-429.
25. Scharloo M, Kaptein AA, Weinman JA, Hazes JM, Breedveld FC, Rooijmans HG. Predicting functional status in patients with rheumatoid arthritis. J Rheumatol 1999; 26: 1686-1693.
26. Dyer CA, Hill SL, Stocklay RA, Sinclair AJ. Quality of life in elderly subjects with a diagnostic label of asthma from general practice registers. Eur Respir J 1999; 14: 39-45.
27. Holzemer WL, Corless IB, Nokes KM, Turner JG, Brown MA, Powell-Cope GM. Predictors of self-reported adherence in persons living with HIV disease. Aids Patient Care STDS 1999; 13: 185-197.
28. Badia X, Roset M, Montserrat S, Hardman M, Segura A. La versión espan̄ola del EuroQol: descripción y aplicaciones. Med Clin (Bare) 1999; 112 (Supl 1): 79-86.
29. Diez-Pérez A, Badia X, Díez-López D, Rosat M, Alvarez C. Efecto del número, grado y localización de las fracturas vertebrales sobre la calidad de vida relacionada con la salud en mujeres espan̄olas con osteoporosis establecida. Rev Esp Enf Metab Óseas 1999; 8 (Supl A): 9.
30. Regidor E, Barrio G, De la Fuente L, Domingo A, Rodriguez C, Alonso J. Association between educational level and health related quality of life in Spanish adults. J Epidemiol Commun Health 1999; 53: 75-82.
31. D'Agostino RB, Kwan H. Measuring effectiveness. What to expect without a randomized control group. Med Care 1995; 3 (Supl 4): AS95-105.
32. Valderrama Gama E, Rodriguez Artalejo F, Palacios Diaz A, Gabarre Orus P, Pérez del Molino Martín J. Consumo de medicamentos en los ancianos: resultados de un estudio poblacional. Rev Esp Salud Publ 1998; 72: 209-219.
33. Ware J Jr, Kosinski M, Keller SD. A 12-ltern Short-Form Health Survey: construction of scales and preliminary tests of reliability and validity. Med Care 1996; 34: 220-233.
34. Prieto L, Alonso J, Lamarca R, Wright BD. Rasch measurement for reducing the items of the Nottingham Health Profile. J Outcome Meas 1998; 2: 285-301.
35. Lukacs B, Comet D, Grange JC, Thibault P. Construction and validation of a short-form benign prostatic hypertrophy health-related quality-of-life questionnaire. BPH Group in General Practice. Br J Urol 1997; 80; 722-730.
36. Prieto L, Badia X, Roset M, Díaz-Pérez A. Development of an osteoporosis quality of life questionnaire for clinical practice by equating items from two existing instruments. Qual Life Res 1999; 8: 652.
37. Hyland ME, Singh SJ, Sodergren SC, Morgan MP. Development of a shortened version of the Breathing Problems Questionnaire suitable for use in a pulmonary rehabilitation clinic: a purpose-specific, disease-specific questionnaire. Qual Life Res 1998; 7: 227-233.
38. Barley EA, Quirk FH, Jones PW. Asthma health status measurement in clinical practice: validity of a new short and simple instrument. Respir Med 1998; 92: 1207-1214.
39. Ware JE, Keller SD. Interpreting general health measures. En: Spilker B, editor. Quality of life and pharmacoeconomics in clinical trials. Filadelfia: Lippincott-Raven, 1996; 445-460.
40. Wright BD, Stone MH. Best test design: rasch measurement. Chicago: Mesa Press, 1979.
41. McKenna SP, Doward LC, Alonso J. Kohlmann T, Niero M, Prieto L et al. The Qol-AGHDA: an instrument for the assessment of quality of life in adults with growth hormone deficiency. Qual Life Res 1999; 8: 373-383.
42. Patrick DL, Bergner M. Measurement of health status in the 1990s. Annu Rev Public Health 1990; 11: 165-183.
43. Haley SM, McHorney CA, Ware JE Jr. Evaluation of the MOS SF-36 physical functioning scale (PF-10): I. Unidimensionality and reproducibility of the Rasch item scale. J Clin Epidemiol 1994; 47: 671-684.
44. Raczek AE, Ware JE, Bjorner JB, Gandek B, Haley SM, Aaronson NK. Comparison of Rasch and summated rating scales constructed from SF36 physical functioning items in seven countries: results from the IQOLA Project. International Quality of Life Assessment. J Clin Epidemiol 1998; 51: 1203-1214.
45. McHorney CA. Generic health measurement: past accomplishments and a measurement paradigm for the 21st century. Ann Intern Med 1997; 127: 743-750.
46. Sherbourne CD, Sturm R, Wells KB. What outcomes matter to patients? J Gen Intern Med 1999; 14: 357-353.
47. Badia X, Herdman M, Kind P. The influence of ill-health experience on the valuation of health. Pharmacoeconomics 1998; 13: 687-696.
48. Badia X, Schiaffino A, Alonso J, Herdman M. Using the EuroQol 5-D in the Catalan general populatfon: feasibility and construct validity. Qual Life Res 1998; 7: 311-322.
49. Hurst NP, Jobanputra P, Hunter M, Lambert M, Lochhead A, Brown H. Validity of EuroQol - a generic health status instrument in patients with rheumatoid arthritis. Economic and Health Outcomes Research Group. Br J Rheumatol 1994; 33: 655-662.
50. O'Boyle CA, McGee H, Hickey A, O'Malley K, Joyce CR. Individual quality of life in patients undergoing hip replacement. Lancet 1992; 339: 1088-1091.
51. Ruta DA, Garratt AM, Leng M, Russell IT, MacDonald LM. A new approach to the measurement of quality of life. The Patient-Generated Index. Med Care 1994; 32: 1109-1126.
52. Herdman M, Fox-Rushby J, Badia X. A model of equivalence in the cultural adaptation of HRQoL instruments: the universalist approach. Qual Life Res 1998; 7: 323-335.
53. Sprangers MA, Schwartz CE. Integrating response shift into health-related quality of life research: a theoretical model. Soc Sci Med 1999; 48: 1507-1515.
54. Schwartz CE, Feinberg RG, Jilinskaia E, Applegate JC. An evaluation of a psychosocial intervention for survivors of childhood cancer: paradoxical effects of response shift over time. Psychooncology 1999; 8: 344354.
55. Schwartz CE, Sprangers MA. Methodological approaches for assessing response shift in longitudinal health-related quality-of-life research. Soc Sci Med 1999; 48: 1531-1548.